Re: L-lysine therapy

[Guest guest]

Hi Mona

 

I have started taking L-lysine since two weeks ago. I am increasing the dose

slowly to reach 5-6 g a day. I am on 3 g a day now. I noticed less stiffness and

pain and sometimes less swelling of my feet. I have lowered the dose of

ibuprofen to 100 mg a day. if I see I can manage without ibuprofen I will cut it

off completely. I am sure that I have herpes virus in my body (not genital

herpes, oral herpes) . I have long history of cold sore  since I was kid. I have

had cold sore without having cold or fever quite often when I was younger.

stangely since I got DS I don't cold sore any more.

Lets hope the new year brings us our lost health and a break through in curing

autoimmune disease.

Happy Chritmas and New year

soheila    

From: Mona Goldstein <spellers@...>

Subject: Re: rheumatic Re: New Here

rheumatic

Date: Saturday, December 20, 2008, 7:47 PM

I need to disagree. Maybe I am just lucky, but I go to a top rheumatologist in

NYC, and he tried me on the antibiotics. When he saw how amazing my reaction to

them was, he kept me on them. When the doxycycline stopped working for me, I had

no problems having him prescribe minocycline. At first he had tried me on the

usual rheumie drugs, but he was definitely open to other things, when they

didn't work for me.

I have now started the l-lysine treatment that I read about on this website

(thanks Soheila). I do really well now with my reactive arthritis, except for

when the rain or snow comes in, and then I'm in so much more pain, and I am also

so much more tired. I'm hoping that the l-lysine will take care of that.

I had experience with a infectious disease doctor that my rheumie sent me to at

the beginning of this illness, but he wanted to have nothing to do with me. This

wasn't my first bad experience with I.D.'s. I don't have much respect for them.

Mona

rheumatic Re: New Here

Emma,

BTW, I think the person you're thinking of is Connie H. I had emailed her but it

bounced

Hope she is OK.

> >

> > > Hi all,

> > >

> > > My name is and I was diagnosed with a rare autoimmune

> disease

> > > called Relapsing Polychondritis (RP) about one year ago. I'm

> currently

> > > on 15mg/week of Methotraxate and recently stumbled upon

> information

> > > linking autoimmune disease to intra-cell bacteria. This has given

> me a

> > > new ray of hope as I'm not crazy about taking Metho.

> > >

> > > I have so many question along with some healthy skepticism, I'm

> not

> > > sure where to start. Is there anyone here with RP and has AP

> helped you?

> > >

> > >

> > >

> > >

> > >

> >

> >

[Guest guest]

Hi Sohelia.  Happy holidays to you.  Who told you about  L-lysine?  I am glad

you found something that helps.  Cold sores are derived from viruses.  I also

had them when I was very young.  But haven't had one in about 15 or more years. 

I am positive for the Epstein Barr virus again.  It seems to recur from time to

time.  After I am done with MP, I may try the l-Lysine for the antiviral

properties.  I hope you are keeping warm.  I heard your temperature dropped very

low.  It has been warm here, but we are getting a cold snap soon.  Can't wait

for winter to be over.  And it hasn't even officially started.  Take care----Our

best to you.  Dolores & Mike

From: soheila A <soadl80@...>

Subject: Re: rheumatic L-lysine therapy

rheumatic

Cc: spellers@...

Date: Sunday, December 21, 2008, 10:32 AM

Hi Mona

 

I have started taking L-lysine since two weeks ago. I am increasing the dose

slowly to reach 5-6 g a day. I am on 3 g a day now. I noticed less stiffness and

pain and sometimes less swelling of my feet. I have lowered the dose of

ibuprofen to 100 mg a day. if I see I can manage without ibuprofen I will cut it

off completely. I am sure that I have herpes virus in my body (not genital

herpes, oral herpes) . I have long history of cold sore  since I was kid. I have

had cold sore without having cold or fever quite often when I was younger.

stangely since I got DS I don't cold sore any more.

Lets hope the new year brings us our lost health and a break through in curing

autoimmune disease.

Happy Chritmas and New year

soheila    

From: Mona Goldstein <spellersoptonline (DOT) net>

Subject: Re: rheumatic Re: New Here

rheumatic@grou ps.com

Date: Saturday, December 20, 2008, 7:47 PM

I need to disagree. Maybe I am just lucky, but I go to a top rheumatologist in

NYC, and he tried me on the antibiotics. When he saw how amazing my reaction to

them was, he kept me on them. When the doxycycline stopped working for me, I had

no problems having him prescribe minocycline. At first he had tried me on the

usual rheumie drugs, but he was definitely open to other things, when they

didn't work for me.

I have now started the l-lysine treatment that I read about on this website

(thanks Soheila). I do really well now with my reactive arthritis, except for

when the rain or snow comes in, and then I'm in so much more pain, and I am also

so much more tired. I'm hoping that the l-lysine will take care of that.

I had experience with a infectious disease doctor that my rheumie sent me to at

the beginning of this illness, but he wanted to have nothing to do with me. This

wasn't my first bad experience with I.D.'s. I don't have much respect for them.

Mona

rheumatic Re: New Here

Emma,

BTW, I think the person you're thinking of is Connie H. I had emailed her but it

bounced

Hope she is OK.

> >

> > > Hi all,

> > >

> > > My name is and I was diagnosed with a rare autoimmune

> disease

> > > called Relapsing Polychondritis (RP) about one year ago. I'm

> currently

> > > on 15mg/week of Methotraxate and recently stumbled upon

> information

> > > linking autoimmune disease to intra-cell bacteria. This has given

> me a

> > > new ray of hope as I'm not crazy about taking Metho.

> > >

> > > I have so many question along with some healthy skepticism, I'm

> not

> > > sure where to start. Is there anyone here with RP and has AP

> helped you?

> > >

> > >

> > >

> > >

> > >

> >

> >