RE: for Delores

[Guest guest]

Hi DOLORES

 

Sorry to heart about your problem with inflammed bowel. As I mentioned in my

previous emails I have been taking LDN(low dose naltrexone) for more than two

years without having any side effect. There is many published research on

efficiency of LDN for inflammation of bowel including Cronh's disease. Dr.

Whitmann prescribes LDN for many of his patients now. why don't you try LDN?

soheila  

From: DEBBIE GIBSON <Debbullwinkle@... <mailto:Debbullwinkle%40fuse.net> >

Subject: rheumatic for Delores, One more thought

" support group " <rheumatic

<mailto:rheumatic%40> >

Date: Friday, July 2, 2010, 10:51 AM

Delores,I read several studies a few years ago regarding diarrhea...and the

physicians in the study used a specific probiotic, S. Boulaardi to treat the

diarrhea....now, the study was in HIV positive patients...but that specific

probiotic did wonders for the patients...

Debbie

[Guest guest]

Hi Sohelia,  Intereesting info about LDN.  When I was in Pensacola and going

to the Infectious disease doc, I brought up the subject to him and he dismissed

it saying that it was only for medical overdoses or something to that effect. 

At that time I was only having the diarrhea infrequently, and all my blood work

had just gotten to normal, so I just dropped the subject.   Right now I am

seeing a local doctor only when I need a refill on my meds as he doesn't know a

thing about scleroderma.   Also he speaks Spanish fluently and English poorly

and I do the opposite.  Communication is difficult and I know that sooner or

later, I will have to shop around for a doc, I can communicate with better and

who knows more about scleroderma.  I guess since all my blood work turned neg

and I am feeling good otherwise, I have neglected myself.  Got involved in

moving and taking care of Mom.  I know I should keep up my vigilance. I guess

I just got lazy

about that.  I will research the LDN again and see what properties it has that

prevents diarrhea and its' causes.  Glad to hear you are doing better.  How

is you job coming along?  R U still going to school these days.  Will you

make NY your permanent home? I do miss having you come and visit me when I was

in NY.  It was not often and wish we could have gotten together more

frequently.   I am growing fonder of Puerto Rico as time passes, but also miss

NY and all my friends. I communicate with them by internet ,and phone, but it is

not the same as meeting them for lunch anywhere in the city. Glad to hear you

are also very satisfied with Dr. Whitman and doing better. Debbie also swears

by him.  She travels a long distance once a year to see him.  I stopped going

to him because he didn't want to follow the Marshall Protocol with me.  He was

afraid of me doing the large doses of Benicar.  But, I was determined.  As it

turned out, it was

the best thing for me.. It turned the tide and a year or so later, my blood

work converted to normal and still is today.  Except for the loose bowels, I

have no other complaints. The diarrhea has stopped. None yesterday and so far,

none has occured today.  I did implement some of the suggestions that came

across the board and so far, so good.  Hopefully, I can get this situation to

end soon.  My best to you, Love~~~Dolores   

From: DEBBIE GIBSON <Debbullwinkle@... <mailto:Debbullwinkle%40fuse.net> >

Subject: rheumatic for Delores, One more thought

" support group " <rheumatic

<mailto:rheumatic%40> >

Date: Friday, July 2, 2010, 10:51 AM

Delores,I read several studies a few years ago regarding diarrhea...and the

physicians in the study used a specific probiotic, S. Boulaardi to treat the

diarrhea....now, the study was in HIV positive patients...but that specific

probiotic did wonders for the patients...

Debbie