Another Dead End - can I vent?

January 8, 2008

I thought I was so clever. I went on the National Adrenal Foundation

website and found a doctor in my area that treats Adrenals. I went in

with all my labs and told my story. He is supposed to be an expert as

he trained at Vanderbilt in their Endocrinology Department focusing on

Adrenals and Pituitary issues. That was quite awhile back, " but I keep

up with it "

His view, with adrenals you are either healthy or have addisons. What??

By being on 30mg of HC, I have caused my adrenals and possibly my

pituitary gland to atrophy. For him to test, I would have to wean off

the HC and be off of it for 6 months for the adrenals to recover and

ACTH to kick back in. Because he says the cortisol curve is not a

smooth one, he prefers a 24 hour urine test to the saliva test. Oh and

that 30mg was a dose for 's patients.

Meanwhile he(himself!) checked my BP sitting, laying down, and then

sitting up again. He then declared that I had low BP, that is why I am

having orthostatic hypotension and that my husband should get me a

good pension plan because I would live to be very old. Well, that did

it, I started to get teary and said if this is the quality of my life,

I don't want to live that long.

Oh well, at least he is going to test my LH,FSH,and one other thing I

cant recall. He also gave me 24 hour urine test for Aldosterone. I

asked for Vitamin D and he agreed to add that. So at least I'll get

some more info out of it.

Hopefully my Safe Uses of Cortisol Book will get here quickly and I

will be able to understand it. Thanks for letting me vent!

English

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