Newbie update

[Guest guest]

Newbie Update msg - Sorry peeps: it obviously did not like me pasting from Word! I will know for next time! Hope you can still get the general drift.Merry Xmas-- Seán D.

[Guest guest]

Hi

Write to me privately at sheilaturner@... and tell me the name of this particular group of doctors and under what endocrinologist they work. This is quite appalling and if I know of anybody else in your area being referred to any of them, at least I can warn them and they can ask their GP to refer them elsewhere.> I saw the endo & came away upset and angry. Initially saw endo’s> registrar (4th different member of endo’s team in 4 visits!!);> was not happy he didn’t even have my records in front of him, let> alone know me; heart sank when he was all for adjusting my dosage> slightly to “see how we go on†(am sick of hearing that);

I can only advise that once you find an endocrinoligist who you feel does care about your illness and who is prepared to look after you properly, that you ask the appointments clerk to write on the cover of your medical notes that you will see no body else except him. I had to do this with my own endocrinologist. It is ridiculous that you are seeing a different doctor everytime you go and to not even have your medical notes is shocking. I would report this to the hospital administrator and ask them to look into this.

> knew I was in real trouble when I raised notion that synthetic thyroxine> may not be suitable for me and registrar responded “I’m> not sure whether the thyroxine you are on is synthetic or notâ€!> Seriously.

I would feel that a doctor in an outpatients clinic who was acting as a 'specialist' should also be reported for not knowing this. What DO they get taught and what further research do they do to keep up to the mark?> > I demanded to see the endo himself, eventually did & things actually got> worse: it turns out he is one for the numbers & if they are fine then> you’re fine . . . . . I tried him with the nice spreadsheet of> basal temps I had logged for a month (ave. early morning temp => 35.7° C!) â€" he put it on one side with a grunt;

I bet this guy is an 'active' member of the BTA - I am beginning to recognise them a mile off. They all come out with exactly the same drivvel. I also bet his speciality is diabetes and not thyroid. They don't know how to diagnose hypothyroidism and therefore don't know how to treat it - in fact, they don't know, period. This is why they treat their patients the way they do, only why they have to be so rude I have no idea.

and when I> said I think part of my continuing fatigue problem was adrenal problem,> he actually shouted at me “YOU’RE WRONG!â€, going on> to say the Synacthen test proved the adrenal gland is fine, other test> results are good, hormones are not your problem and you need to go back> to your GP to be treated for depression!!

You need your cortisol and DHEA testing at four specific times during the day, not just once, and that whenever you happened to have your appointment. There are tens of thousands of hypothyroid patients in the UK being told they have depression and to go away.> > I left the hospital red-faced & agitated: I didn’t know what to> do with myself & still don’t really. Yes I am feeling down but as> a result of the thyroxine not making any difference & still feeling> exhausted most of the time:

, don't ever allow an endocrinologist (especially one who obviously knows so very little about the functioning of the thyroid) to make you red-faced, agitated and feeling down. You need to calm down because it is he who should be feeling red-faced. After Christmas, you need to sit down and write to this guy asking for a full explanation of each and every one of your symptoms. Did you have a full thyuroid function test (TSH, Free T4, Free T3, antibodies). Did he test your ferritin, your cholesterol, your BP, your pulse. Did he give you a thorough clinical examination? Did he ask if you had members of your family with a thyroid disease? Did he test your Achilles Tendon reflex (a slow reaction here is a SPECIFIC sign of hypothyroidism). Did he look at the skin on your arms and shins and look at your hair? Did he palpate your thyroid?. You need to ask your GP to refer you to an endocrinologist who will examine his patients thoroughly and know about thyroid disease. Let us know the area you live and we will see if we know of a more caring olne in your area.

endo seems to think it’s the other> way around & as long as the numbers are to his liking, he doesn’t> seem interested in anything else (not unusual I believe?). Last bloods> showed TSH 0.31, FT3 5.1 & testosterone 30.3 (that really was only one> he kept referring to). When I asked about T4 result, I was told they> hadn’t tested for it because didn’t need to! Grrrr.> > Any thoughts/help anyone?> Seán

All I can say right now is "Don't let the ******* get you down". Try to get hold of Dr Peatfield's book "Your Thyroid and How to Keep it Healthy" because he wrote this book for patients just like you who have had sucn a bad experience within the NHS. You may need to look after your own health if this is what you are going to face where you live, but don't let that concern you right now. After Christmas, we can work out what you need to write to this guy to get him to give you specific answers. If he doesn't, we can take this matter further.

Have a lovely Christmas and next year is the year to work on getting your health back to normal again.

Luv - Sheila

>

[Guest guest]

Hi,

      You obviously won’t be going

anywhere with this guy! Doesn’t he know that depression is a symptom of

poorly treated hypo.                              Suggest you go see Dr P

                                       

I left the

hospital red-faced & agitated: I didn’t know what to do with

myself & still don’t really. Yes I am feeling down but as a

result of the thyroxine not making any difference & still feeling exhausted

most of the time: endo seems to think it’s the other way around

& as long as the numbers are to his liking, he doesn’t seem

interested in anything else (not unusual I believe?). Last bloods showed TSH

0.31, FT3 5.1 & testosterone 30.3 (that really was only one he kept

referring to). When I asked about T4 result, I was told they

hadn’t tested for it because didn’t need to! Grrrr.

Any

thoughts/help anyone?

Seán

[Guest guest]

hi it seems that everyone leaves endo clinics agitated and red faced

i always seem to have that problem everytime i go!i get diagonsed

with different things i now suufer from osteoporosis in my back

because of thyroine and my consultant hasn't even botherd testing me

again for 2 years.the NHS is great isn't it?????

>

> Hi,

>

> You obviously won’t be going anywhere with this guy!

Doesn’t he know that depression is a symptom of poorly treated

hypo. Suggest you go see Dr P

>

>

>

> I left the hospital red-faced & agitated: I didn’t know what

to do with myself & still don’t really. Yes I am feeling down

but as a result of the thyroxine not making any difference & still

feeling exhausted most of the time: endo seems to think it’s

the other way around & as long as the numbers are to his liking, he

doesn’t seem interested in anything else (not unusual I

believe?). Last bloods showed TSH 0.31, FT3 5.1 & testosterone 30.3

(that really was only one he kept referring to). When I asked about

T4 result, I was told they hadn’t tested for it because didnâ

€™t need to! Grrrr.

>

> Any thoughts/help anyone?

>

> Seán

>

[Guest guest]

Hi Naveesa

Glad you made it to the Forum OK. You will get lots of help here, but at the moment, you have joined at a time when everybody is away hopefully enjoying themselves and trying to forget their illness and all the worries that go with it - so stick around until after the holidays and you will find more people able to respond.

I would suggest meanwhile, that you click on FILES at the bottom of this message and go and read as much as you can - you will be surprised how much you will learn.

Do you have the results of any blood tests and do you know whether your GP has ever tested you to see if you have antibodies to your thyroid. There are other blood tests you should arrange with him/her such as a Ferritin (stored iron) blood test. You can read about Ferritin in our Files.

I hope you have a lovely day Tomorrow and a very happy and healthier new year.

Luv - Sheila

hi it seems that everyone leaves endo clinics agitated and red faced i always seem to have that problem everytime i go!i get diagonsed with different things i now suufer from osteoporosis in my back because of thyroine and my consultant hasn't even botherd testing me again for 2 years.the NHS is great isn't it?????---

..

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.8/1195 - Release Date: 24/12/2007 11:19

[Guest guest]

You can hold it there for a while and let the toxins slowly ease out and

then increase in 4-6 mos. Congrats on feeling better!

Steph

Newbie update

> Day 11 on Iodoral and I've worked up to three tablets, spaced out

> evenly during the day.

>

> Symptoms: teeth sensitivity, sneezing, runny nose, sinus burning,

> dizziness. All resolve fairly quickly by dropping down a half a tab or

> upping support ( C, selenium, salt, armour, b vits)copious salivation.

> All symptoms are mild.

>

> Brain fog is almost gone, energy is better, sleep is deeper and

> dreaming more vivid. An eighth month pain in my elbow has all but

> disappeared which is really freaky. Stretching feels easier and

> deeper. Coughing which had been tight, shallow and unproductive is now

> full throated and productive, former throat fullness has diminished. I

> thnk my skin is looking better, but not certain.

>

> I hate to say it, but I feel g****t. Afraid to jinx it I've been

> feeling bad so long.

>

> I plan on working up to four tablets and holding there for a while.

> Any thoughts? I have hashi's sjogrens possibly lupus..........

>

> ty!Heidi

>

>

> ------------------------------------

>

>

>

>

>

[Guest guest]

Hi ,

It's great to hear that you are doing so well on Bee's program. It's pretty

amazing, isn't it?

I love how you say that your flab started looking less flabby! Tee-Hee!

Keep up the good work!

>

> Hello, Bee and Group!

>

> I am pretty new to the diet (about 3 weeks) but I phased on to it pretty

quickly b/c I had already eliminated most grains, fruit, and sugar on my own. I

just wanted to share some positive/interesting changes. I was skeptical (or

maybe just didn't quite understand) the healing/retracing symptoms, but they

occur exactly as described. I also made a few good " rookie mistakes " .

>

<snip>

>

> Thanks so much, Bee, for this great diet. I'm trying to spread the word. And I

love hearing about everyone's varied experiences on the group.

>

> My best to All,

>

>

[Guest guest]

Good Morning/Noon/Evening Everyone:

I'm pretty new to the group and want to make a quick statement about D=lores -

she was so kind to me when I first came to this group. I don=t post much but

learn a lot and she took the extra step to welcome me and =ducate me. Thank

you. I have RA and needed to find a doctor th=t is willing to do the AP -

finally through help here I did see one last w=ek and he will be doing a lot of

labs tomorrow and see me again in two wee=s. He didn't seem thrilled about the

AP treatment but I do think he =ill work with me. Kempf in VA is the

person I saw - anyone els= had treatment through him? Anyway, when I first

started researching=educating myself some months back I was hesitant to go back

to a dr after =y previous year. I've always been afraid of them anyway and I

guess =n reality I didn't want to face my illness. I've got the worst fog b=ain

right now and have for quite some time but didn't know it truly is part of this

illness - so I have hope I will see clearly again some day= I'm looking forward

to the recovery even if it means a fight to get=there. I waited four months to

see the best rheumy at s Hopkins =nd he wouldn't give me five minutes of his

time or listen to me. He =eflated me completely both spiritually, and

emotionally and scared me off =or six months but the disease continues and I

tried to do my own research =hich led me here. Now, I am overweight and want to

get some opionion= if I may about juicing, supplements and any other advice or

info people m=ght share with me. I know I need to change my life including my

eati=g habits and am ready to start that too. Anyone that does juicing I =ould

love to hear more about it. I have a garden right now and think=it might be a

great way to get going on this journey too.

Dolores, my brother just moved to Puerto Rico in January from New York=for work.

I hope one day to visit him and maybe I could meet you too= It would be my

honor to do that. I'm open to any suggestions =r hear from anyone that might

have met with Dr. Kempf for this treatment p=eviously. Have a good day/evening.

Trish.

[Guest guest]

Trish,

Dr. Kempf bought the practice from Cap Oliver, M.D. (rheumatologist) who was

in partnership with Dr. Brown until he died. Dr. Oliver was not an

enthusiastic supporter of Dr. Brown's work, but to his credit, he did take

over his patients and continued the AP treatment. He also supported Pat and

I when we started up RBF and even lead a physicians' conference on the

subject.

I understand Dr. Kempf will prescribe the AP if asked, but I'm not so sure

he understands the 'journey', so first familiarize yourself with the FAQ on

www.rheumatic.org. Read it over and over. It's your guidebnook to the

therapy. Second, whenever you have a question, post it here. With over

2000 people in this group there is bound to be someone who can answer it or

help you find the answer. The journey is different for each of us.

Ethel

rheumatic Newbie update

> Good Morning/Noon/Evening Everyone:

> I'm pretty new to the group and want to make a quick statement about

> D=lores - she was so kind to me when I first came to this group. I don=t

> post much but learn a lot and she took the extra step to welcome me and

> =ducate me. Thank you. I have RA and needed to find a doctor th=t is

> willing to do the AP - finally through help here I did see one last w=ek

> and he will be doing a lot of labs tomorrow and see me again in two wee=s.

> He didn't seem thrilled about the AP treatment but I do think he =ill work

> with me. Kempf in VA is the person I saw - anyone els= had

> treatment through him? Anyway, when I first started researching=educating

> myself some months back I was hesitant to go back to a dr after =y

> previous year. I've always been afraid of them anyway and I guess =n

> reality I didn't want to face my illness. I've got the worst fog b=ain

> right now and have for quite some time but didn't know it truly is part of

> this illness - so I have hope I will see clearly again some day= I'm

> looking forward to the recovery even if it means a fight to get=there. I

> waited four months to see the best rheumy at s Hopkins =nd he wouldn't

> give me five minutes of his time or listen to me. He =eflated me

> completely both spiritually, and emotionally and scared me off =or six

> months but the disease continues and I tried to do my own research =hich

> led me here. Now, I am overweight and want to get some opionion= if I may

> about juicing, supplements and any other advice or info people m=ght share

> with me. I know I need to change my life including my eati=g habits and

> am ready to start that too. Anyone that does juicing I =ould love to hear

> more about it. I have a garden right now and think=it might be a great

> way to get going on this journey too.

> Dolores, my brother just moved to Puerto Rico in January from New York=for

> work. I hope one day to visit him and maybe I could meet you too= It

> would be my honor to do that. I'm open to any suggestions =r hear from

> anyone that might have met with Dr. Kempf for this treatment p=eviously.

> Have a good day/evening.

> Trish.

>

>

>

>

> ------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> Links

>

>

>

[Guest guest]

Hi Trish, thank you.  It is wonderful that I get some feedback once in a while

telling me that my work here is not for naught.  I need that to go on doing

what I feel needs be done and that is to get the word out there re; antibiotic

protocol.  It saved my life and gave me back my zest.  And I would like

others to have that too.  What part of Puerto Rico did your brother move to? 

I am in the NW corner on the outskirts of a small town called Isabela.  I am

about 300 ft. back from the ocean and about 350 ft. up on a hill overlooking the

ocean.  Just close enough to feel the breezes and up far enough to avoid any

tsunamis or rogue waves.  I love it here.  And it would be my honor to have

you come.  We could discuss anything you want or just kick back and relax,

whatever you wish to do.  We have fixed up the RV in the back yard as guest

quarters so you are welcome to stay if it is not occupied at that time.  One of

my goals for being here is

to get away from the cold northern winters, and my other goal is to find a

piece of property to build a retreat for people who need the tranquility of a

place to relax during their recuperation and get together with others who

are on the road back to good health thru A/P.  I wished I had such a place to

go to when I was recovering.  What kind of work is your brother looking for? 

Does he have any firm commitments? What is his field?  Maybe we can be of some

help in that department.  Let him know he can get in touch with us.  I am

just getting to know the cousins I have on this Island and ran into one the

other day at Sam's Club.  She picked me out of the crowd from my photo on

facebook.  I hope to be meeting with my other cousins soon. I am planning

a family reunion this winter. My family is originally from here.  However, I

never met any of the younger ones and the older ones I met as a child have all

passed on.  We like sharing

photos and stories and because of facebook and ancestry.com & the internet, the

family is now coming together for the first time. As far as your weight.  Get

healthy first and the pounds will melt off once you get active again.  Once you

attack the mycos, you will be surprised at how much damage they do to your

body.  they even can interfere with the way your body metabolises food.  I

was once 159 lbs at a mere 5ft. 2in. I lost 40 lbs being ill and have gained

back 5 lbs.  No matter what I eat now, I do not gain another ounce.  I have to

remember to eat to keep myself between 125 & 127.You'd be so surprised at the

changes and choices your body will make on its' own during recover.  I now love

to chomp on raw vegetable and fruit.  Once in a while I will indulge in a piece

of cake at a birthday party or something, but I am always sorry later on.  The

main thing is to get those mycos out of your system and the rest will take care

of itself.  I

don't juice because I am a diabetic.  But others swear by it.  Even my own

daughter got me to buy a juicer.  I juiced for one month and my glucose level

hit the sky, so I stopped.  Each body is different in the way they react. 

You have to find your own by trying all sorts of remedies and keeping the ones

that help you the most.  Debbie juices a lot, she will respond to you.  Take

care, Dolores

From: Ethel Snooks <emsnooks@...>

Subject: Re: rheumatic Newbie update

rheumatic

Date: Tuesday, June 22, 2010, 12:19 PM

 

Trish,

Dr. Kempf bought the practice from Cap Oliver, M.D. (rheumatologist) who was

in partnership with Dr. Brown until he died. Dr. Oliver was not an

enthusiastic supporter of Dr. Brown's work, but to his credit, he did take

over his patients and continued the AP treatment. He also supported Pat and

I when we started up RBF and even lead a physicians' conference on the

subject.

I understand Dr. Kempf will prescribe the AP if asked, but I'm not so sure

he understands the 'journey', so first familiarize yourself with the FAQ on

www.rheumatic.org. Read it over and over. It's your guidebnook to the

therapy. Second, whenever you have a question, post it here. With over

2000 people in this group there is bound to be someone who can answer it or

help you find the answer. The journey is different for each of us.

Ethel

rheumatic Newbie update

> Good Morning/Noon/Evening Everyone:

> I'm pretty new to the group and want to make a quick statement about

> D=lores - she was so kind to me when I first came to this group. I don=t

> post much but learn a lot and she took the extra step to welcome me and

> =ducate me. Thank you. I have RA and needed to find a doctor th=t is

> willing to do the AP - finally through help here I did see one last w=ek

> and he will be doing a lot of labs tomorrow and see me again in two wee=s.

> He didn't seem thrilled about the AP treatment but I do think he =ill work

> with me. Kempf in VA is the person I saw - anyone els= had

> treatment through him? Anyway, when I first started researching=educating

> myself some months back I was hesitant to go back to a dr after =y

> previous year. I've always been afraid of them anyway and I guess =n

> reality I didn't want to face my illness. I've got the worst fog b=ain

> right now and have for quite some time but didn't know it truly is part of

> this illness - so I have hope I will see clearly again some day= I'm

> looking forward to the recovery even if it means a fight to get=there. I

> waited four months to see the best rheumy at s Hopkins =nd he wouldn't

> give me five minutes of his time or listen to me. He =eflated me

> completely both spiritually, and emotionally and scared me off =or six

> months but the disease continues and I tried to do my own research =hich

> led me here. Now, I am overweight and want to get some opionion= if I may

> about juicing, supplements and any other advice or info people m=ght share

> with me. I know I need to change my life including my eati=g habits and

> am ready to start that too. Anyone that does juicing I =ould love to hear

> more about it. I have a garden right now and think=it might be a great

> way to get going on this journey too.

> Dolores, my brother just moved to Puerto Rico in January from New York=for

> work. I hope one day to visit him and maybe I could meet you too= It

> would be my honor to do that. I'm open to any suggestions =r hear from

> anyone that might have met with Dr. Kempf for this treatment p=eviously.

> Have a good day/evening.

> Trish.

>

>

>

>

> ------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> Links

>

>

>