Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Quite interesting! As a company, I must be careful about liability issues, when in doubt, I will opt for the careful conservative approach, hence the warnings about not relying on enzyme products for anaphylactic allergic reactions. I do applaud your actions, and is what I would have done in your case, with one hand on the phone for 911 and the other fumbling for the shot of epinephrine! Egg allergens are usually the egg proteins. Peptizyde breaks down proteins. Quite possibly the egg allergen was broken down before it got into his system. While I again can't recommend you give him eggs with the enzymes, it does make sense that the enzymes would help. The other issue involved is how much enzyme to how much allergen? I'm just glad it worked out OK for your son. Devin > Hi all, > I just had to tell someone this and maybe Devin can shed some light on > whether it is a fluke or not. > > Last night my son was on the rampage again and nicked 2 packet of rolos. > I had been to a meeting and was in just a minute after all this had > happened so I opened a capsule of Zyme prime(the houstini one)mixed in a > bit of water and made him drink it( much to his disgust). > > About an hr later I found him again in the kitchen and he half way > through his first bite of a GF/CF biscuit which also contains eggs. > He has an anaphylactic reaction to eggs and I was unsure what to do so I > opened a peptizide and made him drink that. > > As far as I can see, there was no reaction whatsoever to either > things!!! Behaviourally and the cravings I cannot say till he comes in > from school but there was no swelling, no hives, no nothing. He just > went to sleep. > > I KNOW that enzymes CANNOT be used for anaphylaxis but even so I am > curious to know whether he can now eat mild amounts of eggs when cooked > in something, or whether the enzyme MAY have counteracted the effect. > Any ideas?? > Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Devin, Thanks! I had an epi pen at the ready (and a bottle of vinegar which funnily enough seems to help if he has just touched a tiny bit and has a tickly throat - do you know wby that is?) He is a monster for taking off limit foods at the moment so this gives me some extra piece of mind. I know he can never eat gluten and know he can never have eggs but this is one 'accident' that ended remarkably well and his behaviour if anything is marginally better than it has been. All very strange but I am going to keep on with the Zyme prime( and look forward to the no phenol one) and keep the peptizide at the ready. Jacqui [ ] Re: any ideas? Quite interesting! As a company, I must be careful about liability issues, when in doubt, I will opt for the careful conservative approach, hence the warnings about not relying on enzyme products for anaphylactic allergic reactions. I do applaud your actions, and is what I would have done in your case, with one hand on the phone for 911 and the other fumbling for the shot of epinephrine! Egg allergens are usually the egg proteins. Peptizyde breaks down proteins. Quite possibly the egg allergen was broken down before it got into his system. While I again can't recommend you give him eggs with the enzymes, it does make sense that the enzymes would help. The other issue involved is how much enzyme to how much allergen? I'm just glad it worked out OK for your son. Devin > Hi all, > I just had to tell someone this and maybe Devin can shed some light on > whether it is a fluke or not. > > Last night my son was on the rampage again and nicked 2 packet of rolos. > I had been to a meeting and was in just a minute after all this had > happened so I opened a capsule of Zyme prime(the houstini one)mixed in a > bit of water and made him drink it( much to his disgust). > > About an hr later I found him again in the kitchen and he half way > through his first bite of a GF/CF biscuit which also contains eggs. > He has an anaphylactic reaction to eggs and I was unsure what to do so I > opened a peptizide and made him drink that. > > As far as I can see, there was no reaction whatsoever to either > things!!! Behaviourally and the cravings I cannot say till he comes in > from school but there was no swelling, no hives, no nothing. He just > went to sleep. > > I KNOW that enzymes CANNOT be used for anaphylaxis but even so I am > curious to know whether he can now eat mild amounts of eggs when cooked > in something, or whether the enzyme MAY have counteracted the effect. > Any ideas?? > Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 > Hi, folks, > > > i was doing pretty well on minocin and zithro (twice a week). Then > Dr Whitman started me on clindy instead of the zithro. My stomach > got upset from the clindy (not c diff, but I was scared and had to > have a stool analyzed). After that I couldn't feel well again. We > went on vacation, and maybe all the walking did it, but now I have > so much inflammation--in so many joints--that I have to take six > ibuprofen a day (with food) (and Minocin. Whitman stopped the > clindy and the zithro for now). I see him again on 9/8, but wonder > if anyone has a suggestion. My tummy is no longer upset: I just > feel worse physically than I have felt for years and so > discouraged. My problem is seronegative arthritis. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 Since you see Doc Whitman and he is a very good AP doc I would suggest you call him instead of us giving you wrong advice. Does he have an answering service for the weekend? If not just wait till Monday. Cooky > > > i was doing pretty well on minocin and zithro (twice a week). Then > Dr Whitman started me on clindy instead of the zithro. My stomach > got upset from the clindy (not c diff, but I was scared and had to > have a stool analyzed). After that I couldn't feel well again. We > went on vacation, and maybe all the walking did it, but now I have > so much inflammation--in so many joints--that I have to take six > ibuprofen a day (with food) (and Minocin. Whitman stopped the > clindy and the zithro for now). I see him again on 9/8, but wonder > if anyone has a suggestion. My tummy is no longer upset: I just > feel worse physically than I have felt for years and so > discouraged. My problem is seronegative arthritis. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Cooky, Dr Whitman is good, but I can NEVER speak to him on the phone (he does not call back) and, while some people on the list seem to have his e-mail, I was told I couldn't get it. I see him at Berkeley Heights, not in NYC, and he is unreachable there. Since none of the other rheumatologists in his practice do the antibiotic protocol, nobody can cover for him if he is on vacation or away. His nurse Ellen does not seem to be able to help. It is frustrating! Last time I went through a bad time, I had to go see him (they did give me an earlier appointment). That is hard because he is about three hours away. On Aug 23, 2008, at 10:25 PM, C Stonkey wrote: > Since you see Doc Whitman and he is a very good AP doc I would > suggest you > call him instead of us giving you wrong advice. Does he have an > answering > service for the weekend? If not just wait till Monday. > > Cooky > > > > > > > > i was doing pretty well on minocin and zithro (twice a week). Then > > Dr Whitman started me on clindy instead of the zithro. My stomach > > got upset from the clindy (not c diff, but I was scared and had to > > have a stool analyzed). After that I couldn't feel well again. We > > went on vacation, and maybe all the walking did it, but now I have > > so much inflammation--in so many joints--that I have to take six > > ibuprofen a day (with food) (and Minocin. Whitman stopped the > > clindy and the zithro for now). I see him again on 9/8, but wonder > > if anyone has a suggestion. My tummy is no longer upset: I just > > feel worse physically than I have felt for years and so > > discouraged. My problem is seronegative arthritis. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 OK well all the walking could have added to it but the stress from switching meds I think is a big problem for you. I know even being in remission.when I am with the grandkids I have pain all over! Most of mine is from fibromyalgia so I take Malic acid and double the dose for 2 days. Have you tried the peroxide baths? Supposidly they take down the inflammation.I nerver could get the peroxide in the dose recommended so they never worked for me. Ice the joints. Try curcumin (tumeric). I understand it is a good anti inflame. You could try Advil instead of Tylenol. Advil is an antinflam and sometimes works wonders. Personally I would go back on the Zithromax (after you try the above) if you have any. OR if it's the stomach that is the problem maybe aloe vera gel and glutamine. Boy that always works for me. How about increasing your acidophilis for a few days. I would call Whitman every day 2 times a day and stress how bad you are feeling. You have my empathy and sympathy. Let me know how you do and if you try any of these things. Hugs. Cooky any ideas? Dr Whitman is good, but I can NEVER speak to him on the phone (he does not call back) and, while some people on the list seem to have his e-mail, I was told I couldn't get it. I see him at Berkeley Heights, not in NYC, and he is unreachable there. Since none of the other rheumatologists in his practice do the antibiotic protocol, nobody can cover for him if he is on vacation or away. His nurse Ellen does not seem to be able to help. It is frustrating! Last time I went through a bad time, I had to go see him (they did give me an earlier appointment). That is hard because he is about three hours away. ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Thanks to those that responded. Cooky, this mesage is very helpful. I will do some of the things you say, and especially go back on the zthromax as well as calling Whitman A LOT. (I like that idea.) Cheers! On Aug 24, 2008, at 10:24 AM, C Stonkey wrote: > OK well all the walking could have added to it but the stress from > switching > meds I think is a big problem for you. I know even being in > remission.when I > am with the grandkids I have pain all over! Most of mine is from > fibromyalgia so I take Malic acid and double the dose for 2 days. > Have you > tried the peroxide baths? Supposidly they take down the inflammation.I > nerver could get the peroxide in the dose recommended so they never > worked > for me. > > Ice the joints. Try curcumin (tumeric). I understand it is a good anti > inflame. You could try Advil instead of Tylenol. Advil is an > antinflam and > sometimes works wonders. > > Personally I would go back on the Zithromax (after you try the > above) if you > have any. OR if it's the stomach that is the problem maybe aloe vera > gel and > glutamine. Boy that always works for me. How about increasing your > acidophilis for a few days. > > I would call Whitman every day 2 times a day and stress how bad you > are > feeling. > > You have my empathy and sympathy. Let me know how you do and if you > try any > of these things. > > Hugs. > > Cooky > > any ideas? > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > does not call back) and, while some people on the list seem to have > his e-mail, I was told I couldn't get it. I see him at Berkeley > Heights, not in NYC, and he is unreachable there. Since none of the > other rheumatologists in his practice do the antibiotic protocol, > nobody can cover for him if he is on vacation or away. His nurse > Ellen does not seem to be able to help. It is frustrating! Last time > I went through a bad time, I had to go see him (they did give me an > earlier appointment). That is hard because he is about three hours > away. > ___ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 ...just a few more thoughts...I would comprise a letter including all your questions, symptoms, etc...and send it to Dr. W office...I have done this myself and he has always written back...He may be out of town this week...call his office, find out when he returns and get a letter to him...I have found him to be very responsive to letters, phones, etc...You are so lucky you only live 3 hrs from him...we drive 12 hours to see him...but as you know...I adore him...I just fired my local rheumy...I called him DR. Useless...he was pissy because I went to see my rheumy (DR. Whitman) since Dr. W is the only Dr that has ever tried to help me...and has helped me... Keep us all posted ok! Hang in there...Hugs, Debbie Re: rheumatic any ideas? Thanks to those that responded. Cooky, this mesage is very helpful. I will do some of the things you say, and especially go back on the zthromax as well as calling Whitman A LOT. (I like that idea.) Cheers! On Aug 24, 2008, at 10:24 AM, C Stonkey wrote: > OK well all the walking could have added to it but the stress from > switching > meds I think is a big problem for you. I know even being in > remission.when I > am with the grandkids I have pain all over! Most of mine is from > fibromyalgia so I take Malic acid and double the dose for 2 days. > Have you > tried the peroxide baths? Supposidly they take down the inflammation.I > nerver could get the peroxide in the dose recommended so they never > worked > for me. > > Ice the joints. Try curcumin (tumeric). I understand it is a good anti > inflame. You could try Advil instead of Tylenol. Advil is an > antinflam and > sometimes works wonders. > > Personally I would go back on the Zithromax (after you try the > above) if you > have any. OR if it's the stomach that is the problem maybe aloe vera > gel and > glutamine. Boy that always works for me. How about increasing your > acidophilis for a few days. > > I would call Whitman every day 2 times a day and stress how bad you > are > feeling. > > You have my empathy and sympathy. Let me know how you do and if you > try any > of these things. > > Hugs. > > Cooky > > any ideas? > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > does not call back) and, while some people on the list seem to have > his e-mail, I was told I couldn't get it. I see him at Berkeley > Heights, not in NYC, and he is unreachable there. Since none of the > other rheumatologists in his practice do the antibiotic protocol, > nobody can cover for him if he is on vacation or away. His nurse > Ellen does not seem to be able to help. It is frustrating! Last time > I went through a bad time, I had to go see him (they did give me an > earlier appointment). That is hard because he is about three hours > away. > ___ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Deb, thanks a lot! You guys are so helpful, my lifeline. I will write to him, and I am so glad to hear about your good experiences with Dr Whitman. Hugs, On Aug 24, 2008, at 10:36 AM, DEBBIE GIBSON wrote: > ...just a few more thoughts...I would comprise a letter > including all your questions, symptoms, etc...and send it to Dr. W > office...I have done this myself and he has always written back...He > may be out of town this week...call his office, find out when he > returns and get a letter to him...I have found him to be very > responsive to letters, phones, etc...You are so lucky you only live > 3 hrs from him...we drive 12 hours to see him...but as you know...I > adore him...I just fired my local rheumy...I called him DR. > Useless...he was pissy because I went to see my rheumy (DR. Whitman) > since Dr. W is the only Dr that has ever tried to help me...and has > helped me... > Keep us all posted ok! Hang in there...Hugs, Debbie > Re: rheumatic any ideas? > > Thanks to those that responded. Cooky, this mesage is very helpful. > I will do some of the things you say, and especially go back on the > zthromax as well as calling Whitman A LOT. (I like that idea.) > > Cheers! > > On Aug 24, 2008, at 10:24 AM, C Stonkey wrote: > > > OK well all the walking could have added to it but the stress from > > switching > > meds I think is a big problem for you. I know even being in > > remission.when I > > am with the grandkids I have pain all over! Most of mine is from > > fibromyalgia so I take Malic acid and double the dose for 2 days. > > Have you > > tried the peroxide baths? Supposidly they take down the > inflammation.I > > nerver could get the peroxide in the dose recommended so they never > > worked > > for me. > > > > Ice the joints. Try curcumin (tumeric). I understand it is a good > anti > > inflame. You could try Advil instead of Tylenol. Advil is an > > antinflam and > > sometimes works wonders. > > > > Personally I would go back on the Zithromax (after you try the > > above) if you > > have any. OR if it's the stomach that is the problem maybe aloe vera > > gel and > > glutamine. Boy that always works for me. How about increasing your > > acidophilis for a few days. > > > > I would call Whitman every day 2 times a day and stress how bad you > > are > > feeling. > > > > You have my empathy and sympathy. Let me know how you do and if you > > try any > > of these things. > > > > Hugs. > > > > Cooky > > > > any ideas? > > > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > > does not call back) and, while some people on the list seem to have > > his e-mail, I was told I couldn't get it. I see him at Berkeley > > Heights, not in NYC, and he is unreachable there. Since none of the > > other rheumatologists in his practice do the antibiotic protocol, > > nobody can cover for him if he is on vacation or away. His nurse > > Ellen does not seem to be able to help. It is frustrating! Last time > > I went through a bad time, I had to go see him (they did give me an > > earlier appointment). That is hard because he is about three hours > > away. > > ___ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 It's funny when I go to the docs with my uncle or anyone I can tell the doc just what I want but for me to do it to my own doc its very hard to do. If someone says " Oh I would tell him to do this and stress it to him " then it sort of verifies me. I am more apt to be more assertive. Just remember you are not his only patient and he forgets just like anyone else so calling is not bothering .its just reminding you are still in pain and need him to call. Hope you feel better soon. Cooky Thanks to those that responded. Cooky, this mesage is very helpful. I will do some of the things you say, and especially go back on the zthromax as well as calling Whitman A LOT. (I like that idea.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 No worries...I have been so impressed with Dr W...when my lung test came back very poor a few years ago....he had ordered photopheresis for me...and while he was out of the country, he emailed me...sent me copies of studies supporting the tx AND sent a letter for me to forward to my insurance company....He TRULY goes to bat for his patients... When I get time later, I am going to post what just happened with my so called local rheumy...I will never go see him again..DR Useless...but am unsure the best way to handle him....Will post my visit and what he did soon and request help in dealing with him....I certainly do not intend to leave the situation alone. Debb Re: rheumatic any ideas? > > Thanks to those that responded. Cooky, this mesage is very helpful. > I will do some of the things you say, and especially go back on the > zthromax as well as calling Whitman A LOT. (I like that idea.) > > Cheers! > > On Aug 24, 2008, at 10:24 AM, C Stonkey wrote: > > > OK well all the walking could have added to it but the stress from > > switching > > meds I think is a big problem for you. I know even being in > > remission.when I > > am with the grandkids I have pain all over! Most of mine is from > > fibromyalgia so I take Malic acid and double the dose for 2 days. > > Have you > > tried the peroxide baths? Supposidly they take down the > inflammation.I > > nerver could get the peroxide in the dose recommended so they never > > worked > > for me. > > > > Ice the joints. Try curcumin (tumeric). I understand it is a good > anti > > inflame. You could try Advil instead of Tylenol. Advil is an > > antinflam and > > sometimes works wonders. > > > > Personally I would go back on the Zithromax (after you try the > > above) if you > > have any. OR if it's the stomach that is the problem maybe aloe vera > > gel and > > glutamine. Boy that always works for me. How about increasing your > > acidophilis for a few days. > > > > I would call Whitman every day 2 times a day and stress how bad you > > are > > feeling. > > > > You have my empathy and sympathy. Let me know how you do and if you > > try any > > of these things. > > > > Hugs. > > > > Cooky > > > > any ideas? > > > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > > does not call back) and, while some people on the list seem to have > > his e-mail, I was told I couldn't get it. I see him at Berkeley > > Heights, not in NYC, and he is unreachable there. Since none of the > > other rheumatologists in his practice do the antibiotic protocol, > > nobody can cover for him if he is on vacation or away. His nurse > > Ellen does not seem to be able to help. It is frustrating! Last time > > I went through a bad time, I had to go see him (they did give me an > > earlier appointment). That is hard because he is about three hours > > away. > > ___ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 I have been reading about peroxide baths and drinking peroxide - is quite interesting. I tried it once, and I had a 'rush'. Presumably, this was oxygen in my brain. I tried it a second time & didn't feel anything. Amy C Stonkey wrote: > > OK well all the walking could have added to it but the stress from > switching > meds I think is a big problem for you. I know even being in > remission.when I > am with the grandkids I have pain all over! Most of mine is from > fibromyalgia so I take Malic acid and double the dose for 2 days. Have you > tried the peroxide baths? Supposidly they take down the inflammation.I > nerver could get the peroxide in the dose recommended so they never worked > for me. > > Ice the joints. Try curcumin (tumeric). I understand it is a good anti > inflame. You could try Advil instead of Tylenol. Advil is an antinflam and > sometimes works wonders. > > Personally I would go back on the Zithromax (after you try the above) > if you > have any. OR if it's the stomach that is the problem maybe aloe vera > gel and > glutamine. Boy that always works for me. How about increasing your > acidophilis for a few days. > > I would call Whitman every day 2 times a day and stress how bad you are > feeling. > > You have my empathy and sympathy. Let me know how you do and if you > try any > of these things. > > Hugs. > > Cooky > > any ideas? > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > does not call back) and, while some people on the list seem to have > his e-mail, I was told I couldn't get it. I see him at Berkeley > Heights, not in NYC, and he is unreachable there. Since none of the > other rheumatologists in his practice do the antibiotic protocol, > nobody can cover for him if he is on vacation or away. His nurse > Ellen does not seem to be able to help. It is frustrating! Last time > I went through a bad time, I had to go see him (they did give me an > earlier appointment). That is hard because he is about three hours > away. > ___ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Just for conversation (not promotion) the drinking protocol uses 35% food grade & dilutes it a lot. For example, a few drops in 6-8 oz of water. There are a number people who say to avoid it because it's dangerous if you do not dilute it. Amy Petty wrote: > > I use it to gargle sometimes... works great > > mouth is fresh and whitens teeth, but if you get a little in your > stomach it jacks it up > > I don't think I'd recommend drinking it > > > > > > > > OK well all the walking could have added to it but the stress > from > > > switching > > > meds I think is a big problem for you. I know even being in > > > remission.when I > > > am with the grandkids I have pain all over! Most of mine is from > > > fibromyalgia so I take Malic acid and double the dose for 2 days. > Have you > > > tried the peroxide baths? Supposidly they take down the > inflammation.I > > > nerver could get the peroxide in the dose recommended so they > never worked > > > for me. > > > > > > Ice the joints. Try curcumin (tumeric). I understand it is a good > anti > > > inflame. You could try Advil instead of Tylenol. Advil is an > antinflam and > > > sometimes works wonders. > > > > > > Personally I would go back on the Zithromax (after you try the > above) > > > if you > > > have any. OR if it's the stomach that is the problem maybe aloe > vera > > > gel and > > > glutamine. Boy that always works for me. How about increasing your > > > acidophilis for a few days. > > > > > > I would call Whitman every day 2 times a day and stress how bad > you are > > > feeling. > > > > > > You have my empathy and sympathy. Let me know how you do and if > you > > > try any > > > of these things. > > > > > > Hugs. > > > > > > Cooky > > > > > > any ideas? > > > > > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > > > does not call back) and, while some people on the list seem to > have > > > his e-mail, I was told I couldn't get it. I see him at Berkeley > > > Heights, not in NYC, and he is unreachable there. Since none of > the > > > other rheumatologists in his practice do the antibiotic protocol, > > > nobody can cover for him if he is on vacation or away. His nurse > > > Ellen does not seem to be able to help. It is frustrating! Last > time > > > I went through a bad time, I had to go see him (they did give me > an > > > earlier appointment). That is hard because he is about three hours > > > away. > > > ___ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Just curious - did you use the food grade or the 3% peroxide available in the drug stores? rheumatic Re: any ideas? rheumatic > I use it to gargle sometimes... works great > mouth is fresh and whitens teeth, but if you get a little in your > stomach it jacks it up > I don't think I'd recommend drinking it > > > > > > > OK well all the walking could have added to it but the stress > from > > > switching > > > meds I think is a big problem for you. I know even being in > > > remission.when I > > > am with the grandkids I have pain all over! Most of mine is from > > > fibromyalgia so I take Malic acid and double the dose for 2 days. > Have you > > > tried the peroxide baths? Supposidly they take down the > inflammation.I > > > nerver could get the peroxide in the dose recommended so they > never worked > > > for me. > > > > > > Ice the joints. Try curcumin (tumeric). I understand it is a good > anti > > > inflame. You could try Advil instead of Tylenol. Advil is an > antinflam and > > > sometimes works wonders. > > > > > > Personally I would go back on the Zithromax (after you try the > above) > > > if you > > > have any. OR if it's the stomach that is the problem maybe aloe > vera > > > gel and > > > glutamine. Boy that always works for me. How about increasing your > > > acidophilis for a few days. > > > > > > I would call Whitman every day 2 times a day and stress how bad > you are > > > feeling. > > > > > > You have my empathy and sympathy. Let me know how you do and if > you > > > try any > > > of these things. > > > > > > Hugs. > > > > > > Cooky > > > > > > any ideas? > > > > > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > > > does not call back) and, while some people on the list seem to > have > > > his e-mail, I was told I couldn't get it. I see him at Berkeley > > > Heights, not in NYC, and he is unreachable there. Since none of > the > > > other rheumatologists in his practice do the antibiotic protocol, > > > nobody can cover for him if he is on vacation or away. His nurse > > > Ellen does not seem to be able to help. It is frustrating! Last > time > > > I went through a bad time, I had to go see him (they did give me > an > > > earlier appointment)> . That is hard because he is about three hours > > > away. > > > ___ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 I use the 3% drugstore type > > > > > > > > OK well all the walking could have added to it but the stress > > from > > > > switching > > > > meds I think is a big problem for you. I know even being in > > > > remission.when I > > > > am with the grandkids I have pain all over! Most of mine is from > > > > fibromyalgia so I take Malic acid and double the dose for 2 days. > > Have you > > > > tried the peroxide baths? Supposidly they take down the > > inflammation.I > > > > nerver could get the peroxide in the dose recommended so they > > never worked > > > > for me. > > > > > > > > Ice the joints. Try curcumin (tumeric). I understand it is a good > > anti > > > > inflame. You could try Advil instead of Tylenol. Advil is an > > antinflam and > > > > sometimes works wonders. > > > > > > > > Personally I would go back on the Zithromax (after you try the > > above) > > > > if you > > > > have any. OR if it's the stomach that is the problem maybe aloe > > vera > > > > gel and > > > > glutamine. Boy that always works for me. How about increasing your > > > > acidophilis for a few days. > > > > > > > > I would call Whitman every day 2 times a day and stress how bad > > you are > > > > feeling. > > > > > > > > You have my empathy and sympathy. Let me know how you do and if > > you > > > > try any > > > > of these things. > > > > > > > > Hugs. > > > > > > > > Cooky > > > > > > > > any ideas? > > > > > > > > Dr Whitman is good, but I can NEVER speak to him on the phone (he > > > > does not call back) and, while some people on the list seem to > > have > > > > his e-mail, I was told I couldn't get it. I see him at Berkeley > > > > Heights, not in NYC, and he is unreachable there. Since none of > > the > > > > other rheumatologists in his practice do the antibiotic protocol, > > > > nobody can cover for him if he is on vacation or away. His nurse > > > > Ellen does not seem to be able to help. It is frustrating! Last > > time > > > > I went through a bad time, I had to go see him (they did give me > > an > > > > earlier appointment)> . That is hard because he is about three hours > > > > away. > > > > ___ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 I spoke to Dr Whitman;s nurse Ellen today and, after talking to him, she got some instructions. I do feel I am bothering if I just call to as questions, but you gave me confidence. On Aug 24, 2008, at 10:59 AM, C Stonkey wrote: > It's funny when I go to the docs with my uncle or anyone I can tell > the doc > just what I want but for me to do it to my own doc its very hard to > do. If > someone says " Oh I would tell him to do this and stress it to him " > then it > sort of verifies me. I am more apt to be more assertive. Just > remember you > are not his only patient and he forgets just like anyone else so > calling is > not bothering .its just reminding you are still in pain and need him > to > call. > > Hope you feel better soon. > > Cooky > > Thanks to those that responded. Cooky, this mesage is very helpful. > I will do some of the things you say, and especially go back on the > zthromax as well as calling Whitman A LOT. (I like that idea.) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 Don't forget this is also put in your chart that you called and was having problems. That way he won't say " so you did not have a problem after I took you off the zithromax " ! I learned the hard way. .I used to get sore throats and stuffy nose constantly. I never went to my GP. I got scripts from the docs I worked with. When I did see him he said " Oh you are doing good " I said NO! He said " well you never called ME so I have nothing to be able to say you have chronic sinusitis " . Hope you feel better soon. cooky I spoke to Dr Whitman;s nurse Ellen today and, after talking to him, she got some instructions. I do feel I am bothering if I just call to as questions, but you gave me confidence. On Aug 24, 2008, at 10:59 AM, C Stonkey wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 The Late Talker..by our Quote Link to comment Share on other sites More sharing options...
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