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Well, Judi, you are a unique and rare individual! Besides which, you

have a unique and rare disease. You will have to find a way to

publicize it. You are such a good writer, you could write an article

about it and send it to magazines to see if one would publish it. You

must let me share in the royalties, since I suggested the idea, LOL.

Sue

On Tuesday, May 10, 2005, at 10:57 AM, nonny46 wrote:

> And nowhere in those articles do they mention Dercum's Disease!

> (Sorry, just had to point that out.)

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In a message dated 5/25/2005 3:51:33 PM Eastern Daylight Time,

jamymad@... writes:

Does anyone have nodules on their tailbone? They told me that I do and

it keeps getting infected!

You sure it's nodules and not a pilonidal cyst? Pilonidal cysts are very

common cysts that form in the tailbone area. I had a very large one a long time

ago. It kept getting infected, bursting, then filling up again, over and over

again. Each time, it got bigger than the time before. I finally had surgery to

remove it. The surgery wasn't fun. The recovery time was long. My surgeon said

it was the biggest one he'd ever seen. The upside was that he did a great job

and it's not returned since. If that's what it is and it doesn't stay healed,

I'd see a surgeon.

Patty/NJ

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  • 1 year later...

I have a friend that put a bandaid or taped a cotton ball with apple cider

vinegar on it over a nodule 2 x a day and it shrank. Don't remember how

long it took.

Maybe drinking apple cider vinegar will also help.

On 9/26/06, mcpherson.bg@... <mcpherson.bg@...> wrote:

>

> I have what appears to be an arthritic nodule on my left thumb joint.

> It's the only such bump anywhere on me. I now recall that it's been there

> for years, very small, but it wasn't hurting and I didn't notice it much.

> Now it hurts every day, since I have been doing a lot of gardening, pulling

> weeds and such. Today, though, I didn't do much of anything with my hands

> and it is flared up. Have any of you any experience with getting these

> things to shrink or dissolve?

> (Other than this I'm very healthy and just a little overweight.)

>

> Gretchen

>

>

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look at http://www.helpmythyroid.com

http://www.optimox.com read research

Don't completely trust the doc.

are you reading at the group site on the web or do you get individual emails?

either way you click on reply. and then send.

Gracia

i have been trying to figure out how to respond to this group, so i

hopa this works...i am wondering if anyone out there has experience

with nodules, and is so, is it typical that they should always be

biopsied? the reason i am asking is that i have been hypo for 2.5

years now, after the birth of my lasy baby(i have 8 children) and have

hasimotos. before this was diagnosed my tsh got to 31 and i felt just

awful. my tsh is now steady at @ .8 and although i feel much better

than before, i still have several symptoms that have lingered. anyway,

my 1st ultrasound showed a small nodule on one side 1.0cm and my endo

assured me that with what my thyroid had been thru, this nodule was

totally a normal occurence and no need for a biopsy (she is a dr. that

came highly recommended). since then i have had this followed with 2

more ultrasounds, the last one showing that i now have " multi " nodules

on the other side and the same one at @1.3cm . my dr still says there

is no need for a biopsy. i am happy to hear her feel this was and in

no way want to get a biopsy, but i still have a nagging feeling that i

am letting something go unchecked, dispite her assurances. has anyone

here had this experience or has everyone has nodules biopsied right

away? i know everyone's situation is different, but i just need to

find out what the " norm " is . thanks for any input!

ellie

> >

>also, being a bit computer challenged, could anyone explain the

easiest way to resond to this group?

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Hi there,

I too have a multi nodular thyroid, and I have been told there is nothing anyone

is going to do about it. I was also told nodules can develop with age. I find

the explanation/response unsatisfactory. What is not explained is, whether this

is thyroid tissue that has changed into nodules, or are they growths that

develop on it? My guess is if its either, then I have less 'normal' thyroid

tissue available to do its job. As I can not perform a biopsy on my self, I feel

that by the time there are more nodules than thyroid tissue, but no one has

bothered to check again, years of being on medication will not find me

collapsing from the lack of the hormone thyroxin circulating in my body to keep

me alive and my organs working. If my thyroid 'dies', well it can stay there in

my throat till I die (except if it turns cancerous) as long as I can take

medication to compensate for the lack of it. I am a pessimistic cynic when it

comes to the medics, so sorry if I have depressed anyone. But having a sense of

humour does help, after hearing some of the pseudo scientific responses many of

us have endured on this board from so called experts, believe me!!!

As for responding to the group I don't know what you mean, because clearly I

have read your post and have responded, so keep doing what you did!!!!

God Bless and Good Health,

Val

nodules

i have been trying to figure out how to respond to this group, so i

hopa this works...i am wondering if anyone out there has experience

with nodules, and is so, is it typical that they should always be

biopsied? the reason i am asking is that i have been hypo for 2.5

years now, after the birth of my lasy baby(i have 8 children) and have

hasimotos. before this was diagnosed my tsh got to 31 and i felt just

awful. my tsh is now steady at @ .8 and although i feel much better

than before, i still have several symptoms that have lingered. anyway,

my 1st ultrasound showed a small nodule on one side 1.0cm and my endo

assured me that with what my thyroid had been thru, this nodule was

totally a normal occurence and no need for a biopsy (she is a dr. that

came highly recommended). since then i have had this followed with 2

more ultrasounds, the last one showing that i now have " multi " nodules

on the other side and the same one at @1.3cm . my dr still says there

is no need for a biopsy. i am happy to hear her feel this was and in

no way want to get a biopsy, but i still have a nagging feeling that i

am letting something go unchecked, dispite her assurances. has anyone

here had this experience or has everyone has nodules biopsied right

away? i know everyone's situation is different, but i just need to

find out what the " norm " is . thanks for any input!

ellie

> >

>also, being a bit computer challenged, could anyone explain the

easiest way to resond to this group?

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Ellie,

You wrote:

>

>

> i have been trying to figure out how to respond to this group, ...

You got through just fine. Most email clients have a button labeled

REPLY. If you select (or are reading) an email and click REPLY, you

should see a draft message already addressed to the sender of that

message with the old message highlighted or set off with a greater than:

>. Most readers like to see at least a snippet of the previous message

that you are responding to but not twelve previous exchanges.

Consequently, you should edit the old material down to just what you are

responding to. The level of older exchanges (if necessary) will be shown

by multiple greater thans: > first time quote, >> quote of a quote, >>>

he said something about what I said about what she said first: >>>>.

> ... my dr still says there

> is no need for a biopsy. i am happy to hear her feel this was and in

> no way want to get a biopsy, but i still have a nagging feeling that i

> am letting something go unchecked, ...

You didn't mention your age, which is an important issue for the

doctor's decision. A young person with the same thyroid issues is

unlikely to have malignant nodules. Thus, keeping an eye on their growth

and spread should be sufficient. If you were much older (a relative

term), she might be more inclined to a biopsy, just to be on the safe side.

Another problem is that a biopsy may not catch a true malignancy anyway.

Then you would have gone through a painful procedure for a false

reassurance. Continued careful monitoring would actually be a better

precaution than a procedure that could easily produce a false negative.

Alternatively, extra thyroid medication can suppress the nodules. Some

doctors still do that. If your nodule responds to the medication, it is

almost certainly not malignant.

Chuck

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I had biopsies and the ones i had were taken from the nodes that had the most

fluid in them and there was no cancer. All though when the total thyroid was

taken out cancer was found within the thyroid it self. I dont understand it my

self since all the scans and testings i have gone through didnt pick that up and

am still going through. I know this doesnt answer anyones questions its just a

thought and my experience. i am still waiting for my blood level to get to the

level where i can get the radation treatment. needless to say i feel terrible

and have trouble expressing my feelings on my behalf. lol Except my heart

sounds and jitters wont let me sleep i feel nausous all the time although i

still EAT what is probably not a good idea. i have big pressure inside my

ears. of course i still having lots of body pain as before the surgury and head

pain. also i was originally diagnosed with hyperthroidism. am still having the

a fib and is very scary... trying to hold on till the stupid numbers get

right... I am sure there is more its is just a sense of UN-WELL being. thanks

for listening.. susan in michigan

Re: nodules

Ellie,

You wrote:

>

>

> i have been trying to figure out how to respond to this group, ...

You got through just fine. Most email clients have a button labeled

REPLY. If you select (or are reading) an email and click REPLY, you

should see a draft message already addressed to the sender of that

message with the old message highlighted or set off with a greater than:

>. Most readers like to see at least a snippet of the previous message

that you are responding to but not twelve previous exchanges.

Consequently, you should edit the old material down to just what you are

responding to. The level of older exchanges (if necessary) will be shown

by multiple greater thans: > first time quote, >> quote of a quote, >>>

he said something about what I said about what she said first: >>>>.

> ... my dr still says there

> is no need for a biopsy. i am happy to hear her feel this was and in

> no way want to get a biopsy, but i still have a nagging feeling that i

> am letting something go unchecked, ...

You didn't mention your age, which is an important issue for the

doctor's decision. A young person with the same thyroid issues is

unlikely to have malignant nodules. Thus, keeping an eye on their growth

and spread should be sufficient. If you were much older (a relative

term), she might be more inclined to a biopsy, just to be on the safe side.

Another problem is that a biopsy may not catch a true malignancy anyway.

Then you would have gone through a painful procedure for a false

reassurance. Continued careful monitoring would actually be a better

precaution than a procedure that could easily produce a false negative.

Alternatively, extra thyroid medication can suppress the nodules. Some

doctors still do that. If your nodule responds to the medication, it is

almost certainly not malignant.

Chuck

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Guest guest

There is a new test out that some of the better

hospitals can administer with their new equipment. It

shows the heart and function in 3D, with no xrays

(like a CT has). I am in Seattle, and the cost was

told to me as $400.00. I don't know what kind of

insurance you have, but if you want to know what is

going on in your heart, this is probably the best bet.

You could check with your hospitals, and find out if

you insurance covers it. Unfortunately, I don't

remember the name of the test but if you ask about a

3D heart scan with out x-rays they will probably know.

Roni

--- susan burtenshaw <burtenshaws2005@...>

wrote:

> I had biopsies and the ones i had were taken from

> the nodes that had the most fluid in them and there

> was no cancer. All though when the total thyroid

> was taken out cancer was found within the thyroid it

> self. I dont understand it my self since all the

> scans and testings i have gone through didnt pick

> that up and am still going through. I know this

> doesnt answer anyones questions its just a thought

> and my experience. i am still waiting for my blood

> level to get to the level where i can get the

> radation treatment. needless to say i feel terrible

> and have trouble expressing my feelings on my

> behalf. lol Except my heart sounds and jitters

> wont let me sleep i feel nausous all the time

> although i still EAT what is probably not a good

> idea. i have big pressure inside my ears. of

> course i still having lots of body pain as before

> the surgury and head pain. also i was originally

> diagnosed with hyperthroidism. am still having the

> a fib and is very scary... trying to hold on till

> the stupid numbers get right... I am sure there is

> more its is just a sense of UN-WELL being. thanks

> for listening.. susan in michigan

> Re: nodules

>

>

> Ellie,

>

> You wrote:

> >

> >

> > i have been trying to figure out how to respond

> to this group, ...

>

> You got through just fine. Most email clients have

> a button labeled

> REPLY. If you select (or are reading) an email and

> click REPLY, you

> should see a draft message already addressed to

> the sender of that

> message with the old message highlighted or set

> off with a greater than:

> >. Most readers like to see at least a snippet of

> the previous message

> that you are responding to but not twelve previous

> exchanges.

> Consequently, you should edit the old material

> down to just what you are

> responding to. The level of older exchanges (if

> necessary) will be shown

> by multiple greater thans: > first time quote, >>

> quote of a quote, >>>

> he said something about what I said about what she

> said first: >>>>.

>

> > ... my dr still says there

> > is no need for a biopsy. i am happy to hear her

> feel this was and in

> > no way want to get a biopsy, but i still have a

> nagging feeling that i

> > am letting something go unchecked, ...

>

> You didn't mention your age, which is an important

> issue for the

> doctor's decision. A young person with the same

> thyroid issues is

> unlikely to have malignant nodules. Thus, keeping

> an eye on their growth

> and spread should be sufficient. If you were much

> older (a relative

> term), she might be more inclined to a biopsy,

> just to be on the safe side.

>

> Another problem is that a biopsy may not catch a

> true malignancy anyway.

> Then you would have gone through a painful

> procedure for a false

> reassurance. Continued careful monitoring would

> actually be a better

> precaution than a procedure that could easily

> produce a false negative.

> Alternatively, extra thyroid medication can

> suppress the nodules. Some

> doctors still do that. If your nodule responds to

> the medication, it is

> almost certainly not malignant.

>

> Chuck

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Happy feelings,

Roni

________________________________________________________________________________\

____

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Guest guest

It's called Electron Beam Tomography (or EBT). I sure wish they had it

available around here. I'd like to get a heart and lung scan done. Maybe they

will have it around here soon.

Have a great day!

Polly

Re: nodules

>

>

> Ellie,

>

> You wrote:

> >

> >

> > i have been trying to figure out how to respond

> to this group, ...

>

> You got through just fine. Most email clients have

> a button labeled

> REPLY. If you select (or are reading) an email and

> click REPLY, you

> should see a draft message already addressed to

> the sender of that

> message with the old message highlighted or set

> off with a greater than:

> >. Most readers like to see at least a snippet of

> the previous message

> that you are responding to but not twelve previous

> exchanges.

> Consequently, you should edit the old material

> down to just what you are

> responding to. The level of older exchanges (if

> necessary) will be shown

> by multiple greater thans: > first time quote, >>

> quote of a quote, >>>

> he said something about what I said about what she

> said first: >>>>.

>

> > ... my dr still says there

> > is no need for a biopsy. i am happy to hear her

> feel this was and in

> > no way want to get a biopsy, but i still have a

> nagging feeling that i

> > am letting something go unchecked, ...

>

> You didn't mention your age, which is an important

> issue for the

> doctor's decision. A young person with the same

> thyroid issues is

> unlikely to have malignant nodules. Thus, keeping

> an eye on their growth

> and spread should be sufficient. If you were much

> older (a relative

> term), she might be more inclined to a biopsy,

> just to be on the safe side.

>

> Another problem is that a biopsy may not catch a

> true malignancy anyway.

> Then you would have gone through a painful

> procedure for a false

> reassurance. Continued careful monitoring would

> actually be a better

> precaution than a procedure that could easily

> produce a false negative.

> Alternatively, extra thyroid medication can

> suppress the nodules. Some

> doctors still do that. If your nodule responds to

> the medication, it is

> almost certainly not malignant.

>

> Chuck

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Happy feelings,

Roni

__________________________________________________________

Bored stiff? Loosen up...

Download and play hundreds of games for free on Games.

http://games./games/front

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  • 4 weeks later...
Guest guest

What state are you in?

Roni

--- Polly <kearnspi@...> wrote:

> It's called Electron Beam Tomography (or EBT). I

> sure wish they had it available around here. I'd

> like to get a heart and lung scan done. Maybe they

> will have it around here soon.

>

> Have a great day!

> Polly

>

>

________________________________________________________________________________\

____

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  • 1 year later...
Guest guest

Hi and welcome

I think that Iodine might make you hyper - and you don't want that. But I'm not

a doctor.

Hopefully some others will kick in with ideas. In the meantime, search online

" thyroid and iodine " or " iodine and thyroid nodules " ...

The more you are able to learn, the better you will be able to manage your

symptoms.

Kate

nodules

Hi everyone, I am a newbie. I have 2 nodules (benign) have been

monitoring them every 6 months for 5 years. I do not take medication

as my levels are borderline.

TSH .3

Free Thyroxine 1.3

Free T3 304

Thyroglobulin 141 (it is high but they listed as normal?? don't

understand why) the range is 0-55

anty-thyro. ant <20

I don't have any hyper symptoms. I actually have a very hard time

losing weight and feel tired all the time. but my endo thinks I will

become hyper.

Has anyone had any success in shrinking the nodules with alternative

medicine? I hear Iodine might help... any feedback please???

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  • 10 months later...
Guest guest

I also have nodules on both sides of the body at the same time.I also have

disfigurement also.Went to a rheumatologist, had lab's,turned out negative.All

symptoms of RA, no find.They say i have Osteoarthritis and they are afraid it

will turn into RA.They put me on Naproxen prescription strength,too strong for

my stomach couldnt take it.Now on Mobic,Dont know if it will work or not.Good

Luck.

From: julie.king@... <julie.king@...>

Subject: rheumatic nodules

rheumatic

Date: Friday, May 29, 2009, 10:02 PM

Hi Everyone,

I have not yet been officially diagnosed with RA because my lab results are

negative, but everything seems to point in that direction.

I have read about swelling and nodules being symmetrical and occurring on both

sides of the body. Is that always true?

I have one nodule that just appeared on one elbow and wrist of the same hand.

Nothing on the other arm although I guess in time it could appear.

I am going to see a new doctor on Tuesday who successfully treats with

antibiotics. I am only four months into the symptoms, and I am hoping I can get

all of this resolved soon.

Has anyone heard of using MSM or Limu Plus? I am thinking about trying these.

Thanks,

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  • 1 year later...
Guest guest

?When I was going through therapy back in 1989-91, there were no support groups

and I found Dr. Brown's book an invaluable source of information. I read that

book over and over again and suggest you might want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the nodule,

which appears at the joints as the first external evidence of arthritic

disfigurement. Because this is so widely recognized for what it represents,

some victims of the disease are actually relieved when the first rheumatoid

nodule appears; now, at last, the patient has something tangible to take to the

doctor. Nodules usually arise at the site of some injury, such as a sprain or

bump, and although it is possible to have one or two without necessarily having

arthritis, it is likely that all such nodules are the result of disease activity

at the site.

Nodules are unlike malignant lesions that keep on spreading, however, and they

can come and go. Sometimes a patient will detect one on an elbow or wrist and

make an appointment with the doctor, only to discover that the nodule has

receded and perhaps even disappeared by the time the appointment is kept. Or it

can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas are

located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming

out for some reason, either because the body's defense puts it down for a while

or a medicine suppresses it, then the scar tissue surrounding the germ is no

longer needed and the nodule goes away. The process by which this occurs is one

of natural attrition; cells are periodically replaced, and if the cause for

defense is no longer there, the body will remove the old cells without sending

in new ones.

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Thank you Ethel,

I had nodules up and down my arms a year before I really was hit with RA and

even going to the doctor she thought it was some kind of allergic reaction and

gave me a cortisone cream. My nodules are finally going down so the AP is

working but it has taken 7 years to go down.

Eva

From: Ethel Snooks <emsnooks@...>

Subject: rheumatic Nodules

rheumatic

Date: Friday, March 18, 2011, 8:42 AM

 

?When I was going through therapy back in 1989-91, there were no support

groups and I found Dr. Brown's book an invaluable source of information. I read

that book over and over again and suggest you might want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the nodule,

which appears at the joints as the first external evidence of arthritic

disfigurement. Because this is so widely recognized for what it represents,

some victims of the disease are actually relieved when the first rheumatoid

nodule appears; now, at last, the patient has something tangible to take to the

doctor. Nodules usually arise at the site of some injury, such as a sprain or

bump, and although it is possible to have one or two without necessarily having

arthritis, it is likely that all such nodules are the result of disease activity

at the site.

Nodules are unlike malignant lesions that keep on spreading, however, and they

can come and go. Sometimes a patient will detect one on an elbow or wrist and

make an appointment with the doctor, only to discover that the nodule has

receded and perhaps even disappeared by the time the appointment is kept. Or it

can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas are

located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming

out for some reason, either because the body's defense puts it down for a while

or a medicine suppresses it, then the scar tissue surrounding the germ is no

longer needed and the nodule goes away. The process by which this occurs is one

of natural attrition; cells are periodically replaced, and if the cause for

defense is no longer there, the body will remove the old cells without sending

in new ones.

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Hi Ethel,  This is Dolores I was diagnosed with Scleroderma, R/A & MCTD which

is a catchall phrase which says I have co-infections of the the immune

disease.  I never got any nodules, but had most of the symptoms of

Scleroderma.  The R/A & MCTD was diagnosed by Dr. Whitman.  The scleroderma

was diagnosed by Dr. Trentham and when I asked what kind, he said CREST. Well I

had everythng but the sclerodactyly.  <y fingers got the sausage look , but

never got deformed.  They started to curl so that when I put my finger together

the hands made a huge zero.  But never went further than that.  They are

totally straight right now and I lost the sausage look years ago.  I read

somewhere that it was called Scleroderma sine Sclerodactyly.  When we worked

for the Scleroderma Foundation, many of the people had lost the use of their

hands and one lady in particular had to have her fingers amputated.  I preached

and preached A/P but the foundation is against

it and no one in the support group went on it.  Needless to say, they were all

getting worse.  I am still on their mailing list and can't wait till I go back

to NYC to show them how well I did on A/P.  They all had their loyalty  to

their doctors who were feeding them prednisone and all the toxic chemicals. 

They are funded by a drug company called Actelion. Thanks  Take

care~~~~Dolores & Mike 

From: Ethel Snooks <emsnooks@...>

Subject: rheumatic Nodules

rheumatic

Date: Friday, March 18, 2011, 9:42 AM

 

?When I was going through therapy back in 1989-91, there were no support groups

and I found Dr. Brown's book an invaluable source of information. I read that

book over and over again and suggest you might want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the nodule,

which appears at the joints as the first external evidence of arthritic

disfigurement. Because this is so widely recognized for what it represents, some

victims of the disease are actually relieved when the first rheumatoid nodule

appears; now, at last, the patient has something tangible to take to the doctor.

Nodules usually arise at the site of some injury, such as a sprain or bump, and

although it is possible to have one or two without necessarily having arthritis,

it is likely that all such nodules are the result of disease activity at the

site.

Nodules are unlike malignant lesions that keep on spreading, however, and they

can come and go. Sometimes a patient will detect one on an elbow or wrist and

make an appointment with the doctor, only to discover that the nodule has

receded and perhaps even disappeared by the time the appointment is kept. Or it

can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas are

located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming out

for some reason, either because the body's defense puts it down for a while or a

medicine suppresses it, then the scar tissue surrounding the germ is no longer

needed and the nodule goes away. The process by which this occurs is one of

natural attrition; cells are periodically replaced, and if the cause for defense

is no longer there, the body will remove the old cells without sending in new

ones.

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thants Ethel...need to get my book out again! sally

rheumatic Nodules

?When I was going through therapy back in 1989-91, there were no support groups

and I found Dr. Brown's book an invaluable source of information. I read that

book over and over again and suggest you might want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the nodule,

which appears at the joints as the first external evidence of arthritic

disfigurement. Because this is so widely recognized for what it represents, some

victims of the disease are actually relieved when the first rheumatoid nodule

appears; now, at last, the patient has something tangible to take to the doctor.

Nodules usually arise at the site of some injury, such as a sprain or bump, and

although it is possible to have one or two without necessarily having arthritis,

it is likely that all such nodules are the result of disease activity at the

site.

Nodules are unlike malignant lesions that keep on spreading, however, and they

can come and go. Sometimes a patient will detect one on an elbow or wrist and

make an appointment with the doctor, only to discover that the nodule has

receded and perhaps even disappeared by the time the appointment is kept. Or it

can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas are

located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming out

for some reason, either because the body's defense puts it down for a while or a

medicine suppresses it, then the scar tissue surrounding the germ is no longer

needed and the nodule goes away. The process by which this occurs is one of

natural attrition; cells are periodically replaced, and if the cause for defense

is no longer there, the body will remove the old cells without sending in new

ones.

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Eva, I developed a 2 inch long nodule on the left arm just below the elbow,

and a small one on each ear AFTER starting the therapy. They disappeared as

therapy progressed.

Ethel

----- Original Message -----

From: " Eva Holloway " <holloway-eva@...>

Sent: Friday, March 18, 2011 10:47 AM

Thank you Ethel,

I had nodules up and down my arms a year before I really was hit with RA ---

?When I was going through therapy back in 1989-91, there were no

support groups and I found Dr. Brown's book an invaluable source of

information. I read that book over and over again and suggest you might

want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the

nodule, which appears at the joints as the first external evidence of

arthritic disfigurement. Because this is so widely recognized for what it

represents, some victims of the disease are actually relieved when the first

rheumatoid nodule appears; now, at last, the patient has something tangible

to take to the doctor. Nodules usually arise at the site of some injury,

such as a sprain or bump, and although it is possible to have one or two

without necessarily having arthritis, it is likely that all such nodules are

the result of disease activity at the site.

Nodules are unlike malignant lesions that keep on spreading, however, and

they can come and go. Sometimes a patient will detect one on an elbow or

wrist and make an appointment with the doctor, only to discover that the

nodule has receded and perhaps even disappeared by the time the appointment

is kept. Or it can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas

are located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops

coming out for some reason, either because the body's defense puts it down

for a while or a medicine suppresses it, then the scar tissue surrounding

the germ is no longer needed and the nodule goes away. The process by which

this occurs is one of natural attrition; cells are periodically replaced,

and if the cause for defense is no longer there, the body will remove the

old cells without sending in new ones.

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Me too Ethel. I used to read that book every nite. I gave it to a friend and

never got it back. I guess I will have to buy a new one and start to read

again.

Thanks for your insight.

Many hugs

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Ethel Snooks

?When I was going through therapy back in 1989-91, there were no support

groups and I found Dr. Brown's book an invaluable source of information. I

read that book over and over again and suggest you might want to do the

same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the

nodule, which appears at the joints as the first external evidence of

arthritic disfigurement. Because this is so widely recognized for what it

represents, some victims of the disease are actually relieved when the first

rheumatoid nodule appears; now, at last, the patient has something tangible

to take to the doctor. Nodules usually arise at the site of some injury,

such as a sprain or bump, and although it is possible to have one or two

without necessarily having arthritis, it is likely that all such nodules are

the result of disease activity at the site.

Nodules are unlike malignant lesions that keep on spreading, however, and

they can come and go. Sometimes a patient will detect one on an elbow or

wrist and make an appointment with the doctor, only to discover that the

nodule has receded and perhaps even disappeared by the time the appointment

is kept. Or it can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas

are located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming

out for some reason, either because the body's defense puts it down for a

while or a medicine suppresses it, then the scar tissue surrounding the germ

is no longer needed and the nodule goes away. The process by which this

occurs is one of natural attrition; cells are periodically replaced, and if

the cause for defense is no longer there, the body will remove the old cells

without sending in new ones.

[

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Hi all,  From what I understand, " The Road Back " by Dr. Brown is out of print,

but if you purchase " The New Arthritis Breakthrough " . the " Road Back " book is

added in there.  You can find it somewhere in the center.  I didn't know that

either when I ordered my Road Back copy.  I bought it used from Amazon.com and

also ordered, " The New Arthritis Breakthrough " and found, " The Road Back " was

incorporated in with the " New Arthritis Breakthrough, "  book.  So, by

ordering " The New Arthritis Breakthrough by Henry Scammell, you get two books

for the price of one.  Hope this helps.  Take care, Dolores  

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic Nodules

rheumatic

Date: Friday, March 18, 2011, 1:32 PM

 

thants Ethel...need to get my book out again! sally

rheumatic Nodules

?When I was going through therapy back in 1989-91, there were no support groups

and I found Dr. Brown's book an invaluable source of information. I read that

book over and over again and suggest you might want to do the same.

Ethel

From " The Road Back " by McPherson Brown, M.D. & Henry Scammell

NODULES; THE CLASSIC HARBINGER

The most pronounced and classic symptom of rheumatoid arthritis is the nodule,

which appears at the joints as the first external evidence of arthritic

disfigurement. Because this is so widely recognized for what it represents, some

victims of the disease are actually relieved when the first rheumatoid nodule

appears; now, at last, the patient has something tangible to take to the doctor.

Nodules usually arise at the site of some injury, such as a sprain or bump, and

although it is possible to have one or two without necessarily having arthritis,

it is likely that all such nodules are the result of disease activity at the

site.

Nodules are unlike malignant lesions that keep on spreading, however, and they

can come and go. Sometimes a patient will detect one on an elbow or wrist and

make an appointment with the doctor, only to discover that the nodule has

receded and perhaps even disappeared by the time the appointment is kept. Or it

can vanish in one place and reappear later in another.

The most likely explanation for these nodules is that they contain fibrous

tissue that forms in a skein around the small lesions where the mycoplasmas are

located. The tissue is a protective response by the body to contain the

infection and keep it from spreading. If the mycoplasma antigen stops coming out

for some reason, either because the body's defense puts it down for a while or a

medicine suppresses it, then the scar tissue surrounding the germ is no longer

needed and the nodule goes away. The process by which this occurs is one of

natural attrition; cells are periodically replaced, and if the cause for defense

is no longer there, the body will remove the old cells without sending in new

ones.

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