RE: Re: SD - Opinions Needed Please, to Dolores

[Guest guest]

Hi Dolores

Good to hear from you. I am happy for you and Mike.

your job souds good and perfect for both of you. It is

good to hear you are doing fine on MP. I guess I would

go for MP in few months.

You know my AP doctor. Dr. Whitman in HSS.I like him.

I am going to ask him for Lyme test. I did it once in

Mount sinai hospital. the result was negetive. But I

heard from many that the regular test is not accurate.

I have migrating pains that is one of the lyme

symptoms.I was surfing internet , came across with a

site for lyme patients. One of them complaing from

pain in her rib cage which I have developed since 8-9

months ago.

Have you found any AP doctor yet?

Please pass my regards to Mike.

have a good time

soheila

--- mike rosner <martysfolks2004@...> wrote:

> To Sohelia: Congratulations, e-mail me your new

> docs name. Hope you are doing better. I am doing

> fine. The new job and new home is perfect for

> continuing on the Marshall. The office is attached

> to the house as is the garage. The apt. is

> upstairs, so there is no commute between job and

> house. Mike and I run the business from the office

> from 9-5:30. We releave each other all day long, so

> it doesn't even feel like a job. Most times we sit

> in the office together and take care of customers as

> they walk in. We rent spaces in a storage facility

> and collect the monthly rents on the occupied units.

> It is very ideal. Love the whole set-up.~~~~Love,

> Dolores & Mike

>

> soheila A <soadl80@...> wrote: I had

> the same experience with Dr. T. He prescribed

> the minocine.My second appointment with him lasted

> barely 10 min. I thought why I should bother myself

> to

> take a 8 hours round trip by bus to Boston , paying

> lots of money (I don't have health insurance) to see

> him for few min. I found another AP doctor and am

> happy with him. He is great.

>

> soheila

>

> --- mike rosner <martysfolks2004@...> wrote:

>

> > My experience with Dr. T. was the same. I figured

> > out that once he sees you, there is not much else

> he

> > can do except to give you 6 months worth of

> Minocin

> > prescriptions. For people coming from far away,

> > this seems like a long journey for nothing. He

> told

> > me to come back in a year and gave me a year's

> worth

> > of prescriptions. I got very much better pretty

> > fast. What I did was have my blood tested in New

> > York and brought my results to him. He barely

> > glanced at them and said he treats patients, not

> > blood work. I have since moved to Corpus Christi,

> > Tx., but I am very much thankful for him getting

> me

> > back on my feet. Since I won't be traveling to

> > Boston anymore, I am searching for a Marshall

> > Protocol literate doc to help me stay with the

> > program. If any of you Texans in my area know of

> > a good doc who believes in the Protocol, I would

> > welcome some referrals. It doesn't have to be a

> > Rheumatologist necessarily. I need a doc who is

> > open to new ideas. Closed minded

> > ones need not apply. Thank you all so much. The

> > best to all of you. I continue getting better and

> > better. I am still on Minocin, and clindamycin. I

> > will soon be adding Azithromycin and have been on

> > the Benicar faithfully since starting on the

> > protocol in September 2007 ~~~~ Dolores & Mike

> > Rosner martysfolks2004@....

> >

> > ehgooding <ehgooding@...> wrote: Hi

> > Gail,

> >

> > Your comment below about being sensitive to light

> > made me immediately think

> > of Lyme's Disease. I also can relate to some of

> your

> > other symptoms. El

> >

> > _____

> >

> > From: rheumatic

> > [mailto:rheumatic ] On Behalf

> > Of savannahhipchick

> > Sent: Saturday, May 17, 2008 9:55 PM

> > rheumatic

> > Subject: rheumatic Re: SD - Opinions Needed

> Please

> >

> > I have to ask, did you see Dr. T? I had a similar

> > experience and am not very

> > happy at this

> > point.

> >

> >

> >

> >

> > >

> > > Just returned from Boston for a second visit to

> my

> > doctor. I have diffuse

> > > systemic scleroderma. Unlike my first visit,

> which

> > lasted about 45

> > minutes, and

> > > was open to a lot of questions and answers, this

> > one was anything but, and

> >

> > > lasted about 5 minutes. I felt so rushed and

> > stifled, and could only get

> > one of

> > > my 10 - 12 questions and concerns out before

> > having the door flung open

> > and

> > > my hand shook and escorted to the receptionist

> for

> > my next appt.

> > >

> > > Anyway, that having been said, I am experiencing

> > so much pain, usually in

> > the

> > > shin area, and neck area, though it travels,

> thats

> > for sure. I also have

> > an

> > > area to the base of my neck near my collar bone

> > that has swollen and gives

> > me

> > > trouble for the last week or so. In addition, my

> > eyes are so very light

> > > sensitive, I am having much trouble walking,

> > especially making turns, very

> >

> > > unsteady, gums and teeth sensitive, sense of

> smell

> > seems unbelievable

> > hightened, and I

> > > also have sjogrens, so of course the eternal dry

> > mouth, eyes, etc.

> > >

> > > Do you believe that all these above symptoms are

> > either scleroderma or

> > > sjogrens related, or do you believe there is yet

> > other things going on. My

> >

> > > insurance is refusing to pay anything, saying

> > pre-existing condition, even

> > though it

> > > took 10 months to diagnose, my insurance had not

> > kicked in until Jan. 1st

> > of

> > > this year, and frankly I am out of cash to see

> > mega doctors.

> > >

> > > Any ideas, thoughts, suggestions would be so

> > appreciated. I'm going

> > through

> > > an incredibly rough time, with little answers of

> > these branch off issues.

> > >

> > > Thanks so much. Gail

> > >

> > > The only thing I am taking at this time besides

> > armour thyroid for my

> > > underactive thyroid, is 100 mg. minocycline 2X

> > daily.

> > >

> > >

> > >

> > > **************Wondering what's for Dinner

> Tonight?

> > Get new twists on

> > family

> > > favorites at AOL Food.

> > > (http://food.

> >

>

<http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001>

> > aol.com/dinner-tonight?NCID=aolfod00030000000001)

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

=== message truncated ===

[Guest guest]

Hi Sohelia. I understand from reading so much about AP & MP, is that when

there is a problem in the body, it is because that is where the war is going on

between the antibiotics, the immune system response, and the dying micopolasma.

This is what they call herxing or immunopathology. I'm going thru the

neurological cleanup phase right now. Each phase has its' own set of symptoms.

This doesn't mean you are getting worse. Actually, you are suppose to feel

worse before you start feeling better. It is part of the AP & MP process. It

takes about 4 years or longer to finally get cleared out of all pockets of

micoplasma colonies. Once we are in remission, it may take a few rounds more of

antibiotics to totally clean out all the micoplasmas. It is a long slow

process. And it takes a lot of faith, patience and fotitude. Good luck with

Dr. Whitman. I didn't stay with him, because the first thing he did was change

the medications and dosages of the Marshall. He had no

intention of following it exactly as written. The Marshall has to be follow

exactly or it is not the Marshall Plan. He just didn't get it that I wanted a

doc to monitor me while I was on the Marshall. So, I sought out a doc who took

the time to study the Protocol and understood it. Now, I need to find a doc who

will do likewise. My NY doc wants to continue with a doc down here who is also

interested in MP. So, my search goes on.~~~~Love, Dolores & Mike

soheila A <soadl80@...> wrote: Hi Dolores

Good to hear from you. I am happy for you and Mike.

your job souds good and perfect for both of you. It is

good to hear you are doing fine on MP. I guess I would

go for MP in few months.

You know my AP doctor. Dr. Whitman in HSS.I like him.

I am going to ask him for Lyme test. I did it once in

Mount sinai hospital. the result was negetive. But I

heard from many that the regular test is not accurate.

I have migrating pains that is one of the lyme

symptoms.I was surfing internet , came across with a

site for lyme patients. One of them complaing from

pain in her rib cage which I have developed since 8-9

months ago.

Have you found any AP doctor yet?

Please pass my regards to Mike.

have a good time

soheila

--- mike rosner <martysfolks2004@...> wrote:

> To Sohelia: Congratulations, e-mail me your new

> docs name. Hope you are doing better. I am doing

> fine. The new job and new home is perfect for

> continuing on the Marshall. The office is attached

> to the house as is the garage. The apt. is

> upstairs, so there is no commute between job and

> house. Mike and I run the business from the office

> from 9-5:30. We releave each other all day long, so

> it doesn't even feel like a job. Most times we sit

> in the office together and take care of customers as

> they walk in. We rent spaces in a storage facility

> and collect the monthly rents on the occupied units.

> It is very ideal. Love the whole set-up.~~~~Love,

> Dolores & Mike

>

> soheila A <soadl80@...> wrote: I had

> the same experience with Dr. T. He prescribed

> the minocine.My second appointment with him lasted

> barely 10 min. I thought why I should bother myself

> to

> take a 8 hours round trip by bus to Boston , paying

> lots of money (I don't have health insurance) to see

> him for few min. I found another AP doctor and am

> happy with him. He is great.

>

> soheila

>

> --- mike rosner <martysfolks2004@...> wrote:

>

> > My experience with Dr. T. was the same. I figured

> > out that once he sees you, there is not much else

> he

> > can do except to give you 6 months worth of

> Minocin

> > prescriptions. For people coming from far away,

> > this seems like a long journey for nothing. He

> told

> > me to come back in a year and gave me a year's

> worth

> > of prescriptions. I got very much better pretty

> > fast. What I did was have my blood tested in New

> > York and brought my results to him. He barely

> > glanced at them and said he treats patients, not

> > blood work. I have since moved to Corpus Christi,

> > Tx., but I am very much thankful for him getting

> me

> > back on my feet. Since I won't be traveling to

> > Boston anymore, I am searching for a Marshall

> > Protocol literate doc to help me stay with the

> > program. If any of you Texans in my area know of

> > a good doc who believes in the Protocol, I would

> > welcome some referrals. It doesn't have to be a

> > Rheumatologist necessarily. I need a doc who is

> > open to new ideas. Closed minded

> > ones need not apply. Thank you all so much. The

> > best to all of you. I continue getting better and

> > better. I am still on Minocin, and clindamycin. I

> > will soon be adding Azithromycin and have been on

> > the Benicar faithfully since starting on the

> > protocol in September 2007 ~~~~ Dolores & Mike

> > Rosner martysfolks2004@....

> >

> > ehgooding <ehgooding@...> wrote: Hi

> > Gail,

> >

> > Your comment below about being sensitive to light

> > made me immediately think

> > of Lyme's Disease. I also can relate to some of

> your

> > other symptoms. El

> >

> > _____

> >

> > From: rheumatic

> > [mailto:rheumatic ] On Behalf

> > Of savannahhipchick

> > Sent: Saturday, May 17, 2008 9:55 PM

> > rheumatic

> > Subject: rheumatic Re: SD - Opinions Needed

> Please

> >

> > I have to ask, did you see Dr. T? I had a similar

> > experience and am not very

> > happy at this

> > point.

> >

> >

> >

> >

> > >

> > > Just returned from Boston for a second visit to

> my

> > doctor. I have diffuse

> > > systemic scleroderma. Unlike my first visit,

> which

> > lasted about 45

> > minutes, and

> > > was open to a lot of questions and answers, this

> > one was anything but, and

> >

> > > lasted about 5 minutes. I felt so rushed and

> > stifled, and could only get

> > one of

> > > my 10 - 12 questions and concerns out before

> > having the door flung open

> > and

> > > my hand shook and escorted to the receptionist

> for

> > my next appt.

> > >

> > > Anyway, that having been said, I am experiencing

> > so much pain, usually in

> > the

> > > shin area, and neck area, though it travels,

> thats

> > for sure. I also have

> > an

> > > area to the base of my neck near my collar bone

> > that has swollen and gives

> > me

> > > trouble for the last week or so. In addition, my

> > eyes are so very light

> > > sensitive, I am having much trouble walking,

> > especially making turns, very

> >

> > > unsteady, gums and teeth sensitive, sense of

> smell

> > seems unbelievable

> > hightened, and I

> > > also have sjogrens, so of course the eternal dry

> > mouth, eyes, etc.

> > >

> > > Do you believe that all these above symptoms are

> > either scleroderma or

> > > sjogrens related, or do you believe there is yet

> > other things going on. My

> >

> > > insurance is refusing to pay anything, saying

> > pre-existing condition, even

> > though it

> > > took 10 months to diagnose, my insurance had not

> > kicked in until Jan. 1st

> > of

> > > this year, and frankly I am out of cash to see

> > mega doctors.

> > >

> > > Any ideas, thoughts, suggestions would be so

> > appreciated. I'm going

> > through

> > > an incredibly rough time, with little answers of

> > these branch off issues.

> > >

> > > Thanks so much. Gail

> > >

> > > The only thing I am taking at this time besides

> > armour thyroid for my

> > > underactive thyroid, is 100 mg. minocycline 2X

> > daily.

> > >

> > >

> > >

> > > **************Wondering what's for Dinner

> Tonight?

> > Get new twists on

> > family

> > > favorites at AOL Food.

> > > (http://food.

> >

>

<http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001>

> > aol.com/dinner-tonight?NCID=aolfod00030000000001)

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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