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, Ken Here: 07/01/08

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Hi

Thank you for sharing your experience. I have never taken methotrexate and do

not want to. I submitted a testimony from another person to help with research.

To combat a flair, I am now on 100 mg, Minocin, 2x day. What hais disturbing

me is that the tendon linked to my thumb is very swollen and the thumb has a

limited range of movement. It all happened quite suddenly when I thought I was

being protected by AP. PERHAPS THE MYCOPLASMA IS HIDING IN THE TENDONS?

Please , help! Also, a tendon behind my left knee has been so painful

that for several morning 4-6 am, i have been barely able to move the leg. Hoping

this increased dosage will bring me back into remission.

Recently, I went for a trial 'Body Communication Process' at a Scientology org

to assist me heal myself. Before the assist I was achy all over, esp in the knee

then 'ping' the pain went after 30 minutes and kept away for two days. I want to

go for 12 hours of this treatment which will cost $220 which is reasonable. One

can get a friend to deliver an assist to one but it is tedious for the person

doing the assist. Anyway, I hope it helps me recover.

Regards

Ken.

Sauve <moniquesauve@...> wrote:

hi ken

when on mino 200 mg a day for 3 years i had no further joint

deterioration and any i h ad prior to startin returned almost completely

to normal. then off of mino - i developed a sensit to it and it was

making me sick - on mtx i suffered more joint damage than i've ever had.

my swelling is going down now after 4.5 mos on zith and my hands are

looking more normal. my friend who;s had RA since she was 3 suffered

more joint damage on mtx and enbrel remicade etc. now on Mp she is

finally getting her life back. was bedbound pre ap then MP.

monique

Hi Emma

Thank you for the research you are doing and God speed on that. One

conclusion that I have read indicates that although Minocin and other

Antx reduce swelling and pain well, they do not slow down joint damage

as much as the other, more toxic drugs do. I will try to find these

conclusions which I hope are wrong.

---------------------------------

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if it helps ken why not do it. for 12h of energy work 200 is a very good

price. i have ried some energy work and haven;t found it helps me too

much but i know one woman who cliams energy work got her off all meds.

who knows? like i said in my last post maybe you need 200 mg of minoo a

day for 6 mos or so? i started with 100 mg mino a day and then after a

year still a lot of pain so upped too 200 a day and wihtin a month was

in full remission. that lasted 2.5 years until i had to stop mino b/c

of yeast issues. i shoudl have dropped down to 100 mg MWF and reated

the yeast but at the time doc told me to stop mino as we didn't know

that yeast was making me so sick. anyway now ttreating yeast and using

zithromax to try and get full remision again. 4.5 mos into it. better

but not at remission.

best

monique

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