Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Now Leonie, what a thing to say, nobody was yelling. You know if we wouldn't let you know sometimes that things don't always go our way you would think we are mad. at you.yes, I do have also brain fog and forget what people sometimes tell me. I had to chuckle about your out burst, but I think we understand. By the way, friends, when they answer me back use capital letters in between my writing. this way they don't have to write a new msg, just add to it. think about it, it's easier. take care, don't be mad, be glad. Eva From: leonie cent <leoniecent@...> Subject: rheumatic Cooky rheumatic Date: Tuesday, August 26, 2008, 5:54 PM Yeah well Cooky, I'm going thru a very tough time right now, and asking questions to try and figure things out. If i wasn't interested in AP, i wouldn't bother to try and discuss things and get to the bottom of it. I have bad brain fog and can't read everything and take in information. I have an anxiety disorder which means i can't concentrate on anything or understand stuff and get my act together. I never noticed you or anyone offering to coach me a bit, even tho some on this list do give me a lot of help and information re AP and detoxing etc. And you shouting at me with your capitals letters and terse language just tells me you are a radical nut with no heart! You are mean. Goodbye! I'm going on methotrexate. ~Leonie leoniecentbigpond (DOT) com 02 62556202 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2009 Report Share Posted March 7, 2009 Hi Cooky, I wasn't sure if Tramadol was a narcotic, but if you say it's good for you, then I'll try it since I do have some here. My doc said i could use it for " breakthrough " pain whatever that is ! haha. I hate mixing them all up into a cocktail as it seems to intensify the side effects. I think Mino is helping me feel a little better already in terms of more energy, even tho the day after i take it, i seem to feel horrible. I know it will be slow going. That's why i got so anxious the other day and wrote to you and the list. Thanks for your prayers Cooky... means a lot to me. Leonie > > Leonie, > > > > Really sorry to hear you are in so much pain. As for the pain meds.I take > Ultram and my daughter in law takes Ultracett. They are both Tramedol which > may be what it is called where you live. I have never had a problem with it > and it is less strong than narcotics but does work for me. > > > > As for what to do? I probably would wait till you are having less pain to > start Minocin that way you can't say the Minocin is making you have pain. At > this point you should just listen to your doctors. > > > > I will say some prayers for you and hope you feel better soon. > > > > Hugs, > > > > cooky > > > > > Subject: rheumatic can someone help me - Cooky ? > > > > Hello list members, I'm in bad shape and feel desperate right now. Since my > knee replacement operation, i've been on strong pain killers (oxycontin, > tramadol, codeine) and they make me feel nauseous and dizzy all the time. > Also the op made most of my other joints flare up badly due to the > disruption to my phsyiology, or something? so now I'm a total wreck. Before > that, my symptoms weren't so bad and I could get by ok. I guess however that > I would have gone downhill at some stage - just delaying the inevitable. I > am on a strict diet of almost nothing at all except salad and tuna, with a > bit of fruit, and losing weight real fast it's scary - that doesn't help > with my energy of course. I don't know what else to do, everything i eat > seems to make my RA worse. > > Wednesday I took a Minocycline tablet as I want to go on AP again (don't > know why i gave up before) and work my way up to 100mg. Boy do I feel like > dying now ! I don't know if it's from the Mino or the cookie I ate (i got > desperate for a treat) - I always suffer if i eat grains/sugar. Or maybe > it's cos i took a herbal liver detox pill which i noticed has made me sick > in the past. I guess with so many drugs in me, it's easy to feel sick once > you try any sort of detox method. I'm hoping like hell the Mino does me some > good again as I hate Methotrexate and all my docs are pushing hard for me to > get on it ASAP. They think I am nuts for not towing the line. > > I wish I knew another drug that could control the pain without too many side > effects, but i don't think they exist. My next stop would probably be > cortisone, which I am loathe to try , but know it works well for pain. I > used to take Celebrex for years and it worked really well... had to stop due > an ulcer developing. > > I don't expect anyone to have exactly the right answers - i just need to > talk to someone - i'm so lonely on my own at home and having panic attacks > due to excessive pain and being frightened of dying. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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