Rhonda

[Guest guest]

on 20/9/02 10:41 AM, rhonda m pineau at scottron2@... wrote:

> Are you sure it means copper and not just that her grandmother has red

> hair as did I as a young child? (So did my great-grandfather and 2 of my

> aunts). There is no autism in my family or my husband's. Olivia is the

> first. However, if this were the case, I assume you would have to

> balance her zinc/copper? With supplements? Isn't this dangerous? What

> issues would emerge as a consequence of imbalance? For example, sensory?

> or maybe hypotonia?

>

>

>

>

>

[Guest guest]

> This is the same guy who told me my 4 month old was cranky and

> inconsolable all the time because she's a red head. Nice.

I had red hair when I was younger. I was rather whiny until my mother

removed milk from my diet.

She had

> thrush at 3 months, yeast related?

Thrush is basically yeast

http://www.autismchannel.net/dana/yeast.htm

Dana

[Guest guest]

Hi Rhonda,

I'm fairly new to the group but your mail has got

me worried. My doctor has classed me as

sub-clinical hypothyroid, my bloods come back

within the normal range but I've got alot of

symptoms. He put me on 50mcg thyroxine which

helped for about 3 months but I'm now starting to

feel bad again. He took some more blood tests 2

weeks ago and I saw him Monday where he told me

that despite being on the medication for 9 months

the blood levels have all practically stayed the

same. Consequently he's referring me to an

endocrinologist who I see next Friday. I hope to

goodness he's not like the one you saw or I'm in

trouble too :-( I also exercise 3/4 times a week

and eat 3 meals a day so I take in 1,500 calories

a day yet my weight isn't moving either. Problem

is, now I'm feeling tired all the time and just

don't have the energy to exercise.

I can't give you any words of wisdom I'm afraid

as I'm one step behind you but don't give up.

Sue

__________________________________________________

[Guest guest]

Sue,

I'm not sure what to say. Our situations do sound similar. I guess I would be

skeptical if I was taking meds that should move my numbers and they are not. A

couple of my friends said it sounds to them like I have Premenstrual Dysphoric

Disorder. I looked it up and, while there are some similarities, I just don't

think so. This morning I am feeling very discouraged. Back to square one. I

am not sure if I am going to take the synthroid yet. I'll keep you all posted.

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

Rhonda

Sugar Bearz ~ Fine Quality Children's Clothing

Re: Rhonda

Hi Rhonda,

I'm fairly new to the group but your mail has got

me worried. My doctor has classed me as

sub-clinical hypothyroid, my bloods come back

within the normal range but I've got alot of

symptoms. He put me on 50mcg thyroxine which

helped for about 3 months but I'm now starting to

feel bad again. He took some more blood tests 2

weeks ago and I saw him Monday where he told me

that despite being on the medication for 9 months

the blood levels have all practically stayed the

same. Consequently he's referring me to an

endocrinologist who I see next Friday. I hope to

goodness he's not like the one you saw or I'm in

trouble too :-( I also exercise 3/4 times a week

and eat 3 meals a day so I take in 1,500 calories

a day yet my weight isn't moving either. Problem

is, now I'm feeling tired all the time and just

don't have the energy to exercise.

I can't give you any words of wisdom I'm afraid

as I'm one step behind you but don't give up.

Sue

__________________________________________________

[Guest guest]

Sue,

Have you tried dividing your calorie intake into 5 meals instead of 3? I think

you

might find that you'll be less tired that way.

Best wishes,

Celeste

SueM wrote:

> I also exercise 3/4 times a week

> and eat 3 meals a day so I take in 1,500 calories

> a day yet my weight isn't moving either. Problem

> is, now I'm feeling tired all the time and just

> don't have the energy to exercise.

[Guest guest]

> Dana,

> I noticed in a recent post that you said fruit juice will aggravate

> yeast. I'm noticing since starting on enzymes about a week ago that

> Olivia's bm's are finally coming out fairly normal but when I give

her

> juice they turn to mush. Is this why?

It can be yeast, or it can be that she does not tolerate the fruits.

Are you using No-Fenol enzyme? That enzyme works for many fruits for

my kids, but not all.

>> I stopped GSE when starting zp,

> wanted to only do one thing at a time. Now I'm thinking totally

yeast

> and wondering if I can just put the gse in the mix w/enzymes?

That is what I do, altho I need to give it with No-Fenol enzyme.

>>Just a little PS to my last post; is there any juice that won't

aggravate yeast? What's a good substitute besides water? Can you

continue to give juice while taking gse or does that just feed the

yeast further?

I have heard you can use cranberry juice, altho that is high phenol.

You can also use a milk substitute like DairyFree. I give GSE along

with limited diluted juice when there is yeast.

Dana

[Guest guest]

> I have to write this post in hopes that someone can help me figure

out

> what's going on with my daughter. We started her on ZP 2 weeks ago.

Her

> bm's are terrible. Still. She spends all day trying to poop and

when it

> finally happens, just before bed, it's like an explosion. STill

gold

> colored but now they are not formed at all.

Is this since starting the ZP? It might be that she does not tolerate

papain and/or bromelain. Have you stopped the ZP to see what happens?

I began gse again about

3

> days ago, 3 drops twice a day. Her therapist was here this morning

and

> was very concerned. Olivia appears to be having some serious

stomach

> pain, she's bloated and is continually arching her back.

Do you give GSE with No-Fenol? Some kids don't tolerate it unless

given with No-Fenol. Or it can be a large die off. You can drop the

dose to 1 drop twice per day and see if that helps.

Dana

[Guest guest]

Maybe someone could explain how to answer questions within the text of

the previous e-mail. I can't figure it out, I'm sorry. I know how to

write e-mails and play cribbage online but that is the extent of my

computer knowledge. Anyway, Dana, to answer your question; Livia's poops

are always gold. Even before starting zp. Thought it might be yeast

hence the gse. She does that thing I mentioned before, a kinda pelvic

tilt thing, constantly, sometimes with her eyes almost rolling back in

her head. It's worse of late, yesterday was the very worst of all. Her

pediatrician, (freakin moron) said it was a way of self stimulating,

trying to reach an " orgasm " , can you imagine? She's obviously in pain

while this is happening. I have another appt w/him Monday to insist on

having her seen by a GI person. (I hope). She's been off the breast for

a month so I can't imagine why her bm's are still this color. Once

again, doc says it's normal. PLEASE!! (It isn't, right??) I stopped

giving both gse and zp yesterday and today she seems better but again,

gold poops. This time at least they were better formed and not so runny.

If it's die off then I should continue with the zp, eh? Just quit the

gse? So far I'm only giving zp, no no phenol or pep. Devon said

something about pep liquefying the intestinal contents but isn't that

already happening by the runny bm's? Thanks so much for taking the time

to answer these questions, I seriously appreciate it, more than I could

ever express with words. One last thing, sometimes, and I've mentioned

this before to no avail, I'll give her the zp and then she'll eat 2 bites

and that's it. Do the enzymes cause any problems when sitting in an

empty stomach?

Thanks again, Rhonda

[Guest guest]

Just one more thing to add; changed her bum a minute ago, 2nd bm of the

day and this one was not formed, runny and gold again. Do some people

just have yellow bm's? Shouldn't her pediatrician be a little more

concerned?

[Guest guest]

Hi . I did indeed mention uti to her ped but as usual he waved me

off. After our appt monday I have to finally let him go. I will push

the uti thing again and see what happens, it does make since but I have

to ask, were your daughter's stools the gold colored? In her whole life

mine's probably had half a dozen normal brown formed bm's. I just don't

get it.

[Guest guest]

maybe an impacted fecal mass? the runny bms come when the poop has to

move around the constipated mass in the bowel.

possibly magneisum citrate might help here as it softens the stools

as well as supplying magensium

but an impacted mass is something a gi can diagnose.

the pediatrician sounds like a fruit loop.

> Just one more thing to add; changed her bum a minute ago, 2nd bm

of the

> day and this one was not formed, runny and gold again. Do some

people

> just have yellow bm's? Shouldn't her pediatrician be a little more

> concerned?

[Guest guest]

gold can be a lack of bile or fats malabsorbtion or yeast.

pep tends to make stools browner.

i think there is some complex issue here, you may even be looking at

metals toxicty as well.

> Hi . I did indeed mention uti to her ped but as usual he

waved me

> off. After our appt monday I have to finally let him go. I will

push

> the uti thing again and see what happens, it does make since but I

have

> to ask, were your daughter's stools the gold colored? In her whole

life

> mine's probably had half a dozen normal brown formed bm's. I just

don't

> get it.

[Guest guest]

He says he's an allopathic (sp?) and needs proof. Proof of what? That

my kids messed up? Fruit loop doesn't even begin to cover it. He is,

however, great with my nt daughter. I, too was thinking she needs to see

a gi person. It's nice to have someone else say it's not just me. But

what about the uti thing? That sounded about right except for the

colored poops. Wish I had a crystal ball.

[Guest guest]

Anyway, Dana, to answer your question; Livia's poops

> are always gold. Even before starting zp.

My kids had light colored bms while gf, but once I was able to add

back gluten, they became darker. So it might just be the types of

food your child is eating.

>> Thought it might be yeast

> hence the gse. She does that thing I mentioned before, a kinda

pelvic

> tilt thing, constantly, sometimes with her eyes almost rolling back

in

> her head. It's worse of late, yesterday was the very worst of all.

It sounds like an intolerance/yeast/other sort of thing. So it

does sound like you might be giving her a food or supplement she does

not tolerate.

Her

> pediatrician, (freakin moron) said it was a way of self stimulating,

> trying to reach an " orgasm " , can you imagine? She's obviously in

pain

> while this is happening. I have another appt w/him Monday to insist

on

> having her seen by a GI person. (I hope). She's been off the

breast for

> a month so I can't imagine why her bm's are still this color. Once

> again, doc says it's normal. PLEASE!! (It isn't, right??)

It might be normal for COLOR, depending on what she is eating. But

the pelvic movements are NOT normal, and neither is the diarrhea. So

if you drop the color issue and just focus on the other two issues, if

he still says it is " normal " , then you KNOW he is a moron [or just

does not want to deal with it]. But you can tell him you want the GI

referral for the constantly runny bm, that should help, depending on

how much of a moron he is.

I

stopped

> giving both gse and zp yesterday and today she seems better but

again,

> gold poops. This time at least they were better formed and not so

runny.

Then it would appear that she does not tolerate one or both of these.

> If it's die off then I should continue with the zp, eh?

You can try giving the ZP again, and if she has problems again, then

remove it.

>> Just quit the

> gse?

GSE kills yeast but if you give it after the yeast has all died, then

it can contribute to bacteria overgrowth. So depending on how long

you had given it, it may have caused a bacteria problem for your

child. Try giving Culturelle.

So far I'm only giving zp, no no phenol or pep. Devon said

> something about pep liquefying the intestinal contents but isn't

that

> already happening by the runny bm's?

Depends on why they are runny. If they are runny because of

impaction, then no.

Thanks so much for taking the

time

> to answer these questions, I seriously appreciate it, more than I

could

> ever express with words.

No problem. Let's get your daughter feeling better!

>> One last thing, sometimes, and I've mentioned

> this before to no avail, I'll give her the zp and then she'll eat 2

bites

> and that's it. Do the enzymes cause any problems when sitting in an

> empty stomach?

I don't believe so, but Pep and No-Fenol do appear to have other

effects, so giving those on an empty stomach might have other effects.

But I have not heard that said about ZP.

Dana

[Guest guest]

aha...not drinking enough could very well be the problem. I don't think

she was all that constipated prior to this particular incident, she was

still on breast milk til about a month ago. Though it seems to have

cleared up her poops STILL are not formed and still very yellow but I

honestly don't think it's yeast, either. I think I'll start the zp

again, this time I'll pay more attention to how much she's drinking.

Thanks.

Rhonda

[Guest guest]

you really need pep as well.

has she had any vaccines? any vaccinanted kid is going to have

trouble with stomach flora, yeast and digestion of amino acids

important for brain devlopment as far as i can see.

pep, zyme and no fenol are more like a trinity...

pep makes the stools go brown, yeast apprently reduces bile

production somehow making the stools yellow

> aha...not drinking enough could very well be the problem. I don't

think

> she was all that constipated prior to this particular incident, she

was

> still on breast milk til about a month ago. Though it seems to have

> cleared up her poops STILL are not formed and still very yellow but

I

> honestly don't think it's yeast, either. I think I'll start the zp

> again, this time I'll pay more attention to how much she's

drinking.

> Thanks.

> Rhonda

[Guest guest]

We gave and DMG and had good results from it. Leaky gut did not get

in the way. Of course, like everything, it doesn't work for everyone but extra

oxygen to the brain can't hurt.

Lorelie

This is a long one, sorrry,

, your knowledge never ceases to amaze me and one day I am going to

ask you about yourself. How old, are you married, I understand you're on

the spectrum but how and why, are you a scientist, the questions I have

are endless. I'm a curious (some people say nosey) person and sometimes

the things you say just fascinate me. (I must add that I got a hoot out

of the little poem you wrote for that girl who was eating enzymes

like candy! Wonder what ever happened to her). So, back to business, I

thought that by giving soy milk I was doing a good thing but now you have

me doubting myself. I'm thinking dairy issues but I may be completely

wrong, it wouldn't surprise me. As for the pediasure, I'm only giving it

to Olivia 3 times a day and I'm only doing it til I see the GI person

next Thursday. So what tests would be good ones? Would they do an IgG?

As for yeast, I'm not sure that's an issue either, I did gse a couple

times and saw no changes. What's the difference between that and

oregano? If this was your child, where would you start? And what of

probiotics? Aren't these for actually healing the gut? Not for yeast?

I respect your opinion and knowledge even though I don't always quite

understand what you're saying, sometimes it goes straight over my head.

Ok, I'll patiently await your response. Sincerely, Rhonda (Olivia's

mom, she's 2)

PS- Have a bottle of Kirkman's DMG, think I should try it or would a

leaky gut prevent it from working?

PSS-She's never been tested for metals, I'm wondering if the hepB

might've played a role in her dx. Any sure fire way of knowing if there

is a metal problem without doing a hair test?

[Guest guest]

> Ok...Here we go again. My 2yr has had a serious diaper rash for a

month

> now. I've tried EVERYTHING to make it better to no avail. It just

> dawned on me that this rash started when we switched to soy milk so

I'm

> going on the assumption that soy is the cause.

Soy is chemically similar to milk, so it might be that.

>> I went out and bought

> rice milk, but friend just told me rice milk will bind her up. Is

this

> so and why?

Rice can be constipating for many kids. Don't give it very often if

she tends to be constipated.

>> How can I prevent that from happening?

Enzymes can help. Or don't give it very often.

>>How long without soy

> milk before I notice whether or not that is the reason for the rash,

any

> idea?

I believe you should notice something within a few days.

Dana

[Guest guest]

I wish I knew how to answer parts of e-mails, I'm still not an ace at the

whole computer thing but anyway...

Thank you for your answer. I'm wondering about the soy being similar to

whole milk? She didn't have a diaper rash prior to the soy milk, only

drank whole milk til a month ago. The only other thing I can think of is

the Pediasure I'm supplementing with but can't figure out why that would

cause such a gross rash. We are not doing enzymes right now. Nothing in

fact, other than probiotics which we started 2 days ago. Funny thing,

when I mentioned enzymes to her ped he said it couldn't hurt, but when I

mentioned probiotics he scoffed. She saw a GI and that doc said give her

probiotics indefinitely but she looked at the bottle of ZP and said that

it wouldn't do anything for my child. What's up with that? I'm so sick

of all the contradictions. Right now I have a full bottle of ZP but no

others. Should I ignore the GI? Also, just a side note, but her allergy

tests all came back normal. I figured the dairy would at least come back

a little funky but nothing. Any other ideas? Thanks again, Rhonda

[Guest guest]

>> I'm wondering about the soy being similar to

> whole milk? She didn't have a diaper rash prior to the soy milk,

only

> drank whole milk til a month ago.

Some kids react worse, or differently, to soy, so it might be that.

>> The only other thing I can think of is

> the Pediasure I'm supplementing with but can't figure out why that

would

> cause such a gross rash.

If you list the ingredients, I might be able to notice something. Or

you can stop it and see if the rash improves.

>> We are not doing enzymes right now. Nothing in

> fact, other than probiotics which we started 2 days ago.

Your child may not tolerate the probiotic, or the rash might be yeast

die off.

>>What's up with that? I'm so sick

> of all the contradictions. Right now I have a full bottle of ZP but

no

> others. Should I ignore the GI?

Do what you think might help. Don't listen to doctors who scoff at

things.

>>Also, just a side note, but her allergy

> tests all came back normal. I figured the dairy would at least come

back

> a little funky but nothing. Any other ideas?

Did you have allergy tests or intolerance tests? They are different

things.

Dana

[Guest guest]

Hi Dana.

Well, I know for sure it's not the probiotics as we just started them

this week and last time we did them we didn't have problems. As for the

pediasure, I only give her 1 8oz can a day. Do you want the ingredients

list or a list of the vits and min in it? It seems to have some good

stuff, like folic acid, taurine and selenium but in the ingredients list

has some bad stuff like sugar, maltodextrin and surprise, surprise, soy

oil. said something about the inorganic stuff out weighing the

good stuff. Maybe I should just stop for a few days. The rash seems

somewhat better since dropping the soy, replaced by rice milk. Of

course, it might just be the desitin finally kicking in but I don't

really think so. Still waiting for that crystal ball:)

Thanks again, your knowledge never ceases to amaze me.

Rhonda

[Guest guest]

All the tylenol did NOT cause your HepC. As to where and when, that

really isn't all that important because you can't change that. Sounds

like you are ready to go forward with the next step. Take it one step

at a time and holler whenever you need to!

We are always here!

LeighAnn

[Guest guest]

Hang in there Rhonda, we're rooting for you

Mandi in UK

[Guest guest]

In a message dated 09/09/2003 18:16:48 GMT Daylight Time, Moppett@...

writes:

> When doing research regarding my daughter's condition and finding out

> about EFAs, I tried them out myself. I took a gram of EPA a day and decreased

my

> dairy >( Omega 6) intake drastically and within 5 days, depression lifted and

> I have never looked back.

>

>

Omega 3's work for me too

Mandi in UK

[Guest guest]

Rhonda,

I have heard CLO is good for depression. Maybe you could try taking some and

see if it helps. I know this must be hard on you.

Ann