Re: stimming question

[Guest guest]

In a message dated 10/25/2000 2:13:03 AM Eastern Daylight Time,

tntpilger@... writes:

Joananna I used the colored version of supernu thera and it was awful.

I am trying the hypoallergenic capsules with good luck so far. It is

probably that. I would guess. Also different kids need less or more of

things. go by your own child. kelly

>

>

> >>

[Guest guest]

Might be a withdrawal reaction from the milk? Also, don't forget that

you can get a false positive from the urine peptide test, don't

assume that he has no gluten intolerance based on one test.

> Hi listmates,

.... I don't know what might contribute

to it

> but the ONLY changes I've made during the summer is adding

Super-Nu-Thera (1

> teaspoon per day-he's around 50 lbs) and gradually changing to a CF

diet

> (changed to SOYMILK and no more cheese/yogurt/ice cream etc-though

not yet

> 100%, but 95%) He's been tested allergic to cow's milk (+3) and

yogurt and

> cheedar cheese and casein (+2). Peptide tests shows negative for

both

> gluten and casein. After adding his SuperNuThera, his teeth

grinding

> stopped within 2 days.

>

> So, my question is: Is there anyone experience more stimming with

> Super-Nu-Thera? Would changing to a CF diet or soymilk increased

stimming?

> I don't know what I could contribute to. These are the 2 things

that has

> changed starting August 00.

>

> Any ideas, please help. I still feel disappointed at not being

able to

> transition :-(

>

> Thanks.

>

> Joanna.

[Guest guest]

I have read that some people are opting to not do allergy testing at all. The

reason is that our children have leaky gut syndrome and even though a test

may indicate that he is not allergic to casien and dairy etc. this is not

always true. why? well because our kids digest things much differently than

normal kids what happens is somewhere thru the process the food turns to

poisen and leaks out the gut into the blood going the the brain causeing

problems. Most people would suggest that the allergy test done may be 50%

accurate. You need to try an elimination diet. It is very difficult but worth

it. My son is doing wonderful on it. He has yeast overgrowth in his bowel and

bad bacteria. once I clear those up then after about 4 months of his gut

healing itself, I then will do allergy testing to see how it comes out. Read

Dr. shaws book. gives details what to do. Also is your son on CLO? I have

seen great results in my son as far as stemming with objects etc. An

elimination diet will not lie and you will get to the bottom of it. read

" unraveling the mystery of autism " by seroussi also. I know this seems so

hard but it is our responsibility to research. Read all you can. Dont follow

what other parents do. all kids are different. good luck

[Guest guest]

gluten/casien/dairy must go out even though your test dont say it......give

it a try

[Guest guest]

-

Hi Joanna and everyone,

I'm still new to this myself, but have two comments on stimming. My

son, age 6, 45 pounds, went GFCF at the end of August. I had never

used the word stim before with , though he certainly

perseverates. At week three of the diet he was stimming like crazy,

then after a few more weeks it waned. Then I tried one day of Super

NuThera, and he was OFF THE WALL, though he is normally not

hyperactive. I called Kirkman's and told them I wanted to try the

hypoallergenic kind. The woman on the phone told me to increase

magnesium to get rid of the SNT-induced hyperactivity, but I ordered

hypoalleergenic anyway. It hasn't come yet (they were out of stock) so

I can't comment on how that worked for us. Oh, and one more thing--you

didn't mention DMG, but my son gets hyper and stimmy on that, too,

without folic acid and B12 (thank you, listies, for that tip!)

Betty & Dan (parents of , Larkin, and Ian)

-- In GFCFKidsegroups, " Joanna Pau " <joannapau@h...> wrote:

> Hi listmates,

>

> I'm a lurker here on the list but I do read the email everyday and

learned

> from it. Now, I need to de-lurk and ask a question. Before the end

of

> summer (in July), my son's special ed teacher has mentioned that he

would be

> ready for transition by Oct. He has some stimming issue at that

time, but

> is not severe. Today, we've our IEP, and everybody (special ed

teacher,

> speech pathologist, NPS administrator, and even us, parents) all

voiced our

> concern of DS's stimming problem. It has gotton worse over the

summer to

> the point that we have to cancel our idea of sending him to a normal

> preschool as this stimming interferes so much and will disrupt the

class.

> Besides verbal stimming, he now hold his fingers close to his eyes

and

> stared at them. It's really awkward and is very frequent. Before

the

> summer, this stim was not there. I don't know what might contribute

to it

> but the ONLY changes I've made during the summer is adding

Super-Nu-Thera (1

> teaspoon per day-he's around 50 lbs) and gradually changing to a CF

diet

> (changed to SOYMILK and no more cheese/yogurt/ice cream etc-though

not yet

> 100%, but 95%) He's been tested allergic to cow's milk (+3) and

yogurt and

> cheedar cheese and casein (+2). Peptide tests shows negative for

both

> gluten and casein. After adding his SuperNuThera, his teeth

grinding

> stopped within 2 days.

>

> So, my question is: Is there anyone experience more stimming with

> Super-Nu-Thera? Would changing to a CF diet or soymilk increased

stimming?

> I don't know what I could contribute to. These are the 2 things

that has

> changed starting August 00.

>

> Any ideas, please help. I still feel disappointed at not being

able to

> transition :-(

>

> Thanks.

>

> Joanna.