Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Wow! Awesome testimony! Thanks for sharing! From: rheumatic [mailto:rheumatic ] On Behalf Of Emma Sand Sent: Thursday, November 20, 2008 1:03 PM rheumatic Subject: rheumatic ABX success I had polymyositis. My CK (blood test- measure of muscle death) was 17,000 at its highest (normal is less than 200). It is now below 4,000 after 18 months on minocycline alone. I am expecting a return to fully normal blood work in the next year. 95% of my symptoms are gone, and I was nearly dead! Severely disabled and so weak I couldn't brush my own hair or get up the stairs or dress myself or swallow! I wake up at 7-8am feeling great instead of waking up in the afternoon with immediate suffering that lasts every waking moment. My strength scores were a median of 3 in 2006 and are now a median of 5. (5 is perfect) Can't wait to post my story on the website when my labs are normal! Many many thanks to this group for getting me to this point! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Congratulations! Dolores & Mike Rosner From: Tom <tscott2340@...> Subject: RE: rheumatic ABX success rheumatic Date: Thursday, November 20, 2008, 2:27 PM Wow! Awesome testimony! Thanks for sharing! From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf Of Emma Sand Sent: Thursday, November 20, 2008 1:03 PM rheumatic@grou ps.com Subject: rheumatic ABX success I had polymyositis. My CK (blood test- measure of muscle death) was 17,000 at its highest (normal is less than 200). It is now below 4,000 after 18 months on minocycline alone. I am expecting a return to fully normal blood work in the next year. 95% of my symptoms are gone, and I was nearly dead! Severely disabled and so weak I couldn't brush my own hair or get up the stairs or dress myself or swallow! I wake up at 7-8am feeling great instead of waking up in the afternoon with immediate suffering that lasts every waking moment. My strength scores were a median of 3 in 2006 and are now a median of 5. (5 is perfect) Can't wait to post my story on the website when my labs are normal! Many many thanks to this group for getting me to this point! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Congratulations! Dolores & Mike Rosner From: Emma Sand <seneca.whitaker@...> Subject: rheumatic ABX success rheumatic Date: Thursday, November 20, 2008, 1:03 PM I had polymyositis. My CK (blood test- measure of muscle death) was 17,000 at its highest (normal is less than 200). It is now below 4,000 after 18 months on minocycline alone. I am expecting a return to fully normal blood work in the next year. 95% of my symptoms are gone, and I was nearly dead! Severely disabled and so weak I couldn't brush my own hair or get up the stairs or dress myself or swallow! I wake up at 7-8am feeling great instead of waking up in the afternoon with immediate suffering that lasts every waking moment. My strength scores were a median of 3 in 2006 and are now a median of 5. (5 is perfect) Can't wait to post my story on the website when my labs are normal! Many many thanks to this group for getting me to this point! Quote Link to comment Share on other sites More sharing options...
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