Re: LDN and rheumatic diseases

June 13, 2009

Hi:

I've been following this thread on LDN and automimmune and thought I " d post my

experience.

I have CREST scleroderma, post here once in a while, but read most of the

posts.....a while ago someone mentioned LDN on this site and I discussed it with

my doctor. My doc is so progressive and informative and an active learner in

medicine...that when I mentioned LDN, he immediately told me about other

patients that he has on it, with success. He ha never used is with a scleroderma

patient, so I am his first.

I have been on LDN about 2 months and have been taking andecotal notes. The

first week I had tried it I did not feel well, I was awake a lot during the

night (this is a common side effect). After about 5 days things leveled off.

Then I noticed that the inflammation in my hands seemed to decrease, no more

redness and I feel a lot better. Overall I have more energy and noticed that I

need less sleep. At night my sleep is more restful.

I am taking the LDN along with the AP and so far have found this to help me feel

much better. In 2 weeks I have a dr. appointment to get my latest blood test

results. So, the proof will be in the numbers. From my experience at this point,

I would not discourage anyone from investigating or trying LDN.

The LDN website gives more info and reports of success stories.

Hope everyone is well!

Roni

Re: rheumatic Re: [rheumatoidarthritis-low dose naltrexone] No Success

so far with LDN

> Hi Dolores:<BR><BR>> I know it is a lot to digest but then again autoimmune

conditions are very complex, and we all react differently to foods, supplements,

Rx's, etc. I encourage you to checkout www.lowdosenaltrexo> ne.org and

www.ldners.org. Naltrexone is inexpensive, can be purchased in the USA but you

need a compounding pharmacy to fill the Rx for 4.5 mg capsules because

Naltrexone comes either in a powder or 50 mg tablets. The first website

mentioned above will explain everything. The thinking behind LDN is to boost the

immune system to put rheumatic conditions in check. The thinking behind A/P is

to put mycoplasma in check and hope your immune system will take care of the

remaining bugs. Perhaps the two protocols would work together even better.

> All the best to you.

> Diane Springob

>

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