more minocyline

[Guest guest]

Hi everyone,

 

had an appointment with my doctor and she increased my mino to (2) 100 mg a day

MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil 250 mg

once a day for six weeks. She told me my fungus on my hands, specially on my

finger nails is not gone even so I used Nizoral for 11 months. She also wrote

the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot of

blood tests because I have this very weak middle section and can not stand

upright for long. She also told me she would let me know more after the blood

test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have gone

to a neurologist a long time ago because of my Dermatomyositis. What gets me is

that you have to find out these things from patients and not from the doctors. I

think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using their

facility to do exercise there three times a week. It does help, but I still have

to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some trouble

because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we where on

our trip to California. Visited our new grandson, he is so cute. Visited a lot

of relatives and every one was trying to feed us their best food. I tried to

stay away as much as I could from foods that contained gluten but sometimes it

was impossible and I ate little of it.

 

Take care everyone, stay well.

Eva

 

[Guest guest]

Hi Eva,

I wrote you back a few days ago and I don't think you got my note. I am glad

to see you are on Lamsil. Make sure you are still taking your acidophilis

especially now. See if he will put you on Nystatin in addition because it is

for the gut fungus. I don't like the Nizoral. I think Difluan does a better

job. With the antibiotics you are on you need the nystatin and a bi weekly

dose of an antifungal. See Fungus never goes away we can only keep it tamped

down. Also try Listerine on your nails.

As for the Vit D.NO not too much at all. I know people on 10,000.

Makes me mad we have to be our own docs but look at it this way he has a lot

of patients and a home life too. So it is a good thing we are innovative

enough to help ourselves. Give yourself a pat on the back!

The knots should go away. I am glad to see you are getting brand name

Minocin.Boy I wish I could remember what I wrote (sigh).

Write to me anytime at my cookee1@... even if it is to complain or

if you need a shoulder to cry on.

Hugs,

Cooky

Subject: rheumatic more minocyline

Hi everyone,

had an appointment with my doctor and she increased my mino to (2) 100 mg a

day MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil

250 mg once a day for six weeks. She told me my fungus on my hands,

specially on my finger nails is not gone even so I used Nizoral for 11

months. She also wrote the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot

of blood tests because I have this very weak middle section and can not

stand upright for long. She also told me she would let me know more after

the blood test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too

much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have

gone to a neurologist a long time ago because of my Dermatomyositis. What

gets me is that you have to find out these things from patients and not from

the doctors. I think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using

their facility to do exercise there three times a week. It does help, but I

still have to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some

trouble because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we

where on our trip to California. Visited our new grandson, he is so cute.

Visited a lot of relatives and every one was trying to feed us their best

food. I tried to stay away as much as I could from foods that contained

gluten but sometimes it was impossible and I ate little of it.

[Guest guest]

Hi Eva,

please let me know if your protocol calls for 500 mg biaxin everyday or just the

days without mino.

I am trying to add an antibiotic to the mino that is not working for me anymore.

my doc has run out of ideas.

thanks,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic ; dermatomyositissupport ;

islandgirlinco@...; ferrari53@...; fineline2@...;

tmaldonado@...; cathturner@...

From: holloway-eva@...

Date: Fri, 6 Mar 2009 20:31:37 -0800

Subject: rheumatic more minocyline

Hi everyone,

had an appointment with my doctor and she increased my mino to (2) 100 mg a day

MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil 250 mg

once a day for six weeks. She told me my fungus on my hands, specially on my

finger nails is not gone even so I used Nizoral for 11 months. She also wrote

the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot of

blood tests because I have this very weak middle section and can not stand

upright for long. She also told me she would let me know more after the blood

test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have gone

to a neurologist a long time ago because of my Dermatomyositis. What gets me is

that you have to find out these things from patients and not from the doctors. I

think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using their

facility to do exercise there three times a week. It does help, but I still have

to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some trouble

because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we where on

our trip to California. Visited our new grandson, he is so cute. Visited a lot

of relatives and every one was trying to feed us their best food. I tried to

stay away as much as I could from foods that contained gluten but sometimes it

was impossible and I ate little of it.

Take care everyone, stay well.

Eva

[Guest guest]

,

 

I take one Biaxin 500 mg twice a day on Tu-Thu-Sat. I seem to have good results

with the Biaxin. I actually started my antibiotic protocol with it for at least

four months before I added the minocin. I also took Nizoral (anti-fungal

antibiotic) for 10 months, which healed my feet and lots of problems with my

hands.

Hope this helps,

Eva

From: M <petrumarzea@...>

Subject: RE: rheumatic more minocyline

rheumatic

Date: Saturday, April 25, 2009, 7:29 PM

Hi Eva,

please let me know if your protocol calls for 500 mg biaxin everyday or just the

days without mino.

I am trying to add an antibiotic to the mino that is not working for me anymore.

my doc has run out of ideas.

thanks,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic@grou ps.com; dermatomyositissupp ortgroups (DOT) com;

islandgirlinco; ferrari53bigpond (DOT) com; fineline2optusnet (DOT) com.au;

tmaldonado@sbcgloba l.net; cathturnershaw (DOT) ca

From: holloway-eva@ sbcglobal. net

Date: Fri, 6 Mar 2009 20:31:37 -0800

Subject: rheumatic more minocyline

Hi everyone,

had an appointment with my doctor and she increased my mino to (2) 100 mg a day

MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil 250 mg

once a day for six weeks. She told me my fungus on my hands, specially on my

finger nails is not gone even so I used Nizoral for 11 months. She also wrote

the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot of

blood tests because I have this very weak middle section and can not stand

upright for long. She also told me she would let me know more after the blood

test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have gone

to a neurologist a long time ago because of my Dermatomyositis. What gets me is

that you have to find out these things from patients and not from the doctors. I

think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using their

facility to do exercise there three times a week. It does help, but I still have

to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some trouble

because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we where on

our trip to California. Visited our new grandson, he is so cute. Visited a lot

of relatives and every one was trying to feed us their best food. I tried to

stay away as much as I could from foods that contained gluten but sometimes it

was impossible and I ate little of it.

Take care everyone, stay well.

Eva

[Guest guest]

Eva,

thank you for your prompt answer

why did you start the protocol with biaxin?

have you had trouble with strep or h. pylori of the stomach?

I got treated for both without much success.

what fungal issues do you have and did you try tea tree oil topical or oregano

oil systemic?

EMAILING FOR THE GREATER GOOD

Join me

rheumatic

From: holloway-eva@...

Date: Sat, 25 Apr 2009 18:02:53 -0700

Subject: RE: rheumatic more minocyline

,

I take one Biaxin 500 mg twice a day on Tu-Thu-Sat. I seem to have good results

with the Biaxin. I actually started my antibiotic protocol with it for at least

four months before I added the minocin. I also took Nizoral (anti-fungal

antibiotic) for 10 months, which healed my feet and lots of problems with my

hands.

Hope this helps,

Eva

From: M <petrumarzea@...>

Subject: RE: rheumatic more minocyline

rheumatic

Date: Saturday, April 25, 2009, 7:29 PM

Hi Eva,

please let me know if your protocol calls for 500 mg biaxin everyday or just the

days without mino.

I am trying to add an antibiotic to the mino that is not working for me anymore.

my doc has run out of ideas.

thanks,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic@grou ps.com; dermatomyositissupp ortgroups (DOT) com;

islandgirlinco; ferrari53bigpond (DOT) com; fineline2optusnet (DOT) com.au;

tmaldonado@sbcgloba l.net; cathturnershaw (DOT) ca

From: holloway-eva@ sbcglobal. net

Date: Fri, 6 Mar 2009 20:31:37 -0800

Subject: rheumatic more minocyline

Hi everyone,

had an appointment with my doctor and she increased my mino to (2) 100 mg a day

MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil 250 mg

once a day for six weeks. She told me my fungus on my hands, specially on my

finger nails is not gone even so I used Nizoral for 11 months. She also wrote

the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot of

blood tests because I have this very weak middle section and can not stand

upright for long. She also told me she would let me know more after the blood

test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have gone

to a neurologist a long time ago because of my Dermatomyositis. What gets me is

that you have to find out these things from patients and not from the doctors. I

think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using their

facility to do exercise there three times a week. It does help, but I still have

to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some trouble

because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we where on

our trip to California. Visited our new grandson, he is so cute. Visited a lot

of relatives and every one was trying to feed us their best food. I tried to

stay away as much as I could from foods that contained gluten but sometimes it

was impossible and I ate little of it.

Take care everyone, stay well.

Eva

[Guest guest]

,

my pulmonary doctor actually started me on Biaxin  January 2008,because I had

such bad sinus infections from August 2007 till January 2008. I am still having

problems but not as severe as then. I had been taking Cellcept, Enbrel and

Prednison at the time my sinus problem started. My rheumy would not let me get

off Enbrel more than a week and that didn't help the infection.The AP doctor

told me that the sinus issue needs to be taken care off, so as long as it not

healed I am taking two alternate antibiotics. I take Minocin (brand name) MWF.

I also take thyroid and ioderal. I do take a good probiotic on a daily basis,

right now I take two pills because I take other medications because of my

allergies.

This week I am taking also tessalon pearls for a bad cough because of my

allergies.

So take care,

Eva

From: M <petrumarzea@ hotmail.com>

Subject: RE: rheumatic more minocyline

rheumatic@grou ps.com

Date: Saturday, April 25, 2009, 7:29 PM

Hi Eva,

please let me know if your protocol calls for 500 mg biaxin everyday or just the

days without mino.

I am trying to add an antibiotic to the mino that is not working for me anymore.

my doc has run out of ideas.

thanks,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic@grou ps.com; dermatomyositissupp ortgroups (DOT) com;

islandgirlinco; ferrari53bigpond (DOT) com; fineline2optusnet (DOT) com.au;

tmaldonado@sbcgloba l.net; cathturnershaw (DOT) ca

From: holloway-eva@ sbcglobal. net

Date: Fri, 6 Mar 2009 20:31:37 -0800

Subject: rheumatic more minocyline

Hi everyone,

had an appointment with my doctor and she increased my mino to (2) 100 mg a day

MWF and left the Biaxin at 500mg once a day. She also put me on Lamisil 250 mg

once a day for six weeks. She told me my fungus on my hands, specially on my

finger nails is not gone even so I used Nizoral for 11 months. She also wrote

the Mino for Brand name only.

I asked her about LDN, but she never gave me an answer. She did take a lot of

blood tests because I have this very weak middle section and can not stand

upright for long. She also told me she would let me know more after the blood

test come back. Even took my e-mail address.

She told me to take 4000 mg of Vitamin D3. Does anyone think that is too much?

I have an appointment with my GP next week and I will ask her to see a

neurologist for the Dermatomyositis. Found out recently that I could have gone

to a neurologist a long time ago because of my Dermatomyositis. What gets me is

that you have to find out these things from patients and not from the doctors. I

think we inform each other better than the doctors do.

I am still doing my exercise from Phys. Therapy and will sign up for using their

facility to do exercise there three times a week. It does help, but I still have

to wear a brace every day.

Have some large arthritis knots on my arms and elbows, One gives me some trouble

because I prope my elbow on it.

Keeping up with my gluten-free food, had a hard time doing that when we where on

our trip to California. Visited our new grandson, he is so cute. Visited a lot

of relatives and every one was trying to feed us their best food. I tried to

stay away as much as I could from foods that contained gluten but sometimes it

was impossible and I ate little of it.

Take care everyone, stay well.

Eva