Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Hey , I wish I could answer for you and everyone what to do next but my only answer is a DAY AT A TIME. To answer your question on the status concerning Brandan, yesterday was a good day he was up and playing on the computer, he loves playing video games ( I think it keeps his mind in other places.), They yet again want to do another ERCP and explore his major duct but for now we are trying a vitamin cocktail and a drink called PEPTAMEN. He was a juice supplement but tired of it quickly...( someone asked about slimfast that is what I have been giving Brandan because after he came of TPN 2 months ago, I wanted to make sure his vitamins and minerals were still being given.) seems like sometimes we are the doctors, nutrionistist, etc... I am now thru our home healthcare trying to get the peptamen and I will let you know how it goes. It is very expensive but I have been told it can not only help with vitamins and minerals but can help with the function of the pancreas.. Brandan also WHEN he eats takes viokase with everything , they had him on a new enzyme but it wasnt breaking down in his system so they went back to the old one which they called viokase. ( I have heard henry talking about it also.). He isnt able to go to school because of the nauseasness, and fatigue, also the fact that he is on a fentenyl patch 24 and 7 for control of his pain. ( does anyone else use a patch??????)....It is hard for his friends to understand, Brandan has always been very active and upbeat, although he tries to remain upbeat the active part is no longer there...Besides the fact that Brandan looks so healthy (thanks to the drinks and tpn) and always has it is hard for people to understand...His brother is great, stays when he feels well enough and keeps him company and by the way my oldest just got his license so the boys when Brandan is up to it love to take off on me, ( they just go get a movie and come right back) but He does stay involved with his brother, which makes things a little easier. And from time to time my oldest son has been my strength, when I have needed a shoulder. I hope I have answered your questions and please feel free to ask away, dont ever be sorry for being curious or intersted thats never a problem. I truly feel for you , You and Yours are always in my thoughts and prayers...Keep smiling..TTFN...Peg... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 >>>I always end up having to either put my coat on or wrap up in a blanket right after I eat. Does anyone else do this? Mona, I do that too. As a matter of fact, I'm sitting in a blanket right now after eating a bowel of cereal. I was told by someone once that after we eat, circulation is concentrated in the digestive organs, and hence our extremtites get cold. I think it was a nurse that told me that. Diane Truly,truly I say to you,unless one is born again,he cannot see the kingdom of God(3:3) _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Carole You do not know me, but I have pseudocysts in my pancreas as well. As a matter of fact, a new doctor wants to do an ERCP because of 'blockage " of the main duct in my pancreas. I do not know what the blockage is exactly. But I will go with it, since nothing has really been done for 15 years. I've been at home from work, with major fatigue and nausea and cramping and thus depression, so I have time to read my emails. I have found that the slim fasts have a lot of sugar. I vary my liquid diet between Glucerna (for diabetics) and Ensure plus protein. Can you have fruit smoothies? At least this liquid diet is a little varied. Although, I don't know about you but I am sooo sick of drinking my meals! I hope you are okay today. Let me know about yourself. Staci (California) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You do not know me, but I have pseudocysts in my pancreas as well. As a matter of fact, a new doctor wants to do an ERCP because of 'blockage" of the main duct in my pancreas. Hi Staci, How did they find the blockage? Where is your Pseudocyst and how large is it? Is the Pseudocyst causing your blockage? Is it on the outside or inside of the Pancreas? Sorry for all the questions but I am very interested since I know I'm going to have to do something in the near future. Will a blockage show in a CT Scan? Staci, do you have pain all the time or does it come and go? I've had a pretty good day today, thank you....just wish it would last and wish I didn't constantly have to focus on what I can eat opposed to what I would love to have! I've been handling the slimfast okay but I am swelling in the stomach area and didn't know if it might be the chocolate in it....think I'll try the vanilla. It does have artificial sweetener in it but usually that doesn't bother me. Do you have your own recipes for smoothies? If so, would you be willing to share them with me. What I'm really finding very difficult is trying to cook for my husband when I know I can't eat it. Sometimes I wish there was a pill for each meal to make it simple for us. What part of California are you from? Thanks for the information and take care of yourself. I'll keep you in my prayers and hope you feel better soon. Hugs & Prayers Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You do not know me, but I have pseudocysts in my pancreas as well. As a matter of fact, a new doctor wants to do an ERCP because of 'blockage" of the main duct in my pancreas. Hi Staci, How did they find the blockage? Where is your Pseudocyst and how large is it? Is the Pseudocyst causing your blockage? Is it on the outside or inside of the Pancreas? Sorry for all the questions but I am very interested since I know I'm going to have to do something in the near future. Will a blockage show in a CT Scan? Staci, do you have pain all the time or does it come and go? I've had a pretty good day today, thank you....just wish it would last and wish I didn't constantly have to focus on what I can eat opposed to what I would love to have! I've been handling the slimfast okay but I am swelling in the stomach area and didn't know if it might be the chocolate in it....think I'll try the vanilla. It does have artificial sweetener in it but usually that doesn't bother me. Do you have your own recipes for smoothies? If so, would you be willing to share them with me. What I'm really finding very difficult is trying to cook for my husband when I know I can't eat it. Sometimes I wish there was a pill for each meal to make it simple for us. What part of California are you from? Thanks for the information and take care of yourself. I'll keep you in my prayers and hope you feel better soon. Hugs & Prayers Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You do not know me, but I have pseudocysts in my pancreas as well. As a matter of fact, a new doctor wants to do an ERCP because of 'blockage" of the main duct in my pancreas. Hi Staci, How did they find the blockage? Where is your Pseudocyst and how large is it? Is the Pseudocyst causing your blockage? Is it on the outside or inside of the Pancreas? Sorry for all the questions but I am very interested since I know I'm going to have to do something in the near future. Will a blockage show in a CT Scan? Staci, do you have pain all the time or does it come and go? I've had a pretty good day today, thank you....just wish it would last and wish I didn't constantly have to focus on what I can eat opposed to what I would love to have! I've been handling the slimfast okay but I am swelling in the stomach area and didn't know if it might be the chocolate in it....think I'll try the vanilla. It does have artificial sweetener in it but usually that doesn't bother me. Do you have your own recipes for smoothies? If so, would you be willing to share them with me. What I'm really finding very difficult is trying to cook for my husband when I know I can't eat it. Sometimes I wish there was a pill for each meal to make it simple for us. What part of California are you from? Thanks for the information and take care of yourself. I'll keep you in my prayers and hope you feel better soon. Hugs & Prayers Carole Quote Link to comment Share on other sites More sharing options...
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