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Hi,

I had a good doc who is now retired- he wasn't afraid to say 'I don't

know' to me- and then get his books out and find out!

The last doctor I saw was marginally better, but

she still came out with " I think you have psychological issues " .

That's when you know they can't think of what else to do with you.

Angie xx

> My GP told me I was depressed. I said I was not. He said there

were people walking around who do not know they are depressed. So

he reckoned I was depressed but I didn't know it.

>

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  • 4 weeks later...
Guest guest

>

> Just wondering if anyone knows if an electrolyte drink in the

morning

> of a fast for blood work would be okay. Or would is skew it in a

bad

> direction. I'm having a thyroid and cholesterol test done.

>

> thanks,

> sherri

>

Sherri, I had blood work for thyroid last week & was told you only

have to fast before cholesterol testing. Bummer. Susie

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Guest guest

>

> Just wondering if anyone knows if an electrolyte drink in the morning

> of a fast for blood work would be okay. Or would is skew it in a bad

> direction. I'm having a thyroid and cholesterol test done.

==>Hi Sherri. Do not have the electrolyte drink when you are fasting.

It will skew the results.

Bee

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  • 4 months later...
Guest guest

You need to ask your GP to refer you at once to an endocrinologist, as he has shown his inability to look after you. Your Free T3 is FAR too low (I know you haven't put in the ranges, but I can guess them. You need either your L-thyroxine increasing with immediate effect, or you need some T3 adding to your T4. Your FT4 should be in the upper third of the range when you are being treated with thyroxine, and yours is in the lower third - another indication that your thyroxine should be ioncreased. Your TSH is too high for somebody being treated with thyroxine - and again, shows you are not taking enough thyroid hormone replacement.

Quite simply, not getting sufficient L-thyroxine could be the cause of yet another miscarriage. Please get another full thyroid function test done, but PLEASE ask for a referral to your local endocrinologist asap.

Luv - Sheila

Hi, just wondered if anyone could just check these for me?FT3 3.4FT4 12.9TSH 2.09I had these done 9th July & am 7/8 weeks pregnant. My doctor said thatthese blood tests weren't necessary as he doesn't think thyroxin needchanges that quickly in early pregnancy & I'd last had a routine testdone in early June. Anyway, he said that I could get them done if Iwanted...........(keeping me 'happy' after my last 2 miscarriages).I'd already adjusted my own dose to 100mg per day as soon as I foundout I was pregnant as I usually alternate 75 one day with 100 thenext. Does this look ok?(In June T4 13.8 & TSH 1.9).No virus found in this incoming message.

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  • 1 month later...

,

You wrote:

>

> Following the forum's advice I gradually increased to 2 grains of

> Armour, which was too much I think as I had 'tightness' in the chest. ...

It might have simply been too quick. Your tests indicate you need more.

Just increase the dosage gradually. You should not worry about testing

RT3, unless your other tests look good, but you still feel ill.

Chuck

>

> My query is this - my blood tests taken last week with Lab 21 came back

> today with disappointing readings:

> TSH 9.0 (range 0.4 to 4.0)

> Free T4 7.7 (range12.0 to 22.0)

> Free T3 3.3 (range 3.0 to 6.2)

>

> I fully expected the readings to be much better using Armour, although I

> feel well.

> Before starting Armour my last levothyroxine readings were:

>

> Free T4 15.9 (range 12 - 35)

> TSH 2.0 (range 0 - 10)

>

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HI

Obviously, from your blood results, you are either not taking enough Armour, or you have one of the associated conditions that can stop your thyroid hormone replacement from getting properly absorbed. I think from the fact that you tell us you feel so much better since you started Armour, and that you had unpleasant and worrying symptoms when using synthetic L-thyroxine only, that it is important to go by how you feel, and not by your blood results. These results show you need to take a look 'outside the box'.

Ask your GP to test your ferritin (stored iron), your Vitamin D, Vitamin B12, magnesium/zinc levels. You can get the 24 hour urine test done through Genova Diagnostics and also the RT3. I did not know that Lab21 no longer did the rT3. Did they give you a reason for this. Perhaps we need to get onto these private laboratory owners to ask their reasoning behind this. This might be something to be discussed on the LABGAB forum.

Until you get these tests and their results, I would increase your Armour by just a quarter of a grain. Stay on a particular increase for at least 3 to 4 weeks, before increasing again. If you get the same problem as you have just experienced, then you must make sure you understand the reasons why this might be happening, and go to our website www.tpa-uk.org.uk and click on 'Hypothyroidism' then on 'Associated Conditions' and then read through all of these. Any one of the problems there could be stopping your thyroid hormone in its tracks and you will have to deal with whatever it is that is causing this, but we will walk you through it, and tell you exactly what test you need to do.

You can also complete the Adrenal Questionnaire and the Candida Questionnaire that you will find in the files on this forum website.

Luv - Sheila

Following the forum's advice I gradually increased to 2 grains of Armour, which was too much I think as I had 'tightness' in the chest. I weigh 8 stone so maybe 2 grains was too much for my weight. I dropped back to 1 grain for past month and felt better. Just increased yesterday to one and a quarter grains.

My query is this - my blood tests taken last week with Lab 21 came back today with disappointing readings:

TSH 9.0 (range 0.4 to 4.0)

Free T4 7.7 (range12.0 to 22.0)

Free T3 3.3 (range 3.0 to 6.2)

I fully expected the readings to be much better using Armour, although I feel well.

Before starting Armour my last levothyroxine readings were:

Free T4 15.9 (range 12 - 35)

TSH 2.0 (range 0 - 10)

No T3 given, these tests were the yearly NHS Thyroid Register tests.

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TSH 2.0 (range 0 - 10)Since when has the TSH range been 0-10!!!???? Have I missed something here?Free T4 15.9 (range 12 - 35)And this range is high at 35 being the cut off! Are you in the UK?> > Following the forum's advice I gradually increased to 2 grains of > Armour, which was too much I think as I had 'tightness' in the chest. ..> >

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- you need to read the BTA/ACB UK Thyroid Function Test Guidelines. 0.5 to 10.0 is the recommended reference range. However, not sure where the FT4 reference range came from. I have never heard of that one.

Luv - Sheila

TSH 2.0 (range 0 - 10)Since when has the TSH range been 0-10!!!???? Have I missed something here?Free T4 15.9 (range 12 - 35)And this range is high at 35 being the cut off! Are you in the UK?

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  • 2 weeks later...

MODERATED TO REMOVE MESSAGES ALREADY READ.LUV -SHEILA

_______________________________________________________________

Doesn't anyone want to tell me what this means? :(

>

> Hi back again

>

> Yes I do get cold I am at the school gates in cardi and coat and

the

> other mums are there with their bootlace t-shirts (brrrrr)!

>

> I get pains across my shoulders but no other joint pains

>

> My blood test results are as follows

>

> T4 level 15.6 (range 9.0 - 19.1)

>

> TSH 0.43 (range 0.35 - 4.94)

>

> Anne

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Hi Anne,

TSh looks OK T4 is in range, but could be a little higher the usual problem being that T3 wasn't done so it is impossible to tell if you are converting from these results. If your basal temps ( first thing before you get out of bed) are low then it is likely that you are not. Are you taking any meds?

> thyroid treatment > From: annepnash@...> Date: Sun, 21 Sep 2008 16:06:44 +0000> Subject: Re: Blood test results> > MODERATED TO REMOVE MESSAGES ALREADY READ.LUV -SHEILA> _______________________________________________________________> > Doesn't anyone want to tell me what this means? :(> > > >> > Hi back again> > > > Yes I do get cold I am at the school gates in cardi and coat and > the > > other mums are there with their bootlace t-shirts (brrrrr)!> > > > I get pains across my shoulders but no other joint pains> > > > My blood test results are as follows> > > > T4 level 15.6 (range 9.0 - 19.1)> > > > TSH 0.43 (range 0.35 - 4.94)> > > > Anne> > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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  • 4 months later...

YAY JODI !!!! Sounds like you've turned a corner and are heading towards better health!

Congrats!

Patty

In a message dated 2/3/2009 9:25:03 P.M. Eastern Standard Time, jodah235@... writes:

wanted to share my news with everyone.It's the first time in my life my Hematology blood values arecompletely in normal range!!!!!!A MIRACLE!Yes, many other things need to correct too..Hormonal issues, Thyroid issues, Very low iron among other things!But, I, Jodi do not have Anemia.I have been Anemic since I am 10 years old!!Jodi Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

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>

> wanted to share my news with everyone.

> It's the first time in my life my Hematology blood values are

> completely in normal range!!!!!!

> A MIRACLE!

> Yes, many other things need to correct too..

> Hormonal issues, Thyroid issues, Very low iron among other things!

> But, I, Jodi do not have Anemia.

> I have been Anemic since I am 10 years old!!

>

> Jodi>

JODI

HOW LONG ARE YOU ON LDN???

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I have been on LDN a little over 3 months.

My blood values started going up when I started the Specific

Carbohydrate Diet 17 months ago. I think the LDN gave it that extra

boost. I am beyond over the moon! I feel LDN with the combo of SCD

has just been miraculous for me and the Crohn's/Colitis!

Jodi

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Woo Hoo!! How exciting!

Carole

>

> wanted to share my news with everyone.

> It's the first time in my life my Hematology blood values are

> completely in normal range!!!!!!

> A MIRACLE!

> Yes, many other things need to correct too..

> Hormonal issues, Thyroid issues, Very low iron among other things!

> But, I, Jodi do not have Anemia.

> I have been Anemic since I am 10 years old!!

>

> Jodi

>

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>

> I have been on LDN a little over 3 months.

> My blood values started going up when I started the Specific

> Carbohydrate Diet 17 months ago. I think the LDN gave it that extra

> boost. I am beyond over the moon! I feel LDN with the combo of SCD

> has just been miraculous for me and the Crohn's/Colitis!

>

> Jodi

>

That's fabulous!!!!!!!!!!!!

ENJOY YOUR GOOD HEALTH AND LDN!!!!!!!!!

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HI JODI,

IM GLAD TO HEAR THE GOOD NEWS ABOUT YOUR CONDITION IMPROVING.

I ALSO HAVE CROHN'S. CAN YOU TELL ABOUT THE DIET YOU SAID HELPED YOU THE "SPECIFIC CARBOHYDRATE DIET". i'VE NEVER HEARD ABOUT IT. THANKS !

DAVID

From: mtlcute <mtlcute@...>Subject: [low dose naltrexone] Re: Blood test resultslow dose naltrexone Date: Tuesday, February 3, 2009, 10:09 PM

>> I have been on LDN a little over 3 months.> My blood values started going up when I started the Specific> Carbohydrate Diet 17 months ago. I think the LDN gave it that extra> boost. I am beyond over the moon! I feel LDN with the combo of SCD> has just been miraculous for me and the Crohn's/Colitis!> > Jodi>That's fabulous!!!! !!!!!!!!ENJOY YOUR GOOD HEALTH AND LDN!!!!!!!!!

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Hi ,

The Specific Carbohydrate Diet- Was developed by Dr Haas and later

written about by Elaine Gotschall due to her duaghter being sick.

It is an intense diet as it eliminates all grains, sugars, many store

made foods, starches basically polysaccarides.

We can eat home-made 24 hour yogurt which is made with Milk and

approved bacterial strains. We can have meats, fish, eggs, hard

cheeses, fruits, veggies, nuts.. We focus on making our own food as

labeling laws are very misleading and there is something called the

" 2% rule " which means that manufacturers do not have to disclose %100

of an ingredient list like what 3rd party processing add to the item etc.

This diet isn't for the weak hearted LOL. It takes a lot of

commitment but many people get better from this horrible disease.

Since The Specific Carbohydrate Diet is naturally anti Candida I think

it is like a perfect marriage with LDN- if there is such a thing as a

perfect marriage LOL. I was Pretty much on the diet 14 months before

I started LDN and I believe this is why LDN is so quick to help me.

You can read about the SCD;

http://www.breakingtheviciouscycle.info/book/the_book.htm

It's important to get the book as it explains in laymen terms the

science behind the diet.

This is a great blog;

http://nomorecrohns.com/default.aspx

Great recipe site and Raman's book " Colitis and Me " is excellent! so

are his cookbooks;

http://www.scdrecipe.com/recipes.html

There is Lucy's Kitchen Shop. She sells many things associated with

the diet. Not musts to have but makes one's life easier. Lucy

herself has been on the diet 15 years. She was very close to having

her colon removed. You can always speak to her about the diet!

http://www.lucyskitchenshop.com/

Sorry so many links.. It's just a lot of reading!

There are a couple of support groups.

Here's one;

BTVC-SCD/

If you need any help you can email me off-list!

Jodi

> IM GLAD TO HEAR THE GOOD NEWS ABOUT YOUR CONDITION IMPROVING.

> I ALSO HAVE CROHN'S. CAN YOU TELL ABOUT THE DIET YOU SAID HELPED YOU

> THE " SPECIFIC CARBOHYDRATE DIET " . i'VE NEVER HEARD ABOUT IT. THANKS !

>

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  • 1 month later...
Guest guest

Hi Tracey (2),

The important question here is - when did you take your last dose of T3 in relation to your blood draw? If you have taken T3 just before the blood had been drawn, then that would explain your high FT3, which would have bound to be there or even higher. If you have stopped your T3 for 24 hours before the blood test, then it seems that the reading is indeed high.

Your FT4 is depressed, but I would expect that, since you are not taking any and your TSH is below the norm anyway, so there wouldn't be any demand for more production.

I'm no expert, but if you had taken your T3 just before the blood test, then in spite of the figure being over the top, you may still need more (or perhaps a combination?). If I remember this correctly, then about 95% of T3 is absorbed in the 4 hours after taking it ... so it is only to be expected that the figure would be high within the first few hours after ingestion.

Warm wishes,

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Guest guest

Hi

TraceyToo

Is

this a correct reading " Free T4 - 2.1 " ? Did you leave off the 1

before the 2 - so it should be reading 12.1. Yes, your Free T3 is high. If you

took your T3 before you had your blood drawn, this might explain why it looks

so high - this is a flawed result. The T3 spikes in the blood a couple of hours

or so after you have taken it. You should stop taking thyroid medication for at

least 24 hours before a thyroid function test is done. If however, you had not

taken any T3 for 24 hours, then yes, it is very high, and it might

benefit you to drop your dose, especially if you are getting the symptoms of

being hyPERthyroid? Are you getting palpitations, sweating, dizziness,

feeling 'spaced out' and fidgety? Even though T4 is a mainly inactive hormone,

it is still needed and if you are not making any T4 naturally (and it appears

you are not) you may need to start taking some. Can you ask your GP to contact

the consultant you are going to see on the 30th to ask what his recommendations

are concerning your blood results and the medication you are taking. It is no

wonder you are feeling so rotten.

Luv -

Sheila

Went to GP because feeling tired, lethargic, foggy, shaky, wobbly......

TSH - 0.03 (0.35-5.5)

Free T4 - 2.1 (11.5-22.7)

Free T3 - 9.0 (3.5-6.5)

He is now thinking that MAYBE I am actually HYPERthyroid rather than

HYPOthyroid and that perhaps I am taking too much T3? Anyway, he kept stressing

he wasn't an expert but has suggested I reduce my T3.

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Guest guest

Hi Sheila Thank you for your reply. No. my Free T4 result definately says 2.1 -I just checked it again. That's why it was flagged as it was very low. I had taken a T3 tablet before I went as I wasn't told not to.......(I'm still quite new to all of this) hence its high reading. Perhaps I am Hyper as opposed to hypo. My Gp says a copy of the results will go to the consultant at the hospital. I will also take my copy just in case and discuss it with him then.

I do have all of the symptoms you suggested but I am also so terribly tired and cold. I think my body is very confused!

too

Is this a correct reading "Free T4 - 2.1"? Did you leave off the 1 before the 2 - so it should be reading 12.1

it might benefit you to drop your dose, especially if you are getting the symptoms of being hyPERthyroid? Are you getting palpitations, sweating, dizziness, feeling 'spaced out' and fidgety? Even though T4 is a mainly inactive hormone, it is still needed and if you are not making any T4 naturally (and it appears you are not) you may need to start taking some. Can you ask your GP to contact the consultant you are going to see on the 30th to ask what his recommendations are concerning your blood results and the medication you are taking. It is no wonder you are feeling so rotten.

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Guest guest

Hi

TraceyToo - then ask your GP if he will do another test. Tell him this is because

you realise the T3 'spikes' a couple of hours or so after taking it and gives a

very flawed reading. Don't take any for 24 hours and let's see what that shows.

Hi Sheila Thank you for your reply. No. my Free T4 result definately

says 2.1 -I just checked it again. That's why it was flagged as it was very

low. I had taken a T3 tablet before I went as I wasn't told not to.......(I'm

still quite new to all of this) hence its high reading. Perhaps I am Hyper as opposed to hypo. My Gp says

a copy of the results will go to the consultant at the hospital. I will also

take my copy just in case and discuss it with him then.

I do have all of the symptoms you suggested but I am also so terribly

tired and cold. I think my body is very confused!

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Guest guest

HI J Don't know why the FT4 has dropped......

The temps dropping could be indicating an issue with your adrenals, the av daily

temp fluctuates when your adrenals are not supported or you are taking too much

thyroid. This is as per Dr Rind on www.drrindcom.

Your pulse may be indicating adrenal stress and/or too much thyroid too. Is this

a normal pulse rate for you ?

How's the boy doing, I am have been thinking about him.

Mo

ps You really do need an ASI done so you can decide how to proceed and I know

what you are saying about not being able to afford it but can you afford NOT to

have it done though ? I can get you a discount on the cost of this test if

it will help?

>  

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Guest guest

HI

Emmy and welcome to our forum.

It is

time your GP realised that he is treating a real live, flesh and blood human

being - not blood tests. He is only a GP and you need to get a referral to

somebody who knows what they are talking about and how to treat patients who are

suffering from the symptoms and signs of hypothyroidism.

Send

him a letter. List your symptoms and signs (check against the list in our web

site www.tpa-uk.org.uk and list your

basal temperature for say 4 or 5 mornings before you get out of bed. List all

the medications you are taking. Ask for a full thyroid function test including

FT4, FT3 and TSH. Ask for a test to see if you have antibodies to your thyroid

if this has never been done. Ask also for blood tests to check your Ferritin

level (stored iron), B12, Vitamin D, Magnesium, Zinc and Copper. You must get

these tested because if any of these are low, your thyroid hormone replacement

will not be able to be absorbed. Tell your #GP that because you have continuing

symptoms, and there is MUCH controversy regarding the usefulness of blood tests

when a patient is already taking thyroid hormone replacement therapy, that you now

wish to be referred to an endocrinologist for a second opinion. Tell him also

that you would like to be referred to an endocrinologist who specialises in

thyroid disease as opposed to one who specialises in diabetes. Ask for this

letter to be placed in your medical notes.

Send

a copy of the letter to the Head of Practice.

Let

us know if this works.

When

did you last have an increase in your dose of levothyroxine - the amount you

are taking may be insufficient or you may not be converting this mainly

inactive hormone (T4) to the active hormone T3. It is the T3 your body needs.

There are many, many reasons why some people are unable to convert, one being

that you are missing the essential enzyme that enables conversion to take place.

Have a look at our website www.tpa-uk.org.uk

and click on 'Hypothyroidism' and then on the drop down Menu, click on

'Associated Conditions' and read everything there concerning the connection

between these and thyroid disease.

luv -

Sheila

I've had under active thyriod since I was in my teens & been on thyroxine

for about 20yrs (100mcg daily), the thing is I can't remember the last time i

felt really well. Every time I tell my doctor how I feel he just say's your in

normal range.

Today I got my latest results back TSH 1.53 & T4 12.6, I've been taking my

temp every morning for 2 weeks & the average it 36C. Are these rests

normal?

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Guest guest

Please check that you have deleted messages previously read before clicking

'Send' and leave only a portion of what you are responding to. Many thanks. Luv

- Sheila

____________________________________________________________________

Hi Sheila

thank you for your reply. I'm planning to go to the doctors this week there is a

doctor in my practise who is a qualified homeopath & accupunturist so fingers

crossed he will be a bit more understanding.

I also suffer from depression,i'm on omeprozole, had a hysterectomy + overies

removed 5yrs ago when I was 35yrs because of endometeriois aswell as going

through a divorce at the same time.

I haven't had an increase in thyroxine since the early 90's so wil try what you

suggest & let you know

luv emmy

> It is time your GP realised that he is treating a real live, flesh and blood

> human being - not blood tests. He is only a GP and you need to get a

> referral to somebody who knows what they are talking about and how to treat

> patients who are suffering from the symptoms and signs of hypothyroidism.

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Guest guest

Hi tracey 2,

Hmmm! Did you have the bloods after taking you daily T3? It

passes very quickly into other forms so 2 hours after a dose is taken

max will be in the bloodstream. For example if I don't take my T3 on the

day of a test my T3 will be around 3.8, but if I've taken it(100mcg

including Armour) it will be around the 7 mark. So, as you suspect, you

could still be undermedicated and not overmedicated and still be in

range.

Subject: Blood test results

Hi all, have just come back from my GP with my blood test results.

Before I post them, let me refresh you of my situation:

TSH - 0.03 (0.35-5.5)

Free T4 - 2.1 (11.5-22.7)

Free T3 - 9.0 (3.5-6.5)

He is now thinking that MAYBE I am actually HYPERthyroid rather than

HYPOthyroid and that perhaps I am taking too much T3? Anyway, he kept

stressing he wasn't an expert but has suggested I reduce my T3.

(2)

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

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