Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Yep, those wrinkles got to me while I was sleeping. Woke up one day, looked in the mirror and saw this older face looking back at me and I immediately started to pull the skin this way and that way and nothing was happening. That stranger has taken over my mirror. Waaaaaaaah! I want a facelift. Love, Dolores & Mike. > > From: Cooky Stonkey <cookee1comcast (DOT) net <mailto:cookee1% 40comcast. net>> > Subject: RE: rheumatic Re: mino/dizzy update > rheumatic@grou ps.com <mailto:rheumatic% 40groups. com> > Date: Saturday, February 13, 2010, 7:07 PM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Great choices, I'm sure Ethel will see that it gets out.to the S/D'ers..Love, Dolores & Mike, > > From: ehgooding <ehgoodingcox (DOT) net> > Subject: RE: rheumatic Re: mino/dizzy update > rheumatic@grou ps.com > Date: Saturday, February 13, 2010, 3:42 PM > > Hi all, > > I was on Minocin, 100 mg daily, for almost three years to treat RA & > Lyme's. > I never herxed and I improved steadily. After three months I no longer had > 'sausage' fingers, no more Raynaud's, I had more energy, less pain, > etc. So > while I would fill an RX recommending twice as much med as I was going to > take - it lasted twice as long and I avoided interim price increases > (smile) > I only took 100mg a day. > > By the way, I had one Dr. tell me to never take Minocin after the > expiration > date. I managed to use mine up before that, and I normally don't worry > about expiration dates, but there was just something in the way he > said that > make me take heed. Has anyone come across that advice before and know the > reason why he might have said it? Regards to all, El > > _____ > > From: rheumatic@grou ps.com [mailto:rheumatic@ grou ps.com] On > Behalf > Of pcalvert.rm > Sent: Saturday, February 13, 2010 12:22 PM > rheumatic@grou ps.com > Subject: rheumatic Re: mino/dizzy update > > Hello Dolores, > > A dose of 100 mg twice a day is (apparently) normal for some patients, but > not all. For example, I have noticed that 100 mg of minocycline twice > a day > is the dose normally prescribed for people with scleroderma. However, for > people with " autoimmune " diseases that have inflammation as a significant > component (e.g., rheumatoid arthritis), 200 mg of minocycline a day could > easily be too much. > > By the way, with daily dosing, minocycline is being used as a DMARD. It is > *not* the same as the Antibiotic Protocol (AP) developed by Dr. Brown. > Sometimes it is referred to it as the Harvard Protocol. > > NOTE: I am not a medical professional. I am just passing along what I have > learned with the hope that it might be helpful to other people. > > Phil > > > > > > Dear Kathy, > > > > I just want to say that when I was first diagnosed, my husband and I > flew > to Boston to see Dr. T who was highly recommended an an A/P doctor. He > immediately put me on 100mg twice a day and I have been on that for the > better part of 4 years. No one ever told me that this is an excessive > dose. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Dolores, Arthritic pain and anemia can be caused by gluten sensitivity, which creates a leaky gut and makes it difficult to absorb nutrients like iron. While men are fortunate to escape pregnancy, we are not so fortunate as to escape gluten sensitivity. Sincerely, Harald At 04:16 PM 2/14/2010, you wrote: > >I'll be sure to ask for the ferretin lab test. I am prone to >develop anemia. Have been since childhood. As a child, I had to >take liquid iron and then again with each of my two pregnancies. At >the onset of my disease I was again very anemic. I hate it that I >can't seem to hold on to my iron. The hard part of being cold while >also being post menopausal is shivering while you are >sweating. Gross, gross feeling. You men are fortunate. Hehe! >Dolores & Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hello Harold, Lynne G. had told me about gluten sensitivity and celiac disease. I brought the subject up several times with all the doctors I have seen since 2005. And each time I tested negative.However, I have cut down of most wheat products by substituting ric and corn cereals with banana for breakfast. Don't know if that is the correct approach. Also, instead of mashed or baked potato, I have been cooking up rice and making lots of vegetable soups. Since I have been told numerous times that I must increase my protein, I usually make myself some sort of a peanut butter with small amount of SF Jam at night and some type of meat or fishfor the main meal. The awful diarrhea seems to have abated. Thank you and the group for all the information and keeping me on the right track. I really appreciate it very much.  I've just finished reading, " The Road Back " by Brown & Scammell and the book about scleroderma by Scammell. I read both about 4 years ago, but got so much more from this second reading. I must make a note to read it at least once a year as a refresher.  In the book it tells that dizziness is definitely a side effect of Mino. Some people had to drop out of the MIRA studies because of it. The only other thing I noticed is forgetfullness. My family talks about things we did, places we went and people we met. There are chunks of my life I do not remember and that bothers me. Now that I am on mino MWF instead of daily, the dizzies have stopped and the cloud is starting to clear. This time, I think I understood the mechanics by which A/P works on the Infection. The antigen causes the patient to have an allergic response and the micoplasma protect themselves, so the Immune system can get to the micoplasma once the inflammation goes down. I may have to read that part again as I think I understood some of it, but can't yet explain it properly. Right now, I am excited that for the first time both my ANA & my RF are 0. It took almost 5 years to achieve that. A milestone! Take care. Our best to you and all members of the group. You are all so wonderful. Dolores & Mike > >I'll be sure to ask for the ferretin lab test. I am prone to >develop anemia. Have been since childhood. As a child, I had to >take liquid iron and then again with each of my two pregnancies. At >the onset of my disease I was again very anemic. I hate it that I >can't seem to hold on to my iron. The hard part of being cold while >also being post menopausal is shivering while you are >sweating. Gross, gross feeling. You men are fortunate. Hehe! >Dolores & Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Debbie, before trying to answer your question, tell us what response you had to the medications you took up until September of last year? Also, are you taking a good probiotic in sufficient quantity to replace the good bacteria in the gut being killed off by the antibiotics? As for your daughter, you might consider taking her to an infectious disease specialist or a doctor familiar with the AP therapy. Herbals can be used instead of an antibiotic. Check out www.nutramedix.com. Make sure she is eating a healthy diet (no junk food, fried foods, sugar, prepackaged/prepared foods) to enhance her immune system, drinking lots of water and has good bowel elimination daily. Ethel rheumatic Re: mino/dizzy update > > > Hi, > > My name is Debbie and I am new to this group. I was diagnosed in 1995 > with Scleroderma & Raynaud's. I have the sausage fingers too! And > digital ulcers. I have tested positive for a few bands for Lyme but not > CDC positive and both of my children have health issues - chronic > infections. I have been on long-term antibiotics, mostly zithromax then > included doxycycline. No matter how much I beg, my doctor will not do > IVs; he is an expert in the area of vector-borne infections and he does > not want to wind up like or any other doctor brought before > the medical boards. We switched my meds in September to Biaxin and > Plaquenil and I got very anxious and stopped taking them. We are now > starting back on a higher doseage of doxy (100mg 2x/day) and the zithromax > (250 2x/day) - do you know if this combo will help with the sausage > fingers and ulcers? Also, my daughter (almost 12) has consistently tested > positive for Mycoplasma pneumoniae both IGG and IGE since she was 5 and > always feels sick. Any advice on that? > > Thank you so much. > > > > ------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribe@...! Groups > Links > > > Quote Link to comment Share on other sites More sharing options...
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