Questions from first time AP user

[Guest guest]

Hi everybody.  I've been on this list for a long time, but I am just going to

see Dr. S in Chattanooga for the first time Tuesday and getting ready to begin

my journey to health on antibiotics.  I was wondering if you guys could help me

think of anything I need to ask the doctor or anything I should know before

starting AP.

 

A few questions I have in mind to ask are:

 

1) Will insurance pay for the antibiotics?

2) What supplements, if any, should I take along with the abx?

3) Should I use vitamin C? If so, how much?

 

I also have a question for the ladies of the group.  Since I've heard

antibiotics can effect how well birth control pills work, what do you use?  Are

IUD's safe?

 

Thanks for any help or advice you can offer!

 

Beth

[Guest guest]

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore.com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Hi Everybody!  This is Dolores & Mike.  We are totally elated.  As you all know

that after living in NYC for twelve + years, we made a move to Texas for a job

offer.  We were there barely 6 months when we got wind that my 96 yr. old mother

in Florida was in second stage Alzheimers.  So, we quit the job, put all our

furniture in storage and drove the RV to St. sburg Fl.The following two

months were a nightmare.  The doc said she could no longer live alone.  She

wouldn't go to a nursing home. Mike and I were staying in the RV while we tried

to sort out a solution to the dilemma.  Well, we decided to land in Pensacola

and all move in together.  It is warmer than NY and cooler than St. sburg

which we both like.  I was originally seeking to move to a warmer climate due to

the increase strain in winter on my lungs in the cold of NYC>  I have pulmonary

fibrosis from Scleroderma damage and breathing in cold air hurts. With each of

these

moves I have been seeking a doc.  None that I met would help me with AP.  One

D.O.gave me scripts reluctantly.  For the past two month I have been on a

" search for the right doc hunt. "   Well, today I found him.  Yippeeeee!  A

Rheumatologist I went to see today, heard me out about A/P and said he could not

treat me with A/P but since I am so convinced in the Infectious theory and  in

the antibiotic protocol, he gave me an instant referral to see the Infectious

doc in the same building of the hospital upstairs.  I thought I was going up to

make an appointment.  Well, they took me in right away.  The doc was fabulous. 

We spoke about Micoplasmas and A/P and I told him my story.  He said, you know I

am not a Rheumatologist and I said, " I don't need a Rheumatologist. "   I have a

Th1 disease.  I have a major infection and I need antibiotics.  A huge smile

came over his face and I became his patient.  I am insisting that I finish up

with

the Marshall and then if need be we will be trying different antibiotics.  We

discussed doxy and several other options.  I said later I will try, but only one

protocol at a time. He took a copy of the protocol, ordered my blood work, wants

all my history and I see him again in two weeks.  It is only today, that I

finally discovered, I have been chasing my tail looking for an A/P

rheumatologist when all I ever needed was an " Infectious Disease Specialist. 

Why didn't I think of that myself?  I feel so dumb!  Now I can get all the

antibiotics I need without an argument or have to justify and teach.  I feel so

relieved.  Will keep all of you in touch as we go along.  I feel like a huge

weight has been removed from my back.  When you have an infection, go to an

" Infectious Disease Specialist! "   Of course!  I got my Christmas present early. 

I now have a doc I can trust again.  At last I am home. His name is Dr.

Penico.  My best to

all of you and my greatest wish is that you all feel as great as we do today

with this discovery.  Dolores & Mike 

From: vinnylid <vinnylid@...>

Subject: rheumatic Re: Questions from first time AP user

rheumatic

Date: Monday, November 24, 2008, 8:37 AM

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Hi dolores I've been reading your blog this morning an I see you mentioned the

marshel protocall I've been studying this protocall for weeks an feel that the

infectious theory finally makes so much sense now. but I read that u r takeing

doxy In the mp they state they DO NOT use doxy. I am also on doxy an have not

started the mp. Do other people on the rumatic board know abt the mp? Do u know

anyone who has done well on the mp? Has your infectious doc heard abt this

protocal ?

Thank u dolores hope u r feeling well !

Brennen.....

Sent via BlackBerry from T-Mobile

rheumatic Re: Questions from first time AP user

rheumatic

Date: Monday, November 24, 2008, 8:37 AM

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Oh Dolores!

I am SO happy for you! That is such wonderful news! I hope this doc will be

everything for you that you need him to be. Glad you are doing so well in

Florida! Keep us posted!

Emma

On Tue, Nov 25, 2008 at 12:59 AM, mike rosner <martysfolks2004@...>wrote:

> Hi Everybody! This is Dolores & Mike. We are totally elated. As you

> all know that after living in NYC for twelve + years, we made a move to

> Texas for a job offer. We were there barely 6 months when we got wind that

> my 96 yr. old mother in Florida was in second stage Alzheimers. So, we quit

> the job, put all our furniture in storage and drove the RV to St. sburg

> Fl.The following two months were a nightmare. The doc said she could no

> longer live alone. She wouldn't go to a nursing home. Mike and I were

> staying in the RV while we tried to sort out a solution to the dilemma.

> Well, we decided to land in Pensacola and all move in together. It is

> warmer than NY and cooler than St. sburg which we both like. I was

> originally seeking to move to a warmer climate due to the increase strain in

> winter on my lungs in the cold of NYC> I have pulmonary fibrosis from

> Scleroderma damage and breathing in cold air hurts. With each of these

> moves I have been seeking a doc. None that I met would help me with AP.

> One D.O.gave me scripts reluctantly. For the past two month I have been on

> a " search for the right doc hunt. " Well, today I found him. Yippeeeee! A

> Rheumatologist I went to see today, heard me out about A/P and said he could

> not treat me with A/P but since I am so convinced in the

> Infectious theory and in the antibiotic protocol, he gave me an instant

> referral to see the Infectious doc in the same building of the hospital

> upstairs. I thought I was going up to make an appointment. Well, they took

> me in right away. The doc was fabulous. We spoke about Micoplasmas and A/P

> and I told him my story. He said, you know I am not a Rheumatologist and I

> said, " I don't need a Rheumatologist. " I have a Th1 disease. I have a

> major infection and I need antibiotics. A huge smile came over his face and

> I became his patient. I am insisting that I finish up with

> the Marshall and then if need be we will be trying different antibiotics.

> We discussed doxy and several other options. I said later I will try, but

> only one protocol at a time. He took a copy of the protocol, ordered my

> blood work, wants all my history and I see him again in two weeks. It is

> only today, that I finally discovered, I have been chasing my tail looking

> for an A/P rheumatologist when all I ever needed was an " Infectious Disease

> Specialist. Why didn't I think of that myself? I feel so dumb! Now I can

> get all the antibiotics I need without an argument or have to justify and

> teach. I feel so relieved. Will keep all of you in touch as we go along.

> I feel like a huge weight has been removed from my back. When you have an

> infection, go to an " Infectious Disease Specialist! " Of course! I got my

> Christmas present early. I now have a doc I can trust again. At last I am

> home. His name is Dr. Penico. My best to

> all of you and my greatest wish is that you all feel as great as we do

> today with this discovery. Dolores & Mike

>

>

>

> From: vinnylid <vinnylid@... <vinnylid%40>>

> Subject: rheumatic Re: Questions from first time AP user

> rheumatic <rheumatic%40>

> Date: Monday, November 24, 2008, 8:37 AM

>

>

> >

> > Hi everybody. I've been on this list for a long time, but I am

> just going to see Dr. S in Chattanooga for the first time Tuesday and

> getting ready to begin my journey to health on antibiotics. I was

> wondering if you guys could help me think of anything I need to ask

> the doctor or anything I should know before starting AP.

> >

> > A few questions I have in mind to ask are:

> >

> > 1) Will insurance pay for the antibiotics?

> > 2) What supplements, if any, should I take along with the abx?

> > 3) Should I use vitamin C? If so, how much?

> >

> > I also have a question for the ladies of the group. Since I've

> heard antibiotics can effect how well birth control pills work, what

> do you use? Are IUD's safe?

> >

> > Thanks for any help or advice you can offer!

> Beth

> > I take Minocycline for Psoriatic Arthritis and the insurance plan

> I have does not cover it because of my high deductable. Minocycline

> is covered under a tier 2 drug with most insurance plans. I buy it

> from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

> shipping. They appear to be quick and efficient. I take a probiotic

> supplement with every meal which I purchase from

www.Iherb.com<http://www.iherb.com/>and

> 1000mg vit c

> vinnylid

>

> >

> >

> >

> >

> >

[Guest guest]

Hello again Brennan.  You asked if others know about the Marshall.  I'm sure

many do. Trevor Marshall began with this protocol because he had Sarcoidosis.  I

believe most of his patients on the protocol have other Rheumatic diseases.  I

have Scleroderma and decided to try in spite of the fact that I don't believe

the majority of people on it have scleroderma.  It is mostly for Sarcoidosis. 

The only way to find out if anyone has heard about the Marshall Protocol is to

ask.  Has anyone out there ever heard of the Marshall Protocol and what's good

about it and what is bad about it?  So, Brennan! All we have to do is sit back

and read the answers.  I'm sure you will find many pros and cons.  I hope it

will be interesting.  The best to you all, Dolores & Mike

From: vinnylid <vinnylid (DOT) com>

Subject: rheumatic Re: Questions from first time AP user

rheumatic@grou ps.com

Date: Monday, November 24, 2008, 8:37 AM

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Hi dolores. Just read your response I'm sorry if there was a misunderstanding.

All of the information I read off the board I take in an process I just thought

I was missing maybe a piece of the puzzle when u mentioned doxy. I certainly

have your health an others on the board respected as I have taken on an

inflamatory disease myself. If you have started the mp have u had a bad herx? Do

u kno others who r on the mp ? How did they respond?

Thank u. Delores

Brennen

Sent via BlackBerry from T-Mobile

rheumatic Re: Questions from first time AP user

rheumatic@grou ps.com

Date: Monday, November 24, 2008, 8:37 AM

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Hi Brennan,  Hope you had a great Thanksgiving.  Please take no offense.  I just

wanted to clear that up so others wouldn't get confused.  It is difficult when

reading so many posts at once to miss something or add something. I have

Scleroderma and for some reason, I have never really had any bad herxes. 

Sometimes I feel better and sometimes I feel worse.  You know, I have good and

bad days.  Sometimes I feel like superwoman and can do everything and then I get

overwhelmingly tired and then I have to cool any strenuous activity.  Usually an

hour's nap will renew my energy.  I can't really pinpoint herxes as such.  Some

people can, but I think Scleroderma people may not herx as much as others with

different diseases. Whatever happens, I just keep on going with the protocol and

trust that I am doing the right thing.  I know that I don't have the same

symptoms I used to.  Most go away eventually and then new symptoms crop up.  I

just figure it

is the mycoplasma attacking another part of my body and the antibiotics chase

them.  I sometimes feel like a giant game of pac-man is going on inside of me. 

No, can't say that I am aware of herxing.  Could be that I am in denial.  Who

knows!  The best to you, Dolores & Mike

From: vinnylid <vinnylid (DOT) com>

Subject: rheumatic Re: Questions from first time AP user

rheumatic@grou ps.com

Date: Monday, November 24, 2008, 8:37 AM

>

> Hi everybody.  I've been on this list for a long time, but I am

just going to see Dr. S in Chattanooga for the first time Tuesday and

getting ready to begin my journey to health on antibiotics.  I was

wondering if you guys could help me think of anything I need to ask

the doctor or anything I should know before starting AP.

>  

> A few questions I have in mind to ask are:

>  

> 1) Will insurance pay for the antibiotics?

> 2) What supplements, if any, should I take along with the abx?

> 3) Should I use vitamin C? If so, how much?

>  

> I also have a question for the ladies of the group.  Since I've

heard antibiotics can effect how well birth control pills work, what

do you use?  Are IUD's safe?

>  

> Thanks for any help or advice you can offer!

Beth

>  I take Minocycline for Psoriatic Arthritis and the insurance plan

I have does not cover it because of my high deductable. Minocycline

is covered under a tier 2 drug with most insurance plans. I buy it

from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

shipping. They appear to be quick and efficient. I take a probiotic

supplement with every meal which I purchase from www.Iherb.com and

1000mg vit c

vinnylid

>

>

>

>

>

[Guest guest]

Thank you Emma,  Hope you had a great Thanksgiving.  I've got two weeks to

gather all my old records.  Things are looking up.  Take care, Dolores & Mike

>

> From: vinnylid <vinnylid (DOT) com <vinnylid%40. com>>

> Subject: rheumatic Re: Questions from first time AP user

> rheumatic@grou ps.com <rheumatic%40g roups.com>

> Date: Monday, November 24, 2008, 8:37 AM

>

>

> >

> > Hi everybody. I've been on this list for a long time, but I am

> just going to see Dr. S in Chattanooga for the first time Tuesday and

> getting ready to begin my journey to health on antibiotics. I was

> wondering if you guys could help me think of anything I need to ask

> the doctor or anything I should know before starting AP.

> >

> > A few questions I have in mind to ask are:

> >

> > 1) Will insurance pay for the antibiotics?

> > 2) What supplements, if any, should I take along with the abx?

> > 3) Should I use vitamin C? If so, how much?

> >

> > I also have a question for the ladies of the group. Since I've

> heard antibiotics can effect how well birth control pills work, what

> do you use? Are IUD's safe?

> >

> > Thanks for any help or advice you can offer!

> Beth

> > I take Minocycline for Psoriatic Arthritis and the insurance plan

> I have does not cover it because of my high deductable. Minocycline

> is covered under a tier 2 drug with most insurance plans. I buy it

> from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

> shipping. They appear to be quick and efficient. I take a probiotic

> supplement with every meal which I purchase from

www.Iherb.com<http://www.iherb. com/>and

> 1000mg vit c

> vinnylid

>

> >

> >

> >

> >

> >

[Guest guest]

Hello Dolores  and Mike,

Dolores I am so happy for you that you have found the doctor you need. I may in

the near future also think about an infectious disease doctor in Houston.

Burl and I are spending Thanksgiving in Las Vegas with my son. Having fun and

doing a lot of relaxing.

Stay well, give Mike a huge from the both of us.

Eva

>

> From: vinnylid <vinnylid (DOT) com <vinnylid%40. com>>

> Subject: rheumatic Re: Questions from first time AP user

> rheumatic@grou ps.com <rheumatic%40g roups.com>

> Date: Monday, November 24, 2008, 8:37 AM

>

>

> >

> > Hi everybody. I've been on this list for a long time, but I am

> just going to see Dr. S in Chattanooga for the first time Tuesday and

> getting ready to begin my journey to health on antibiotics. I was

> wondering if you guys could help me think of anything I need to ask

> the doctor or anything I should know before starting AP.

> >

> > A few questions I have in mind to ask are:

> >

> > 1) Will insurance pay for the antibiotics?

> > 2) What supplements, if any, should I take along with the abx?

> > 3) Should I use vitamin C? If so, how much?

> >

> > I also have a question for the ladies of the group. Since I've

> heard antibiotics can effect how well birth control pills work, what

> do you use? Are IUD's safe?

> >

> > Thanks for any help or advice you can offer!

> Beth

> > I take Minocycline for Psoriatic Arthritis and the insurance plan

> I have does not cover it because of my high deductable. Minocycline

> is covered under a tier 2 drug with most insurance plans. I buy it

> from www.drugstore. com 100mg pills, 120 quantity for $93.00 including

> shipping. They appear to be quick and efficient. I take a probiotic

> supplement with every meal which I purchase from

www.Iherb.com<http://www.iherb. com/>and

> 1000mg vit c

> vinnylid

>

> >

> >

> >

> >

> >