Question about LDN

[Guest guest]

From what i've learned about alcoholism & ldn, i think it's a wise decision to try it!! ur mail priority is sobriety!! also, do u go to AA meetings?? the 12-step programs do work!! i'm a member of several groups!! al-anon, adult children of alcoholics, sex & love addicts, co-dependents anonymous!! I've found them very helpful with my addictions!! BUT, DO USE THE LDN, ALSO!!

MARSHIRIS

[Guest guest]

Emiliano -- re your eyes, don't know if this info would help. I drink mangosteen juice. It's an anti-oxidant juice and reduces inflammation. It stopped eye pain, floaters, blurred vision and light sensitivity in 24 hours. I have Lyme disease, which inflamed my eyes. The juice protects them. I drink the Ultra brand -- has 70 minerals added to it. It's carried in healthfood stores and online. If you try it, drink a lot of water with it. -- RobinSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

LDN seemed to slightly improve my blurry and double vision caused by

multiple sclerosis, so I don't see why it couldn't help your friend,

too.

Art

--

> hi all,a friend of mine tha has ms asked me if ldn can be useful for

ms

> symptoms that hit his view,infact he got neurit that reduced the

vision

> of both eyes.

> i do not know what to say him because my experience is only for other

> kind of ms symptoms.

> is there any ine that got any improvements with view?or do you know

if

> ldn can help for this problem?

> any information is wellcome.

> my best

> emiliano

>

[Guest guest]

my vision was a lot clearer when I started LDN

lyn

[low dose naltrexone] question about ldn

hi all,a friend of mine tha has ms asked me if ldn can be useful for ms

symptoms that hit his view,infact he got neurit that reduced the vision

of both eyes.

i do not know what to say him because my experience is only for other

kind of ms symptoms.

is there any ine that got any improvements with view?or do you know if

ldn can help for this problem?

any information is wellcome.

my best

emiliano

Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

[Guest guest]



Hi lyn,

Has it remained clearer, gotten better or gotten worse since your initial experience?

Aletha

[low dose naltrexone] question about ldn

hi all,a friend of mine tha has ms asked me if ldn can be useful for ms symptoms that hit his view,infact he got neurit that reduced the vision of both eyes.i do not know what to say him because my experience is only for other kind of ms symptoms.is there any ine that got any improvements with view?or do you know if ldn can help for this problem?any information is wellcome.my bestemiliano

Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

[Guest guest]

it has stayed clear

Re: [low dose naltrexone] question about ldn

 Hi lyn,

Has it remained clearer, gotten better or gotten worse since your initial experience?

Aletha

[low dose naltrexone] question about ldn

hi all,a friend of mine tha has ms asked me if ldn can be useful for ms

symptoms that hit his view,infact he got neurit that reduced the vision

of both eyes.

i do not know what to say him because my experience is only for other

kind of ms symptoms.

is there any ine that got any improvements with view?or do you know if

ldn can help for this problem?

any information is wellcome.

my best

emiliano

Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

[Guest guest]

Have you been to the low dose naltrexone.org website and read the rationale around LDN and autoimmune diseases? The fallacy is that those of us with AI problems have immune systems that are too strong, when in fact they are just BLIND because they are not working properly. Attacking self is not an indication of overactivity, just an inability to distinguish between self and enemy. Endorphins give our immune systems back their ability to see straight. The description of this on the site is very good and easy to understand.

I have an autoimmune disease (RA) and have been on mild immunosuppressive drugs and NSAIDs for years. For the past 8 weeks I have been on just LDN, and I feel really great. I went up gradually from 1.5 to 3.0 to 4.5, which worked well for me. I got off all my other drugs within the first few weeks. I think the results speak for themselves. I did a little report at the 8 week mark that I can email you if you like, detailing my progress.

Judy

From: marlaprendergast <kws11@...>

Reply-<low dose naltrexone >

Date: Fri, 01 Feb 2008 02:42:55 -0000

<low dose naltrexone >

Subject: [low dose naltrexone] Question about LDN

I have an undiagnosed autoimmune disease with an ANA of 1:1280 and

many bizarre symptoms. My alternative practitioner prescribed 3 mg of

LDN daily. I'm a little concerned in that I keep reading that LDN

BOOSTS the immune system. I thought that if you have an autoimmune

condition you want to SUPPRESS the immune system. Can someone please

clarify.

[Guest guest]

Yes, that would be great if you could email me it. I have never

heard of LDN until today. Do you anticipate taking this for life?

>

> Have you been to the low dose naltrexone.org website and read the

rationale

> around LDN and autoimmune diseases? The fallacy is that those of

us with AI

> problems have immune systems that are too strong, when in fact

they are just

> BLIND because they are not working properly. Attacking self is

not an

> indication of overactivity, just an inability to distinguish

between self

> and enemy. Endorphins give our immune systems back their ability

to see

> straight. The description of this on the site is very good and

easy to

> understand.

>

> I have an autoimmune disease (RA) and have been on mild

immunosuppressive

> drugs and NSAIDs for years. For the past 8 weeks I have been on

just LDN,

> and I feel really great. I went up gradually from 1.5 to 3.0 to

4.5, which

> worked well for me. I got off all my other drugs within the first

few

> weeks. I think the results speak for themselves. I did a little

report at

> the 8 week mark that I can email you if you like, detailing my

progress.

>

> Judy

>

>

>

> From: marlaprendergast <kws11@...>

> Reply-<low dose naltrexone >

> Date: Fri, 01 Feb 2008 02:42:55 -0000

> <low dose naltrexone >

> Subject: [low dose naltrexone] Question about LDN

>

>

>

>

>

> I have an undiagnosed autoimmune disease with an ANA of 1:1280 and

> many bizarre symptoms. My alternative practitioner prescribed 3 mg

of

> LDN daily. I'm a little concerned in that I keep reading that LDN

> BOOSTS the immune system. I thought that if you have an autoimmune

> condition you want to SUPPRESS the immune system. Can someone

please

> clarify.

>

[Guest guest]

I believe taking it for life is the idea, yes. It’s way more benign than the other drugs I was anticipating taking for life!

I will email you my progress report privately.

Judy

From: marlaprendergast <kws11@...>

Reply-<low dose naltrexone >

Date: Fri, 01 Feb 2008 02:56:53 -0000

<low dose naltrexone >

Subject: [low dose naltrexone] Re: Question about LDN

Yes, that would be great if you could email me it. I have never

heard of LDN until today. Do you anticipate taking this for life?

>

> Have you been to the low dose naltrexone.org website and read the

rationale

> around LDN and autoimmune diseases? The fallacy is that those of

us with AI

> problems have immune systems that are too strong, when in fact

they are just

> BLIND because they are not working properly. Attacking self is

not an

> indication of overactivity, just an inability to distinguish

between self

> and enemy. Endorphins give our immune systems back their ability

to see

> straight. The description of this on the site is very good and

easy to

> understand.

>

> I have an autoimmune disease (RA) and have been on mild

immunosuppressive

> drugs and NSAIDs for years. For the past 8 weeks I have been on

just LDN,

> and I feel really great. I went up gradually from 1.5 to 3.0 to

4.5, which

> worked well for me. I got off all my other drugs within the first

few

> weeks. I think the results speak for themselves. I did a little

report at

> the 8 week mark that I can email you if you like, detailing my

progress.

>

> Judy

>

>

>

> From: marlaprendergast <kws11@...>

> Reply-<low dose naltrexone <mailto:low dose naltrexone%40> >

> Date: Fri, 01 Feb 2008 02:42:55 -0000

> <low dose naltrexone <mailto:low dose naltrexone%40> >

> Subject: [low dose naltrexone] Question about LDN

>

>

>

>

>

> I have an undiagnosed autoimmune disease with an ANA of 1:1280 and

> many bizarre symptoms. My alternative practitioner prescribed 3 mg

of

> LDN daily. I'm a little concerned in that I keep reading that LDN

> BOOSTS the immune system. I thought that if you have an autoimmune

> condition you want to SUPPRESS the immune system. Can someone

please

> clarify.

>

[Guest guest]

Welcome,

I am sending you a copy of "the welcome e-mail" it should explain why it is OK to boost the immune system.

My best

Aletha

[low dose naltrexone] Question about LDN

I have an undiagnosed autoimmune disease with an ANA of 1:1280 and many bizarre symptoms. My alternative practitioner prescribed 3 mg of LDN daily. I'm a little concerned in that I keep reading that LDN BOOSTS the immune system. I thought that if you have an autoimmune condition you want to SUPPRESS the immune system. Can someone please clarify.

[Guest guest]

Thanks for your help.

>

> Welcome,

>

> I am sending you a copy of " the welcome e-mail " it should explain

why it is OK to boost the immune system.

>

> My best

> Aletha

> [low dose naltrexone] Question about LDN

>

>

> I have an undiagnosed autoimmune disease with an ANA of 1:1280

and

> many bizarre symptoms. My alternative practitioner prescribed 3

mg of

> LDN daily. I'm a little concerned in that I keep reading that

LDN

> BOOSTS the immune system. I thought that if you have an

autoimmune

> condition you want to SUPPRESS the immune system. Can someone

please

> clarify.

>

[Guest guest]

Great thanks.

> >

> > Have you been to the low dose naltrexone.org website and read the

> rationale

> > around LDN and autoimmune diseases? The fallacy is that those of

> us with AI

> > problems have immune systems that are too strong, when in fact

> they are just

> > BLIND because they are not working properly. Attacking self is

> not an

> > indication of overactivity, just an inability to distinguish

> between self

> > and enemy. Endorphins give our immune systems back their ability

> to see

> > straight. The description of this on the site is very good and

> easy to

> > understand.

> >

> > I have an autoimmune disease (RA) and have been on mild

> immunosuppressive

> > drugs and NSAIDs for years. For the past 8 weeks I have been on

> just LDN,

> > and I feel really great. I went up gradually from 1.5 to 3.0 to

> 4.5, which

> > worked well for me. I got off all my other drugs within the

first

> few

> > weeks. I think the results speak for themselves. I did a little

> report at

> > the 8 week mark that I can email you if you like, detailing my

> progress.

> >

> > Judy

> >

> >

> >

> > From: marlaprendergast <kws11@>

> > Reply-<low dose naltrexone

> <mailto:low dose naltrexone%40> >

> > Date: Fri, 01 Feb 2008 02:42:55 -0000

> > <low dose naltrexone

> <mailto:low dose naltrexone%40> >

> > Subject: [low dose naltrexone] Question about LDN

> >

> >

> >

> >

> >

> > I have an undiagnosed autoimmune disease with an ANA of 1:1280

and

> > many bizarre symptoms. My alternative practitioner prescribed 3

mg

> of

> > LDN daily. I'm a little concerned in that I keep reading that LDN

> > BOOSTS the immune system. I thought that if you have an

autoimmune

> > condition you want to SUPPRESS the immune system. Can someone

> please

> > clarify.

> >

>

[Guest guest]

Did you ever take statins???

[low dose naltrexone] Question about LDN> > > I have an undiagnosed autoimmune disease with an ANA of 1:1280 and > many bizarre symptoms. My alternative practitioner prescribed 3 mg of > LDN daily. I'm a little concerned in that I keep reading that LDN > BOOSTS the immune system. I thought that if you have an autoimmune > condition you want to SUPPRESS the immune system. Can someone please > clarify.>

[Guest guest]

I don't know what a statin is.

> >

> > Welcome,

> >

> > I am sending you a copy of " the welcome e-mail " it should

explain

> why it is OK to boost the immune system.

> >

> > My best

> > Aletha

> > [low dose naltrexone] Question about LDN

> >

> >

> > I have an undiagnosed autoimmune disease with an ANA of 1:1280

> and

> > many bizarre symptoms. My alternative practitioner prescribed 3

> mg of

> > LDN daily. I'm a little concerned in that I keep reading that

> LDN

> > BOOSTS the immune system. I thought that if you have an

> autoimmune

> > condition you want to SUPPRESS the immune system. Can someone

> please

> > clarify.

> >

>

>

>

>

>

>

[Guest guest]

I too think that it is a good thing to boost one's immune system as

many of us have various health issues that we have to deal with every

day because of our low immune systems. You stated that you had strange

symptoms, I am curious what they were. It appears that many things can

elevate ANA levels. Has your doctor ran additional tests to determine

what is causing this?

As far as I know, organ transplant persons should not take LDN because

they already have to deal with organ rejection issues and I'm guessing

that this could be a serious issue with these folks. I would advise you

to talk to your doctor or pharmicist for your particular case.

[Guest guest]

Liver counts that fluctuate between normal and elevated, various

bacterial infections, iritis, retinal hole, face pain, eye pain, low

iron, low thyroid, low vitamin D. ANA count is very high, RA count

mildly high, Vitamin D count a little low. All other tests normal.

>

> I too think that it is a good thing to boost one's immune system

as

> many of us have various health issues that we have to deal with

every

> day because of our low immune systems. You stated that you had

strange

> symptoms, I am curious what they were. It appears that many things

can

> elevate ANA levels. Has your doctor ran additional tests to

determine

> what is causing this?

>

> As far as I know, organ transplant persons should not take LDN

because

> they already have to deal with organ rejection issues and I'm

guessing

> that this could be a serious issue with these folks. I would

advise you

> to talk to your doctor or pharmicist for your particular case.

>

[Guest guest]

Oh gosh I forgot the most important symptom of all. Extreme dry

eyes, 24 hours a day, I've tried every drop on the market and

nothing helps. The Sjorgen blood test came up negative but I don't

really believe it. I am really praying that LDN will help me on this

because I really can't go on like this.

> >

> > I too think that it is a good thing to boost one's immune system

> as

> > many of us have various health issues that we have to deal with

> every

> > day because of our low immune systems. You stated that you had

> strange

> > symptoms, I am curious what they were. It appears that many

things

> can

> > elevate ANA levels. Has your doctor ran additional tests to

> determine

> > what is causing this?

> >

> > As far as I know, organ transplant persons should not take LDN

> because

> > they already have to deal with organ rejection issues and I'm

> guessing

> > that this could be a serious issue with these folks. I would

> advise you

> > to talk to your doctor or pharmicist for your particular case.

> >

>

[Guest guest]

-vit c is ok with ldn.

ldn might help hormones indirect.when your inflamtion,crp ,is lower,there is

less stress on your system,then less progesterone might be needed for the stress

hormone cortisol and you might have more progesterone for other functions.one of

them is creating myeline.

-- In low dose naltrexone , " kimp6178 " <kimp6178@...> wrote:

>

> Can you take LDN with Spironactalone?

>

> Can you take any supplements like vit c to try to boost your own immune system

while taking LDN?

>

> Can LDN help balance hormones?

>

> thanks

>

[Guest guest]

My husband has been on LDN for five years and his diet is generally awful!

Every now and then when I nag and moan he`ll cut out the " bad stuff " but always

drifts back to them again. He appears to be stable regardless but I`m sure it

just helps your health generally if you can be the fitest you can be, which

means getting exercise (if possible) and eating sensibly.

Good luck - welcome to the group!

[Guest guest]

I've been on LDN for about 2 years, and I would encourage you to continue your

healthy eating habits. Many sugars and starches make health problems worse

because of an increase in inflammation. I tend to stick to a mostly vegan diet

(2-3 days a week I will have wild line caught fish during a meal - or more

rarely chicken), and I feel worse when I fall off the wagon. Dairy, refined

flours (or gluten at all for that matter), and refined sugars are a no-no for

me. I feel WAY better on LDN, so when my joints feel gross after a bad meal,

it's enough motivation to stay on a very healthy diet for me.

That being said, there are some fabulous vegan desserts. Coconut Bliss is

absolutely delicious. It's a coconut ice cream that is sweetened with agave

nectar (which has gotten some bad press lately, but I still use certain brands

sparingly). Their dark chocolate, vanilla, and cherry amaretto flavors are

great. You may also want to look into raw vegan desserts. These are not low in

fat, but they do not contain animal fats, and I don't seem to have any issues

with them. I have a few recipes posted for vegan desserts on my

healingfromlupus.blogspot.com blog, where I also have information posted about

LDN and lupus. I tend to try to find fairly healthy alternatives to the things

I crave, and if you are determined, there are alternatives.

Hope this helps some.

Cami

LDN 2 years for SLE

[Guest guest]

If you mean you can only get the 50mg pill and not get it compounded to a low

dose then you need to put the whole pill in the same amount (ml) of distilled

water and let it disolve. Keep it in a bottle with a screw top lid in the

fridge and draw out the amount you want each night using a needless syringe, one

with the measurements on the side so you can pull out the correct amount.

Cutting the pill up into halves or quarters is an impossible way to judge how

much youre getting and you could never get a small enough amount that way.

>

> If someone can't get the ldn how much of a pill would they take? thanks

>

[Guest guest]

Does LDN help with Interstitial Lung Disease? I have it and

dermatomyositis and wondering if the LDN might help both? --Celia <><

[Guest guest]

it has helped me and I have both Interstitual lung disease and DM. My lungs are

clear now and my DM is a lot better. It will take some time and you have to take

your medication at all time. I also take NAC which helps with the lung. Just

look up the letters NAC on the computer, it will give you lots of help, also

ALA.

regards,

Eva

From: Celia <DustBunniesAndBooks@...>

Subject: rheumatic Question about LDN

" Rheumatic " <rheumatic >

Date: Sunday, August 8, 2010, 11:44 AM

 

Does LDN help with Interstitial Lung Disease? I have it and

dermatomyositis and wondering if the LDN might help both? --Celia <><

[Guest guest]

No worries Delores...it gets tough, Photo and PF and Photo re PH...LOL and many

then think that I had PF which I did not..but I did have OB...LOL toooo many

initials...I want to be sure that patients know that photopheresis works quite

well for PF...My friend received photopheresis specifically for PF...

Happy Bday and Enjoy your breakfast. Debbie

rheumatic Re: Question about LDN

>

> >

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> >

>

> >

>

> > That is so encouraging! I really want to heal my

> lungs with

>

> > my current treatment which is AP and LDN and not

> muddy the

>

> > waters with other more toxic and expensive drugs

> that may be

>

> > unnecessary. I see it as a race against time. If I

> can get

>

> > my pressures down with these two meds then I

> won't have

>

> > to go on the other stuff.

>

> >

>

> >

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> >

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> >

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> > > > > >

>

> >

>

> > > > > > Does LDN help with Interstitial

> Lung

>

> > Disease? I have it and

>

> >

>

> > > > > > dermatomyositis and wondering if

> the

>

> > LDN might help both? --Celia <><

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[Guest guest]

Hi Dolores,

During your 5 years on AP and then remission, did you gradually get better and

see a better quality of life during the 5 years? sally

Re: rheumatic Re: Question about LDN

rheumatic

Date: Thursday, August 19, 2010, 8:56 AM

My pressure changes depending on where and who does and reads the Echo...I know

that the PH spec here in town, Cincinnati, said he believes in beginning the PH

meds immediately when dx...because that way you can try and stop it from

climbing higher, limit damage to the heart...

Yes, I have severe responses to anything they do invasively.....I had a lung

biopsy years ago, etc...and everything that can happen, did...That is my

feeling...why do the heart cath, if you think I have it, go ahead and treat

me...or if you can see the heart damage from the PH on the echo, then treat

me...he wants the gold standard of diagnostic tools, the heart cath...

Since he is the only PH spec here in town, I won't burn bridges but I see no

reason to do the heart cath now...

Hang in there. Debb

rheumatic Re: Question about LDN

My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am

concerned that it is going up quickly. I have mild regurgitation also but no

other damage so to speak. In 2009 the echo said severe mitral valve prolapse but

for some reason the echo now doesn't say that. My cardiologist is not that

concerned but I said I was so I sought out a PH specialist. He has not said I

need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in

'07 and had a severe inflammatory response so I want to avoid any unnecessary

invasive procedures. I am satisfied I have PH so I don't really see the point in

doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a

pipe dream but that is my goal!

& gt; & gt; & gt;

& gt; & gt; & gt; Does LDN help with Interstitial Lung Disease? I have it and

& gt; & gt; & gt; dermatomyositis and wondering if the LDN might help both? --Celia

& lt; & gt; & lt;

& gt; & gt; & gt;

& gt; & gt;

& gt; & gt;

& gt; & gt;

& gt; & gt;

& gt; & gt;

& gt; & gt;