Re: people with RA ITP and Splenectomies

February 9, 2008

Hi , No they never did say what caused Mike's ITP. They said to tell all

the relatives to get checked especially the children. I don't think they ever

did. The kids are grown women. We told them, but don't think they took the

docs seriously. They said it was heredity. Who knows? That was in 1991. And

yes, we feel the splenectomy was also a huge mistake. It nearly killed him. He

stroked, lost his foot to amputation and lives with pain constantly from damaged

nerves when they put the tubes into his pancreas which they nicked during the

surgery. Mike always gets rashes all over his body also. Doctors have looked

at it, but nobody seems to pinpoint the cause. Yes, I went into remission after

18 months of A/P Minocin. I continued the minocin and stopped in Sept because I

planned to do the Marshall Protocol in Oct. I started on Oct 15, 2007. I

should be starting the second phase in about another week or two. The Marshall

Protocol is to induce herxing. It is

supposed to be the cure. We shall see when I am done with all 3 phases. It is

more involved than A/P alone and is also another form of A/P. they also use

minocin in low doses and pulsed rather than taking it daily. In phase 2, I will

start some other antibiotics. It's a journey I am willing to take to get rid of

this disease for once and for all. I think Mike needs to go on A/P also. Will

make an appointment with my Rheumatologist. I see him in June again. Holy

Mackeral. 22 surgeries. What's left? I'm sorry to hear about your health

issues too. Keep in touch. Take care ~~~~Dolores & Mike

kjdel1977@... wrote: I am so sorry to hear about the health issues

you and Mike have faced. In

my mind, the removal of my spleen was a big mistake. It has forever changed

my body's ability to fight infection. But, I was in my early twenties and was

ill enough to not fight my mom and the docs in their " so-called cure " for

ITP. Did they ever find out what caused Mike's ITP? You have said, I think,

that your scleroderma went into remission for a time. Right?? I feel my big

battle has always been with the Lyme. I had surgery a couple of weeks ago to

correct boutenniere deformity of another finger, and my biggest battle has

been the ensuing rash over approx. 1/3 of my body. I am now either allergic

to the antibiotic they gave (encept/anceft?) or the anesthetic after 22

surgeries.

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5

48)

February 10, 2008

Hi Dolores & Mike:

I'll be re-starting AP after a Feb 15 appointment with a Tulsa doctor I expect

(hope???) will prescribe it.

I know this is an AP board, but I am interested (for the future, not right

away) in the Marshall Protocol. Could you e-mail me privately about it?

Thanks,

mike rosner <martysfolks2004@...> wrote:

Hi , No they never did say what caused Mike's ITP. They said to

tell all the relatives to get checked especially the children. I don't think

they ever did. The kids are grown women. We told them, but don't think they took

the docs seriously. They said it was heredity. Who knows? That was in 1991. And

yes, we feel the splenectomy was also a huge mistake. It nearly killed him. He

stroked, lost his foot to amputation and lives with pain constantly from damaged

nerves when they put the tubes into his pancreas which they nicked during the

surgery. Mike always gets rashes all over his body also. Doctors have looked at

it, but nobody seems to pinpoint the cause. Yes, I went into remission after 18

months of A/P Minocin. I continued the minocin and stopped in Sept because I

planned to do the Marshall Protocol in Oct. I started on Oct 15, 2007. I should

be starting the second phase in about another week or two. The Marshall Protocol

is to induce herxing. It is

supposed to be the cure. We shall see when I am done with all 3 phases. It is

more involved than A/P alone and is also another form of A/P. they also use

minocin in low doses and pulsed rather than taking it daily. In phase 2, I will

start some other antibiotics. It's a journey I am willing to take to get rid of

this disease for once and for all. I think Mike needs to go on A/P also. Will

make an appointment with my Rheumatologist. I see him in June again. Holy

Mackeral. 22 surgeries. What's left? I'm sorry to hear about your health issues

too. Keep in touch. Take care ~~~~Dolores & Mike

kjdel1977@... wrote: I am so sorry to hear about the health issues you and

Mike have faced. In