Re: Gluten sensitivity and stomach issues

[Guest guest]

I've wondered about this before due to some other symptoms I have (namely

infertility), but found it extremely HARD to stick to.  I want to try it and

stick to it to see if it helps.  I've been doing some research and have found

some conflicting advice.  Do you happen to know how long one should stick to the

diet to make a clear distinction of whether or not the diet is working? Some

sites say a month or two while other say a YEAR or TWO? 

 

I seem to have lots of symptoms of intolerance: chronic diahhrea, infertility,

anemia, joint pain, fatigue.

 

Thanks

 

>

>

>I've been having diahrea every day, mostly in the mornings after my

>first meal.  I'm usually ok after that, but sometimes I will have it

>two or three times a day.  I'm already taking probiotics and

>L-Glutamine.  What else can I do to help this?  I know I've got to

>get it under control.

>

>I upped my dosage from M-W-F to everyday three months ago.  This was

>the first time I saw any progress with my joints, so I really don't

>want to back off the antibiotics right now.

>

>Thanks

>

------------------------------------

To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links

[Guest guest]

Hi Beth;

I have celiac disease but did not have any idea as I had no

symptoms.I came down with SD ,did the usual dangerous meds with not much

help.Then found AP and that did nothing much.No wonder as one needs

one's own immune system to kill off the micoplasma as the minocin only

weakens them enough for the immune system to do the killing.Anyway I

found a great holistic doctor who does AP and she told me that if one's

immune system is busy fighting one war it can't do much about the

other.She suspected I had celiac as now one person in ninety has it or

celiac syndrome.She had me do the testing via Enterolab (

www.enterolab.com )She told me that most blood tests are not very good

and a biopsy may be wrong is they pick up a wee bit of tissue that is

not damaged.It took 18 months to recover from the damage and food

sensitivities it caused.Then AP kicked in and I was in remission in an

other 18 months.

You are the one that has to order the test you want,I just ordered

the 99$ gluten test,sent in a fecal sample,they cultured it a few weeks

and e-mailed me the results.Changing the diet was hard at first and only

then did I see how much grain I ate.Toast in the morning,a brioche at

coffee,a sandwich at lunch,a piece of cake in the afternoon,a sauce on

meat at night and then an evening snack.YIKES! Now I just avoid foods

that are made with grains and substitute fruit or veggies as I hate the

gluten free foods other than brown rice pasta which is better than the

ones made with flour.It sure is a much healthier diet.

Lynne

>

>

> I've wondered about this before due to some other symptoms I have

> (namely infertility), but found it extremely HARD to stick to. I want

> to try it and stick to it to see if it helps. I've been doing some

> research and have found some conflicting advice. Do you happen to

> know how long one should stick to the diet to make a clear distinction

> of whether or not the diet is working? Some sites say a month or two

> while other say a YEAR or TWO?

>

> I seem to have lots of symptoms of intolerance: chronic diahhrea,

> infertility, anemia, joint pain, fatigue.

>

> Thanks

>

>

>

> >

> >

> >I've been having diahrea every day, mostly in the mornings after my

> >first meal. I'm usually ok after that, but sometimes I will have it

> >two or three times a day. I'm already taking probiotics and

> >L-Glutamine. What else can I do to help this? I know I've got to

> >get it under control.

> >

> >I upped my dosage from M-W-F to everyday three months ago. This was

> >the first time I saw any progress with my joints, so I really don't

> >want to back off the antibiotics right now.

> >

> >Thanks

> >

>

> ------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribe@...

> <mailto:rheumatic-unsubscribe%40>! Groups Links

>

>

[Guest guest]

Beth,

It turns out that infertility and anemia (iron deficiency) are among

the symptoms of gluten sensitivity, along with diarrhea, joint pain,

sleep problems, and vitamin D3 deficiency. Celiac disease occurs only

in the event of extreme gluten sensitivity.

You will know that a gluten-free diet works for you when you start to

get better in first few days, but I would run the test for at least

one month. Complete healing of intestines may take from 6 to 12

months. Regrettably, gluten intolerance is a permanent condition, and

the only known solution is a gluten-free diet.

Yes, a gluten-free diet takes effort, but this effort will be well

worth it if you are gluten sensitive.

Sincerely, Harald

At 02:54 PM 1/21/2010, you wrote:

>

>

>I've wondered about this before due to some other symptoms I have

>(namely infertility), but found it extremely HARD to stick to. I

>want to try it and stick to it to see if it helps. I've been doing

>some research and have found some conflicting advice. Do you happen

>to know how long one should stick to the diet to make a clear

>distinction of whether or not the diet is working? Some sites say a

>month or two while other say a YEAR or TWO?

>

>I seem to have lots of symptoms of intolerance: chronic diahhrea,

>infertility, anemia, joint pain, fatigue.

>

>Thanks

>

>

>

> >

> >

> >I've been having diahrea every day, mostly in the mornings after my

> >first meal. I'm usually ok after that, but sometimes I will have it

> >two or three times a day. I'm already taking probiotics and

> >L-Glutamine. What else can I do to help this? I know I've got to

> >get it under control.

> >

> >I upped my dosage from M-W-F to everyday three months ago. This was

> >the first time I saw any progress with my joints, so I really don't

> >want to back off the antibiotics right now.

> >

> >Thanks

[Guest guest]

Hi Lynne.  Great to see you are busy helping people with the celiac problem. 

Just want to let you know the good news.  Had my blood tested.  The RF finally

went to normal along with the ANA, which converted last spring, but the best is

that the diabetes and hypertension problems have also come back well

controlled.  I stopped injecting the Insulin around late spring or so and was

having problems keeping the glucose levels down.  I finally gave up and started

to eat normally.  I added rice to my diet every day and the diarrhea

disappeared.  I read in the Faq sheet that once the blood work is normal, we

should go to a single dose MWF of minocin.  So, that is what I am on now.  I

couldn't believe my eyes when I got the result of the blood test back. The

blood work looks like something I may have gotten back when I was 30 and

healthy.   Even the triglycerides and cholesterol is within normal limits.  

--- You are the one I have to thank so

much for telling me about the Antibiotic Protocol.  A huge hug and kisses to

both of you.  I miss our late night chats, but realize you are in the throes of

winter and must feed the menagerie and keep stoking the fires.  I'm still

having some back pain.  Probably from the fall.  If that doesn't clear up

soon, I think I will go for an MRI.  I hope I didn't do any major damage on my

spine.  Take care,~~~~~~ Love Dodo & Mike  On Thu, 1/21/10, Lynne and Santos

<lynneandsantos@...> wrote:

From: Lynne and Santos <lynneandsantos@...>

Subject: Re: rheumatic Gluten sensitivity and stomach issues

rheumatic

Date: Thursday, January 21, 2010, 9:13 PM

 

Hi Beth;

I have celiac disease but did not have any idea as I had no

symptoms.I came down with SD ,did the usual dangerous meds with not much

help.Then found AP and that did nothing much.No wonder as one needs

one's own immune system to kill off the micoplasma as the minocin only

weakens them enough for the immune system to do the killing.Anyway I

found a great holistic doctor who does AP and she told me that if one's

immune system is busy fighting one war it can't do much about the

other.She suspected I had celiac as now one person in ninety has it or

celiac syndrome.She had me do the testing via Enterolab (

www.enterolab. com )She told me that most blood tests are not very good

and a biopsy may be wrong is they pick up a wee bit of tissue that is

not damaged.It took 18 months to recover from the damage and food

sensitivities it caused.Then AP kicked in and I was in remission in an

other 18 months.

You are the one that has to order the test you want,I just ordered

the 99$ gluten test,sent in a fecal sample,they cultured it a few weeks

and e-mailed me the results.Changing the diet was hard at first and only

then did I see how much grain I ate.Toast in the morning,a brioche at

coffee,a sandwich at lunch,a piece of cake in the afternoon,a sauce on

meat at night and then an evening snack.YIKES! Now I just avoid foods

that are made with grains and substitute fruit or veggies as I hate the

gluten free foods other than brown rice pasta which is better than the

ones made with flour.It sure is a much healthier diet.

Lynne

>

>

> I've wondered about this before due to some other symptoms I have

> (namely infertility) , but found it extremely HARD to stick to. I want

> to try it and stick to it to see if it helps. I've been doing some

> research and have found some conflicting advice. Do you happen to

> know how long one should stick to the diet to make a clear distinction

> of whether or not the diet is working? Some sites say a month or two

> while other say a YEAR or TWO?

>

> I seem to have lots of symptoms of intolerance: chronic diahhrea,

> infertility, anemia, joint pain, fatigue.

>

> Thanks

>

>

>

> >

> >

> >I've been having diahrea every day, mostly in the mornings after my

> >first meal. I'm usually ok after that, but sometimes I will have it

> >two or three times a day. I'm already taking probiotics and

> >L-Glutamine. What else can I do to help this? I know I've got to

> >get it under control.

> >

> >I upped my dosage from M-W-F to everyday three months ago. This was

> >the first time I saw any progress with my joints, so I really don't

> >want to back off the antibiotics right now.

> >

> >Thanks

> >

>

> ------------ --------- --------- ------

>

> To unsubscribe, email: rheumatic-unsubscri begroups (DOT) com

> <mailto:rheumatic- unsubscribe% 40groups. com> ! Groups Links

>

>

[Guest guest]

Lynn,

Please send me the information you have on the antibiotic protocol.

Thank you,

Kathy Egenbacher

________________________________

From: mike rosner <martysfolks2004@...>

rheumatic

Sent: Fri, January 22, 2010 12:52:49 AM

Subject: Re: rheumatic Gluten sensitivity and stomach issues

 

Hi Lynne.  Great to see you are busy helping people with the celiac problem. 

Just want to let you know the good news.  Had my blood tested.  The RF finally

went to normal along with the ANA, which converted last spring, but the best is

that the diabetes and hypertension problems have also come back well

controlled.  I stopped injecting the Insulin around late spring or so and was

having problems keeping the glucose levels down.  I finally gave up and started

to eat normally.  I added rice to my diet every day and the diarrhea

disappeared.  I read in the Faq sheet that once the blood work is normal, we

should go to a single dose MWF of minocin.  So, that is what I am on now.  I

couldn't believe my eyes when I got the result of the blood test back. The

blood work looks like something I may have gotten back when I was 30 and

healthy.   Even the triglycerides and cholesterol is within normal limits.  

--- You are the one I have to thank so

much for telling me about the Antibiotic Protocol.  A huge hug and kisses to

both of you.  I miss our late night chats, but realize you are in the throes of

winter and must feed the menagerie and keep stoking the fires.  I'm still

having some back pain.  Probably from the fall.  If that doesn't clear up

soon, I think I will go for an MRI.  I hope I didn't do any major damage on my

spine.  Take care,~~~~~~ Love Dodo & Mike  On Thu, 1/21/10, Lynne and Santos

<lynneandsantos@ citenet.net> wrote:

From: Lynne and Santos <lynneandsantos@ citenet.net>

Subject: Re: rheumatic Gluten sensitivity and stomach issues

rheumatic@grou ps.com

Date: Thursday, January 21, 2010, 9:13 PM

 

Hi Beth;

I have celiac disease but did not have any idea as I had no

symptoms.I came down with SD ,did the usual dangerous meds with not much

help.Then found AP and that did nothing much.No wonder as one needs

one's own immune system to kill off the micoplasma as the minocin only

weakens them enough for the immune system to do the killing.Anyway I

found a great holistic doctor who does AP and she told me that if one's

immune system is busy fighting one war it can't do much about the

other.She suspected I had celiac as now one person in ninety has it or

celiac syndrome.She had me do the testing via Enterolab (

www.enterolab. com )She told me that most blood tests are not very good

and a biopsy may be wrong is they pick up a wee bit of tissue that is

not damaged.It took 18 months to recover from the damage and food

sensitivities it caused.Then AP kicked in and I was in remission in an

other 18 months.

You are the one that has to order the test you want,I just ordered

the 99$ gluten test,sent in a fecal sample,they cultured it a few weeks

and e-mailed me the results.Changing the diet was hard at first and only

then did I see how much grain I ate.Toast in the morning,a brioche at

coffee,a sandwich at lunch,a piece of cake in the afternoon,a sauce on

meat at night and then an evening snack.YIKES! Now I just avoid foods

that are made with grains and substitute fruit or veggies as I hate the

gluten free foods other than brown rice pasta which is better than the

ones made with flour.It sure is a much healthier diet.

Lynne

>

>

> I've wondered about this before due to some other symptoms I have

> (namely infertility) , but found it extremely HARD to stick to. I want

> to try it and stick to it to see if it helps. I've been doing some

> research and have found some conflicting advice. Do you happen to

> know how long one should stick to the diet to make a clear distinction

> of whether or not the diet is working? Some sites say a month or two

> while other say a YEAR or TWO?

>

> I seem to have lots of symptoms of intolerance: chronic diahhrea,

> infertility, anemia, joint pain, fatigue.

>

> Thanks

>

>

>

> >

> >

> >I've been having diahrea every day, mostly in the mornings after my

> >first meal. I'm usually ok after that, but sometimes I will have it

> >two or three times a day. I'm already taking probiotics and

> >L-Glutamine. What else can I do to help this? I know I've got to

> >get it under control.

> >

> >I upped my dosage from M-W-F to everyday three months ago. This was

> >the first time I saw any progress with my joints, so I really don't

> >want to back off the antibiotics right now.

> >

> >Thanks

> >

>

> ------------ --------- --------- ------

>

> To unsubscribe, email: rheumatic-unsubscri begroups (DOT) com

> <mailto:rheumatic- unsubscribe% 40groups. com> ! Groups Links

>

>

[Guest guest]

Hi Kathy;

AP seems to be an individual thing so you really have to fool

around with dosages and supplements until you get it right.I did the

Harvard Protocol first and did not have much help.Went on to a low dose

pulsed regimen similar to the Marshall Protocol but with just a little

Benicar and it worked wonders.My sister who has MCTD and Lupus is on

full MP and doing very well without avoiding light more than any other

Lupie has to.If you tell me you have SD have I might be able to give you

some tips but I am not too aware of what other diseases call for other

than some types of arthritis such as DM one has to avoid starchy foods.

>

>

> Lynn,

> Please send me the information you have on the antibiotic protocol.

> Thank you,

> Kathy Egenbacher

>

[Guest guest]

Kathy,

Check out www.rheumatic.org for Dr. Brown's antibiotic protocol. Many of

us on this list are on some version of it.

Take care,

Ute

At 10:46 AM 1/22/2010, you wrote:

>

>

>Lynn,

>Please send me the information you have on the antibiotic protocol.

>Thank you,

>Kathy Egenbacher

[Guest guest]

I have been on a gluten free diet for 2 1/2 years. ( now definitely less

joint pain). I just want to tell you all that I have discovered some really

good recipes on line at www.elanaspantry.com She uses mainly almond flour

and they taste really good. I also don't eat potatoes or corn and she

doesn't either. I also bought her book that you can find on her website.

Her recipes are pretty easy as well so not a huge project when you don't

feel good. I also have found some really good recipes made from coconut

flour. You can do a search online and find lots of good recipes.

Cari

AS - 1983 AP for 10 years

[Guest guest]

Hi Kathy.  This site often posts a Faq. sheet on frequent asked questions about

the antibiotic protocol.  Ask them to post it again so you can make a copy. 

It gives a good outline and then as Lynne says, you must modify to what works

best for your disease or group of diseases.  Dolores & Mike

From: Lynne and Santos <lynneandsantos@...>

Subject: Re: rheumatic Gluten sensitivity and stomach issues

rheumatic

Date: Friday, January 22, 2010, 4:46 PM

 

Hi Kathy;

AP seems to be an individual thing so you really have to fool

around with dosages and supplements until you get it right.I did the

Harvard Protocol first and did not have much help.Went on to a low dose

pulsed regimen similar to the Marshall Protocol but with just a little

Benicar and it worked wonders.My sister who has MCTD and Lupus is on

full MP and doing very well without avoiding light more than any other

Lupie has to.If you tell me you have SD have I might be able to give you

some tips but I am not too aware of what other diseases call for other

than some types of arthritis such as DM one has to avoid starchy foods.

>

>

> Lynn,

> Please send me the information you have on the antibiotic protocol.

> Thank you,

> Kathy Egenbacher

>

[Guest guest]

The FAQ Dolores is referencing can be found here -

http://www.rheumatic.org/faq.htm

Ethel

Re: rheumatic Gluten sensitivity and stomach issues

rheumatic

Date: Friday, January 22, 2010, 4:46 PM

Hi Kathy;

AP seems to be an individual thing so you really have to fool

around with dosages and supplements until you get it right.I did the

Harvard Protocol first and did not have much help.Went on to a low dose

pulsed regimen similar to the Marshall Protocol but with just a little

Benicar and it worked wonders.My sister who has MCTD and Lupus is on

full MP and doing very well without avoiding light more than any other

Lupie has to.If you tell me you have SD have I might be able to give you

some tips but I am not too aware of what other diseases call for other

than some types of arthritis such as DM one has to avoid starchy foods.

>

>

> Lynn,

> Please send me the information you have on the antibiotic protocol.

> Thank you,

> Kathy Egenbacher

>

[Guest guest]

Thank you for printing the Faq. sheet again.  I find this document

invaluable.  It is my medical bible.   I gain something new each time I read

it.  I keep copies on my desk to give out to any new doctor I am going to

see.   I know some of them throw it in the trash.  They do not know what they

are missing. Some really read it and those are the doctors I go back to.  It

takes a lot of determination and will power to stay focused on this therapy.  I

have Scleroderma, so for me it was a no brainer.  I could either choose to

live or die.  I was near death in 2005 and today my lab work is totally normal

and I am symptom free.  It was a long slow process, but well worth every thing

I went through.  I love all you guys and gals who helped me through the process

and know you have had your own trials as well.  A few did not make it, but

then there is a multitude who are better off today because of the A/P. To all

of you who are just starting,

this therapy will take you on a roller coaster ride.  You may feel well and

then suddenly the bottom drops out.  You will climb again and again.  Keeping

reaching for the gold ring.  It is there at the top.  You will look back with

a smile and say, " Good job "   I am still on low dose Minocin MWF. Perhaps, I

will be for the rest of my life.  I don't know what the future holds.  We

shall see.  The last 5 years has been the trip of a lifetime.  And I want to

thank you all for your support.  Couldn't have made it without you.  Our best

to all of you and wishing you all a happier and healthier New

Year.~~~~~~~Dolores & Mike  

From: Lynne and Santos <lynneandsantos@ citenet.net>

Subject: Re: rheumatic Gluten sensitivity and stomach issues

rheumatic@grou ps.com

Date: Friday, January 22, 2010, 4:46 PM

Hi Kathy;

AP seems to be an individual thing so you really have to fool

around with dosages and supplements until you get it right.I did the

Harvard Protocol first and did not have much help.Went on to a low dose

pulsed regimen similar to the Marshall Protocol but with just a little

Benicar and it worked wonders.My sister who has MCTD and Lupus is on

full MP and doing very well without avoiding light more than any other

Lupie has to.If you tell me you have SD have I might be able to give you

some tips but I am not too aware of what other diseases call for other

than some types of arthritis such as DM one has to avoid starchy foods.

>

>

> Lynn,

> Please send me the information you have on the antibiotic protocol.

> Thank you,

> Kathy Egenbacher

>