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Georgina,

Thank you so much for the information on Rheumatoid nodules. This helps

me to understand it a little more. Hopefully she won't get more and this

one will go away soon. It's really odd because it's not on a joint, it's

more on the side of her leg. After reading this I now know that they can

pop up just about anywhere. Thanks again.

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  • 2 years later...

Yes Marilyn; this is Melt and I had them all along the palms of both

hands right off in the early years. Since then I have a couple more

on one foot. The large toe and the top of the foot. When they were

building up they were very painful but not any longer unless

traumatised as said. The ones on the tendons of my hands are

not near as feelable as they used to be. Thanks for all your typing

info for us today, very interesting. Smiles, Melt

> they said yes it was a nodule and due to the severity of your

flaring, these

> nodules will develop. Does anyone else suffer from these things?

>

> Marilyn

>

> _________________________________________________________________

> Surf the Web without missing calls! Get MSN Broadband.

> http://resourcecenter.msn.com/access/plans/freeactivation.asp

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Yes Marilyn; this is Melt and I had them all along the palms of both

hands right off in the early years. Since then I have a couple more

on one foot. The large toe and the top of the foot. When they were

building up they were very painful but not any longer unless

traumatised as said. The ones on the tendons of my hands are

not near as feelable as they used to be. Thanks for all your typing

info for us today, very interesting. Smiles, Melt

> they said yes it was a nodule and due to the severity of your

flaring, these

> nodules will develop. Does anyone else suffer from these things?

>

> Marilyn

>

> _________________________________________________________________

> Surf the Web without missing calls! Get MSN Broadband.

> http://resourcecenter.msn.com/access/plans/freeactivation.asp

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  • 1 year later...

Tawny, I have never had this experience, just wish some of mine would pop open

instead of getting them surgically removed. Is it sore,and when it opened was

their something that come out/

Hugs

June

----- Original Message -----

From: Tawny

I have a nodule on my knuckle, it's been there for awhile with no

problems. Yesterday it busted open, is that normal?

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Hi June, Nothing has came out, it's just really painful. I'm trying

to remember if I bumped into something, but I don't think I did.

> Tawny, I have never had this experience, just wish some of mine

would pop open instead of getting them surgically removed. Is it

sore,and when it opened was their something that come out/

>

> Hugs

> June

> ----- Original Message -----

> From: Tawny

>

>

> I have a nodule on my knuckle, it's been there for awhile with no

> problems. Yesterday it busted open, is that normal?

>

>

>

>

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  • 4 months later...

thanks Janet........Holly is 11 too.........has had arthritis for 10

years........she is presenting whatever this is now for 5-8 weeks depending on

the

symptom...........I am way to cranky right now, must be tired.........thanks

for your input!!

luv and hugs,

Aj

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I'm so sorry to hear Holly is so sick. Poor kid, I am hoping that they can

figure out whatever it is that is making her so sick and they can fix it

ASAP. You have a right to be cranky and you have a right to vent... if you

need

to I'm here to listen..

Lots of Love and Hugs

Poly JRA and Spondy, 20

_www.caringbridge.org/ca/lisaspage_

(http://www.caringbridge.org/ca/lisaspage)

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-DEAR AJ

HI I HAVE NEVER MET YOU, AS IM NEW TO THIS LIST, HOWEVER I HAVE

BATTLED AN AUTO IMMUNE DISEASE (DERMATOMYOSITIS/CHRONIC ARTHRITIS)

MOST OF MY LIFE AND NOW MY 11 YEAR IS NOT WELL AND OF COURSE NO

ANSWERS YET. YOUR FRUSTRATION IS HEARD AND WELL UNDERSTOOD, MY HEART

REALLY GOES OUT TO YOU....AND VENT AWAY AS IM SURE ANYONE HERE WOULD

TOTALLY UNDERSTAND, AS FOR THE NODULES, I DO GET THEM, MINE ARE A

LUMP UNDER THE SKIN AND GENERALLY THEY ARE NOT PAINFULL FOR ME, I

HAVE A COUPLE NEAR MY ELBOW AT THIS POINT AND MAY BE A LITTLE

UNCOMFORTABLE IF IM LEANING ON THE ELBOW BUT THAT IS ABOUT ALL I CAN

TELL YOU, IT IS NORMAL WITH MANY ARTHRITIS'S TO HAVE THEM. I WISH

ONLY BETTER DAYS FOR YOU AND YOUR LITTLE ONE. HANG IN THERE AJ

HUGS

JANET AKA MOMAOF340

-- In , ajaomom@a... wrote:

> Hi its me Aj, cranky me, I am so darn tired of my kiddo being

sick, sick

> with whatever this thing is, anyway my reason for post, other then

to not vent

> my vent that would never end, cause I am very cranky!!! is to ask

if any of

> you have a child that has a nodule, on a finger joint, and how

would you

> describe them when your first noticed them?? Thanks for any

thoughts on

> this.........Holly went to sleep crying tonight, and is having

more blood work done

> on Wednesday to see if we/they can figure out what is going on

with my little

> hollyberry

>

> luv and hugs,

> Aj

>

>

>

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I had nodules early on in my illness (about 25 years ago), but they went away

once we got the RA under control. When MTX stopped working for me a few years

ago, I got new nodules on my left hand. My RA is now under control with Enbrel

and they have all disappeared.

n

[ ] nodules

Has anyone developed RA nodules and later had them shrink or go

away? I see new ones developing on my feet and fingers and hope they

don't get the size of two of my first ones near my elbows. I take

methotrexate injections, folic acid, and salsalate now. Would a

change of meds make a difference? BettyMO

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AJ -

I am sorry to hear Holly is still struggling so. It's just got to be so hard

for the both of you, especially with no answers in sight right now. Please

know that we are praying and thinking of you guys and hope that this week

will bring relief and some joy! Hang in there!

Alia and Caroline, age 3, poly and uveitis

nodules

Hi its me Aj, cranky me, I am so darn tired of my kiddo being sick, sick

with whatever this thing is, anyway my reason for post, other then to not

vent

my vent that would never end, cause I am very cranky!!! is to ask if any of

you have a child that has a nodule, on a finger joint, and how would you

describe them when your first noticed them?? Thanks for any thoughts on

this.........Holly went to sleep crying tonight, and is having more blood

work done

on Wednesday to see if we/they can figure out what is going on with my

little

hollyberry

luv and hugs,

Aj

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Betty, sometimes MTX can be responsible for new nodules. There is a

phenomenon termed " methotrexate nodulosis. "

There have been several stories here in the group about regression of the

nodules (either from the RA itself or from RA + MTX) with the right

treatment.

This is something you should discuss with your physician.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] nodules

>

>

>

> Has anyone developed RA nodules and later had them shrink or go

> away? I see new ones developing on my feet and fingers and hope they

> don't get the size of two of my first ones near my elbows. I take

> methotrexate injections, folic acid, and salsalate now. Would a

> change of meds make a difference? BettyMO

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-AJ..

im sorry I have no answers, but I did want to acknowledge your post

and let you know that I am thinking of you and Holly and I hope you

get some answers soon.

I hope today is a better day for you....did you get some good rest

last night????

Im sending a smile to cheer you up :o))))

hugs Helen and (7 systemic)

-- In , ajaomom@a... wrote:

> Hi its me Aj, cranky me, I am so darn tired of my kiddo being

sick, sick

> with whatever this thing is, anyway my reason for post, other then

to not vent

> my vent that would never end, cause I am very cranky!!! is to ask

if any of

> you have a child that has a nodule, on a finger joint, and how

would you

> describe them when your first noticed them?? Thanks for any

thoughts on

> this.........Holly went to sleep crying tonight, and is having

more blood work done

> on Wednesday to see if we/they can figure out what is going on

with my little

> hollyberry

>

> luv and hugs,

> Aj

>

>

>

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Hello AJ!

My daughter gets nodules in her elbows and back of her feet. She also gets them

in her thumb, where the joing is. She tells me that they don't hurt. To me

they feel like pepples under her skin. The dr says not to worry about them, but

I do anyways. I really hope Holly gets feeling better!

Summer- Gabi 7 poly

ajaomom@... wrote:

Hi its me Aj, cranky me, I am so darn tired of my kiddo being sick, sick

with whatever this thing is, anyway my reason for post, other then to not vent

my vent that would never end, cause I am very cranky!!! is to ask if any of

you have a child that has a nodule, on a finger joint, and how would you

describe them when your first noticed them?? Thanks for any thoughts on

this.........Holly went to sleep crying tonight, and is having more blood work

done

on Wednesday to see if we/they can figure out what is going on with my little

hollyberry

luv and hugs,

Aj

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Betty, I had nodules on my elbows, but they disappeared sometime after

I started Enbrel.

Just recently I've noticed a possible nodule on the middle knuckle of

my right index finger. It looks like a callous, but I haven't done

anything to cause a callous there. It doesn't feel hard and bony like

the ones on my elbows did. I think I've read that methotrexate can

sometimes cause nodules. You should discuss it with your rheumy.

Sue

On Tuesday, February 1, 2005, at 02:03 AM, shediditagen wrote:

>

> Has anyone developed RA nodules and later had them shrink or go

> away? I see new ones developing on my feet and fingers and hope they

> don't get the size of two of my first ones near my elbows. I take

> methotrexate injections, folic acid, and salsalate now. Would a

> change of meds make a difference? BettyMO

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I agree with Sue- you should discuss with your doc. My nodules- elbows too- went

away with Remicade.

-------------- Original message ----------------------

From: Sue <marysue@...>

>

> Betty, I had nodules on my elbows, but they disappeared sometime after

> I started Enbrel.

>

> Just recently I've noticed a possible nodule on the middle knuckle of

> my right index finger. It looks like a callous, but I haven't done

> anything to cause a callous there. It doesn't feel hard and bony like

> the ones on my elbows did. I think I've read that methotrexate can

> sometimes cause nodules. You should discuss it with your rheumy.

> Sue

>

> On Tuesday, February 1, 2005, at 02:03 AM, shediditagen wrote:

> >

> > Has anyone developed RA nodules and later had them shrink or go

> > away? I see new ones developing on my feet and fingers and hope they

> > don't get the size of two of my first ones near my elbows. I take

> > methotrexate injections, folic acid, and salsalate now. Would a

> > change of meds make a difference? BettyMO

>

>

>

>

>

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I have had nodules disappear. I had some surgically removed as well.

a

On Tue, 01 Feb 2005 07:03:04 -0000, shediditagen <shediditagen@...> wrote:

>

>

> Has anyone developed RA nodules and later had them shrink or go

> away? I see new ones developing on my feet and fingers and hope they

> don't get the size of two of my first ones near my elbows. I take

> methotrexate injections, folic acid, and salsalate now. Would a

> change of meds make a difference? BettyMO

>

>

>

>

>

>

>

>

>

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I also have had nodules disappear on my arms where I would rest them

on a desk when working. The ones on hands and feet had to be removed

surgically and have been removed several times and I have about 10 on

my feet right now that will eventually need to be removed. Just went

through that less than a year ago on left foot and the dr miss one on

my heel. At some point it will have to go. Right now my main concern

are my artifical joints in my hands. Really flared up. On a dose pack

of predisone and pain meds. My Remicade infusion isn't until Feb 24.

Hope it does some good this time dr uping the dose.

Janc

> >

> >

> > Has anyone developed RA nodules and later had them shrink or go

> > away? I see new ones developing on my feet and fingers and hope

they

> > don't get the size of two of my first ones near my elbows. I take

> > methotrexate injections, folic acid, and salsalate now. Would a

> > change of meds make a difference? BettyMO

> >

> >

> >

> >

> > I

> >

> >

> >

> >

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Jan C, which joints in your hands have you had replaced?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: nodules

>

>

>

> I also have had nodules disappear on my arms where I would rest them

> on a desk when working. The ones on hands and feet had to be removed

> surgically and have been removed several times and I have about 10 on

> my feet right now that will eventually need to be removed. Just went

> through that less than a year ago on left foot and the dr miss one on

> my heel. At some point it will have to go. Right now my main concern

> are my artifical joints in my hands. Really flared up. On a dose pack

> of predisone and pain meds. My Remicade infusion isn't until Feb 24.

> Hope it does some good this time dr uping the dose.

>

> Janc

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My knuckles in both hands. Right hand 7 years ago left hand almost 3

years ago. See surgeon end of the month to see why they are so inflammed.

P.S. gina still trying to figure out the way these messages work any

hints I feel like I am missing some because there are so many to read.

Is there a way of marking the messages I want to follow?

Janc

> Jan C, which joints in your hands have you had replaced?

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] Re: nodules

>

>

> >

> >

> >

> > I also have had nodules disappear on my arms where I would rest them

> > on a desk when working. The ones on hands and feet had to be removed

> > surgically and have been removed several times and I have about 10 on

> > my feet right now that will eventually need to be removed. Just went

> > through that less than a year ago on left foot and the dr miss one on

> > my heel. At some point it will have to go. Right now my main concern

> > are my artifical joints in my hands. Really flared up. On a dose pack

> > of predisone and pain meds. My Remicade infusion isn't until Feb 24.

> > Hope it does some good this time dr uping the dose.

> >

> > Janc

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-opps there are lots of knuckles huh? the big one's don't remember

what they are called duh anyway the ones in my palm not in my finges.

Janc

-- In , " " <Matsumura_Clan@m...>

wrote:

> Jan C, which joints in your hands have you had replaced?

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] Re: nodules

>

>

> >

> >

> >

> > I also have had nodules disappear on my arms where I would rest them

> > on a desk when working. The ones on hands and feet had to be removed

> > surgically and have been removed several times and I have about 10 on

> > my feet right now that will eventually need to be removed. Just went

> > through that less than a year ago on left foot and the dr miss one on

> > my heel. At some point it will have to go. Right now my main concern

> > are my artifical joints in my hands. Really flared up. On a dose pack

> > of predisone and pain meds. My Remicade infusion isn't until Feb 24.

> > Hope it does some good this time dr uping the dose.

> >

> > Janc

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I have nodules on feet hands and elbows my Rheumy gave me a med to help to

shrink them but it didn't work for me. I cant remember the name of the med tho.

Check with your Dr. I have also had them surgically removed.

Trudy

a <papola@...> wrote:

I have had nodules disappear. I had some surgically removed as well.

a

On Tue, 01 Feb 2005 07:03:04 -0000, shediditagen <shediditagen@...> wrote:

>

>

> Has anyone developed RA nodules and later had them shrink or go

> away? I see new ones developing on my feet and fingers and hope they

> don't get the size of two of my first ones near my elbows. I take

> methotrexate injections, folic acid, and salsalate now. Would a

> change of meds make a difference? BettyMO

>

>

>

>

>

>

>

>

>

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The metacarpophalangeal (MCP) joints, Jan C?

Hand University

" A Patient's Guide to Arthritis of the Finger Joints " :

http://www.handuniversity.com/topics.asp?Topic_ID=13

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: nodules

>

>

>

> -opps there are lots of knuckles huh? the big one's don't remember

> what they are called duh anyway the ones in my palm not in my finges.

> Janc

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AJ:

Can't help you there with the nodules but sending out hugs to you and

your sweet Holly...so glad I got to meet you in SD. Will you be in RI??

Tell her that her Indiana friends are rooting for her!

and Rob 15 Spondy

On Mon, 31 Jan 2005 22:34:37 EST ajaomom@... writes:

Hi its me Aj, cranky me, I am so darn tired of my kiddo being sick, sick

with whatever this thing is, anyway my reason for post, other then to not

vent

my vent that would never end, cause I am very cranky!!! is to ask if any

of

you have a child that has a nodule, on a finger joint, and how would you

describe them when your first noticed them?? Thanks for any thoughts

on

this.........Holly went to sleep crying tonight, and is having more

blood work done

on Wednesday to see if we/they can figure out what is going on with my

little

hollyberry

luv and hugs,

Aj

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You don't seem stupid, Jan C! Not at all. There are only smart and nice

people here. Nobody is required to remember all of the details (well, maybe

a and I are - but we can refer to our notes, if necessary).

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Re: nodules

>

>

> Those are the one's I kept thinking MPV but that's the

> van I drive. I really hate to appear so incrediably

> stupid but I just don't remember things like I use to.

> You'd think I wouldn't forget something like that. The

> surgery and rehab were no pinic but the results were

> good for about 7 years.

> Thanks for the link.

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