Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Hi Leah, You are not alone in your feelings. I HATE the way the helmet looks, have been very cautious with taking my son out in it and to be honest, I take him OUT of it when we have a special occasion such as a wedding, b-day party, family event, etc. With all of that said though, my son has been in his helmet since Jan 11, and the change in his head is AMAZING!! I mean I didn't think it looked that bad when we started, but now I see such a big difference, I'm SO excited that we decided to band. You asked for positives, Not only is this changing my sons head shape to be more " normal " but it has it's perks. He is now almost 8 months old and I can't tell you how many times he's thrown a fit while holding him and swung his head back and WACKED it against a wall or door, but in the helmet there is no pain when he does that. Or now that he's crawling, the falls have been pain free so far. The only negatives I've experienced so far beside the normal stinkiness, is that people stare (which really chaps my hide), and I miss my forehead a LOT. But I just try to kiss it and cuddle it as much as I can when we take the helmet off. I also feel the guilt of thinking I did this to him, but you have to move past that into the thankful stage that there is a way to fix it! And thank you're lucky stars that it isn't something more serious, because as a first time mom myself I never realized how lucky I am to have such a healthy baby, it makes this seem like a walk in the park. It's just like braces....you would fix your childs teeth right? This is sort of along the same lines. Good luck! Mom to , almost 8 mmths, Starbanded 1/11/07, plagio > > I am a new member and am just reading all the messages. I hate > to be the sourpuss, but I am not near as positive as you all are! My > daughter is almost 6 months and was diagnosed with brachycephalic. > We > are going to the neurosurgeon on Thursday to see what he thinks. My > overwhelming feeling right now is GUILT! As a first time mom, I did > not know how important it was to rotate sleeping positions!!!! My > doctor did notice the back of her head becoming flat at her 2 and > 4-month check-up, but she did NOT make a big deal about it!!! She > actually told me at her 4-month check-up that even if I tried > switching her sleeping position, would probably just end up on > her back....so I felt there wasn't much bother in doing it. Well, > after a trip home to my parents my mother INSISTED I see another > doctor. She (my mother) is a Labor & Delivery nurse for 30+ years > and > had not seen a babies head shaped as 's was. So, I took her in > and now am having these terrible guilty feelings that this could have > been prevented!!!! Also, am I the only one that does not like the > looks of the helmets???? In this age of technology, can't there be > anything that looks better to the eye? I don't want to sound so > pessimistic, as I know there are sooooo many other things that my > angel could have, but I feel this is MY fault!!!! Also, if anyone > can > tell me what is soooo bad about the helmets and soooo good about the > bands, I would appreciate it. Is it worth traveling 5+ hours for the > bands each way? If these bands are soooo good, why aren't they > available in every city? Sorry to ramble. > > If you have the time to look, I have put 's pictures of her > flat > head on my website and would appreciate anyone looking at them to > compare if their child had improvement with a similar looking head. > http://www.geocities.com/leah_black/brachy.html > > Thank you, > Leah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Hi I'm new. My baby goes in for her consultation on Tuesday. She is a Plagio kid but I don't know how severe yet. It looks bad to me but I'm not a professional. I'm hoping they decide to band her so I know it will be fixed. The only thing I am concerned with is the stares. If she gets a band I may put " Just Ask " on it. And my hubby is having a hard time dealing with it. It seems the one thing everyone has said and felt is the anger towards the professionals not telling us about this before it was a problem. Why doesn't eh Back to Sleep campaign put some info in it about this issue? I just don't understand. I am a new mom, and I hate that the info is not out there like it should be. I am reading through some of the messages already posted and I hope to learn more before her consultation. Anything I need to know that I haven't found on other websites? ~~ > > > > I am a new member and am just reading all the messages. I > hate > > to be the sourpuss, but I am not near as positive as you all are! > My > > daughter is almost 6 months and was diagnosed with brachycephalic. > > We > > are going to the neurosurgeon on Thursday to see what he thinks. > My > > overwhelming feeling right now is GUILT! As a first time mom, I > did > > not know how important it was to rotate sleeping positions!!!! My > > doctor did notice the back of her head becoming flat at her 2 and > > 4-month check-up, but she did NOT make a big deal about it!!! She > > actually told me at her 4-month check-up that even if I tried > > switching her sleeping position, would probably just end up > on > > her back....so I felt there wasn't much bother in doing it. Well, > > after a trip home to my parents my mother INSISTED I see another > > doctor. She (my mother) is a Labor & Delivery nurse for 30+ years > > and > > had not seen a babies head shaped as 's was. So, I took her > in > > and now am having these terrible guilty feelings that this could > have > > been prevented!!!! Also, am I the only one that does not like the > > looks of the helmets???? In this age of technology, can't there be > > anything that looks better to the eye? I don't want to sound so > > pessimistic, as I know there are sooooo many other things that my > > angel could have, but I feel this is MY fault!!!! Also, if anyone > > can > > tell me what is soooo bad about the helmets and soooo good about > the > > bands, I would appreciate it. Is it worth traveling 5+ hours for > the > > bands each way? If these bands are soooo good, why aren't they > > available in every city? Sorry to ramble. > > > > If you have the time to look, I have put 's pictures of her > > flat > > head on my website and would appreciate anyone looking at them to > > compare if their child had improvement with a similar looking > head. > > http://www.geocities.com/leah_black/brachy.html > > > > Thank you, > > Leah > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Hi Leah, I am not a big fan of how the helmet looks either; however, I know that for my son we are doing the best thing for him so I've tried to relax and have fun with it. I change the theme weekly and most people comment on how cute he is! Babies are so cute that even with the helmet, they are still really cute despite the helmet. I haven't had a single rude comment and places/people that I thought for sure would make fun didn't. The only sleep instruction that I was given was put him on his back! My ped. noticed my son's head at 2 months. I felt guilty that I didn't notice it prior to my doc pointing it out to me. I also felt guilty because I could have possibly prevented it (less carseat time, swing time, etc.); however, at the same time I did try to do things such as tummy time, change feeding sides, etc. but my son still had a flat head. This is my first child too and the thought of having MY son banded was embarassing to me. However, try to remain positive. It is such a short time span and most babies adjust just fine. I think helmets/bands are used interchangably...I could be wrong though as a friend of mine that decided not to band her daughter was cautioned against helmets. As far as worth traveling 5+hours, I'm not sure. If there is an experienced ortho near you then I would think that may be the way to go. I can only speak of CT and the DOC band. I highly recommend them/it. We went there only because that is who our ped. referred us to. I tried to log-on to your website and wasn't able to get on. Let me know if there is another way to look. Its not your fault! I know many babies my son's age that were/are constantly on their backs and their heads are just fine. I think some babies are prone to it more than others plus there could be other factors (tort., intrauterine position, etc.) Good luck. 9 month old son, doc bandkatiewilliams17 <kew1976@...> wrote: Hi Leah,You are not alone in your feelings. I HATE the way the helmet looks, have been very cautious with taking my son out in it and to be honest, I take him OUT of it when we have a special occasion such as a wedding, b-day party, family event, etc. With all of that said though, my son has been in his helmet since Jan 11, and the change in his head is AMAZING!! I mean I didn't think it looked that bad when we started, but now I see such a big difference, I'm SO excited that we decided to band.You asked for positives, Not only is this changing my sons head shape to be more "normal" but it has it's perks. He is now almost 8 months old and I can't tell you how many times he's thrown a fit while holding him and swung his head back and WACKED it against a wall or door, but in the helmet there is no pain when he does that. Or now that he's crawling, the falls have been pain free so far.The only negatives I've experienced so far beside the normal stinkiness, is that people stare (which really chaps my hide), and I miss my forehead a LOT. But I just try to kiss it and cuddle it as much as I can when we take the helmet off.I also feel the guilt of thinking I did this to him, but you have to move past that into the thankful stage that there is a way to fix it! And thank you're lucky stars that it isn't something more serious, because as a first time mom myself I never realized how lucky I am to have such a healthy baby, it makes this seem like a walk in the park. It's just like braces....you would fix your childs teeth right? This is sort of along the same lines.Good luck!Mom to , almost 8 mmths, Starbanded 1/11/07, plagio>> I am a new member and am just reading all the messages. I hate > to be the sourpuss, but I am not near as positive as you all are! My > daughter is almost 6 months and was diagnosed with brachycephalic. > We > are going to the neurosurgeon on Thursday to see what he thinks. My > overwhelming feeling right now is GUILT! As a first time mom, I did > not know how important it was to rotate sleeping positions!!!! My > doctor did notice the back of her head becoming flat at her 2 and > 4-month check-up, but she did NOT make a big deal about it!!! She > actually told me at her 4-month check-up that even if I tried > switching her sleeping position, would probably just end up on > her back....so I felt there wasn't much bother in doing it. Well, > after a trip home to my parents my mother INSISTED I see another > doctor. She (my mother) is a Labor & Delivery nurse for 30+ years> and > had not seen a babies head shaped as 's was. So, I took her in > and now am having these terrible guilty feelings that this could have > been prevented!!!! Also, am I the only one that does not like the > looks of the helmets???? In this age of technology, can't there be > anything that looks better to the eye? I don't want to sound so > pessimistic, as I know there are sooooo many other things that my > angel could have, but I feel this is MY fault!!!! Also, if anyone> can > tell me what is soooo bad about the helmets and soooo good about the > bands, I would appreciate it. Is it worth traveling 5+ hours for the > bands each way? If these bands are soooo good, why aren't they > available in every city? Sorry to ramble.> > If you have the time to look, I have put 's pictures of her> flat > head on my website and would appreciate anyone looking at them to > compare if their child had improvement with a similar looking head. > http://www.geocities.com/leah_black/brachy.html> > Thank you,> Leah> We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 HI , welcome to the group. I also wish I had know that negative effects of Back To Sleep. I'm just glad we found out in time to treat our daughter. I hope things will go smoothly for you too. -christine mom to sydney/ 14 mo/ starband grad 10-06 > > > > > > I am a new member and am just reading all the messages. I > > hate > > > to be the sourpuss, but I am not near as positive as you all are! > > My > > > daughter is almost 6 months and was diagnosed with brachycephalic. > > > We > > > are going to the neurosurgeon on Thursday to see what he thinks. > > My > > > overwhelming feeling right now is GUILT! As a first time mom, I > > did > > > not know how important it was to rotate sleeping positions!!!! My > > > doctor did notice the back of her head becoming flat at her 2 and > > > 4-month check-up, but she did NOT make a big deal about it!!! She > > > actually told me at her 4-month check-up that even if I tried > > > switching her sleeping position, would probably just end up > > on > > > her back....so I felt there wasn't much bother in doing it. Well, > > > after a trip home to my parents my mother INSISTED I see another > > > doctor. She (my mother) is a Labor & Delivery nurse for 30+ years > > > and > > > had not seen a babies head shaped as 's was. So, I took her > > in > > > and now am having these terrible guilty feelings that this could > > have > > > been prevented!!!! Also, am I the only one that does not like the > > > looks of the helmets???? In this age of technology, can't there be > > > anything that looks better to the eye? I don't want to sound so > > > pessimistic, as I know there are sooooo many other things that my > > > angel could have, but I feel this is MY fault!!!! Also, if anyone > > > can > > > tell me what is soooo bad about the helmets and soooo good about > > the > > > bands, I would appreciate it. Is it worth traveling 5+ hours for > > the > > > bands each way? If these bands are soooo good, why aren't they > > > available in every city? Sorry to ramble. > > > > > > If you have the time to look, I have put 's pictures of her > > > flat > > > head on my website and would appreciate anyone looking at them to > > > compare if their child had improvement with a similar looking > > head. > > > http://www.geocities.com/leah_black/brachy.html > > > > > > Thank you, > > > Leah > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 lol, my son didn't have plagio, and also a head banger. still is darn it. i just wish he had something like cheyenne lol. he starting to want to wear hats now because cheyenne is wearing the helmet. lol lexie,joey,joey 2 1/2, cheyenne 5 months, doc band, first weekilliams17 <kew1976@...> wrote: Hi Leah,You are not alone in your feelings. I HATE the way the helmet looks, have been very cautious with taking my son out in it and to be honest, I take him OUT of it when we have a special occasion such as a wedding, b-day party, family event, etc. With all of that said though, my son has been in his helmet since Jan 11, and the change in his head is AMAZING!! I mean I didn't think it looked that bad when we started, but now I see such a big difference, I'm SO excited that we decided to band.You asked for positives, Not only is this changing my sons head shape to be more "normal" but it has it's perks. He is now almost 8 months old and I can't tell you how many times he's thrown a fit while holding him and swung his head back and WACKED it against a wall or door, but in the helmet there is no pain when he does that. Or now that he's crawling, the falls have been pain free so far.The only negatives I've experienced so far beside the normal stinkiness, is that people stare (which really chaps my hide), and I miss my forehead a LOT. But I just try to kiss it and cuddle it as much as I can when we take the helmet off.I also feel the guilt of thinking I did this to him, but you have to move past that into the thankful stage that there is a way to fix it! And thank you're lucky stars that it isn't something more serious, because as a first time mom myself I never realized how lucky I am to have such a healthy baby, it makes this seem like a walk in the park. It's just like braces....you would fix your childs teeth right? This is sort of along the same lines.Good luck!Mom to , almost 8 mmths, Starbanded 1/11/07, plagio>> I am a new member and am just reading all the messages. I hate > to be the sourpuss, but I am not near as positive as you all are! My > daughter is almost 6 months and was diagnosed with brachycephalic. > We > are going to the neurosurgeon on Thursday to see what he thinks. My > overwhelming feeling right now is GUILT! As a first time mom, I did > not know how important it was to rotate sleeping positions!!!! My > doctor did notice the back of her head becoming flat at her 2 and > 4-month check-up, but she did NOT make a big deal about it!!! She > actually told me at her 4-month check-up that even if I tried > switching her sleeping position, would probably just end up on > her back....so I felt there wasn't much bother in doing it. Well, > after a trip home to my parents my mother INSISTED I see another > doctor. She (my mother) is a Labor & Delivery nurse for 30+ years> and > had not seen a babies head shaped as 's was. So, I took her in > and now am having these terrible guilty feelings that this could have > been prevented!!!! Also, am I the only one that does not like the > looks of the helmets???? In this age of technology, can't there be > anything that looks better to the eye? I don't want to sound so > pessimistic, as I know there are sooooo many other things that my > angel could have, but I feel this is MY fault!!!! Also, if anyone> can > tell me what is soooo bad about the helmets and soooo good about the > bands, I would appreciate it. Is it worth traveling 5+ hours for the > bands each way? If these bands are soooo good, why aren't they > available in every city? Sorry to ramble.> > If you have the time to look, I have put 's pictures of her> flat > head on my website and would appreciate anyone looking at them to > compare if their child had improvement with a similar looking head. > http://www.geocities.com/leah_black/brachy.html> > Thank you,> Leah> Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Have you had your son's thyroid tested? Proper tests are Free T3, Free T4, TSH. Low thyroid can be hugely implicated in a host of issues, including constipation, lack of proper brain development, and many more.... Correcting this, if it is a problem, can be enormously useful. If you have these tests done, or have had these tests done, please note that many labs give reference ranges that are much too low. Kids should be in the upper 1/3 of the proper reference range. Here are the proper reference ranges: www.labcorp.com/pdf/Pediatric_Reference_Ranges_Endocrinology_0981.pdf Also, are you dealing with yeast? My son's sensory stuff goes through the roof when his yeast is up, but is very manageable when it is down. Anne > > My 14 y/o son was recently dx with SID and ?ASD. He was also recently > diagnosed with Pectus Carinatum. > > This past November, I started him on Nature Made Vitamin B6 > 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium 250mg > daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish oil 1 > daily, MVI, and cell supporter from Herbal life. > > I just ordered Vitamin K2 from www.vrp.com. It was the best deal I > could find of 15mg per cap for $46.95 for 90 caps. > > Okay, he is 14 y/o and weighs 135 lbs. According to the K documents > on this group it sounds like he needs 15mg three times a day, but > that sounds like a lot to me. Any suggestions? > > His symptoms are: > > soft bones (pectus carinatum) > fine hand tremors > severe constipation > irritability > severe SID > fine rash on both arms > self stim behavior? pulls/rips nails during stress > > > I also have to say he has the oddest hands. My husband and I can't > quite describe them in words. They are somewhat feminine, and he > keeps them curled up next to his body. (I know this is also r/t to > his SID and dyspraxia). The skin on his hands seems overly smooth and > maybe a little thin and shiny. > > My goal is to get his nutritionally supported and start oral > chelation. > > We just had his one and only amalagram removed yesterday. I also > ordered the hair test for metals. > > Thank you for any help you can offer, > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 I have wondered about yeast, but how do I know? > > > > My 14 y/o son was recently dx with SID and ?ASD. He was also > recently > > diagnosed with Pectus Carinatum. > > > > This past November, I started him on Nature Made Vitamin B6 > > 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium 250mg > > daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish oil > 1 > > daily, MVI, and cell supporter from Herbal life. > > > > I just ordered Vitamin K2 from www.vrp.com. It was the best deal I > > could find of 15mg per cap for $46.95 for 90 caps. > > > > Okay, he is 14 y/o and weighs 135 lbs. According to the K documents > > on this group it sounds like he needs 15mg three times a day, but > > that sounds like a lot to me. Any suggestions? > > > > His symptoms are: > > > > soft bones (pectus carinatum) > > fine hand tremors > > severe constipation > > irritability > > severe SID > > fine rash on both arms > > self stim behavior? pulls/rips nails during stress > > > > > > I also have to say he has the oddest hands. My husband and I can't > > quite describe them in words. They are somewhat feminine, and he > > keeps them curled up next to his body. (I know this is also r/t to > > his SID and dyspraxia). The skin on his hands seems overly smooth > and > > maybe a little thin and shiny. > > > > My goal is to get his nutritionally supported and start oral > > chelation. > > > > We just had his one and only amalagram removed yesterday. I also > > ordered the hair test for metals. > > > > Thank you for any help you can offer, > > Kathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Vitamin K is one of the few Vitamins which can act like " a drug. Vitamin A(Retinol) and Vitamin B3(Niacin) are other Vitamins with drug-like qualities. I'll see if I can find the proper dosage. The other protocols of Vitamns you are using are " excellent;very good. I would be extremely careful about not giving too much Vitamin K. Anne Vitamin K is found naturally in ALL Greens; such as Spinach;Kale; etc. > > My 14 y/o son was recently dx with SID and ?ASD. He was also recently > diagnosed with Pectus Carinatum. > > This past November, I started him on Nature Made Vitamin B6 > 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium 250mg > daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish oil 1 > daily, MVI, and cell supporter from Herbal life. > > I just ordered Vitamin K2 from www.vrp.com. It was the best deal I > could find of 15mg per cap for $46.95 for 90 caps. > > Okay, he is 14 y/o and weighs 135 lbs. According to the K documents > on this group it sounds like he needs 15mg three times a day, but > that sounds like a lot to me. Any suggestions? > > His symptoms are: > > soft bones (pectus carinatum) > fine hand tremors > severe constipation > irritability > severe SID > fine rash on both arms > self stim behavior? pulls/rips nails during stress > > > I also have to say he has the oddest hands. My husband and I can't > quite describe them in words. They are somewhat feminine, and he > keeps them curled up next to his body. (I know this is also r/t to > his SID and dyspraxia). The skin on his hands seems overly smooth and > maybe a little thin and shiny. > > My goal is to get his nutritionally supported and start oral > chelation. > > We just had his one and only amalagram removed yesterday. I also > ordered the hair test for metals. > > Thank you for any help you can offer, > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 For us, it is most noticeable in poops - they become yellow and fluffy when yeast is high. Also, he gets spacey and stimmy. Others report excessive giggling, rashes on the bum, and some other symptoms. Most of our kids have yeast issues at some level. Anne > > > > > > My 14 y/o son was recently dx with SID and ?ASD. He was also > > recently > > > diagnosed with Pectus Carinatum. > > > > > > This past November, I started him on Nature Made Vitamin B6 > > > 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium > 250mg > > > daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish > oil > > 1 > > > daily, MVI, and cell supporter from Herbal life. > > > > > > I just ordered Vitamin K2 from www.vrp.com. It was the best deal > I > > > could find of 15mg per cap for $46.95 for 90 caps. > > > > > > Okay, he is 14 y/o and weighs 135 lbs. According to the K > documents > > > on this group it sounds like he needs 15mg three times a day, but > > > that sounds like a lot to me. Any suggestions? > > > > > > His symptoms are: > > > > > > soft bones (pectus carinatum) > > > fine hand tremors > > > severe constipation > > > irritability > > > severe SID > > > fine rash on both arms > > > self stim behavior? pulls/rips nails during stress > > > > > > > > > I also have to say he has the oddest hands. My husband and I > can't > > > quite describe them in words. They are somewhat feminine, and he > > > keeps them curled up next to his body. (I know this is also r/t > to > > > his SID and dyspraxia). The skin on his hands seems overly smooth > > and > > > maybe a little thin and shiny. > > > > > > My goal is to get his nutritionally supported and start oral > > > chelation. > > > > > > We just had his one and only amalagram removed yesterday. I also > > > ordered the hair test for metals. > > > > > > Thank you for any help you can offer, > > > Kathy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 A easy sign to recognize for Yeast is: " A white coated tongue. Another name for Candida in mouth is If a person has a white coated tongue; this means Candida Yeast. There is also a saliva test where you drop spit into a glass of water. If the saliva forms threads in the water; it indicates Yeast. Trivia: " A dark-brown or black-tongue indiates: A Deficieny of Niacin Vit.B3. > > > > > > My 14 y/o son was recently dx with SID and ?ASD. He was also > > recently > > > diagnosed with Pectus Carinatum. > > > > > > This past November, I started him on Nature Made Vitamin B6 > > > 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium > 250mg > > > daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish > oil > > 1 > > > daily, MVI, and cell supporter from Herbal life. > > > > > > I just ordered Vitamin K2 from www.vrp.com. It was the best deal > I > > > could find of 15mg per cap for $46.95 for 90 caps. > > > > > > Okay, he is 14 y/o and weighs 135 lbs. According to the K > documents > > > on this group it sounds like he needs 15mg three times a day, but > > > that sounds like a lot to me. Any suggestions? > > > > > > His symptoms are: > > > > > > soft bones (pectus carinatum) > > > fine hand tremors > > > severe constipation > > > irritability > > > severe SID > > > fine rash on both arms > > > self stim behavior? pulls/rips nails during stress > > > > > > > > > I also have to say he has the oddest hands. My husband and I > can't > > > quite describe them in words. They are somewhat feminine, and he > > > keeps them curled up next to his body. (I know this is also r/t > to > > > his SID and dyspraxia). The skin on his hands seems overly smooth > > and > > > maybe a little thin and shiny. > > > > > > My goal is to get his nutritionally supported and start oral > > > chelation. > > > > > > We just had his one and only amalagram removed yesterday. I also > > > ordered the hair test for metals. > > > > > > Thank you for any help you can offer, > > > Kathy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Make sure you get the hair elements test so you can apply the counting rules. What K doucments on this list? S S --- On Thu 03/08, iluvhomeschoolingmykids < <p>My 14 y/o son was recently dx with SID and ?ASD. He was also recently <br> diagnosed with Pectus Carinatum. <br> <br> This past November, I started him on Nature Made Vitamin B6 <br> 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium 250mg <br> daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish oil 1 <br> daily, MVI, and cell supporter from Herbal life.<br> <br> I just ordered Vitamin K2 from www.vrp.com. It was the best deal I <br> could find of 15mg per cap for $46.95 for 90 caps.<br> <br> Okay, he is 14 y/o and weighs 135 lbs. According to the K documents <br> on this group it sounds like he needs 15mg three times a day, but <br> that sounds like a lot to me. Any suggestions?<br> <br> His symptoms are:<br> <br> soft bones (pectus carinatum)<br> fine hand tremors<br> severe constipation <br> irritability<br> severe SID<br> fine rash on both arms<br> self stim behavior? pulls/rips nails during stress <br> <br> I also have to say he has the oddest hands. My husband and I can't <br> quite describe them in words. They are somewhat feminine, and he <br> keeps them curled up next to his body. (I know this is also r/t to <br> his SID and dyspraxia). The skin on his hands seems overly smooth and <br> maybe a little thin and shiny. <br> <br> My goal is to get his nutritionally supported and start oral <br> chelation.<br> <br> We just had his one and only amalagram removed yesterday. I also <br> ordered the hair test for metals.<br> <br> Thank you for any help you can offer,<br> Kathy<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Make sure you get the hair elements test so you can apply the counting rules. What K doucments on this list? S S --- On Thu 03/08, iluvhomeschoolingmykids < <p>My 14 y/o son was recently dx with SID and ?ASD. He was also recently <br> diagnosed with Pectus Carinatum. <br> <br> This past November, I started him on Nature Made Vitamin B6 <br> 600mg/day, Schiff Melatonin 25 mg/day, Nature Made Magnesium 250mg <br> daily, Nature Made Bcomplex with Vit C daily, Nature Made Fish oil 1 <br> daily, MVI, and cell supporter from Herbal life.<br> <br> I just ordered Vitamin K2 from www.vrp.com. It was the best deal I <br> could find of 15mg per cap for $46.95 for 90 caps.<br> <br> Okay, he is 14 y/o and weighs 135 lbs. According to the K documents <br> on this group it sounds like he needs 15mg three times a day, but <br> that sounds like a lot to me. Any suggestions?<br> <br> His symptoms are:<br> <br> soft bones (pectus carinatum)<br> fine hand tremors<br> severe constipation <br> irritability<br> severe SID<br> fine rash on both arms<br> self stim behavior? pulls/rips nails during stress <br> <br> I also have to say he has the oddest hands. My husband and I can't <br> quite describe them in words. They are somewhat feminine, and he <br> keeps them curled up next to his body. (I know this is also r/t to <br> his SID and dyspraxia). The skin on his hands seems overly smooth and <br> maybe a little thin and shiny. <br> <br> My goal is to get his nutritionally supported and start oral <br> chelation.<br> <br> We just had his one and only amalagram removed yesterday. I also <br> ordered the hair test for metals.<br> <br> Thank you for any help you can offer,<br> Kathy<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 So glad he is adjusting so well! Jen and Luli (17mo) Left Tort - Right Plagio - Hanger Band Grad - CA tallulah jayne http://www.babiesonline.com/babies/j/jens5th/ hello hello, i just wanted to say my son alex is doing good with his helmet! He gets a little sweaty but other than that he is ok. He has a scan at the end of the month, so we'll see if it's working or not. www.marismariescorner.com AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 No need to worry. Get an evaluation so you are safe either way. He does sound like he has words though which is great. We were told 50 words by age 2 is the norm. amanda wrote: >Hello, My name is . I have questions about when to worry about a >child being a late talker. My son is 19 months old, and doesn't talk >much. Occasionally he'll pop up with an entire sentance, but it is VERY >rare. He can say No, Momma, Ball, eat, Dad, Car, Bubbles, and a few >others. He babbles baby jubberish constantly. I work in a child care, >and most of the boys his age speak more than he does. We have ruled out >Autism because he is very social, makes good eye contact and does >communicate in other ways. I just don't know when we should start >worrying. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 This sounds pretty close to appropriate for a 19 month old boy. amanda <amandachalynn@...> wrote: Hello, My name is . I have questions about when to worry about a child being a late talker. My son is 19 months old, and doesn't talk much. Occasionally he'll pop up with an entire sentance, but it is VERY rare. He can say No, Momma, Ball, eat, Dad, Car, Bubbles, and a few others. He babbles baby jubberish constantly. I work in a child care, and most of the boys his age speak more than he does. We have ruled out Autism because he is very social, makes good eye contact and does communicate in other ways. I just don't know when we should start worrying. --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 I would say " mother knows best " . To me, it sounds like he's has words. My son didn't have any words at the age of 3!..I knew at 12 months that something was wrong. He could not say, Mom or Dad or yes or no..he grunted or made up sounds...You can always get an evaluation through Early Intervention in your state. They would provide Speech Therapy until the age of 3 y.o., if they deem necessary. ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Hi , Welcome. Can u tell us a bit about ur son? Maybe we can help some and get some insight from u as well. Where do u live? Again, welcome. Debbielkeni@... wrote: Hello, I am , a divorced mom of two kids ages 11 and 8. My son Nick is 8 and has recently been diagnosed with Asperger's, and OCD, and anxiety. I have known since birth something was different about him but now finally have an answer after all this time. I look forward to talk to others who understand...Have a great day!~Debbie Ask me about my fav sites~ www.youravon.com/johnhorton www.biggestloserclub.com Green Team You snooze, you lose. Get messages ASAP with AutoCheck in the all-new Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Thanks for the welcome Debbie. My son is 8 and is very book smart but he doesn't get personal space and can be annoying to other children at times. But he can be very lovable too. I am in Medford MA. Re: ( ) Hello Hi , Welcome. Can u tell us a bit about ur son? Maybe we can help some and get some insight from u as well. Where do u live? Again, welcome. Debbielkenicomcast (DOT) net wrote: Hello, I am , a divorced mom of two kids ages 11 and 8. My son Nick is 8 and has recently been diagnosed with Asperger's, and OCD, and anxiety. I have known since birth something was different about him but now finally have an answer after all this time. I look forward to talk to others who understand...Have a great day! ~Debbie Ask me about my fav sites~ www.youravon.com/johnhorton www.biggestloserclub.com Green Team You snooze, you lose. Get messages ASAP with AutoCheckin the all-new Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Hi ,I'm just around the corner in Cambridge! At least for another year. Then I go back home to San Diego. (Dh is on sabbatical here in Massachusetts.)LizOn May 23, 2007, at 6:30 PM, wrote:Thanks for the welcome Debbie.My son is 8 and is very book smart but he doesn't get personal space and can be annoying to other children at times. Â But he can be very lovable too. I am in Medford MA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 ,I forgot to ask you whether you're familiar with the AANE (Asperger Association of New England)? If not, e-mail me privately and I'll send you contact information. Anybody else who's interested can do that, too.LizOn May 23, 2007, at 6:30 PM, wrote:Thanks for the welcome Debbie.My son is 8 and is very book smart but he doesn't get personal space and can be annoying to other children at times.  But he can be very lovable too. I am in Medford MA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Hi Liz, How old are your kids? Do you know of any resources around here? I am just starting out, so overwhelmed... Re: ( ) Hello Hi , I'm just around the corner in Cambridge! At least for another year. Then I go back home to San Diego. (Dh is on sabbatical here in Massachusetts.) Liz On May 23, 2007, at 6:30 PM, wrote: Thanks for the welcome Debbie. My son is 8 and is very book smart but he doesn't get personal space and can be annoying to other children at times. But he can be very lovable too. I am in Medford MA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 My son is 19 and goes to Dean College in lin. So he did elementary school, middle school and high school all in San Diego. But I sent you info on AANE, which is a great resource on schools, summer programs, therapists, doctors, etc.LizOn May 24, 2007, at 12:33 PM, wrote:Hi Liz,How old are your kids? Do you know of any resources around here? I am just starting out, so overwhelmed... Re: ( ) HelloHi ,I'm just around the corner in Cambridge! At least for another year. Then I go back home to San Diego. (Dh is on sabbatical here in Massachusetts.)LizOn May 23, 2007, at 6:30 PM, wrote:Thanks for the welcome Debbie.My son is 8 and is very book smart but he doesn't get personal space and can be annoying to other children at times.  But he can be very lovable too. I am in Medford MA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 Look under the message thread called: What makes an educator highly effective? There is a lot of feedback on this topic. Thanks for getting input! Sandy > > Hello, > I am a student at Kent State University taking a class on > Parent/teacher collaboration. I am looking to talk to some people > about their experiences with a special ed. teacher and the IEP process > to learn what is helpful and what you feel could be done better. I am > really looking forward to talking with some of you and gaining some > valuable insight. > Thanks!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 What do you want to know. I am in Medina! RoxannaAutism Happens ( ) hello Hello,I am a student at Kent State University taking a class onParent/teacher collaboration. I am looking to talk to some peopleabout their experiences with a special ed. teacher and the IEP processto learn what is helpful and what you feel could be done better. I amreally looking forward to talking with some of you and gaining somevaluable insight.Thanks!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 Roxanna, what a small world! I would like to know whether you have had positive experiences in dealing with your child's school. If so what are they? What are the negative experiences. What do you feel you help you more. Thanks, so much! > > What do you want to know. I am in Medina! > > Roxanna > Autism Happens > ( ) hello > > > Hello, > I am a student at Kent State University taking a class on > Parent/teacher collaboration. I am looking to talk to some people > about their experiences with a special ed. teacher and the IEP process > to learn what is helpful and what you feel could be done better. I am > really looking forward to talking with some of you and gaining some > valuable insight. > Thanks!!!! > Quote Link to comment Share on other sites More sharing options...
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