Hi : Miscom

[Guest guest]

Hi

Sorry to be misleading and unclear the extract about methotrexate was not by

me, at all. It was by a friend who tried it after 6 years of AP.

Due to a flair. i have upped my Minocin from 100, 3x a week to 100, 2x a day.

Seem better. What do you think?

. I have tender, squishyswelling on my hand, it moves when touched.

What is this liquidy thing?

I hope you are well.

Ken.

Sauve <moniquesauve@...> wrote:

hi ken

sent the last message before i read how much mtx is helping you. that is

great. are you taking milk thistle to help your liver? it didn't help me

at all but glad it helps some. as you say we are all differnt. as long

as we find something that works.

best

monique

Emma

Here is a testimony that may assist your research:

YES! After being on the AP for six years, having sustained some pretty

severe damage, and never feeling that my pain had really " left " , I started

MTX three months ago.

It is like a miracle . My once, " forever " swollen ankles, golf ball ankles,

are now flat, my hands are no longer boggy in the knuckles, and my pain is

gone. I haven't felt like this in twelve years. Also I was anemic the entire

time on Doxi and had some really off blood values on my CBC ( usually at

least 6 items were flagged) and now that has also returned to normal. A

month of MTX reversed my bloodwork to normal. The only thing flagged now is

a slight elevated RBW.

I thought I was going of have to have a wrist replace and and one fused from

the damage as they hurt so badly and I could barely use them. By doing OT

with Thera-putty I gained strength and the MTX knocked out the pain. I

actually lifted weights using my wrists yesterday for the first time in

years where it did not hurt nor did I hurt this morning.

Also I have gone from taking two 7.5 Mobics a day to only taking 1/2 of a

7.5 at night.

I fought long and hard not to take this drug and now I am sorry that I did

not start it sooner. Maybe I would not have had the severe damage that I

have now and would have had more pain-free days. I just kept thinning I was

herxing on the AP where it actually was the disease becoming more

aggressive.

I am only taking 7.5 mg of MTX now down from 12.5 that I started on.

I know the AP has helped many, but I guess there are some of us that it just

wasn't meant for.

My advice to those on AP that still have pain...Keep up with the Xrays!

Ken Pearson <maputo95@... <mailto:maputo95%40>> wrote:

Hi Emma

Thank you for the research you are doing and God speed on that. One

conclusion that I have read indicates that although Minocin and other

Antx reduce swelling and pain well, they do not slow down joint damage

as much as the other, more toxic drugs do. I will try to find these

conclusions which I hope are wrong.

emluv23@... <mailto:emluv23%40aol.com> wrote:

Hi Ken,

I am in the process of compiling all the published articles on Minocin and

doing a critical analysis. It's taken months, as there are now hundreds of

articles, even coming out as recently as the last year. The ones that

don't make a

strong case for Minocin invariably had a study design that was too short in

duration. Most of us know how long it takes to see the turnaround! Many

of us

will actually get worse before getting better and the studies are not

designed

to account for that. I'm involved in research right now, and hopefully

in the

future will have the chance to direct research that will prove what many

of us

have found to be true!

Fingers crossed!

Emma

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

<http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489>

[Guest guest]

hi ken

ah i see. thanks for clarifying. have you considered upping to 200 mg a

day until you hopefully reach remission and then lowering to 100 mg MWF

to keep you there? i myself went into remission origianlly at that dose

as did several others i know.

as for the lump, where is it? i had a ganglion cyst near my wrist and

one day it just went away. coudl also be a nodule? i had one of those on

my thumb and it went away with hydrocortisone. my doc rx'd low doses of

it 20 mg cortef = 5 mg prednisone. i took 20 mg a day divided at 1st and

have now weaned down to 5 mg cortef a day and hope to be off that within

a month. ap is helping me to get off it. william jeffries book talks

about using hydrocortisone to replace what adrenals may not be making.

it really helped my energy too. nodule hasn;t come back now that i am

weaning off.

monique

Hi

Sorry to be misleading and unclear the extract about methotrexate was

not by me, at all. It was by a friend who tried it after 6 years of AP.

Due to a flair. i have upped my Minocin from 100, 3x a week to 100, 2x a

day. Seem better. What do you think?

. I have tender, squishyswelling on my hand, it moves when

touched. What is this liquidy thing?

I hope you are well.

Ken.