Re: mino/dizzy update

[Guest guest]

Kathy,

You've been taking 100 mg of minocycline for how long? That's a moderately high

dose. A dose of 100 mg minocycline QOD (e.g., M-W-F) would be more in line with

the antibiotic protocol.

Have you been taking the exact same type of mino all along? The thought just

occurred to me that perhaps the pharmacy has changed suppliers, and they are now

supplying you with mino that is different than what you were taking previously.

I hope your doctor isn't thinking of having you discontinue minocycline in order

to try LDN. Since there are several other antibiotics that you could take

instead of minocycline, it wouldn't make much sense to do that without trying

them first. LDN can always be added later, if desired.

Phil

>

> Well, My last dose of mino was monday nite. I skipped tues and weds. so far i

feel MUCH better. But I will take it tonite and see how i feel friday. then I

will start everyother day or something like that. I am interested in seeing what

I can find out about the LDN, as the Dr said he could add that if i cant handle

the mino. Kathy

>

>

[Guest guest]

i started mino at 100 mg a day in 2000. it didn't seem to help much so

after a year i upped to 200 mg a day. within 3 mos i was in complete

remission. felt great. no herxing or dizziness at all. then in late 2002

i developed horrible vertigo nausea and fatigue so crippling i could not

work drive. so i had to go off the mino as each time i tried to take it

those symptoms came back. i think i developed bad candida and that is

why the dizziness came.or maybe i developed an allergy to mino i don't

know. i also had the same symptoms when i tried ldn.

monique

[Guest guest]

Hi ,

How much LDN were you taking, and how long were you on it?

Phil

>

> i started mino at 100 mg a day in 2000. it didn't seem to help much so

> after a year i upped to 200 mg a day. within 3 mos i was in complete

> remission. felt great. no herxing or dizziness at all. then in late 2002

> i developed horrible vertigo nausea and fatigue so crippling i could not

> work drive. so i had to go off the mino as each time i tried to take it

> those symptoms came back. i think i developed bad candida and that is

> why the dizziness came.or maybe i developed an allergy to mino i don't

> know. i also had the same symptoms when i tried ldn.

>

> monique

>

[Guest guest]

i started at 1 mg and slowly worked up to 4.5 over 6 wks. i took it

about 2.5 mos.

monique

Hi ,

How much LDN were you taking, and how long were you on it?

Phil

>

> i started mino at 100 mg a day in 2000. it didn't seem to help much so

> after a year i upped to 200 mg a day. within 3 mos i was in complete

> remission. felt great. no herxing or dizziness at all. then in late 2002

> i developed horrible vertigo nausea and fatigue so crippling i could not

> work drive. so i had to go off the mino as each time i tried to take it

> those symptoms came back. i think i developed bad candida and that is

> why the dizziness came.or maybe i developed an allergy to mino i don't

> know. i also had the same symptoms when i tried ldn.

>

> monique

[Guest guest]

Hi ,

It's good that you started at a low dose. Unfortunately, based on what I've read

I think you increased the dose too rapidly, and you may have also taken a final

dose that was too high (for you). I recommend that you read this web page very

carefully:

http://www.webspawner.com/users/sideeffectsofldn/index.html

Phil

>

> i started at 1 mg and slowly worked up to 4.5 over 6 wks. i took it

> about 2.5 mos.

>

> monique

>

>

> Hi ,

>

> How much LDN were you taking, and how long were you on it?

>

> Phil

>

[Guest guest]

Hello Dolores,

A dose of 100 mg twice a day is (apparently) normal for some patients, but not

all. For example, I have noticed that 100 mg of minocycline twice a day is the

dose normally prescribed for people with scleroderma. However, for people with

" autoimmune " diseases that have inflammation as a significant component (e.g.,

rheumatoid arthritis), 200 mg of minocycline a day could easily be too much.

By the way, with daily dosing, minocycline is being used as a DMARD. It is *not*

the same as the Antibiotic Protocol (AP) developed by Dr. Brown. Sometimes it is

referred to it as the Harvard Protocol.

NOTE: I am not a medical professional. I am just passing along what I have

learned with the hope that it might be helpful to other people.

Phil

>

> Dear Kathy,

>

> I just want to say that when I was first diagnosed, my husband and I flew to

Boston to see Dr. T who was highly recommended an an A/P doctor. He immediately

put me on 100mg twice a day and I have been on that for the better part of 4

years. No one ever told me that this is an excessive dose.

>

>

[Guest guest]

Hi,

My name is Debbie and I am new to this group. I was diagnosed in 1995 with

Scleroderma & Raynaud's. I have the sausage fingers too! And digital ulcers.

I have tested positive for a few bands for Lyme but not CDC positive and both of

my children have health issues - chronic infections. I have been on long-term

antibiotics, mostly zithromax then included doxycycline. No matter how much I

beg, my doctor will not do IVs; he is an expert in the area of vector-borne

infections and he does not want to wind up like or any other

doctor brought before the medical boards. We switched my meds in September to

Biaxin and Plaquenil and I got very anxious and stopped taking them. We are now

starting back on a higher doseage of doxy (100mg 2x/day) and the zithromax (250

2x/day) - do you know if this combo will help with the sausage fingers and

ulcers? Also, my daughter (almost 12) has consistently tested positive for

Mycoplasma pneumoniae both IGG and IGE since she was 5 and always feels sick.

Any advice on that?

Thank you so much.