Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I have heard this as well Peggy but I have had 4 so far with no excitement whatsoever. I am getting Ferrlcit which it doesn't seem as common as Venofer on here. I get at a place where they give vitamin IV's, etc. It costs me an arm and a leg but it is worth not dragging this out for me. Steve > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I have heard this as well Peggy but I have had 4 so far with no excitement whatsoever. I am getting Ferrlcit which it doesn't seem as common as Venofer on here. I get at a place where they give vitamin IV's, etc. It costs me an arm and a leg but it is worth not dragging this out for me. Steve > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 We have had severla people oon this group use Venofer IV's wiht very few proboems. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 We have had severla people oon this group use Venofer IV's wiht very few proboems. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I just had two iron IVs and had no troubles at all. I had done some searches and it sounds like people used to have reactions to an older type of iron IV. The one I had is a newer type called " venofer " and sounds like other people have done okay on it too. My ferritin was 15 last year and 32 when I started the IVs in January. Last test (after two IVs) showed 112. I have another ferritin test next week to see how much I am holding on to it. I'm supplementing 50mg a day still as the T3 I take is still quite low while I build up. I'm really glad I had them done. > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I just had two iron IVs and had no troubles at all. I had done some searches and it sounds like people used to have reactions to an older type of iron IV. The one I had is a newer type called " venofer " and sounds like other people have done okay on it too. My ferritin was 15 last year and 32 when I started the IVs in January. Last test (after two IVs) showed 112. I have another ferritin test next week to see how much I am holding on to it. I'm supplementing 50mg a day still as the T3 I take is still quite low while I build up. I'm really glad I had them done. > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Thanks, Steve. I'd also like not to drag it out. My ferritin went up only 10 points in a month, and I need to raise it another 50 points. At this rate, that could take 5-6 months. My doctor does vitamin IV's but he said he doesn't do iron, so it looks like it would have to be the hospital. I'm guessing insurance won't cover this--can you say how much it's costing you? Also, I've had a lot of digestive problems with my iron supplement, although I'm taking ferrochel which isn't supposed to be hard on the stomach. Does the IV have that effect? Thanks. Peggy Re: iron IV's I have heard this as well Peggy but I have had 4 so far with no excitement whatsoever. I am getting Ferrlcit which it doesn't seem as common as Venofer on here. I get at a place where they give vitamin IV's, etc. It costs me an arm and a leg but it is worth not dragging this out for me.Steve>> I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks.> > Peggy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Thanks, Steve. I'd also like not to drag it out. My ferritin went up only 10 points in a month, and I need to raise it another 50 points. At this rate, that could take 5-6 months. My doctor does vitamin IV's but he said he doesn't do iron, so it looks like it would have to be the hospital. I'm guessing insurance won't cover this--can you say how much it's costing you? Also, I've had a lot of digestive problems with my iron supplement, although I'm taking ferrochel which isn't supposed to be hard on the stomach. Does the IV have that effect? Thanks. Peggy Re: iron IV's I have heard this as well Peggy but I have had 4 so far with no excitement whatsoever. I am getting Ferrlcit which it doesn't seem as common as Venofer on here. I get at a place where they give vitamin IV's, etc. It costs me an arm and a leg but it is worth not dragging this out for me.Steve>> I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks.> > Peggy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Thanks so much for posting this. You said your ferritin was up to 112 after two IV's. How far apart were the IV's, i.e. how long did it take to go from 32 to 112? Were you having them done weekly? And do you mind mentioning the expense, and whether insurance was willing to cover this? Peggy Re: iron IV's I just had two iron IVs and had no troubles at all. I had done some searches and it sounds like people used to have reactions to an older type of iron IV. The one I had is a newer type called "venofer" and sounds like other people have done okay on it too.My ferritin was 15 last year and 32 when I started the IVs in January. Last test (after two IVs) showed 112. I have another ferritin test next week to see how much I am holding on to it. I'm supplementing 50mg a day still as the T3 I take is still quite low while I build up.I'm really glad I had them done.>> I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks.> > Peggy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Thanks so much for posting this. You said your ferritin was up to 112 after two IV's. How far apart were the IV's, i.e. how long did it take to go from 32 to 112? Were you having them done weekly? And do you mind mentioning the expense, and whether insurance was willing to cover this? Peggy Re: iron IV's I just had two iron IVs and had no troubles at all. I had done some searches and it sounds like people used to have reactions to an older type of iron IV. The one I had is a newer type called "venofer" and sounds like other people have done okay on it too.My ferritin was 15 last year and 32 when I started the IVs in January. Last test (after two IVs) showed 112. I have another ferritin test next week to see how much I am holding on to it. I'm supplementing 50mg a day still as the T3 I take is still quite low while I build up.I'm really glad I had them done.>> I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks.> > Peggy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 The IVs were about two weeks apart. I didn't get ferritin tested right away. Started supplementing again and then had to wait the five days of stopping that before the test. It might be considered expensive (was well worth it to me as I've started raising T3 now yay!!) and may not be applicable to you as I am in Canada. I go to a private doctor and my insurance doesn't cover it. He gave me a prescription for the venofer which I picked up at the pharmacy and paid $58. Then the fee for the IV was $150. Hope it all works out for you to do it too. > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > Peggy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 They charge $234, of which half is supposedly the cost of the iron. They say to have a full stomach when taking it but I have had no nausea. I certainly did with Ferrous sulfate but not with the glycinate at all. Steve > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > Peggy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Venofer IVs have worked better than anything else for me to keep my ferritin up. Below are links to posts on this group on this subject. http://health.groups.yahoo.com/group/RT3_T3/message/34654 http://health.groups.yahoo.com/group/RT3_T3/message/32581 http://health.groups.yahoo.com/group/RT3_T3/message/35290 http://health.groups.yahoo.com/group/RT3_T3/message/32505 http://health.groups.yahoo.com/group/RT3_T3/message/34651 There are other types of iron IVs (have had a few of them, too, never had a problem). But is my understanding that Venofer is the one with the very lowest chance of side effects. The only caution I am aware of with Venofer is if the patient has low blood pressure. I used to have very low blood pressure; I've read that Venofer's recommendation for this is to run the IV a lot slower. My IVs take about ½ hour now; back when I had low blood pressure they slowed the rate of infusion and it took over an hour to get the same dose. Same good end result, just a little longer time sitting in the IV room. www.venofer.com > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I had 5 iron infusions in a period of 5 weeks,no problem at all.It was a venofer and is important to have them run slowly and not bigger ampount then 200mg.I'm saying that because my doctor ,who was a hematologyst explained that to me. Usualy you can have an issue if it's a big amount and run very quickly but if it's doen right no problem. I had ferritin 13 and went up to 200. If I haven't done it I wouldn't be able to switch to T3 only. I could not tolerate more then 2.5 mcg T3 and now I'm on 55mcg. Milena > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > Peggy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Hi Kim, I just got an IV on Mon. too. You say you're on a low dose of cytomel... just curious, how much are you on? Im still stuck at 20mcg. I get hyper symptoms if I try to go higher so I guess Im not ready yet. Thanks in advance for the info. Lore > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > Peggy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I did five rounds of iron sucrose and had no problems except for pesky constipation for a couple of days after. but, all i have to do is look at iron and i get constipated!! (and tend toward that, anyway.) it helped raise my ferritin from 6 to 189, which is much higher than i needed/wanted. so i didn't need so much. btw, i had zero change in symptoms that i could tell. some people feel miraculously better afterward. watch out though, my ferritin has dropped again! good luck! ~carol > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Hi Lore I've been able to get to 43.75 and have been doing well until about a week ago. Then I realized I might be having high cortisol symptom and have stopped raising T3 while I get temps stable on a lower dose of HC. Also, got an aldosterone test back and will be starting florinef soon too. So, although I didn't run into trouble with the T3 raises, I did run into trouble! Bummer. Are your hyper symptoms high heart rate and high temps? Cuz I have read if it is just high heart rate without the temp increase it could be low sodium. Is it just the one IV you have had so far? Maybe your ferritin is not quite high enough yet? We will get it all figured out ) Kim > > > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > > > Peggy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2010 Report Share Posted March 5, 2010 Hi Kim and thanks for answering my question. When I get hyper symptoms the heart rate goes up and the temps too, but I also get insomnia and I feel really anxious inside. I think I just haven't gotten the ferritin up enough with the one IV. I will be testing next week and then according to that test, get another IV. Meanwhile I supplement with 200mg elemental ferrous sulfate. How much do you take in between IVs? Do you know if one can just stick to IVs for ferritin maintenance once a good level is reached, instead of ingesting pills every day?Thank you Kim. Im so grateful for this website in order to help one another get well =) > > > > > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > > > > > Peggy > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2010 Report Share Posted March 5, 2010 Hi Lore Val suggested I take 50mg per day right now so that's what I'm doing. She said when I get my T3 higher I probably won't need that much if things work they way they should! I also get fairly heavy periods (not every month anymore) so I want to keep the ferritin up (hopefully heavy periods will resolve with more T3 too). I'm getting another ferritin test next week to see if I am holding on to it very well. I think I read about someone else getting IVs a few times a year for maintenance. It would be good if a person cannot handle taking the supplements but otherwise I would think supplementing would be easier (especially if you take thyroid meds sublingually). I take the Blue Bonnet iron that is recommended and have no troubles taking it even before the IVs when I was taking 168mg. Or maybe a combination would be good - if a person were to take a lower amount orally and keep on top of the ferritin level with tests and get the IV when/if it gets down into the too-low area. I'm so happy to have found this group too. Literally a life altering discovery! > > > > > > > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > > > > > > > Peggy > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2010 Report Share Posted March 5, 2010 Hi Lore Val suggested I take 50mg per day right now so that's what I'm doing. She said when I get my T3 higher I probably won't need that much if things work they way they should! I also get fairly heavy periods (not every month anymore) so I want to keep the ferritin up (hopefully heavy periods will resolve with more T3 too). I'm getting another ferritin test next week to see if I am holding on to it very well. I think I read about someone else getting IVs a few times a year for maintenance. It would be good if a person cannot handle taking the supplements but otherwise I would think supplementing would be easier (especially if you take thyroid meds sublingually). I take the Blue Bonnet iron that is recommended and have no troubles taking it even before the IVs when I was taking 168mg. Or maybe a combination would be good - if a person were to take a lower amount orally and keep on top of the ferritin level with tests and get the IV when/if it gets down into the too-low area. I'm so happy to have found this group too. Literally a life altering discovery! > > > > > > > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > > > > > > > Peggy > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2010 Report Share Posted March 5, 2010 Hi Lore: I know someone who gets 4 Venofers a year and maintains her ferrritin just fine that way. I don't know if she can't absorb oral iron or can not tolerate it for some reason; just that it doesn't do the job but the IVs do. > > > > > > > > > > > > I just spoke with my doctor about raising my ferritin levels more quickly via iron IV's. A month ago my ferritin was 15 and now it's 25, so oral iron is working very slowly. He was okay with the IV idea, but said he sent patients to the outpatient infusion center at the hospital for that as some people have allergic reactions. Does anyone have experience with iron IV's--he left it up to me, so I need to decide what to do, and want to be informed about any risks before choosing to have IV's. Thanks. > > > > > > > > > > > > Peggy > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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