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Thanks Kathy, when he took the test he had just had a major infraction, and I

knew the chances of getting anything were slim, but he had the rash (of coursed

dr did not see him for a week after) and I wanted the titlers checked so I took

a chance. My dr, knows nothing of Celiac's or GFCf and so I won't even bother

asking him for more. Without putting Austin back on Gluten I will never know

this answer I guess. But the regression is more then I am willing to put a 4 yr

old through for a tax deduction or dx. You are correct in we as mothers can

make sure our kids are GF despite what the medical world thinks.

in Oceanside, CA

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  • 1 year later...

,

You wrote:

>

> Endo's suggestion is to lower my Armour of 3 grains to 2 grains. No

> other meds...actually he doesn't even prescribe Armour and only agreed

> to give me a 2 month supply at 120mg.

You might mention that T3 supplements in general (Armour is one)

artificially suppress the TSH, so he should rely on the FT3 and FT4

instead of the TSH " normal " range, which really applies BEFORE

medication is given but not after. If the free values are in the normal

range, you should not reduce your dosage.

Since he is unfamiliar with Armour, he is probably unaware of this

quirk, compared to T4 only medications.

Chuck

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Chuck,

As usual your information is helpful and invaluable. Thank you so much for

breaking that down, I appreciate it.

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Baizas wrote:

>

> As usual your information is helpful and invaluable. Thank you so much

> for breaking that down, I appreciate it.

You are most welcome. We'll have to see just how helpful it is, when you

pass it on to your physician. :)

Chuck

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> Message Received: Oct 16 2006, 06:41 PM

> From: " Baizas "

> hypothyroidism

> Cc:

> Subject: Re: Blood Test Results

>

> > Chuck,

>

> As usual your information is helpful and invaluable. Thank you so much for

breaking that down, I appreciate it.

>

>

>

> ---------------------------------

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countries) for 2¢/min or less.

>

>

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Dusty,

You wrote:

>

> ... I think it looks like maybe I need to increase something from the free T's

> readings?

I don't, especially after going 32 hours without meds. That suggests

that your FT3 is often higher. OTOH, I don't think the low TSH justifies

cutting your meds either. The only think I would suggest is to divide

your Cytomel doses. Don't take it all in the morning.

Chuck

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  • 8 months later...
Guest guest

> I have noticed 'redish' rings under his eyes yesterday and today.

Is this a sign of something other than tiredness?

Commonly associated with intolerances, especially phenol intolerance

http://www.danasview.net/phenol.htm

>>He has started getting hayfever as well - been on an antihistamine

when necessary.

Digestive enzymes and OLE eliminated this problem for me.

Dana

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Guest guest

Thank you Dana, I appreciate your advice.

Regards

danasview <danasview@...> wrote:

> I have noticed 'redish' rings under his eyes yesterday and today.

Is this a sign of something other than tiredness?

Commonly associated with intolerances, especially phenol intolerance

http://www.danasview.net/phenol.htm

>>He has started getting hayfever as well - been on an antihistamine

when necessary.

Digestive enzymes and OLE eliminated this problem for me.

Dana

---------------------------------

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  • 4 months later...

Hi

Many sufferers of hypothyroidism have a raised cholesterol - so this could be an indication that your thyroid isn't working as it should. Your TSH looks fine and so does your T4 (I am assuming this is a Free T4 result). Your T3 is a bit on the lowish side but I would need to see the reference ranges. If you got on the correct dose of thyroxine, your cholesterol level would quite probably fall and there would be no need to take Statins. Do you know what your BP reading was. What part of the country do you live in and do you know the name of the endocrinologist you are being referred to? Did she test your Ferritin (stored iron) level. Before you have your appointment, go to our FILES and read the one called "First visit to Endo" and that will give you lots of information about what you should take with you, the questions you should ask, etc etc.

Luv - Sheila

I was at the doctors yesterday it sort of went ok, but not at first.She agreed to give me a second oppion and referred me to a endo but only after me saying I was going to go private. She said all my bloods was fine apart from the calcium and collestral. She changed my collestral medication to ROSUVASTATIN, 5mg. Not sure weither this is the right readings of my blood,cause my daughter was quickly writting them from the computer. But I do get a propper copy on friday, which they are charging me £10 for.TSH : 1.32T4: 15.8T3: 4.3Will post correct blood readings on friday IF I GET A COPY after the last eppisode!!!mariaPS she is also sending me for a scan for the heavy periods. I asked her to fill in the blood form that DR.P gave me and she said she didnt have time to write that all down on the paper!! maria

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HI sheila,

not sure if it was free T4 or T3 because my daughter wrote it down very quickly. but I will hopefully know on friday when i go to get the copy from the surgery manager, hopefully i wont go through what i did last time with him when trying to get the results. oh by the way I did get another form from the pct about the complaint which I will be sending back tomorrow because he isn't getting away with it. My BP wasn't taken. I think my cholesterol may be high because I stopped the simvastatin but I also know that the thyroid can cause high cholesterol which leads me to believe the same has what you said that with the right amount of thyroxine it wouldn't be high. I dont really want to go on the statins because so many people have told me that they cause lots of problems and they did while I was on them that's why I stopped them. But the good news is my daughter is back from the states at the end of the week and I have given her a list of the supplements to get me so I will be starting on them and that will help the BP and cholesterol. Then I am off to see DR P on tuesday (cant wait). So part of me feels like I am heading in the right direction now. If I could just sort the symptoms out I would feel a lot better. or even if I could live just a few normal days a week I would be happy with that. what I don't understand is that when I first started on the thyroxine it took a little while for them to kick in and then I had stages where there was gaps in between where I was sort of ok. But theses last few months the symptoms are there everyday and I am more exhausted then I have ever been. When I told the doctor about the palpitations yesterday she said it might not be the thyroid it might be your heart (I thought I have been down this road before with other doctors) but since becoming a member of the group I have learnt lots of good things and one of them is not to take everything the Doctor says for face value.

while I was reading the other post someone cant remember who it was sent in about waking up in the night and this got me thinking if this is why I am so exhausted and having brain fog during the day a lot. I have noticed the last few nights I have been waking up out of a sleep and feeling that I am choking I dont think the doc would be happy with me if I ask for a sleep test to be done. but I think I am going to ask her.

I live in London (west) I ask her where she was going to send me for the endo she said Hammersmith hospital and then she said who ever's got the first appointment. I thought it could be done under the book and choose but maybe not all appointments are like that. I am going to take your advice and be ready for when I first go to see them.

thanks very much sheila for all your help and support and I am sorry that i have written a book again and gone on.

thyroid treatment From: sheilaturner@...Date: Wed, 7 Nov 2007 13:10:27 +0000Subject: Re: Blood test results

Hi

Many sufferers of hypothyroidism have a raised cholesterol - so this could be an indication that your thyroid isn't working as it should. Your TSH looks fine and so does your T4 (I am assuming this is a Free T4 result). Your T3 is a bit on the lowish side but I would need to see the reference ranges. If you got on the correct dose of thyroxine, your cholesterol level would quite probably fall and there would be no need to take Statins. Do you know what your BP reading was. What part of the country do you live in and do you know the name of the endocrinologist you are being referred to? Did she test your Ferritin (stored iron) level. Before you have your appointment, go to our FILES and read the one called "First visit to Endo" and that will give you lots of information about what you should take with you, the questions you should ask, etc etc.

Luv - Sheila

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, you are entitled to look at your notes to write down the information you require - tell them that you don't want a copy, you require

a quiet place to have a look at your notes - they cannot refuse this and then just write down the results and the reference ranges that will

be in brackets to the right - also note if there are any comments that the lab have written. I find it appaling that they are going to charge

you £10, I know they can but none of the other dr's that I know of ever have.

Luv nne

Not sure weither this is the right readings of my blood,cause my daughter was quickly writting them from the computer. But I do get a propper copy on friday, which they are charging me £10 for.

TSH : 1.32

T4: 15.8

T3: 4.3

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Hi nne,

thanks for your reply. I have already tried that a few weeks ago I made appointment to see the surgery manager to do that and then he said I couldn't. I put a complaint in to the pct they are dealing with it but it takes time. But when I went to my doctors yesterday I was desperate to get the results I offered her a sheet of paper with a table on it what I got of Dr P all she had to do was fill it in but she said she didn't have time. so I ask her for a copy of my bloods because I need them for when I go to see Dr P on Tuesday and that was when she suggested I go back at the end of the week and I can have a copy but it would cost £10 pound. I could of waited until the complaint had been dealt with but I know it wont be in time for me seeing Dr P. so I guess I am going to have to pay the money.

thyroid treatment From: marianne2406@...Date: Wed, 7 Nov 2007 15:22:53 -0500Subject: Re: Blood test results

, you are entitled to look at your notes to write down the information you require - tell them that you don't want a copy, you requirea quiet place to have a look at your notes - they cannot refuse this and then just write down the results and the reference ranges that willbe in brackets to the right - also note if there are any comments that the lab have written. I find it appaling that they are going to chargeyou £10, I know they can but none of the other dr's that I know of ever have.Luv nne

Not sure weither this is the right readings of my blood,cause my daughter was quickly writting them from the computer. But I do get a propper copy on friday, which they are charging me £10 for.

TSH : 1.32

T4: 15.8

T3: 4.3

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Hi Marie,

I will be away in Manchester at Dr Skinner's FTP Hearing on Friday until Sunday maria, so hopefully, if you post your results, somebody else will be able to interpret them for you. If you need any help filling in the form, let us know and I hope your complaint brings some positive results. I would complain strongly about you being forced into paying £10 to get your results when you had already made an appointment to go through your notes and your practice manager only allowed you 10 minutes and no more.Can you remind us why you didn't get your results at that time. Unfortunately, doctors can charge you up to £10 to get a copy of any information in your medical notes, but it seems a very uncaring practice when a practice manager will not even allow one of the receptionists to look on the computer and make a note of these for you.

Talk to your doctor about your reluctance to go back on Statins as there are other medications they can give you that are NOT statins to help bring down your BP. They can't prescribe you CoEnzymeQ10 because this is a natural supplement but they might be able to prescribe Niacin, though I doubt they would give you this in the high doses you might require.

Let us know how you get on with Dr Peatfield - I know you will feel so mouch more confident about looking after your own health after your appointment. Have you read his book "your Thyroid and How to Keep it Healthy" - this is one book every hypothyroid sufferer should read. It answers all the questions you have ever asked - or might need to ask in the future.

It can take a while for thyroxine to "kick in" - it usually takes a good while to find the dose that suits you. Wait and see how you feel after your next increase. You might find it is because you are suffering with low adrenal reserve that is the reason why you are not feeling so good as you did. This might be the cause of your palpitations too. DO ask your doctor to arrange an appointment for you to be tested to see if you do suffer sleep apnoea...and please stop worrying about upsetting the doctor with your questions. This is your health - not yhour doctors, and this is why she is being paid.

As your doctor said "it might be your heart" - has she suggested any tests to see if it is, and if so, what?

When you eventually do see the endocrinologist, if s/he is a person you feel you can trust, then ask the clionic nurse to write on your notes that you wish to see nobody else but him. Otherwise, you might find that every visit you have, you see a completely new doctor who knows nothing about you.

Luv - Sheila

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That is totally disgusting and I would get your piece of paper with the results and get a receipt for it - this is important

because you can then send this to your PCT saying that you have again been refused the results for free and have had to pay a £10 fee for which you would like a refund at the earliest as it is your right to check your file and take what information you require. I think this is disgusting.

Luv nne

Hi nne,

thanks for your reply. I have already tried that a few weeks ago I made appointment to see the surgery manager to do that and then he said I couldn't. I put a complaint in to the pct they are dealing with it but it takes time. But when I went to my doctors yesterday I was desperate to get the results

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thyroid treatment From: sheilaturner@...Date: Thu, 8 Nov 2007 07:49:22 +0000Subject: Re: Blood test results

Hi Marie,

I will be away in Manchester at Dr Skinner's FTP Hearing on Friday until Sunday maria, Hope it all goes well I will have my fingers crossed all weekend for Dr Skinner.

so hopefully, if you post your results, somebody else will be able to interpret them for you. If you need any help filling in the form, let us know and I hope your complaint brings some positive results. I have returned the form today and hopefully it should be dealt with within ten days. I would complain strongly about you being forced into paying £10 to get your results when you had already made an appointment to go through your notes and your practice manager only allowed you 10 minutes and no more.Can you remind us why you didn't get your results at that time. After the surgery manager giving me the 10 minute appointment for me to copy my blood results when I got there he changed his mind and said I couldn't do it. Unfortunately, doctors can charge you up to £10 to get a copy of any information in your medical notes, but it seems a very uncaring practice when a practice manager will not even allow one of the receptionists to look on the computer and make a note of these for you.

Talk to your doctor about your reluctance to go back on Statins as there are other medications they can give you that are NOT statins to help bring down your BP. They can't prescribe you CoEnzymeQ10 because this is a natural supplement but they might be able to prescribe Niacin, though I doubt they would give you this in the high doses you might require. I will talk to her about this next time I see her.

Let us know how you get on with Dr Peatfield - I know you will feel so mouch more confident about looking after your own health after your appointment. Have you read his book "your Thyroid and How to Keep it Healthy" - this is one book every hypothyroid sufferer should read. It answers all the questions you have ever asked - or might need to ask in the future. I will get a copy.

It can take a while for thyroxine to "kick in" - it usually takes a good while to find the dose that suits you. Wait and see how you feel after your next increase. The doctor wont increase it because the bloods are normal. You might find it is because you are suffering with low adrenal reserve that is the reason why you are not feeling so good as you did. This might be the cause of your palpitations too. DO ask your doctor to arrange an appointment for you to be tested to see if you do suffer sleep apnoea...and please stop worrying about upsetting the doctor with your questions. This is your health - not yhour doctors, and this is why she is being paid. I am going to talk to her about the sleep test next time I see her.

As your doctor said "it might be your heart" - has she suggested any tests to see if it is, and if so, what? She didn't mention any test.

When you eventually do see the endocrinologist, if s/he is a person you feel you can trust, then ask the clionic nurse to write on your notes that you wish to see nobody else but him. Otherwise, you might find that every visit you have, you see a completely new doctor who knows nothing about you.

Luv - Sheila

Thanks sheila for all your help and advice.

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Hi,

I too have been having difficulties getting blood test results

recently as a result of changes in procedure at my local health

centre. So I'm wondering whether there has been a change higher up

the line?

Theoretically it used to be possible to phone in advance anytime

and ask for a printout, stating I would collect it in person at a

convenient time. Then I'd turn up at said time, the GP's secretary

would mutter about it but eventually hand it over. Now, all patients

MUST phone between 1 and 2pm (when the secretary is at lunch and I

am told " sorry ,she's away from her desk phone back later " and

later " we only deal with this between 1 to 2pm - clever eh?!)

My GP's secretary is no longer allowed to print off the results, nor

is she allowed to speak them out too loud in case anyone can hear

(patient confidentiality). I cannot hear her whispering them from

across the room as I am deaf and can't lip-read that far either. So,

reluctantly, they have to be written down in a piecemeal fashion and

mistranscribed on a piece of paper. All of this is done grudgingly

and in a way designed to make me feel like I'm the world's biggest

nuisance.

I persist and eventually I DO get the results but frequently make

myself ill doing so. Shouldn't be like that, should it.

Tracey

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HI Tracey

I would send a copy of the message you have written here to your practice manager complaining about this new "rule". Tell him that you have also sent a copy to your local PCT as this is totally against the information recommended by the NHS.

Luv - Sheila

> > I persist and eventually I DO get the results but frequently make > myself ill doing so. Shouldn't be like that, should it.> > Tracey>

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  • 2 weeks later...

Have you had your blood tested to see if you have antibodies to your thyroid? If not, please ask your doctor to do thios test. Antibodies see your thyroid gland as public enemy number one and set about its destruction. This is called Hashimoto's.

The largest majority of people suffering hypothyroidism have Hashimoto's.

Luv - Sheila

I have just had another load of blood tests taken and got the results without a fight with the new GP (wow).Can a TSH level go down without any trestment.My TSH last month was 3.15 and this results says its 3.02.

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Hi Sheila

My Gp won't test for antibodies because my TSH is in the normal range.

I had the same problem with my old GP and have come against the same

with a different practise, the only difference is they printed off my

results with no questions asked!

>

> Have you had your blood tested to see if you have antibodies to

your thyroid? If not, please ask your doctor to do thios test.

Antibodies see your thyroid gland as public enemy number one and set

about its destruction. This is called Hashimoto's.

>

> The largest majority of people suffering hypothyroidism have

Hashimoto's.

>

> Luv - Sheila

>

>

>

> I have just had another load of blood tests taken and got the

results

> without a fight with the new GP (wow).

> Can a TSH level go down without any trestment.

> My TSH last month was 3.15 and this results says its 3.02.

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.503 / Virus Database: 269.16.4/1145 - Release Date:

22/11/2007 11:49

>

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That is ridiculous. Your TSH is already raised - for people to feel normal, it should be around 1.0. If you were in Europe or America, you would be classed as hypothyroid and already started on treatment with such a TSH. I would write to him and tell him you would like referring to an endocrinologist (a specialist who knows about thyroiod disease) because it is obvious he does not. Don't put the last bit in. any letters written by patients have to go on your medical notes. Send a copy also to the practice manager and say that you know you should be having your antibodies checked with the TSH you have got.

Luv - Sheila

Re: Blood test results

Hi SheilaMy Gp won't test for antibodies because my TSH is in the normal range.I had the same problem with my old GP and have come against the same with a different practise, the only difference is they printed off my results with no questions asked!>> Have you had your blood tested to see if you have antibodies to your thyroid? If not, please ask your doctor to do thios test. Antibodies see your thyroid gland as public enemy number one and set about its destruction. This is called Hashimoto's. > > The largest majority of people suffering hypothyroidism have Hashimoto's.> > Luv - Sheila> > > > I have just had another load of blood tests taken and got the results > without a fight with the new GP (wow).> Can a TSH level go down without any trestment.> My TSH last month was 3.15 and this results says its 3.02.> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.503 / Virus Database: 269.16.4/1145 - Release Date: 22/11/2007 11:49>

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If you have antibodies, your TSH can go up or down, and even without antibodies, it can go up and down depending on many factors. Have you been tested for antibodies Rosie?

luv - Sheila

> Can a TSH level go down without any trestment.> My TSH last month was 3.15 and this results says its 3.02.That's pretty much within experimental error, yes.Rosie

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Hi,

Tiny variations are perfectly normal- the TSH does vary throughout the

day so it is best to always have blood drawn at the same time.

Also if you have Hashimoto's a destructive flare up can also affect the

TSH.

Blood test results

I have just had another load of blood tests taken and got the results

without a fight with the new GP (wow).

Can a TSH level go down without any trestment.

My TSH last month was 3.15 and this results says its 3.02.

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing medication.

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  • 2 months later...

Hi Angie

My NHS blood tests are 'normal. I had tests done via Dr P and it

showed that my T3 was under range - suggesting I have a conversion

problem. I took the test sheet to my doctor who ignored it.

When I went to see an endo and took the results to show him - he

actually looked at them without making me feel like I was 'a fool and

her money etc.,'. I am now having a full test done (I hope) which will

back up the private tests.

B

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Angie, I can assure you that your blood results are not normal. Your Free T4 should be above 14 with this particular reference range, but I must say, I have never seen a reference range for Free T4 starting so low. Your STH needs watching. I see there was no Free T3 test done, neither were there any tests to see if you have antibodies to your thyroid, which is a very important test to do. Your GP is wrong to say there is no need to do these as they are unrelated to your TSH or Free T4. Ask your GP to test these. If you have antibodies, this means the antibodies see your thyroid tissue as public enemy number one and set about its destruction, thus making it very difficult for your poor thyroid to put out the amount of thyroid hormone your body needs. This is called Hashimoto's disease.

Luv - Sheila

Well, just got my last set of blood test results and guess what......yep, they're NORMAL (sob).They areTSH 1.89 (Range 0.35-5)T4 10.1 (Range 7.0-20.0)The doctor won't test for T3 and antibodies as she says it's not necessary.I know I should be pleased, but I'm not, because I'm desperate to know what's wrong with me.Any comments on the numbers would be appreciated. Angie x

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