Re: UNSUBSCRIBE--a short rant, probably OT

[Guest guest]

Hi all-

I've been quietly reading your posts, waiting to get some blood work done &

begin AP, which so far has cost me a he**uva lot less than ONE shot of Humira,

and will continue to. I haven't replied, just read & smiled.

I've had RA since I was 20. I went from being an independent, straight-A

college junior who played intramural sports, jogged regularly and ate sensibly

to an emaciated girl living at home with mommy. I have created a full life for

myself in spite of this parasitical disease: I have three children (2

straight-A students and a preschooler with a brain defect), an understanding

husband, and a home-based business that I share & work-when-I-can with said

husband.

I used to play the piano--above average (I say not to brag)--but now my hands

have curled into claws and refuse to cooperate. I used to run. Now I limp

because my left hip is destroyed by disease. I'm 39. " Sitting at the PC " and

writing is one creative outlet not yet hijacked by RA and is also one way I can

visit with others without needing to expend what little energy I have on fixing

my hair & getting dressed when I'm having a flair.

So, to every Norm (interestingly sharing the same abbreviation as the word

NORMAL--as in " normal " health)--your attitude and preconceived ideas stink.

Personally, I don't mind some of the slightly OT threads. If I don't like

them or have time for them, my delete button functions nicely.

S.

Norman & Janet Moss <enterprz@...> wrote:

My wife has been trying to unsubscribe from the group because I am

tired of having my mail box tied up with information that is not pertenant .

From what I read most must have a lot of money for what your giving away with no

results , get active in something else that don't involve sitting at thePC or

dinner table and you will automatically get healthy Norm..

rheumatic UNSUBSCRIBE

UNSUBSCRIBE ME FROM GROUP

[Guest guest]

,

Having had this demoralizing disease for 30+ years, I can so relate to your

comments. As the saying goes, " Walk a mile in my shoes. " No-one wants to

walk a mile in our shoes--not even us. My foot, hip, and knee surgeries helped

a lot, but I'll never be able to function like normal people. I sometimes

struggle to do so, but this disease makes me sit down again. I used to think

I could beat R.A. and exercised almost every day. But the disease had its

way with me. And, you can bet I'm a fighter. Recently, a " friend? " said to

me, " If you don't use it, you lose it. " Mentally, I just had to walk away and

deal with reality as I live it. Ignorance is bliss, and everyone (including

me) lives in their own reality. So far, I have been able to salvage some of

my life through the use of antibiotics and B-12 shots. I used to teach

typing and computer classes. Now, I am reduced to using a few fingers to type.

I'm thankful to be able to do this. We are more blessed than many, and I

know that.

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Are you saying that the anti biotic protocol is just another

delay, that it does not work?

So far, I have been able to salvage some of

> my life through the use of antibiotics and B-12 shots. I used to

teach

> typing and computer classes. Now, I am reduced to using a few

fingers to type.

> I'm thankful to be able to do this. We are more blessed than many,

and I

> know that.

>

>

>

>

[Guest guest]

No, I am sayng that before the antibiotic protocal, I was deforming and much

sicker.

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

I agree. As I have had many surgeries, I " look " more normal; but those

surgeries never returned, especially my hands, to normal operation. I can

remember when I first had the disease but looked normal. The pain could be

excruciating; but, because R.A. had not yet shown its process on the outside,

people

didn't understand. Even though tests revealed an extemely high level of

disease, people felt I couldn't really have fatigue and pain. This is

history.

I just know that, after replacing traditional drugs with AP, it has

dereased my pain level, improved my bloodwork, and prevented a lot of

additional

deformity for me.

What works for one may not work for another. As I am a seasoned veteran of

my disease, I am just lucky to have some of my life back. I would exercise

more, but I still need a left knee replacement; and even though my feet are

much better because of surgery, the bones rebel when I walk too far. Please

remember, also, that I have Lyme and test positive for Lupus as well.

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Thanks to & for sharing their stories. It's the bane of

human nature for many to think you can just lose all your problems if

you want to. But I just want to throttle some of the ignorance out of

them. A lot of the pain of RA is not visible... I'm impressed that you

both are so accomplished with ability (computers, piano, etc).

Amy

kjdel1977@... wrote:

>

> ,

>

> Having had this demoralizing disease for 30+ years, I can so relate to

> your

> comments. As the saying goes, " Walk a mile in my shoes. " No-one wants to

> walk a mile in our shoes--not even us. My foot, hip, and knee

> surgeries helped

> a lot, but I'll never be able to function like normal people. I sometimes

> struggle to do so, but this disease makes me sit down again. I used to

> think

> I could beat R.A. and exercised almost every day. But the disease had its

> way with me. And, you can bet I'm a fighter. Recently, a " friend? "

> said to

> me, " If you don't use it, you lose it. " Mentally, I just had to walk

> away and

> deal with reality as I live it. Ignorance is bliss, and everyone

> (including

> me) lives in their own reality. So far, I have been able to salvage

> some of

> my life through the use of antibiotics and B-12 shots. I used to teach

> typing and computer classes. Now, I am reduced to using a few fingers

> to type.

> I'm thankful to be able to do this. We are more blessed than many, and I

> know that.

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL Living.

>

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

>

<http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/\

>

> 2050827?NCID=aolcmp00300000002598)

>

>

[Guest guest]

i have found from speaking to many that the ap works great for some,

helps some but not into remission, and some it doesn't help. we won't

know until we try it. i find that doing diet and supplmts and cleanses

along with ap seems to help it work a lot better.

monique

Posted by: " wiccantwinpaths " Shilnagig@...

<mailto:Shilnagig@...?Subject=%20Re%3A%20UNSUBSCRIBE--a%20short%20rant%2C%20\

probably%20OT>

wiccantwinpaths <wiccantwinpaths>

Wed Feb 27, 2008 1:45 am (PST)

Are you saying that the anti biotic protocol is just another

delay, that it does not work?

[Guest guest]

Antibiotics do not kill micoplasmas. Antibiotics weakens them by blocking their

ability to multiply. It weakens their ablility to reproduce. They reproduce by

using the protein molecules in our immune system. The immune system is what

kills the nanobacteria without the cell walls. When these CWD bacteria start

dying off, they emit a toxic. We feel sicker and get symptoms because of these

toxins. So, it is possible that we feel worse while we are getting better.

This is what is called a herx. MP calls it immunopathology.

Doing pallative therapies will make you feel better, but will also take longer

to reduce the micoplasma count. When the herx becomes intolerable, then is the

time to interfer with some pallative remedy, but it should not be for too long.

We should be striving to get through these herxes, so we can be well in the end.

Mind you, this is all still theory. Nothing has been proven. We are still in

the experimental stages of these diseases and the end fact is that there is

still no proven cure. All these things we do is to alleviate the symptoms, but

don't lose the focus that it is the micoplasmas that are causing the problem in

the first place and those should be elliminated.

P.S. A/P acts as an antiinflammatory first and blocks the production of the

process of protein sythnthesis of the bacteria. But the immune system is what

attacks and kill off the mycoplasmas. Therefore, living a healthy life style,

diet, exercise, rest are the things that assist the immune system to work as it

was designed to do and that is to kill bacteria and remove their toxic waste.

Good luck to all. Dolores

Sauve <moniquesauve@...> wrote:

i have found from speaking to many that the ap works great for some,

helps some but not into remission, and some it doesn't help. we won't

know until we try it. i find that doing diet and supplmts and cleanses

along with ap seems to help it work a lot better.

monique

Posted by: " wiccantwinpaths " Shilnagig@...

<mailto:Shilnagig@...?Subject=%20Re%3A%20UNSUBSCRIBE--a%20short%20rant%2C%20\

probably%20OT>

wiccantwinpaths <wiccantwinpaths>

Wed Feb 27, 2008 1:45 am (PST)

Are you saying that the anti biotic protocol is just another

delay, that it does not work?