Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 My name is and I have had MCTD for 4 1/2 years. My primary problem is Rheumatoid arthritis. I have tried Methotrexate but can't take it. Bad side effects. Am currently on Plaquenil and that helped a lot for a couple of years but then had to add Arava to the mix. I still take the Arava but had to cut my dose in half due to low white bloodcell count. Well my counts are still low at the half dosage and it isn't working like it should. My doctor now wants to start me on Enbrel but I have my reservations. I still have 5 kids at home and you all know that brings in sickness from school. Not to mention all the black box warnings that come with these drugs. Can anyone explain to me the difference fromt he antibiotic protical and the marshall protocal? I guess I am a little confused. I know I will have a fight with my rheumatologist about all this because he isn't going to want to prescribe. He will want to help the drug companies is my guess. Also does anyone know of any docs in the Kansas City area that uses the Minocin? I am so frustrated, so tired of trying to find info and tired of being in pain. I honestly don't know anymore who is for us and who is against us. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Hi dear, mom of 5 kids. That is a job in itself., Being sick makes it that much more difficult. But rest your weary head. You have come to the right place and asked the right questions. Antibiotic protocol means exactly that. You take antibiotics. The difference between AP (antibiotic protocol) and MP (Marshall Protocol) is that MP is just another version of AP. Both use antibiotics. Start with AP, that is the simplest form and you do not need to explain anything to the doctor. If you have not read these two books, and with five kids,  who has time to read. but you must read them. " The New Arthritis Breakthough " , by Henry Scammell and in the same book at midpoint is, " The Road Back, " by McPerson Brown, M.D. Dr. Brown is the pioneer of AP and the books explain AP thoroughly. I read my copy very often and learn something new each time. After you have had success with AP,you can branch out into MP, to mop up any left over bacteria from co-infections.  MP uses additional antibiotics and in increasing dosages. I have done both protocols. I am in complete remission from the deadly disease of systemic scleroderma. I also have been diagnosed with mixed connective tissue disease & arthritis . That is why I eventually tried MP because these co-infections may respond to different antibiotics. You can purchase the book, new or used, very cheaply from Amazon.com. They will mail it to you. There is also another article you should read. It is called the FAQ sheet the of AP. FAQ stands for Frequently Asked Questions and will answer all your questions re: AP. It is translated into 4 languages. I live in Puerto Rico, so I made a copy in Spanish to give to my doc. To explain concisely how antibiotic works, is simple. Ask the moderators on this site to post the FAQ sheet for you to make a printed copy.  AP says, your condition is of Infectious origin. Depressing the immune system is like putting a bandaid on a raging cancer. As you already have experimented with those drugs, you already know they don't do anything to cure and instead do much harm to the body. You are smart to refuse them knowing that children are little disease carriers and without an intact immune system you are subject to any infection passing through. Bless the children. they do not know. They all sneeze and cough on each other. My husband and I play Santa Claus every Christmas and by New Years Eve, we used to be both in bed, with inhalers and steam fighting off a cold. No more now. This is a fact of life. Taking those immune suppressant toxic drugs leads to a depressed immune system that cannot fight off the infections. You are left defenseless. Antibiotic, to the rescue! A tetracycline drug called Minocin is what you need. You can get that from any GP. Most rheumatologists won't go there. Minocin works by interfering with the infectious bacteria's replication. It gets weak when it cannot grow.  Bacteria  feeds off of our proteins, and when denied they begin to get weak. Meanwhile, start boosting up your immune system. When the bacterial load is lowered, the healthy immune cells, then begin the cleanup phase of killing an discarding the dead & dying bacteria. You did not get sick over night. These bacterias are common and many people carry them without ever getting sick themselves. They may be in your body for 20 years or more before they start causing trouble. Because they are slow in growing, they are also slow in dying. It took me 5 years of continuous therapy with both AP & MP. I went from bedridden to fully functional and then to full remission. I had developed Pulmonary Fibrosis as a result and all my other organs were also sclerosed. I had been given about 5 more months to live when I heard about AP. That was 2005-now 2010. I am on a maintenance dose for life of Minocin 100mg MWF I started on 100mg of Minocin twice a day,every day. Then went to various other antibiotics in increasing dosages. I took protein powders and made shakes to boost my immune system and I slept as much as I could. It is not a panacea, nor easy to conquer. It was the most difficult ride of my life. Not one I would have signed up for willingly, But I desperately wanted to live. And so do you. Your children are counting on you. Looking back, I would do all over again in a heart beat. Warning, you may and probably will get sicker before you start getting better. The book does a good job in explaining the herxheimer effect. But, trust me! The day will come when you will thank your lucky stars that you persevered. You want to be there when your children graduate, or get married. You will never see that day if you continue with those toxic meds. Run from anyone who even suggests methotrexate, Remicade, Enbrel or any of those. To know which bacteria or strains of bacteria you have, you should start by being tested. An infectious disease doctor is a good one to go to for this. Once the source of infection is found, they cannot deny you antibiotics. Then it is up to you to take them faithfully and get tested periodically to monitor your progress and check for co-infections. Some of us carry a bacterial soup load. Good luck, Stay with it and keep us informed of your progress. Your responsibility will be, when you are well, is to write to others just starting on the path. The more people we help, the greater our numbers. I just read an article where Minocin has been found to arrest the viral replication in HIV patients. It won't be long before this protocol will be accept by the medical profession at large. We can make that happen. Right now, docs make more money keeping us ill than by curing us. By attacking the cause and staying well, they lose money. Doctors are inbedded with Big Pharm who make these toxic drugs. The reps go from office to office giving samples away to court the doctors. They even buy hugh lunches for the entire staff.  I am a nurse, I have seen it all. A simple drug called minocin made from the tetracycline family is low cost and non toxic. They have been prescribing it for teenage acne since the 1940's and no teenager has ever died from taking it. But plenty of people have died from the expensive toxic drugs including my own first cousin who had lupus and was treated with steroids. My best to you and to your family. Dolores & Mike.  .  From: ktandtm <ktandtm@...> Subject: rheumatic New in need of a quick run down LOL rheumatic Date: Monday, March 22, 2010, 10:03 AM  My name is and I have had MCTD for 4 1/2 years. My primary problem is Rheumatoid arthritis. I have tried Methotrexate but can't take it. Bad side effects. Am currently on Plaquenil and that helped a lot for a couple of years but then had to add Arava to the mix. I still take the Arava but had to cut my dose in half due to low white bloodcell count. Well my counts are still low at the half dosage and it isn't working like it should. My doctor now wants to start me on Enbrel but I have my reservations. I still have 5 kids at home and you all know that brings in sickness from school. Not to mention all the black box warnings that come with these drugs. Can anyone explain to me the difference fromt he antibiotic protical and the marshall protocal? I guess I am a little confused. I know I will have a fight with my rheumatologist about all this because he isn't going to want to prescribe. He will want to help the drug companies is my guess. Also does anyone know of any docs in the Kansas City area that uses the Minocin? I am so frustrated, so tired of trying to find info and tired of being in pain. I honestly don't know anymore who is for us and who is against us. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2010 Report Share Posted March 27, 2010 Thanks for your post. I just bought the book, plan on reading it and hoping to get one of my docs on board. So glad to hear of your remission. That is awesome! You are so kind to respond to me. I really appreciate it. I will keep you updated on what I can accomplish on my end. > > > From: ktandtm <ktandtm@...> > Subject: rheumatic New in need of a quick run down LOL > rheumatic > Date: Monday, March 22, 2010, 10:03 AM > > > Â > > > > My name is and I have had MCTD for 4 1/2 years. My primary problem is Rheumatoid arthritis. I have tried Methotrexate but can't take it. Bad side effects. Am currently on Plaquenil and that helped a lot for a couple of years but then had to add Arava to the mix. I still take the Arava but had to cut my dose in half due to low white bloodcell count. Well my counts are still low at the half dosage and it isn't working like it should. My doctor now wants to start me on Enbrel but I have my reservations. I still have 5 kids at home and you all know that brings in sickness from school. Not to mention all the black box warnings that come with these drugs. > > Can anyone explain to me the difference fromt he antibiotic protical and the marshall protocal? I guess I am a little confused. I know I will have a fight with my rheumatologist about all this because he isn't going to want to prescribe. He will want to help the drug companies is my guess. > > Also does anyone know of any docs in the Kansas City area that uses the Minocin? I am so frustrated, so tired of trying to find info and tired of being in pain. I honestly don't know anymore who is for us and who is against us. > > Thanks, > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2010 Report Share Posted March 27, 2010 Anytime you need some supportive measures, just write to one or more of the support group sites. We all read most of them and someone is sure to answer a question or give you a boost. We all need that sometimes. And this will be a journey that may get difficult at times. Have a good read. Best to you, Dolores From: ktandtm <ktandtm@...> Subject: rheumatic Re: New in need of a quick run down LOL rheumatic Date: Saturday, March 27, 2010, 7:50 PM  Thanks for your post. I just bought the book, plan on reading it and hoping to get one of my docs on board. So glad to hear of your remission. That is awesome! You are so kind to respond to me. I really appreciate it. I will keep you updated on what I can accomplish on my end. > > > From: ktandtm <ktandtm@... > > Subject: rheumatic New in need of a quick run down LOL > rheumatic@grou ps.com > Date: Monday, March 22, 2010, 10:03 AM > > >  > > > > My name is and I have had MCTD for 4 1/2 years. My primary problem is Rheumatoid arthritis. I have tried Methotrexate but can't take it. Bad side effects. Am currently on Plaquenil and that helped a lot for a couple of years but then had to add Arava to the mix. I still take the Arava but had to cut my dose in half due to low white bloodcell count. Well my counts are still low at the half dosage and it isn't working like it should. My doctor now wants to start me on Enbrel but I have my reservations. I still have 5 kids at home and you all know that brings in sickness from school. Not to mention all the black box warnings that come with these drugs. > > Can anyone explain to me the difference fromt he antibiotic protical and the marshall protocal? I guess I am a little confused. I know I will have a fight with my rheumatologist about all this because he isn't going to want to prescribe. He will want to help the drug companies is my guess. > > Also does anyone know of any docs in the Kansas City area that uses the Minocin? I am so frustrated, so tired of trying to find info and tired of being in pain. I honestly don't know anymore who is for us and who is against us. > > Thanks, > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.