Re: Re: Alternative medicine recommendations from Mayo

[Guest guest]

Amy,

Nope, it was Definitely Evening Primrose Oil..a supplement..because I had been

taking it ....I have a book somewhere, in my entire bookcase of medical books

that does mention that it can be risky for women....It was early on when I

became sick tho..so maybe 10 yrs ago...This rheumy tends to be very conservative

with supplements...he took me off bromelain as well...he does rec fish oil...and

Co Q 10...but thats all he rec for me. I would imagine every patient is

different tho...My long time rheumy has never prescribed any of the more toxic

drugs for me. Altho he did have me on minocin for several years until I

developed a lung conditioin. As it happens, my lung condition can be caused by

minocin use...cases of OB in patients using minocin for acne...and OB has been

seen in RA patients..since I have RA as well as SD...my DR. took me off the

minocin immediately!!

Hey, if it works for you...thats great! I firmly believe that we all are

different and what works for one, may not work for another.

Debbie

rheumatic Alternative medicine recommendations from Mayo

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> Wow. So I went searching for Mayo and RA and found a page with supplement

suggestions.

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http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020/DSECTION=alternati\

ve-medicine

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> I am familiar with evening primrose oil, and my chiropractor told me to take

5 g of fish oil a day to help. I take Dr. Sinatra's Omega Q plus that has lots

of other goodies in it. Just thought I'd pass it on.

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> Cheers to all. Amy

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[Guest guest]

Sorry Amy..OB is Obliterative Bronchiolitis...Ob...some call it Bronchiolitis

Obliterans...it can go by both...it is the autoimmune reaction of your body

destroying itself...it starts, OBLITERATING the bronchiolies in the

lungs....they carry oxygen to your body, when they are gone...no amount of

oxygen will help you...because your body cannot receive it...fortunately for

me...My rheumy ordered a form of chemo for me, Photopheresis...that is used for

T cell lymphoma and in Graft Vs. Host disease...when a lung transplant patient

rejects...they use photopheresis for them...it stops it...thats what he ordered

for me....I finally got my ins co to see things our way....the OB stopped...

Sorry I should have explained the OB...D

rheumatic Re: Alternative medicine recommendations from Mayo

Debbie,

Thanks for your comments. what is OB?

Amy

>

> Amy,

> Nope, it was Definitely Evening Primrose Oil..a supplement..because I had

been taking it ....I have a book somewhere, in my entire bookcase of medical

books that does mention that it can be risky for women....It was early on when I

became sick tho..so maybe 10 yrs ago...This rheumy tends to be very conservative

with supplements...he took me off bromelain as well...he does rec fish oil...and

Co Q 10...but thats all he rec for me. I would imagine every patient is

different tho...My long time rheumy has never prescribed any of the more toxic

drugs for me. Altho he did have me on minocin for several years until I

developed a lung conditioin. As it happens, my lung condition can be caused by

minocin use...cases of OB in patients using minocin for acne...and OB has been

seen in RA patients..since I have RA as well as SD...my DR. took me off the

minocin immediately!!

> Hey, if it works for you...thats great! I firmly believe that we all are

different and what works for one, may not work for another.

> Debbie

>