RE: Re: Please help~ Peripheral Neuropathy - Jeffery

[Guest guest]

Thank you Jeffery for your response. I apologize for not responding sooner, been

dealing with too many symptoms. Just when you thought you couldnt handle what

you got let alone more, you get more.

 

I have seen tons of wothless rheumatologists for the sjogrens, and tons of

neurologists for the constant motion sickness. But only saw one neuro for the

PN. So I plan on seeing someoen soon, hopefully someone decent who can help more

than the others who didnt help at all with my other conditions. I dont want the

crap drugs the conventional docs RX which suppose to help the pain but at the

cost of tons of side effects and no reversing the disease or even slowing down.

These doctors are so disgusting.

 

My Vit B tests were all SUPER high, including Vit B1. So I assume taking it wont

help me then right?

 

Thanks again for your suggestion, hopefully the next neuro can help me with the

PN. I think it gets confusing because like you said and I have read, it doenst

have one cause but is usually part of something else, and this makes things

complicated. In my case perhaps because I have the Sjogrens. So fix the Sjo and

the PN will go away???? Problem is, I dedicated my last 2 years of life to

fixing the Sjo and so far have had very little improvement, but believe me I am

happy even for a little bit. Hopefully soon I will have my diabetes test back so

I can rule out PN from that source. Previously I was borderline high.

From: Jeffery <jefferysa@...>

Subject: RE: rheumatic Re: Please help~ Peripheral Neuropathy

rheumatic

Date: Saturday, April 26, 2008, 2:28 PM

I have seen a number of articles lately that implicate low levels of various

nutrients in people who experience PAD. These include Vitamin B-1 and Vitamin D

(http://www.scienced aily.com/ releases/ 2008/04/08041614 0954.htm). Some of

these studies were done on diabetics, because obviously PAD is very prevalent in

diabetics and there was existing data and there was money available for diabetic

research. Though these studies only offer clues, not answers or specific

treatments, and even if true there could still be some underlying cause for the

deficiency, but with B-1, they found that symptoms did significantly improved

with supplementation.

The first sentence in the following article is, " Peripheral neuropathy is a

condition that has many causes. " Probably best to keep this in mind.

http://www.vrp. com/articles. aspx?ProdID= art555 & zTYPE= 2

Have you seen a neurologist? If so, and they were if no help, have you seen

another neurologist? I would assume that not every neurologist is equally savvy

about all of the possible causes or medications related to PAD. I in fact know

this to be true. Not saying there are inadequate neurologists out there, just

some that are bit less savvy. Once you have exhausted the supply of neurologists

in your area, then maybe it would be time to act on treatment and medication

advice from somebody on the internet that you have never met, has no medical

training, and is ultimately unaccountable for their direction.

Jeff

rheumatic@grou ps.com

From: genuinelysweet2002

Date: Sat, 26 Apr 2008 10:11:32 -0700

Subject: Re: rheumatic Re: Please help~ Peripheral Neuropathy

Has anyone here gotten better with antibiotics or taken anything else that has

put their peripheral neuropathy into remission? I am still waiting to feel

better with the Sjogrens on antibiotics as well as other supplements, cleanses

etc...but now the PA is really bad on top of the Sjogrens and dizziness. I

cannot find any success stories on here:

http://rheumatic. org/medhist. htm

And I am doing really badly. I sometimes cant even walk, but everynight the pain

keeps me up, feels like constant electrecutions that won't go away.

Thank you.

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