Re: For Ceri re JULIA Houghton

[Guest guest]

, I am so sorry. One miscarriage has nearly finished me off,

I can't imagine what you've been through.

I really feel like someone HAS to help you. No-one should have

to go through 7 m/cs and not get an answer. Its inhumane.

In November I'm going to see Prof Lesley Regan at St 's

Hospital in London. She runs a recurrent miscarriage clinic (the

largest in Europe), and she has great success, not only with

immune issues. I heard of her because I read her book

" Miscarriage: what every woman should know " published by

Orion Books. I have to see her privately because my health

authority won't pay (in fact they won't do anything - they want me

to experiment with another pregnancy without any drugs!). But I

have a very sympathetic GP who was willing to refer me. I know

you're in Scotland, and I don't know what your financial

circumstances are, but why don't you write to Prof Regan? I did,

explaining my health history, and she send me back a lovely

reply, accepting me as a patient even though I've only had one

m/c. If you get accepted on the NHS, or privately, the wait is the

same - about 6 months...but I'm pinning my hopes on her as she

is a pioneer in the field. She is not only an expert, but conducts

many clinical trials also.

I feel so strongly that someone must be able to help you .

Good luck x x

Ceri

> Hi again Ceri,

>

> Thanks so much for your message.

>

> I've been through the mill on the blood test front regarding

pregnancy. I've

> had all the antibody/lupus/other tests done loads of times, and

each time -

> perfectly clear. I do, however, believe that if the immune

system is able

> to mess around in the way it does with us 'urticarians' then

blood tests

> results could most certainly be inaccurate too. I know

somebody with lupus,

> and it took her about twenty years to get an accurate diagnosis.

Immune

> system diseases have a knack of being able to disguise

themselves, by

> design.

>

> I've had six - possibly seven -miscarriages now, and I'm not

sure if it's

> getting tougher or easier, perverse as that sounds. I know I

want a family,

> but I don't know how many times Dave and I can realistically go

through

> this. On the other hand, I'm a woman with no other gynae

problems and I

> don't want to give up! What I do know is that after all of these

tests there

> is, on paper, no reason why this keeps on happening, and

since we've no

> fertility problems I'm not eligible for IVF either. I've got one

more

> appointment with the specialist miscarriage clinic, but

basically I think

> the NHS has taken it to the end of their road. Still - we'll see! I

can

> make a lot of noise when motivated enough, and at the

moment it has to be

> another case of me seeing my glass as half full, rather than

half empty,

> pompous as that may sound!

>

>

>

>

>

>

> JULIA Houghton

>

>

> > Hi

> >

> > I saw your post by accident. I'm sorry that you are also having

> > problems with pregnancy. Have you had any testing for

> > antibodies? Its just a simple blood test, but they don't tend to

> > offer it in the UK unless you've had at least 3 miscarriages

> > (terrible, I know). Even though you are more likely to have a

2nd

> > trimester m/c with antibodies, they can also affect 1st

trimester

> > pregnancies. If you are suffering repeated m/cs it could well

be

> > as result of these little buggers. Every time you get PG and

lose

> > the baby, your resistance is increased.

> >

> > If you want more info, I'll try and help.

> >

> > Ceri x x

> >

> >

> >

> >

> >

> >

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