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Carol,

One suggestion I have for getting kids to take the enzymes is to get a

shaker cup. You know, those plastic cups with lids that you can get at the

healthfood stores. If you put his drink in that cup, add the enzymes, then

put the lid on and shake it all up real good, the enzymes will disperse very

well and if it is a good tasting drink he probaly will not taste it. Just

pour the drink into a regular cup that he usually drinks from. Also using a

straw seems to help too. I do this everyday and it works well. Might give it

a go that way.

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  • 2 weeks later...
Guest guest

Hi Carol

Yup, we talked about the spacing problem months ago and I gave up

trying to figure that problem out. Now I've got this new problem but not

everyone is receiving the weird characters that seem to appear

haphazardly. It's always giving something to bug me.

Re: Re: cost of craft shows ??

Ditto for me, . No strange characters, just double spacing " like

poetry " -remember? I remember when you first mentioned the skipped

lines. Do

you recall what was going on then?

Carol J

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You know, I noticed that too. That¡Çs why I don¡Çt understand why

the Arial font I had set up as default would be causing the problem.

I still think has something to do with this whole thing. And I¡Çve

always had a problem where whenever I¡Çm on a new line of an email

it turns the first letter of the word into a Capital letter. I have to

go back

and highlight the Capital letter and change it to a small letter. Once I

do

that, it stays OK unless the line above it has a Capital letter

correctly

it makes the next line first letter a capital. I hope I said that right.

Anyway, this whole system sucks!!!

Re: Terri

In a message dated 4/8/03 9:02:30 PM Eastern Daylight Time,

jmurray2@... writes:

> OK, I finally managed to find where to change the font in the default

>

> for my email.

- I think that changes the fonts to a standard. If I use a

fancy

font and email someone through CNY soapmakers, and then I get a reply

that

shows my original message, the fancy font has been changed to a basic

one

like arial.

Carol J

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  • 2 months later...
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In a message dated 6/18/2003 7:15:13 PM Eastern Daylight Time,

diane.bennett@... writes:

> > Trisha does not show us spontaneous signs all we have

> is

> the mother telling us they use sign at home and we can't count that because

> we

> haven't seen it our selves. I am so upset and frustrated I don't know what

> to

> tackle first. Any suggestions because right now, I am too flustered to

> think >>>

>

Hi Carol,

Does Trisha sign for you in communication? Bring her to a meeting with you

and let the PPT team watch the interaction. Then state your case!

Charlyne

Mom to Zeb 10 DS/OCD ?

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In a message dated 6/18/2003 4:56:35 PM Eastern Daylight Time,

Csvillars@... writes:

> you know, I am regrouping getting ready for the next meeting, and this time

> it is going to be different, no more playing around, no more excuses, no

> more

> sob stories of why they can't this or that, also I'm requesting a copy of

> all

> her records especially the alternate sol assesment plan that they turned in,

> because according to that, she has mastered things that I know for sure are

> on

> her IEP where they still have her listed as only having emerging skills

> since

> the beginning of the school year. My question is how can she almost ace the

> sol and yet not be progressing on her IEP and also the psycological eval

> stated

> that she is showing more signs of regression. Something fishy is going on

> if

> you ask me.

Hi Carol,

Make sure to copy a FERPA letter and ask for the records by saying you are

getting ready for an IEP meeting. The school will have 5 days to produce the

records if you specifically say that they are for an upcoming PPT but have up to

45 days to get the records to you if you do not say they' re for a meeting.

Ask for a comprehensive speech evaluation by an independant consultant if you do

not agree with the schools. Where exactly did the psychologist say she was

regressing? If testing showed Trisha was regressing how was the school going to

change there teaching methodology etc. You need to put some questions back in

their corner. If they say they are not sure etc. ask for an independant

education consultant to help guide the team with what would be an appropriate

program for Trisha. It's all in the wording. Send in an agenda prior to your

meeting. Questions that you are going to present and what you would like to see

for

Trisha this year. If you are organized and prepared the meeting should go well.

Sometimes we do all rthe right things and just can't seem to get anywhere but

these tips certainly may make a difference. I wish you luck but mostly

Trisha's needs be met.

Charlyne

Mom to Zeb 10 DS/OCD ?

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  • 4 months later...

Carol

Thanks for the congrats on the baby. I'm going to " try " to post more

often. I really missed chatting with you guys but I find that if I sit

down and start posting after I read all my emails I tend to sit at the

computer too long and waste a lot of valuable time, you know?

Re: Happy Grandma is alive and kicking!!

Hey ! Great to hear from you, and congratulations on the new little

bundle of love! (and your thriving business!)

:-)

Carol J

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  • 3 months later...

Carol

Thank you so much!! A while back I spent hours on the web searching for

places to by this material because I wanted to make car fresheners.

Thank you, thank you, thank you!! It should work great in a zip baggie

for scent samples!!

Re: Slow time of year

In a message dated 2/12/04 6:10:00 PM Eastern Standard Time,

jmurray2@... writes:

> I wish I could get my hands on the

> material that they make those car air freshener hanging thingies

because

> I think that would work great.

Hi . Try here: http://www.oakcourtcreations.com/airfresheners.shtml

I haven't bought these yet, but saved the link because they sounded

interesting.

HTH

:-)

Carol J

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You're right. I wouldn't even be surprised if she sells the same

products but just calling it something else. I've printed out tons of

her recipes and have a lot of her stuff in my cupboards, too, that I

haven't tried yet. I'm real good at buying things with good intentions

and then find the stuff sitting there months and months later. Of

course, one of the reasons I have so much of this unused " stuff " is from

the grant money I got. My rep kept pushing me to SPEND, SPEND, SPEND. So

I ended up buying supplies that I figured I " might " use some day. Most

of the stuff I have from The Herbarie are in powder form so I'm assuming

the shelf life should be very long. Hopefully.

Re: RE: Re: PolyEm and PolyGel-Lizz,

Hi guys-I'll bet Angie at The Herbarie can help. She is wonderful and

very

knowledgeable and helpful. Try here as a staring point:

http://www.theherbarie.com/emulsfy.html

:-)

Carol J

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  • 4 months later...
Guest guest

In a message dated 7/14/2004 12:07:29 AM Eastern Daylight Time, csean@...

writes:

Anne, liking ourselves is one thing.....loving ourselves unconditionally is

another....but I'm still working on that one myself lol. It's terrible that we

put ourselves last but I think that's cuz we're the " strong ones " .

Huggggs

Carol

ps. Where do I buy that tree oil?

Dear Carol,

Loving ourselves unconditionally is something that we can only do when we

recognize that our strength is a gift from God. We make the mistake of thinking

that when we put ourselves on our own list, we should feel guilty. If we

don't take care of ourselves, " we ain't agonna be here a-tall " . :-)))

Here, you can buy tree oil at GNC, believe it or not. If it's not in stock

they will order it for you.

Anne

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  • 3 weeks later...
Guest guest

LOL... will do - would you like it frozen or on the

rocks??

--- debbie <dgs24@...> wrote:

> Ok enough talk.. make those margaritas already!!!!

> Deb

>

>

=====

Carol (aka Carol_in_VA and GrnEyesVA)

....If life gives you lemons, make lemonade...

but if life gives you limes, make margaritas!!

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I think it is Curad and Neosporin that has the new

products out. One is a bandaid and one is an ointment.

I used the ointment on my knee after urgery and it did

lessen the scars. I have been seeing a product

advertised on TV too but of course I can't remember

the name now. I'll keep an eye out and let you know.

Check with your pharmacist - he should know.

--- Sehgal <huggie192002@...> wrote:

> I havent tried any new products in the market...I

> did try silicon sheets, but they actually irritated

> my skin instead of helping it...Do you know of any

> good products

=====

Carol (aka Carol_in_VA and GrnEyesVA)

....If life gives you lemons, make lemonade...

but if life gives you limes, make margaritas!!

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Thanks Liliana - Sonjia was actually the one asking.

Maybe her doctor can prescribe it for her!

--- Liliana Maqueda <lmaqueda@...> wrote:

>

> Hi!!

> I am using a cream named (Fitoestimulina this is the

> name here in Mexico) my doctor prescribe me this do

> erase the scars after the Hellen, the active

> ingredient is Triticum vulgare y fenoxietanol)

> Phenoxyethanol I am sure that your doctor can

> prescribe you some cream with this ingredient.

>

> I hope this information can help you, for me is

> working really good I am using it two times a day.

=====

Carol (aka Carol_in_VA and GrnEyesVA)

....If life gives you lemons, make lemonade...

but if life gives you limes, make margaritas!!

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  • 1 month later...

-yes, I have ultam and ny nurses keep morphine here for me but have only had to use it once. I just love to be alert and get outside when i can etc and i find with the drugs I am too tired and sleepy. I still have my love for nature photography and hook into anyone who will give me a ride to a prk or lake and take pics to make photo programs for others. Guess when I don't get outside at least once a day i feel like i have missed something and just don't want to miss life at all. It feels so good and right to be back here and i love all of you. carol

On Sun, 12 Sep 2004 01:00:22 -0700 "Don and " <handd1@...> writes:

Carol,

Can you type with one hand? That may lessen the pressure on your lymph nodes under your arms. I can't tell you how happy I am to see your posts. I was so concerned when you didn't have a computer, and then I couldn't get mail to you either. I was very scared for you. There is a lot of good pain medicine that is non narcotic. Have you tried ultram? Please please don't feel guilty if you only write about yourself. We just want to know how you are, and help you in any way we can. You aren't alone!

Love,

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Carol,

I'm glad you have something for pain, but I'm sure that the Ultram doesn't quite cut it for you. I do understand about feeling like you've missed out if you don't get outside. Some days when I'm feeling especially bad, I at least go to the mailbox myself when I'm able. Sometimes I feel like a vampire because my eyes just aren't used to the daylight anymore. I pray that you won't have to be afraid of using the morphine when you need it. I understand your fear, but I also am concerned that you will try to tolerate pain needlessly. We all really missed you. You are very important to us all here...and whether or not you know it, you've impacted us all greatly....including the dynamics of the group itself. I'm sure you remember that it used to be that it wasn't allowed to post spiritual material for fear that the terrible fights that used to be on here would return. When we saw just what you were going through, and what you needed, we decided to allow spiritual material. That was because of you. --and a good thing, I think. When your computer went down, I toyed with the idea of making our group a non-profit charity so that we could accept donations and the group could buy you a new one. I found that it proved to be much more difficult to set up a non-profit than I expected. When the letters I sent were returned, I got very scared for you. You are a very special person, and I don't think you know just how incredible you are.

Love,

Re: Carol

-yes, I have ultam and ny nurses keep morphine here for me but have only had to use it once. I just love to be alert and get outside when i can etc and i find with the drugs I am too tired and sleepy. I still have my love for nature photography and hook into anyone who will give me a ride to a prk or lake and take pics to make photo programs for others. Guess when I don't get outside at least once a day i feel like i have missed something and just don't want to miss life at all. It feels so good and right to be back here and i love all of you. carol

On Sun, 12 Sep 2004 01:00:22 -0700 "Don and " <handd1@...> writes:

Carol,

Can you type with one hand? That may lessen the pressure on your lymph nodes under your arms. I can't tell you how happy I am to see your posts. I was so concerned when you didn't have a computer, and then I couldn't get mail to you either. I was very scared for you. There is a lot of good pain medicine that is non narcotic. Have you tried ultram? Please please don't feel guilty if you only write about yourself. We just want to know how you are, and help you in any way we can. You aren't alone!

Love,

~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

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  • 1 month later...

Hi Carol,

How ya doing??? Hope you do get some more of your lovely pictures! Good therapy too :o)

Love Ya

((( Pain Free Hugs )))

Helen

Anne-can so understand nto being able to take pictures. I went through a series of surgeries, radiation etc this summer that seemed to stel it form me. I used to go with a pastor from my church once a week the last three years and we have only been out a few times this summer. Oh well anne-on to better things right? there is always hope! carol

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  • 2 weeks later...

Dear Rae,

My son in laws name is Troy Carriker, he has a twin named Todd, I think his

father has an appliance store in Napa, his Mom is Martha and lives in North

Carolina. Martha is very out going and had a shop in the Yountville mall - she

is one of those people you couldn't wear a frown around her if you tried!

My daught er in law graduated from UOP and has a degree in Music Therapy.

They live in Bakersfield and have 5 children and one on the way. Fred (my son)

sings in gospel groups and manages a security company while is wife -

home schools the kids.

It would be fun to meet ...let me know - UOP has some great little coffee

places and a Japanese restaurant that is really good.

How are you doing with you eyes? Mine have been really bad, so has my mouth

with the Sjorgrens. Did you sign up for the test.

Please feel free to contact me direct if you would like to.

Gentle Hugs,

Carol M. in CA

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Carol... what is your son in laws name?? i have four kids and they are 26, 27,

28 and 32 years old... three girls and one boy... two of the girls are married

and boy do we ever have good son in laws... :o)

maybe they know each other and so that would make us sort a frineds.. hah a ha

my aunt gertrude live near the levee by UOP college...

maybe i can pick julie up and then we can all have lunch together...

bye for now, we have to run errands today!

rae

Re: [ ] Soap Opera of the Tongue

Rae,

I live in Stockton , which I think is about 1 hour away from Napa. My

son-in-law is from Napa and he visits family there on weekends. He took me

to

Yountville for mothers day last year. Napa is really a beautiful area and I

want to visit more.

Take care,

Carol M. in CA

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  • 4 months later...
Guest guest

I endorse Pam's points, Carol - all of them. I have also experienced

the parastheisas. My apnea is treated with C-Flex, at 13cm

expiration, 10cm intake. But PA still 'buzzes' and causes sleep

problems. Spiro has been blessed relief after many years of what I now

regard as needless suffering. A letter of consent requesting the drug

should do it.

Dave

On Mar 23, 2005, at 2:58 AM, Pamela s wrote:

>

> Hi, Carol

>

> When my aldosteronism is not treated, I run a lowgrade

> fever and feel easily overheated. I sometimes have

> facial flushing. I feel like I'm " wired " , almost like

> I've drunk too much coffee, but on a higher note, so

> to speak. It feels like a hum zinging through my

> brain; I have a lot of nervous energy. I can't sleep

> through the night, I have an incredible thirst, and I

> have to pee often, especially at night. Like you, I

> feel extremely alert at night when I should be

> sleeping. It's impossible to completely relax or

> rest; but at the same time, I can still feel very

> tired or exhausted because of the lack of sleep.

>

> If my potassium slips low (it's been down to 2.5), I

> can have some very uncomfortable muscle cramps. With

> severe hypokalemia, I also get a change in

> consciousness that makes my surroundings seem more

> unreal. I had one incident of wakening from a light

> sleep unable to move, which lasted for several

> minutes. At the time I found so inexplicable that I

> never even mentioned it to a doctor. I was afraid

> they would think I was losing my mind. But now I am

> aware that low potassium can cause intemittent partial

> paralysis, so it makes more sense.

>

> It's interesting that you mention sleep apnea. There

> are several of us here who have it, though I have

> never been diagnosed with it myself.

>

> I hope the doctors there will let you try

> spironolactone. I urge you to ask them about it and

> verbally make it quite clear that you are willing to

> take the risks (whatever they think they are) of

> trying an aldosterone blocker. You could put it in

> writing if they still don't respond. Whatever their

> hesitation is, a letter like that in your file may

> help them make the decision to treat you with an

> aldosterone blocker.

>

> I feel much better rested and relaxed when I'm taking

> spironolactone; not that it makes me sleepy at all,

> but it's just a more normal variation in levels of

> alertness that I don't experience without

> spironolactone.

>

> Naturally, the spironolactone also treats the blood

> pressure. Which is a blessing when you have very high

> blood pressure which cannot be controlled any other

> way. Mine can be as low as 100/60 on spironolactone.

>

> Warmly,

>

> Pam

>

>

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  • 7 months later...

a,

So glad that you and are safe from that Hurricane. Is it my

imagination or what, but it seems ever since you left here (N.J.) the

hurricanes have increased down there. Hopefully, Wilma will be the last

one for you to contend with this year. Praying that you have a painfree

winter down there in sunny Florida :)

Love ya,

Carol

a wrote:

> Carol,

>

> It's great to hear from you. Sorry about Ron's employment situation.

> That's got to be tough.

> Hopefully something better will come along.

> As usual, Esther continues to amaze me. In spite of how young she was

> when she developed RA and in

> spite of 65 surgeries, she continues to lead an active life. I'd like

> to see her story in Arthritis Today.

>

> It doesn't seem possible that your grandbabies are almost 4 already.

> Time really flies. I'll be they LOVE Aunt Esther.

> Thanks for thinking about us.

>

> a

>

>

>

> On Oct 27, 2005, at 9:02 PM, Esther Finlaw wrote:

>

> > , so glad that she and are OK. :)

> >

> > We are all hanging in there. Ron lost his job about a year ago due to

> > downsizing and it took him quite awhile to get another. He applied

> > all

> > over our area and the only place who hired him was a factory in

> > which he

> > has to work shift work. He is 58 so I think his age worked against

> > him

> > although legally it's not suppose to. Anyway, he never worked shift

> > work before and he really doesn't like it but has no choice.

> > Esther is

> > a trooper. She had a wrist fusion done on August 17th.....I

> > believe she

> > said it's her 65th surgery. Her arthritis is active again and her

> > Rheummy first put her on metho but it affected her blood too much and

> > she was sick on it. She has been on Kineret now for about six months.

> > Can't say if it's working or not but when she had to discontinue

> > all her

> > arthritis meds for surgery, her fingers really swelled......so,

> > between

> > her cocktail of plaquenil, arava, and Kineret, I guess one could say

> > they are working. She still works as a teacher's aide three to four

> > days a week for the mentally challegened children. Her bosses are

> > amazed

> > that she works even in pain. Some of her co-workers call off for a

> > slight headache or cold.

> >

> > Sorry, we haven't kept up with the list although I glance over and

> > read

> > some post often.. Have never unsubscribed hoping that some day we can

> > continue with the group.

> >

> > Your children must be getting up there in age by now :). How time

> > flies. I can't believe that our twin grandsons will be 4 in November.

> >

> > Wishing you all a pain-free day.

> > Gentle hugs,

> > Carol/ aka, Esther's Mom

> >

> > wrote:

> >

> > > Hi, Carol! Hope you and Esther and Ron are well.

> > >

> > > a was affected but she and are OK. Her computer service

> > is out,

> > > but I hope she'll be back online soon.

> > >

> > >

> > >

> > > Not an MD

> > >

> > > I'll tell you where to go!

> > >

> > > Mayo Clinic in Rochester

> > > http://www.mayoclinic.org/rochester

> > >

> > > s Hopkins Medicine

> > > http://www.hopkinsmedicine.org

> > >

> > >

> > > [ ] a

> > >

> > >

> > > >

> > > > a,

> > > >

> > > > Haven't seen you online for a few days.....how did you come

> > through the

> > > > Hurricane?

> > > > Wasn't sure if Wilma hit around where you live. Pray all is

> > well :).

> > > >

> > > > Carol/ aka Esther's Mom

> > >

> > >

> > >

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  • 6 months later...
Guest guest

Hi, Carol,

I have an open map in my Freedom on P1, and a louder version of that

same map in P 2. P3 and P4 are the same as P1 - one with adro and one with

beam.

I always hated auto-sens in my 3G, and in my hearing aids for years before

that. I only use whisper on my 3G for tv when I'm alone, so would rather have

2 versions of an open map to take me to my next mapping appointment each time.

Hope this makes sense.

:o) Jackie

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  • 3 months later...

Why can't you find anyone to give a second opinion? Did other neurosurgeons

refuse to give you an appointment because you've already seen another one?

Have you been on any meds for the numbness and tingling, I guess that's what

you thought was carpal tunnel.

Dee

---------------------------------

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Why can't you find anyone to give a second opinion? Did other neurosurgeons

refuse to give you an appointment because you've already seen another one?

Have you been on any meds for the numbness and tingling, I guess that's what

you thought was carpal tunnel.

Dee

---------------------------------

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hi dee,

i'm not sure what the issue about the 2nd opinions is -- whether it's $$ or some

kind of surgeon loyalty or ??? my insurance will cover it completely. but

when i call places that my insurance carrier tells me to call, the docs will not

" do " it.

i haven't taken meds for carpal tunnel -- only for inflammation a little but

never with much help.

the MRI's and x-rays they took after the ugly needle/electricity test showed

spurs and deteriorating bones and unstable vertebrae and all the other issues

that unfortunately seem to be typical to the group.

i'd just like to have some assurance that if i do go through with this, it will

help, and there's more than just long-term pains and meds.

c

Re: carol

Why can't you find anyone to give a second opinion? Did other neurosurgeons

refuse to give you an appointment because you've already seen another one?

Have you been on any meds for the numbness and tingling, I guess that's what

you thought was carpal tunnel.

Dee

---------------------------------

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countries) for 2¢/min or less.

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hi dee,

i'm not sure what the issue about the 2nd opinions is -- whether it's $$ or some

kind of surgeon loyalty or ??? my insurance will cover it completely. but

when i call places that my insurance carrier tells me to call, the docs will not

" do " it.

i haven't taken meds for carpal tunnel -- only for inflammation a little but

never with much help.

the MRI's and x-rays they took after the ugly needle/electricity test showed

spurs and deteriorating bones and unstable vertebrae and all the other issues

that unfortunately seem to be typical to the group.

i'd just like to have some assurance that if i do go through with this, it will

help, and there's more than just long-term pains and meds.

c

Re: carol

Why can't you find anyone to give a second opinion? Did other neurosurgeons

refuse to give you an appointment because you've already seen another one?

Have you been on any meds for the numbness and tingling, I guess that's what

you thought was carpal tunnel.

Dee

---------------------------------

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countries) for 2¢/min or less.

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Carol, that's so disgusting that they don't look at their jobs as " helping

people " . All that loyalty to the others dr's, I know what you mean, cause I've

seen it as a nurse.

Can you call to make an appointment to see a neurosurgeon for the second

opinion, but not tell them that it's for a second opinion. Just make an

appointment for your symptoms, then, when you get there, show your MRI, but

don't tell them what the other one said. Just say the neurologist said you

should see a neurosurgeon. Sometimes I guess you have to play the game.

Dee

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

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