sinus

[Guest guest]

Hi

First and foremost, I would pay a visit to your A and E Department at your local hospital as your eye problem has been going on for several weeks and you should tell them that as your GP will not do anything to treat the condition, or even find out what the condition is, that you can no longer bear what is happening to you, you need somebody to look into this matter. I would also send a letter to your practice manager and report this matter to him. That way, the manager will have to have a word with your GP and decide what he will do about it.

I would also ask the Practice Manager what you can do to get a referral to an endocrinologist as your GP is a GENERAL practitioner and NOT a specialist. You are entitled to a second opinion.

I would phone the Pathology department of your local hospital and ask them if they have yet got the results of your last blood tests you had done three weeks ago and if so, would they please pass these on to your GP as a matter of urgency.

On the matter regarding your GP saying no further action is needed, and him not being very happy about the letter - then tuff - I would question him as to which particular part of the letter he wasn't happy about. Don't allow this GP to bully or antagonise you. Tell him that if he needs any answers to questions he has about your private doctor, to put them down in writing and that you will decide whether you want to answer his questions or not. You paid for a private consultation with a private doctor and this is your private affair and every patients within the NHS is entitled to have a private consultation. The word here is PRIVATE. You don't have to answer his question. However, I would be interested to know what questions he wants to ask. If you wish, you can send his questions to me, and I will try to help if you wish in putting together a response. ...Gee, I wish I could come over there and be with you when you see him. One piece of advice, when you go to see him next week, if at all possible, take somebody with you - that will stop the doctor trying to bully you into submission. It is because of idiots like him that give the medical profession such a bad name.

Luv - Sheila

I had a run in with a Gp today which has made me feel very bad.My left eye upper eyelid went very red, and sore, and had alot of pressure pain in it. I went along to get my results from a blood test that I had. The TSH ft3 ft4 and antibodies are not there. And this GP said it can take 3 weeks to come back! Hmmmm.Anyway, the receptionist noticed my eye and got me to see the Dr.He does not know what it is.Is sinus like this.A boring pain in the eye, a tender bone eyebrow, when the pressure eases the eye waters.I mentioned that I was diax as hypo-thyroid, he asked by who, when I told him. He poo-pooed it all and said there it NO WAY with the blood tests that I have had and going on my previous TSH in November that I have any thyroid issue. And was I doing my body any favours with the supplements he thought not! He was rather nasty and not very helpful, he hasn't given me anything for my eye either which is worrying as thats the only one I can see out of. I am right at the end of my tether now and don't know which way to turn.When I got home I had a letter from the GP to see my GP next week, when I phoned up to ask why as I was told no further action is to be needed.I was told that my GP isn't very happy with the letter and has questions to ask about this Private Dr I had seen and wants answers!I think I'm in trouble!!!

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[Guest guest]

I agree with Sheila - go to A & E, your sight isnt worth messing with. And, change your doctor! I really think that the best message we can give to the useless sort of GPs is to go to someone else. Loyalty to the 'family doctor' of the past doesnt have a place any more. Vote with your feet! We dont always realise that GPs are paid by the patient as a basic income whether you get better or not. They also get other payments for some services (£7.51 for every flu jab they give for example!) and now have a budget for their secondary care (hospital) referrals - they are trying to keep the costs of this down and some (idiots and 'crap' doctors are not referring patients they should be) and others are just so rubbish they dont know when they should refer!

Its easy to change your doctor - no-one will ask questions you simply go to a new doctor and say you want to register with them. That's it, no questions are asked!

Gill

[Guest guest]

-Dr Peatfield phoned me tonight to see how I was (bless him - he's a

lovely understanding man) I got off the phone and cried!

He isn't very happy with how this GP treated me and how he talked

about him.

He has told me to go and get some anti-biotics. I have sent him a

new picture of my eye for him to see.

My partner is going to take me to the emergency Dr's tomorrow.

-- In thyroid treatment , " GILL "

<gilljohnthurgo@...> wrote:

>

> I agree with Sheila - go to A & E, your sight isnt worth messing

with. And, change your doctor! I really think that the best message

we can give to the useless sort of GPs is to go to someone else.

Loyalty to the 'family doctor' of the past doesnt have a place any

more. Vote with your feet! We dont always realise that GPs are paid

by the patient as a basic income whether you get better or not. They

also get other payments for some services (£7.51 for every flu jab

they give for example!) and now have a budget for their secondary

care (hospital) referrals - they are trying to keep the costs of this

down and some (idiots and 'crap' doctors are not referring patients

they should be) and others are just so rubbish they dont know when

they should refer!

>

> Its easy to change your doctor - no-one will ask questions you

simply go to a new doctor and say you want to register with them.

That's it, no questions are asked!

> Gill

>

[Guest guest]

>

> Hi there Gill

Thats not what happens here they ask you for your address and then say

your not in their area. I know I tried.

Carol

> Its easy to change your doctor - no-one will ask questions you

simply go to a new doctor and say you want to register with them.

That's it, no questions are asked!

> Gill

>

[Guest guest]

Hi Carol, yes (sorry) this is a complication - you do have to be in the catchment area of the 'new' GP, though some have a wide catchment area. If you are not sure about the area a practice covers you can ask the PCT to tell you. Provided you live in the area they cover then you do just have to register with the new one.

Gill

>> Hi there GillThats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.Carol

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[Guest guest]

Questions were certainly asked when I wanted to change doctors. I had to write to the practice manager with all the reasons why I wish to change. Then it would be decided whether the new doctor would take me on or not.

Then when I was given a doctor I could not choose which doctor I wanted because I was told all the others were fully booked.

He asked me loads of medical questions, which is understandable, and when he asked what medications I was taking I took the opportunity to fess up to taking Armour.

However, as I am already under an endo for diabetes he cannot do anything (I think) unless told by the endo, so he just put it down without any comments.

Lilian

Its easy to change your doctor - no-one will ask questions you simply go to a new doctor and say you want to register with them. That's it, no questions are asked!

Gill

[Guest guest]

I know an instance at my doctors (well I was earwigging a bit whilst someone was arguing with the receptionist), where the woman who was registered with them had moved out of the area but was still allowed to be on their books. She had a baby and was trying to register the baby with our doctors, but was told that the baby lived out of the area and they couldn't do it.

The woman argued her face off that it is only a baby and if she is registered here surely they do not expect her to take her baby somewhere else.

But they were adamant that they cannot take any more people from out of the area as they were already stretched with people in the area (which is true).

I think they were hoping that the woman would then decide to register herself somewhere else with the baby.

Lilian

Thats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.

[Guest guest]

Hi Lilian, this really shouldnt happen (and Im amazed that it did!) anyone (these days) can change doctors when they want to, to any GP that covers their area, without giving any reason - and you should complain to the PCT if any questions are asked! The new GP practice should just accept you if they have an open list and are accepting patients, if you live in their patch, and the 'old' GP isnt even asked! Problems should only happen nowadays if the new GPs list is full (and they've declared this to the PCT) or you dont live in their patch. The only other question mark is if you are a violent patient or have been asked to leave a pratice (struck off their list) for some reason. So the situation you had, Lilian, should not apply these days. If it does you really have to take it up with the PCT as any practice should not pick and choose who they accept - except for the reasons above. If you cant get a GP for some reason, then the PCT will allocate you to a practice, but this shouldnt happen unless there have been difffficulties or if all the GP practices have 'closed; lists.

Gill

Questions were certainly asked when I wanted to change doctors. I had to write to the practice manager with all the reasons why I wish to change. Then it would be decided whether the new doctor would take me on or not.

Then when I was given a doctor I could not choose which doctor I wanted because I was told all the others were fully booked.

He asked me loads of medical questions, which is understandable, and when he asked what medications I was taking I took the opportunity to fess up to taking Armour.

However, as I am already under an endo for diabetes he cannot do anything (I think) unless told by the endo, so he just put it down without any comments.

Lilian

Its easy to change your doctor - no-one will ask questions you simply go to a new doctor and say you want to register with them. That's it, no questions are asked!

Gill

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[Guest guest]

sometimes they will agree to keep you as a patient out of the area, this case is silly, but the beaucratics also work in GP practices, and can be so jobsworth-y cant they!!

Gill

[Guest guest]

HI

I am so pleased Dr P phoned you, and yes, he is such a lovely caring gentleman. Can you post a piccy of your eye in our photo's section so we can look at it too. Let us know how you get on at the hospital won't you.

Keep your chin up love, one day you will look back on this awful episode in your life from a position of health and happiness. I don't often think about how I was before I got the proper treatment, but occasionally, it hits me in the face and I do wonder how I survived it at times - but I did, and TPA was born.

Luv and big (((HUGS)))

Sheila

-Dr Peatfield phoned me tonight to see how I was (bless him - he's a lovely understanding man) I got off the phone and cried!He isn't very happy with how this GP treated me and how he talked about him.He has told me to go and get some anti-biotics. I have sent him a new picture of my eye for him to see.My partner is going to take me to the emergency Dr's tomorrow.-- In thyroid treatment , "GILL" <gilljohnthurgo@...> wrote:>> I agree with Sheila - go to A & E, your sight isnt worth messing with. And, change your doctor! I really think that the best message we can give to the useless sort of GPs is to go to someone else. Loyalty to the 'family doctor' of the past doesnt have a place any more. Vote with your feet! We dont always realise that GPs are paid by the patient as a basic income whether you get better or not. They also get other payments for some services (£7.51 for every flu jab they give for example!) and now have a budget for their secondary care (hospital) referrals - they are trying to keep the costs of this down and some (idiots and 'crap' doctors are not referring patients they should be) and others are just so rubbish they dont know when they should refer! > > Its easy to change your doctor - no-one will ask questions you simply go to a new doctor and say you want to register with them. That's it, no questions are asked!> Gill>

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[Guest guest]

Hi again GillThe oher problem is that the pct tells you, that you are in that gps area the gp tells you their books are closed and the pct tells you that there books are open if they send you there.This all seems to be very complicated to me. There is a particular practice here that is very good, but i have never been able to register with them. Carol X Re: Re: sinus

Hi Carol, yes (sorry) this is a complication - you do have to be in the catchment area of the 'new' GP, though some have a wide catchment area. If you are not sure about the area a practice covers you can ask the PCT to tell you. Provided you live in the area they cover then you do just have to register with the new one.

Gill

>> Hi there GillThats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.Carol

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[Guest guest]

Hi Carol - are you in the catchment area of this GP that is good? If the PCT say their list is open and the GPs say it is closed you should speak to the PCT - GP practices are not allowed to close their list without advising the PCT that they are closing and why. If there is a problem getting registered with a new GP the PCT can allocate you to a practice, which means the GP practice has to accept you like it or not! Ive personally never had any problem registering with a new GP. Id have a word with the PCT - someone from the primary care development team if that's what they're called in your PCT, as they might be trying to unofficially close their list for a while!

Gill

There is a particular practice here that is very good, but i have never been able to register with them.

Re: Re: sinus

Hi Carol, yes (sorry) this is a complication - you do have to be in the catchment area of the 'new' GP, though some have a wide catchment area. If you are not sure about the area a practice covers you can ask the PCT to tell you. Provided you live in the area they cover then you do just have to register with the new one.

Gill

>> Hi there GillThats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.Carol

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[Guest guest]

Hi Carol, the difficulty here is that they have officially told the Pct that theneed to close their list, so yes the pct are right, they can allocate patients to this practice, but in this case it is pot luck which they put you with. It sounds like this is a popular practice, probably because they are good and just cant cope with more patients. I would have a word with the practice manager and ask if the could put you on some sort of waiting list, or at least let you know when they are taking patients again.

Giving someone else's address is fine if you arent in the catchment area - lots of people have done , including me! The 'rules' are the practice should accept the address that a patient gives - there arent any comebacks re this only I guess if they somehow found out they could ask you to leave, but cant see how they would find out and what would they do if you insisted that was your address? Id do it, and have done, if it means the difference between a decent GP and a lousy one!!

Gill

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[Guest guest]

Gill at the time i phoned the pct and they told me the list was officially closed and only they could allocate a place there, seems wrong, and if I wanted to get a new gp i would have to take pot luck on what they would give me. I wondered about just saying i had moved so that I would be closer to this practice, what could they do, would they have to take me and then I could say I moved back, say a family tiff something like that, we have some friends who live in the catchment for them as they are their drs. I do not want to change just yet as i am trying to get this script filled first. Carol X Re: [thyroidpatientadvo cacy] Re: sinus

Hi Carol, yes (sorry) this is a complication - you do have to be in the catchment area of the 'new' GP, though some have a wide catchment area. If you are not sure about the area a practice covers you can ask the PCT to tell you. Provided you live in the area they cover then you do just have to register with the new one.

Gill

>> Hi there GillThats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.Carol

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[Guest guest]

Hi carol

My GP decided it might be better if I found another doctor in another surgery simply because I had apparently "criticised" them when they told me they NEVER prescribed unlicensed medication for anybody. I had asked them what they gave their patients who were intolerant of the one and only licensed medication (thyroxine). I couldn't believe it when I received a letter from them telling me to find another doctor elsewhere. Everywhere I went, it seemed they were full and in desperation, I put our case in the hands of our local PCT. They found me a doctor just down the road, and guess what, I had to go in for 'interview' - which was OK and they noted that I was taking Armour Thyroid and that Dr Pope had recommended this for me. I asked if they would give me an NHS prescription for it, and the doctor said "Certainly, if Dr Pope recommended this for you,l we will prescribe it". ...So it was the best move my ex-doctor ever did for me.

Luv - Sheila

Gill at the time i phoned the pct and they told me the list was officially closed and only they could allocate a place there, seems wrong, and if I wanted to get a new gp i would have to take pot luck on what they would give me. I wondered about just saying i had moved so that I would be closer to this practice, what could they do, would they have to take me and then I could say I moved back, say a family tiff something like that, we have some friends who live in the catchment for them as they are their drs. I do not want to change just yet as i am trying to get this script filled first.

Carol

X

Re: [thyroidpatientadvo cacy] Re: sinus

Hi Carol, yes (sorry) this is a complication - you do have to be in the catchment area of the 'new' GP, though some have a wide catchment area. If you are not sure about the area a practice covers you can ask the PCT to tell you. Provided you live in the area they cover then you do just have to register with the new one.

Gill

>> Hi there GillThats not what happens here they ask you for your address and then sayyour not in their area. I know I tried.Carol

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[Guest guest]

yes and u may need allergy shots like i did.

sarah

[ ] Sinus

I've been diagnosed with lyme and am beginning treatment. I have numerous

symptoms.

I've had sinus problems for a long time but the last few years, there is

almost always a tiny

bit of blood in my mucous. I don't know when I contracted lyme. Is there any

connection

with lyme? I'd like to know because of treatment issues.

Thanks from Sheryl

[Guest guest]

Sheryl,

I've had lyme-related sinus problems for years now... A few years ago,

a naturopath turned me on to the " neti pot " and " alkalol " as a natural

solution. I SWEAR BY IT NOW! You will too, if you can get past

pouring stuff in your nose. This method will not be affected by any

other treatment nor will cause any affect on any other treatment.

Both can be purchased online... here's one site for Neti Pot:

http://www.puritansale.com/pages/iq.asp?

SearchText=neti+pot & afid=27 & safid=Google & scid=6879 & cm_mmc=Google-_-

Himaly_NetiPot-_-neti%20pot-_-Phrase+Ad_1018396554%7C-%

7C100000000000000028648 & cm_guid=1-_-100000000000000028648-_-1018396554

For Alkalol:

http://www.americarx.com/SearchProducts.aspx?SearchText=alkalol%

20liquid & OVRAW=alkalol%20liquid & OVKEY=alkalol%

20liquid & OVMTC=standard & OVADID=477965521 & OVKWID=1486380021 & ysmwa=I0SuzPe

JH-Y6PP1MYVIbC7FJAsRw_G1oEGFwx7w8VMarE6b4DHl6A3H5yisXYL6a

Hope you find relief... I sure did!

Wolfie

>

> I've been diagnosed with lyme and am beginning treatment. I have

numerous symptoms.

> I've had sinus problems for a long time but the last few years, there

is almost always a tiny

> bit of blood in my mucous. I don't know when I contracted lyme. Is

there any connection

> with lyme? I'd like to know because of treatment issues.

>

> Thanks from Sheryl

>

[Guest guest]

Sheryl,

I have a friend whose LLMD says that Lyme DOES infect the sinuses. My friend not

only has chronic swelling in her sinuses, but also in her jaws and gums and

teeth, as well.

I'll try to find out what nose spray her LLMD recomends, if you'd like more

info.

Best wishes for a complete recovery,

anne

From: skmackie <skmackie@...>

Subject: [ ] Sinus

Date: Sunday, June 22, 2008, 12:02 PM

I've been diagnosed with lyme and am beginning treatment. I have numerous

symptoms.

I've had sinus problems for a long time but the last few years, there is almost

always a tiny

bit of blood in my mucous. I don't know when I contracted lyme. Is there any

connection

with lyme? I'd like to know because of treatment issues.

Thanks from Sheryl

[Guest guest]

I'm also having trouble with teeth and jaws. Any information on what has helped

your

friend is welcome. Thank you.

Sheryl

>

> Sheryl,

> I have a friend whose LLMD says that Lyme DOES infect the sinuses. My friend

not only

has chronic swelling in her sinuses, but also in her jaws and gums and teeth, as

well.

> I'll try to find out what nose spray her LLMD recomends, if you'd like more

info.

> Best wishes for a complete recovery,

> anne

[Guest guest]

I have a friend who has had something similar for a few years (that actually

drove her to a suicide attempt) and no one has found any treatment yet - this

lady describes it as " pulling and pressure " sensation in the right side of the

head, the hose the gums and teeth. It seems to " migrate " between these areas

often, but hardly ever lets up. She has a Neti pot (that I brought to her for

use) but cannot use it because she is in a care center now from the suicide

attempt. Any suggestions would be truly helpful.

Glen in NJ

[ ] Re: Sinus

I'm also having trouble with teeth and jaws. Any information on what has

helped your

friend is welcome. Thank you.

Sheryl

>

> Sheryl,

> I have a friend whose LLMD says that Lyme DOES infect the sinuses. My friend

not only

has chronic swelling in her sinuses, but also in her jaws and gums and teeth,

as well.

> I'll try to find out what nose spray her LLMD recomends, if you'd like more

info.

> Best wishes for a complete recovery,

> anne

[Guest guest]

My lyme symptoms are predominantly neurological and I'm not surprised that your

friend

is quite depressed if she has lyme. The unrelenting nature of the disease wears

you

down. In time you begin to feel that your life is essentially over. Also, the

neurological

aspect does effect your brain significantly. It can be quite bizarre.

My symptoms are predominantly on the right side of my head and include

stuffiness and

blotches of blood in my nose mucous, tooth pain, pressure on ears and head,

headache,

dizziness, off balance due to ear pressure on right side, etc. My eyes were

also attacked

- the whites of my eyes were red and I had burst capillaries or whatever,

creating red

dots in the whites of my eyes. I had an MRI and my brain looks normal but some

people

get lesions. Thus the importance of early treatment to avoid permanent damage.

Your friend needs a good lyme specialist if she can get one. Mine ran a

Westblot test

and it was positive. I contracted lyme while visiting a friend in northern CA.

Her

neighbor has lyme and she thinks she has it also. However her Westblot came

back

negative. She is being tested for co-infections - ticks carry nasty things

other than lyme.

The doctors need to go by symptoms, not just tests because they can be wrong -

thus

the importance of having a doc that knows something about lyme.

I'm just starting treatment and have relief already so she might be able to tell

quickly if

that is the problem. Getting a diagnosis is half the problem. I live in an

area where

there is no lyme and if I hadn't visited a doc in northern CA where I contracted

lyme, I

might still be waiting for a diagnosis as the docs here aren't trained to look

for it.

It's an unpleasant disease and it's tiring that some people think it must be in

your head,

especially since it literally is.

Good luck to your friend.

Sheryl

>

> I have a friend who has had something similar for a few years (that actually

drove her

to a suicide attempt) and no one has found any treatment yet - this lady

describes it as

" pulling and pressure " sensation in the right side of the head, the hose the

gums and

teeth. It seems to " migrate " between these areas often, but hardly ever lets

up. She has

a Neti pot (that I brought to her for use) but cannot use it because she is in a

care center

now from the suicide attempt. Any suggestions would be truly helpful.

>

> Glen in NJ

>

[Guest guest]

Glenroy Wolfsen wrote:

> She has a Neti pot (that I brought to her for use) but cannot use it because

> she is in a care center now from the suicide attempt.

Are they restricting use of the neti due to its being considered an object

of possible self-harm? If that's the issue, I wonder if a tiny plastic nose

douche would be accepted by the powers that be there.

The last time I looked, Alkalol sells it from their website. It's very

inexpensive.

Deanna

[Guest guest]

All I can think of is saline nose spray as an alternative for the netipot

and meds for nerves. I have a lot of Lyme pain too, not in my jaw, but

horrific poking behind my eyes, excruciatingly painful. I tried Lyrica once

for

some of the nerve pains and it seems to help a little, otherwise anything that

calms your nerves will reduce the perception of the pain. Tell your friend

hello and we are thinking of her, there is a lot of people sharing the misery

of Lyme. Hope she gets the help she needs to feel better.

Dagmar

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

I was going to suggest the Neti pot... but she can't use it right now.......

also, she needs to kill the Lyme bacteria in those areas and the use of a Neti

pot with a solution of Tobramycin in normal saline, 30 ml twice a day through

the Neti pot is what I do for the very same thing... My LLMD ordered this...

[ ] Re: Sinus

I'm also having trouble with teeth and jaws. Any information on what has

helped your

friend is welcome. Thank you.

Sheryl

>

> Sheryl,

> I have a friend whose LLMD says that Lyme DOES infect the sinuses. My friend

not only

has chronic swelling in her sinuses, but also in her jaws and gums and teeth,

as well.

> I'll try to find out what nose spray her LLMD recomends, if you'd like more

info.

> Best wishes for a complete recovery,

> anne

[Guest guest]

I wrote an earlier response but it never got posted. Who knows why. I'll try

to recap.

Lyme has been attacking me predominantly neurologically - headaches, teeth hurt,

sinus

problems, eyes hurt, worse vision. Also, the whites of my eyes became reddish

and

occasionally a capillary or whatever in the whites of my eyes burst leaving a

red spot in

the whites of my eyes. That was happening more frequently the longer I had

lyme. My

right ear rings and everything else is worse on that side.

Sounds like your friend is being attacked neurologically. From experience I can

tell you

that it's no wonder she's depressed, unhappy, irritable, etc. Lyme can attack

the brain

and do strange things to the psyche. It also gets very old having people think

it's all in

your head, especially since it literally is.

Good luck to you and your friend.

Sheryl

>

> I have a friend who has had something similar for a few years (that actually

drove her

to a suicide attempt) and no one has found any treatment yet - this lady

describes it as

" pulling and pressure " sensation in the right side of the head, the hose the

gums and

teeth. It seems to " migrate " between these areas often, but hardly ever lets

up. She has

a Neti pot (that I brought to her for use) but cannot use it because she is in a

care center

now from the suicide attempt. Any suggestions would be truly helpful.

>

> Glen in NJ

>