Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Hi I ordered this dmg I'll try to find the web site. kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Hi I ordered this dmg I'll try to find the web site. kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Hi I ordered this dmg I'll try to find the web site. kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Lori, D.M.G. is short for dimethlyglycine, which is the main active constituent of vitamin B15 or pangamic acid. You can find more info (as well as a source of supply) at www.kirkmanlabs.com . It has been mainly used with autistic children. Our genetic/metabolic specialist said he could find no reason biochemically as to why it would have a major beneficial affect in a mitochondrial patient, however, that has certainly not been our experience. In the case of our son (6yrs old - mito complex IV), I just doubt if we would still have him with us, if we had not put him on D.M.G. when we did, at the encouragement of a naturopath. He was beginning to decline rapidly at the time, and was only wakeful 2 - 4 hours a day. With in 3 to 4 days of introducing D.M.G. supplement, we saw the following marked, distinctive, sustained, improvements: 1. Reduction in his intensity and level of seizure activity. 2. A complete drying up of the excessive mucous " rattling " at the back of his throat. 3. Improvements in his energy levels and alertness/wakefulness. I have in front of me a copy of a book called " Laugh with Health " by Manfred Urs Koch (published in Australia by Renaissance & New Age Creations.) which lists the following (relevant) points regarding vitamin B15: 1. Improves the body's capacity to utilise energy from food thereby providing extra strength, physical and mental energy and self repair abilities. 2. Preventative of premature aging, as it improves the body's ability to use oxygen and also improves the circulation of the blood 3. Works as a detoxifying agent 4. Helps to stabilise emotional and mental problems with its beneficial qualities and effects on the nervous system. 5. Excessive perspiration causes a great loss of vitamin B15. What works for one child may or may not work for another, but you will never know until you try. We started on 5 ml per day, split between 2 bottles (2 x 2.5 ml). At one stage we tried 7 ml per day to see if there was any extra benefit from higher rates - which there did not seem to be - getting him to take large amounts was a problem, as it has a very strong, unpleasant taste. We have trailed him off it completely for extended periods (up to 2 months), and each time we have eventually noticed a regression in the 3 above mentioned areas (esp. the return of the " rattles " ), as well as a greater susceptibility to secondary illnesses, which stopped when we have started the D.M.G. again. He is currently on only 1 ml per day, which seems to be successfully maintaining all the benefits. We have in more recent times made sure he receives tahini (sesame seed paste) in his diet every day, which is a very good dietary source of D.M.G. Trust this is of interest and assistance, Regards, & Savage. Re: ??Tracheostomy > > > > , I really feel for you, it can't be easy watching Cassie weaken. > Two > > years ago, we were told that Chelsea would probably need a trach due to > the > > same issues you are facing now. Her swallow had deteriorated to the point > she > > could no longer take in enough calories and was getting pneumonia. The > > (well-meaning) PICU drs. and surgeons told us the gtube would protect her > and > > keep her from getting sick to a piont, but she was probably weakening and > > would eventually need a trach. > > Fortunatly, thankfully, she has not weakened, but improved. I can't offer > > advice on your tough decision, but I can tell you what we have done to > help > > improve her strength. We have been doing chest pt on her at least twice > > daily, up to every 4 hrs when sick. She also recieves inhaled > > Flonase(2x's/day) and Albuterol(as needed). Also nasonex spray and > Claritin > > for suspected nasal allergies. I think these meds are mostly preventitive, > > but she does tend to be snotty(which slides down her throat, not out the > > nose). The Albuterol does wonders when she is congested. I strongly > believe > > the chest pt and suctioning has improved her cough. It was once very weak > and > > inneffective. Now we sometimes get " flyers " =) Her ot once commented she > > wanted Chelsea to be able to spray her in the face with her cough, and > > Chelsea has demonstrated she can now do that! The constant suctioning > > prompted her to cough when she would not on her own. She used to have a > > chronic gurgle, but it has improved dramatically and only comes on when > tired > > or ill. Chelsea also sleeps on a slight incline to help thing drain > better. > > She has been able to maintain good 02 stats with these measures, and is > > actually much more stable then when first monitored(after her initial > > pneumonias). She takes 0.3lph 02 while sleeping for sleep apnea. She used > to > > regularly desat to the 80's, with 0's, due to a wad of phlegm or bad > > positioning. I have noticed now she stays well into the mid 90's, even > when > > needing a suctioning. > > We also feel that the supplements she takes help a bit as well. We noticed > a > > mild increase in stamina and less lethargy after the introduction of > first, > > Carnitore and then, CoQ10. We also put her on DMG last Apr, and have seen > a > > noticable increase in her energy and ability to tolerate therapy and > > exercise. Chelsea's conditon has seemed to slowly improve with the various > > 'little' things we do for her. Talk to therapists, particularly speech, > about > > what can be done to improve her lung capacity. We are waiting to get into > > speech therapy for just that reason. > > The gtube was a tough decision, I think a trach would be much tougher. But > > Sue's story was enlightening. It's just when it's happening to YOU, it's > so > > much harder. I hope all goes well, and things improve for Cassie. Please > > don't hesitate to ask any more ?'s. > > > > Krisitne, Chelsea's mom(non-specific mito) > > > > > > Please contact mito-owner with any problems or questions. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Lori, I started my daughter on DMG last Apr, I don't really remember seeing immediate effects. It was over a few months we started to see noticable improvement in her ability to tolerate exercise. She also began to have very minor, but noticable week to week improvements, basically able to tolerate more of what she couldn't before. It seemed that each week at therapy we were getting her to do hard activities for longer periods of time. I did not tell her therapists about the DMG at first, I wanted an unbiased opinion over the next few months on if there was a difference. There did seem to be, I think after about a month, her therapists were commenting that Chelsea had been more active and trying much harder. After about 6 mos, we noticed she had gone from needing a chest and arm braces to even get her to try to bear weight on her arms, to needing neither. This is a pretty drastic improvement for her. She has also seemed increasingly less floppy, but this can come and go with illness and fatigue. may and probably will have different effects from the DMG. It might be a good idea not to tell somebody, just to see if they say anything. We did not tell her therapists or our family and I think they all had comments about improvement in the first few months. Good luck, I hope you see similar results! What form do you give it to him?(capsule, sublingual, etc.) e, Chelsea's mom(non-specific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Lori, I started my daughter on DMG last Apr, I don't really remember seeing immediate effects. It was over a few months we started to see noticable improvement in her ability to tolerate exercise. She also began to have very minor, but noticable week to week improvements, basically able to tolerate more of what she couldn't before. It seemed that each week at therapy we were getting her to do hard activities for longer periods of time. I did not tell her therapists about the DMG at first, I wanted an unbiased opinion over the next few months on if there was a difference. There did seem to be, I think after about a month, her therapists were commenting that Chelsea had been more active and trying much harder. After about 6 mos, we noticed she had gone from needing a chest and arm braces to even get her to try to bear weight on her arms, to needing neither. This is a pretty drastic improvement for her. She has also seemed increasingly less floppy, but this can come and go with illness and fatigue. may and probably will have different effects from the DMG. It might be a good idea not to tell somebody, just to see if they say anything. We did not tell her therapists or our family and I think they all had comments about improvement in the first few months. Good luck, I hope you see similar results! What form do you give it to him?(capsule, sublingual, etc.) e, Chelsea's mom(non-specific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 hi i don't mean to sound like i dont know much, but could you tell me what DMG is? i am learning more and more from you folks. even though i dont post often i appreciate knowing i'm not alone. my prayers to all karen ( Brigitte's mom) Re: DMG > Lori, I started my daughter on DMG last Apr, I don't really remember seeing > immediate effects. It was over a few months we started to see noticable > improvement in her ability to tolerate exercise. She also began to have very > minor, but noticable week to week improvements, basically able to tolerate > more of what she couldn't before. It seemed that each week at therapy we were > getting her to do hard activities for longer periods of time. > I did not tell her therapists about the DMG at first, I wanted an unbiased > opinion over the next few months on if there was a difference. There did seem > to be, I think after about a month, her therapists were commenting that > Chelsea had been more active and trying much harder. After about 6 mos, we > noticed she had gone from needing a chest and arm braces to even get her to > try to bear weight on her arms, to needing neither. This is a pretty drastic > improvement for her. She has also seemed increasingly less floppy, but this > can come and go with illness and fatigue. > may and probably will have different effects from the DMG. It might be > a good idea not to tell somebody, just to see if they say anything. We did > not tell her therapists or our family and I think they all had comments about > improvement in the first few months. Good luck, I hope you see similar > results! What form do you give it to him?(capsule, sublingual, etc.) > > e, Chelsea's mom(non-specific mito) > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 hi i don't mean to sound like i dont know much, but could you tell me what DMG is? i am learning more and more from you folks. even though i dont post often i appreciate knowing i'm not alone. my prayers to all karen ( Brigitte's mom) Re: DMG > Lori, I started my daughter on DMG last Apr, I don't really remember seeing > immediate effects. It was over a few months we started to see noticable > improvement in her ability to tolerate exercise. She also began to have very > minor, but noticable week to week improvements, basically able to tolerate > more of what she couldn't before. It seemed that each week at therapy we were > getting her to do hard activities for longer periods of time. > I did not tell her therapists about the DMG at first, I wanted an unbiased > opinion over the next few months on if there was a difference. There did seem > to be, I think after about a month, her therapists were commenting that > Chelsea had been more active and trying much harder. After about 6 mos, we > noticed she had gone from needing a chest and arm braces to even get her to > try to bear weight on her arms, to needing neither. This is a pretty drastic > improvement for her. She has also seemed increasingly less floppy, but this > can come and go with illness and fatigue. > may and probably will have different effects from the DMG. It might be > a good idea not to tell somebody, just to see if they say anything. We did > not tell her therapists or our family and I think they all had comments about > improvement in the first few months. Good luck, I hope you see similar > results! What form do you give it to him?(capsule, sublingual, etc.) > > e, Chelsea's mom(non-specific mito) > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Hi, I learned about DMG on this list from and Savage. I've copied their post about it below. I read more about it at the website provided and ordered it from them. Take care, Lori D.M.G. is short for dimethlyglycine, which is the main active constituent of vitamin B15 or pangamic acid. You can find more info (as well as a source of supply) at www.kirkmanlabs.com . It has been mainly used with autistic children. Our genetic/metabolic specialist said he could find no reason biochemically as to why it would have a major beneficial affect in a mitochondrial patient, however, that has certainly not been our experience. In the case of our son (6yrs old - mito complex IV), I just doubt if we would still have him with us, if we had not put him on D.M.G. when we did, at the encouragement of a naturopath. He was beginning to decline rapidly at the time, and was only wakeful 2 - 4 hours a day. With in 3 to 4 days of introducing D.M.G. supplement, we saw the following marked, distinctive, sustained, improvements: 1. Reduction in his intensity and level of seizure activity. 2. A complete drying up of the excessive mucous " rattling " at the back of his throat. 3. Improvements in his energy levels and alertness/wakefulness. I have in front of me a copy of a book called " Laugh with Health " by Manfred Urs Koch (published in Australia by Renaissance & New Age Creations.) which lists the following (relevant) points regarding vitamin B15: 1. Improves the body's capacity to utilise energy from food thereby providing extra strength, physical and mental energy and self repair abilities. 2. Preventative of premature aging, as it improves the body's ability to use oxygen and also improves the circulation of the blood 3. Works as a detoxifying agent 4. Helps to stabilise emotional and mental problems with its beneficial qualities and effects on the nervous system. 5. Excessive perspiration causes a great loss of vitamin B15. What works for one child may or may not work for another, but you will never know until you try. We started on 5 ml per day, split between 2 bottles (2 x 2.5 ml). At one stage we tried 7 ml per day to see if there was any extra benefit from higher rates - which there did not seem to be - getting him to take large amounts was a problem, as it has a very strong, unpleasant taste. We have trailed him off it completely for extended periods (up to 2 months), and each time we have eventually noticed a regression in the 3 above mentioned areas (esp. the return of the " rattles " ), as well as a greater susceptibility to secondary illnesses, which stopped when we have started the D.M.G. again. He is currently on only 1 ml per day, which seems to be successfully maintaining all the benefits. We have in more recent times made sure he receives tahini (sesame seed paste) in his diet every day, which is a very good dietary source of D.M.G. Trust this is of interest and assistance, Regards, & Savage. Re: DMG > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > seeing > > immediate effects. It was over a few months we started to see noticable > > improvement in her ability to tolerate exercise. She also began to have > very > > minor, but noticable week to week improvements, basically able to tolerate > > more of what she couldn't before. It seemed that each week at therapy we > were > > getting her to do hard activities for longer periods of time. > > I did not tell her therapists about the DMG at first, I wanted an unbiased > > opinion over the next few months on if there was a difference. There did > seem > > to be, I think after about a month, her therapists were commenting that > > Chelsea had been more active and trying much harder. After about 6 mos, we > > noticed she had gone from needing a chest and arm braces to even get her > to > > try to bear weight on her arms, to needing neither. This is a pretty > drastic > > improvement for her. She has also seemed increasingly less floppy, but > this > > can come and go with illness and fatigue. > > may and probably will have different effects from the DMG. It might > be > > a good idea not to tell somebody, just to see if they say anything. We did > > not tell her therapists or our family and I think they all had comments > about > > improvement in the first few months. Good luck, I hope you see similar > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > e, Chelsea's mom(non-specific mito) > > > > > > Please contact mito-owner with any problems or questions. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Hi, I learned about DMG on this list from and Savage. I've copied their post about it below. I read more about it at the website provided and ordered it from them. Take care, Lori D.M.G. is short for dimethlyglycine, which is the main active constituent of vitamin B15 or pangamic acid. You can find more info (as well as a source of supply) at www.kirkmanlabs.com . It has been mainly used with autistic children. Our genetic/metabolic specialist said he could find no reason biochemically as to why it would have a major beneficial affect in a mitochondrial patient, however, that has certainly not been our experience. In the case of our son (6yrs old - mito complex IV), I just doubt if we would still have him with us, if we had not put him on D.M.G. when we did, at the encouragement of a naturopath. He was beginning to decline rapidly at the time, and was only wakeful 2 - 4 hours a day. With in 3 to 4 days of introducing D.M.G. supplement, we saw the following marked, distinctive, sustained, improvements: 1. Reduction in his intensity and level of seizure activity. 2. A complete drying up of the excessive mucous " rattling " at the back of his throat. 3. Improvements in his energy levels and alertness/wakefulness. I have in front of me a copy of a book called " Laugh with Health " by Manfred Urs Koch (published in Australia by Renaissance & New Age Creations.) which lists the following (relevant) points regarding vitamin B15: 1. Improves the body's capacity to utilise energy from food thereby providing extra strength, physical and mental energy and self repair abilities. 2. Preventative of premature aging, as it improves the body's ability to use oxygen and also improves the circulation of the blood 3. Works as a detoxifying agent 4. Helps to stabilise emotional and mental problems with its beneficial qualities and effects on the nervous system. 5. Excessive perspiration causes a great loss of vitamin B15. What works for one child may or may not work for another, but you will never know until you try. We started on 5 ml per day, split between 2 bottles (2 x 2.5 ml). At one stage we tried 7 ml per day to see if there was any extra benefit from higher rates - which there did not seem to be - getting him to take large amounts was a problem, as it has a very strong, unpleasant taste. We have trailed him off it completely for extended periods (up to 2 months), and each time we have eventually noticed a regression in the 3 above mentioned areas (esp. the return of the " rattles " ), as well as a greater susceptibility to secondary illnesses, which stopped when we have started the D.M.G. again. He is currently on only 1 ml per day, which seems to be successfully maintaining all the benefits. We have in more recent times made sure he receives tahini (sesame seed paste) in his diet every day, which is a very good dietary source of D.M.G. Trust this is of interest and assistance, Regards, & Savage. Re: DMG > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > seeing > > immediate effects. It was over a few months we started to see noticable > > improvement in her ability to tolerate exercise. She also began to have > very > > minor, but noticable week to week improvements, basically able to tolerate > > more of what she couldn't before. It seemed that each week at therapy we > were > > getting her to do hard activities for longer periods of time. > > I did not tell her therapists about the DMG at first, I wanted an unbiased > > opinion over the next few months on if there was a difference. There did > seem > > to be, I think after about a month, her therapists were commenting that > > Chelsea had been more active and trying much harder. After about 6 mos, we > > noticed she had gone from needing a chest and arm braces to even get her > to > > try to bear weight on her arms, to needing neither. This is a pretty > drastic > > improvement for her. She has also seemed increasingly less floppy, but > this > > can come and go with illness and fatigue. > > may and probably will have different effects from the DMG. It might > be > > a good idea not to tell somebody, just to see if they say anything. We did > > not tell her therapists or our family and I think they all had comments > about > > improvement in the first few months. Good luck, I hope you see similar > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > e, Chelsea's mom(non-specific mito) > > > > > > Please contact mito-owner with any problems or questions. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 We use a liquid form of D.M.G. which we mix with 's vegetable juices, so I have no experience of mixing it with other supplements. Regards, & Savage. Re: DMG > > > > > > > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > > > seeing > > > > immediate effects. It was over a few months we started to see noticable > > > > improvement in her ability to tolerate exercise. She also began to have > > > very > > > > minor, but noticable week to week improvements, basically able to > > tolerate > > > > more of what she couldn't before. It seemed that each week at therapy we > > > were > > > > getting her to do hard activities for longer periods of time. > > > > I did not tell her therapists about the DMG at first, I wanted an > > unbiased > > > > opinion over the next few months on if there was a difference. There did > > > seem > > > > to be, I think after about a month, her therapists were commenting that > > > > Chelsea had been more active and trying much harder. After about 6 mos, > > we > > > > noticed she had gone from needing a chest and arm braces to even get her > > > to > > > > try to bear weight on her arms, to needing neither. This is a pretty > > > drastic > > > > improvement for her. She has also seemed increasingly less floppy, but > > > this > > > > can come and go with illness and fatigue. > > > > may and probably will have different effects from the DMG. It > > might > > > be > > > > a good idea not to tell somebody, just to see if they say anything. We > > did > > > > not tell her therapists or our family and I think they all had comments > > > about > > > > improvement in the first few months. Good luck, I hope you see similar > > > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > > > > > e, Chelsea's mom(non-specific mito) > > > > > > > > > > > > Please contact mito-owner with any problems or > > questions. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 , There are no experts on this list, we are all learning from each other - you will never know unless you ask. Trust you find this of assistance. D.M.G. is short for dimethlyglycine, which is the main active constituent of vitamin B15 or pangamic acid. You can find more info (as well as a source of supply) at www.kirkmanlabs.com . It has been mainly used with autistic children. Our genetic/metabolic specialist said he could find no reason biochemically as to why it would have a major beneficial affect in a mitochondrial patient, however, that has certainly not been our experience. In the case of our son (6yrs old - mito complex IV), I just doubt if we would still have him with us, if we had not put him on D.M.G. when we did, at the encouragement of a naturopath. He was beginning to decline rapidly at the time, and was only wakeful 2 - 4 hours a day. With in 3 to 4 days of introducing D.M.G. supplement, we saw the following marked, distinctive, sustained, improvements: 1. Reduction in his intensity and level of seizure activity. 2. A complete drying up of the excessive mucous " rattling " at the back of his throat. 3. Improvements in his energy levels and alertness/wakefulness. I have in front of me a copy of a book called " Laugh with Health " by Manfred Urs Koch (published in Australia by Renaissance & New Age Creations.) which lists the following (relevant) points regarding vitamin B15: 1. Improves the body's capacity to utilise energy from food thereby providing extra strength, physical and mental energy and self repair abilities. 2. Preventative of premature aging, as it improves the body's ability to use oxygen and also improves the circulation of the blood 3. Works as a detoxifying agent 4. Helps to stabilise emotional and mental problems with its beneficial qualities and effects on the nervous system. 5. Excessive perspiration causes a great loss of vitamin B15. What works for one child may or may not work for another, but you will never know until you try. We started on 5 ml per day, split between 2 bottles (2 x 2.5 ml). At one stage we tried 7 ml per day to see if there was any extra benefit from higher rates - which there did not seem to be - getting him to take large amounts was a problem, as it has a very strong, unpleasant taste. We have trailed him off it completely for extended periods (up to 2 months), and each time we have eventually noticed a regression in the 3 above mentioned areas (esp. the return of the " rattles " ), as well as a greater susceptibility to secondary illnesses, which stopped when we have started the D.M.G. again. He is currently on only 1 ml per day, which seems to be successfully maintaining all the benefits. We have in more recent times made sure he receives tahini (sesame seed paste) in his diet every day, which is a very good dietary source of D.M.G. Trust this is of interest and assistance, Regards, & Savage. To: <Mito > Sent: Thursday, January 24, 2002 5:29 AM Subject: Re: DMG > hi i don't mean to sound like i dont know much, but could you tell me what > DMG is? i am learning more and more from you folks. even though i dont post > often i appreciate knowing i'm not alone. my prayers to all > karen ( Brigitte's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Thanks Lori for the info. Have a great weekend all! Horsley Mom to 11 Mito Complex 1, Sensory Integration Disorder, Tourettes Syndrome Brittney age 16 No symptoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Thanks Lori for the info. Have a great weekend all! Horsley Mom to 11 Mito Complex 1, Sensory Integration Disorder, Tourettes Syndrome Brittney age 16 No symptoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 , had his third DMG today. I mixed it in with his cereal this morning along with Co Q-10. (Both are capsule forms that you break open). I have seen a big energy burst yesterday and today!!!!!! It was similar to what I saw when we started carnitor over a year ago. Very interesting indeed. His therapist today noticed that he was energetic throughout the entire 45 minutes whereas usually he is conked out with 20 minutes left to go. So, I'm quite sure it is having an effect in terms of energy. No other changes seen thus far. Take care, Lori and (2.5, I and IV) Re: DMG > > > > > > > > > > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > > > > seeing > > > > > immediate effects. It was over a few months we started to see > noticable > > > > > improvement in her ability to tolerate exercise. She also began to > have > > > > very > > > > > minor, but noticable week to week improvements, basically able to > > > tolerate > > > > > more of what she couldn't before. It seemed that each week at > therapy we > > > > were > > > > > getting her to do hard activities for longer periods of time. > > > > > I did not tell her therapists about the DMG at first, I wanted an > > > unbiased > > > > > opinion over the next few months on if there was a difference. There > did > > > > seem > > > > > to be, I think after about a month, her therapists were commenting > that > > > > > Chelsea had been more active and trying much harder. After about 6 > mos, > > > we > > > > > noticed she had gone from needing a chest and arm braces to even get > her > > > > to > > > > > try to bear weight on her arms, to needing neither. This is a pretty > > > > drastic > > > > > improvement for her. She has also seemed increasingly less floppy, > but > > > > this > > > > > can come and go with illness and fatigue. > > > > > may and probably will have different effects from the DMG. It > > > might > > > > be > > > > > a good idea not to tell somebody, just to see if they say anything. > We > > > did > > > > > not tell her therapists or our family and I think they all had > comments > > > > about > > > > > improvement in the first few months. Good luck, I hope you see > similar > > > > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > > > > > > > e, Chelsea's mom(non-specific mito) > > > > > > > > > > > > > > > Please contact mito-owner with any problems or > > > questions. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 , had his third DMG today. I mixed it in with his cereal this morning along with Co Q-10. (Both are capsule forms that you break open). I have seen a big energy burst yesterday and today!!!!!! It was similar to what I saw when we started carnitor over a year ago. Very interesting indeed. His therapist today noticed that he was energetic throughout the entire 45 minutes whereas usually he is conked out with 20 minutes left to go. So, I'm quite sure it is having an effect in terms of energy. No other changes seen thus far. Take care, Lori and (2.5, I and IV) Re: DMG > > > > > > > > > > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > > > > seeing > > > > > immediate effects. It was over a few months we started to see > noticable > > > > > improvement in her ability to tolerate exercise. She also began to > have > > > > very > > > > > minor, but noticable week to week improvements, basically able to > > > tolerate > > > > > more of what she couldn't before. It seemed that each week at > therapy we > > > > were > > > > > getting her to do hard activities for longer periods of time. > > > > > I did not tell her therapists about the DMG at first, I wanted an > > > unbiased > > > > > opinion over the next few months on if there was a difference. There > did > > > > seem > > > > > to be, I think after about a month, her therapists were commenting > that > > > > > Chelsea had been more active and trying much harder. After about 6 > mos, > > > we > > > > > noticed she had gone from needing a chest and arm braces to even get > her > > > > to > > > > > try to bear weight on her arms, to needing neither. This is a pretty > > > > drastic > > > > > improvement for her. She has also seemed increasingly less floppy, > but > > > > this > > > > > can come and go with illness and fatigue. > > > > > may and probably will have different effects from the DMG. It > > > might > > > > be > > > > > a good idea not to tell somebody, just to see if they say anything. > We > > > did > > > > > not tell her therapists or our family and I think they all had > comments > > > > about > > > > > improvement in the first few months. Good luck, I hope you see > similar > > > > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > > > > > > > e, Chelsea's mom(non-specific mito) > > > > > > > > > > > > > > > Please contact mito-owner with any problems or > > > questions. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 , had his third DMG today. I mixed it in with his cereal this morning along with Co Q-10. (Both are capsule forms that you break open). I have seen a big energy burst yesterday and today!!!!!! It was similar to what I saw when we started carnitor over a year ago. Very interesting indeed. His therapist today noticed that he was energetic throughout the entire 45 minutes whereas usually he is conked out with 20 minutes left to go. So, I'm quite sure it is having an effect in terms of energy. No other changes seen thus far. Take care, Lori and (2.5, I and IV) Re: DMG > > > > > > > > > > > > > Lori, I started my daughter on DMG last Apr, I don't really remember > > > > seeing > > > > > immediate effects. It was over a few months we started to see > noticable > > > > > improvement in her ability to tolerate exercise. She also began to > have > > > > very > > > > > minor, but noticable week to week improvements, basically able to > > > tolerate > > > > > more of what she couldn't before. It seemed that each week at > therapy we > > > > were > > > > > getting her to do hard activities for longer periods of time. > > > > > I did not tell her therapists about the DMG at first, I wanted an > > > unbiased > > > > > opinion over the next few months on if there was a difference. There > did > > > > seem > > > > > to be, I think after about a month, her therapists were commenting > that > > > > > Chelsea had been more active and trying much harder. After about 6 > mos, > > > we > > > > > noticed she had gone from needing a chest and arm braces to even get > her > > > > to > > > > > try to bear weight on her arms, to needing neither. This is a pretty > > > > drastic > > > > > improvement for her. She has also seemed increasingly less floppy, > but > > > > this > > > > > can come and go with illness and fatigue. > > > > > may and probably will have different effects from the DMG. It > > > might > > > > be > > > > > a good idea not to tell somebody, just to see if they say anything. > We > > > did > > > > > not tell her therapists or our family and I think they all had > comments > > > > about > > > > > improvement in the first few months. Good luck, I hope you see > similar > > > > > results! What form do you give it to him?(capsule, sublingual, etc.) > > > > > > > > > > e, Chelsea's mom(non-specific mito) > > > > > > > > > > > > > > > Please contact mito-owner with any problems or > > > questions. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Hi Lori: Thanks for the reply. I have copied the report from the Savages explaining this and will fax it to our metabolic doctor. I would love to try it and see. Leah has good energy, most days; unless she has had a hard day at school. I usually can tell when she is pooped from school because her cheeks will be red; like a person is hot. So either she is thirsty or tired and it has been usually both; thirsty and fall alseep in the van on the way home. And it's only a ten minute drive. So I am eager to try this for her. mom to Leah Lori Cutillo wrote: > , had his third DMG today. I mixed it in with his cereal this > morning along with Co Q-10. (Both are capsule forms that you break open). > I have seen a big energy burst yesterday and today!!!!!! It was similar to > what I saw when we started carnitor over a year ago. Very interesting > indeed. His therapist today noticed that he was energetic throughout the > entire 45 minutes whereas usually he is conked out with 20 minutes left to > go. So, I'm quite sure it is having an effect in terms of energy. No other > changes seen thus far. > > Take care, Lori and (2.5, I and IV) > Re: DMG > > > > > > > > > > > > > > > > Lori, I started my daughter on DMG last Apr, I don't really > remember > > > > > seeing > > > > > > immediate effects. It was over a few months we started to see > > noticable > > > > > > improvement in her ability to tolerate exercise. She also began to > > have > > > > > very > > > > > > minor, but noticable week to week improvements, basically able to > > > > tolerate > > > > > > more of what she couldn't before. It seemed that each week at > > therapy we > > > > > were > > > > > > getting her to do hard activities for longer periods of time. > > > > > > I did not tell her therapists about the DMG at first, I wanted an > > > > unbiased > > > > > > opinion over the next few months on if there was a difference. > There > > did > > > > > seem > > > > > > to be, I think after about a month, her therapists were commenting > > that > > > > > > Chelsea had been more active and trying much harder. After about 6 > > mos, > > > > we > > > > > > noticed she had gone from needing a chest and arm braces to even > get > > her > > > > > to > > > > > > try to bear weight on her arms, to needing neither. This is a > pretty > > > > > drastic > > > > > > improvement for her. She has also seemed increasingly less floppy, > > but > > > > > this > > > > > > can come and go with illness and fatigue. > > > > > > may and probably will have different effects from the DMG. > It > > > > might > > > > > be > > > > > > a good idea not to tell somebody, just to see if they say > anything. > > We > > > > did > > > > > > not tell her therapists or our family and I think they all had > > comments > > > > > about > > > > > > improvement in the first few months. Good luck, I hope you see > > similar > > > > > > results! What form do you give it to him?(capsule, sublingual, > etc.) > > > > > > > > > > > > e, Chelsea's mom(non-specific mito) > > > > > > > > > > > > > > > > > > Please contact mito-owner with any problems or > > > > questions. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Lori, This is great news!!! I trust that it will be on going and sustained for as it has been and continues to be for . Please keep us posted of any developments. Regards, & Savage. Re: DMG > , had his third DMG today. I mixed it in with his cereal this > morning along with Co Q-10. (Both are capsule forms that you break open). > I have seen a big energy burst yesterday and today!!!!!! It was similar to > what I saw when we started carnitor over a year ago. Very interesting > indeed. His therapist today noticed that he was energetic throughout the > entire 45 minutes whereas usually he is conked out with 20 minutes left to > go. So, I'm quite sure it is having an effect in terms of energy. No other > changes seen thus far. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Lori, This is great news!!! I trust that it will be on going and sustained for as it has been and continues to be for . Please keep us posted of any developments. Regards, & Savage. Re: DMG > , had his third DMG today. I mixed it in with his cereal this > morning along with Co Q-10. (Both are capsule forms that you break open). > I have seen a big energy burst yesterday and today!!!!!! It was similar to > what I saw when we started carnitor over a year ago. Very interesting > indeed. His therapist today noticed that he was energetic throughout the > entire 45 minutes whereas usually he is conked out with 20 minutes left to > go. So, I'm quite sure it is having an effect in terms of energy. No other > changes seen thus far. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Lori, This is great news!!! I trust that it will be on going and sustained for as it has been and continues to be for . Please keep us posted of any developments. Regards, & Savage. Re: DMG > , had his third DMG today. I mixed it in with his cereal this > morning along with Co Q-10. (Both are capsule forms that you break open). > I have seen a big energy burst yesterday and today!!!!!! It was similar to > what I saw when we started carnitor over a year ago. Very interesting > indeed. His therapist today noticed that he was energetic throughout the > entire 45 minutes whereas usually he is conked out with 20 minutes left to > go. So, I'm quite sure it is having an effect in terms of energy. No other > changes seen thus far. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hello All! I am looking forward to meeting you and seeing some of you I have already met at the conference in Dallas! Also, I am starting my son on DMG and I am not sure the dosage he should take. The capsules are 20mg each and the bottle says 1 per day but I know it is different with our kids. Those of you that are taking it, can you tell me what the dosage you use is? Thanks! Heidi Harmon Mom to 602 S 16th Ave Greenwood, Mo. 64034 (816)537-5586 Bzyheidi1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Heidi, We can only access a liquid form of D.M.G. in Australia, so I am really not much use to you regards a dose rate. Our bottle says 2ml per day (N,N-dimethylgycine 50 mg/ml) which would make it a 100 mg/day dose. We have experimented with dose rates for , between 1ml and 7mls per day, and from that experience, I believe the optimum rate for is between 2 & 3 mls per day. Our experience has shown that it takes at least 10 to a fortnight for a reduction in his rate to manifest in a change in his symptoms. Having said all that, every child is different! Regards, & Savage. DMG Hello All! I am looking forward to meeting you and seeing some of you I have already met at the conference in Dallas! Also, I am starting my son on DMG and I am not sure the dosage he should take. The capsules are 20mg each and the bottle says 1 per day but I know it is different with our kids. Those of you that are taking it, can you tell me what the dosage you use is? Thanks! Heidi Harmon Mom to 602 S 16th Ave Greenwood, Mo. 64034 (816)537-5586 Bzyheidi1@... Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Heidi, the information I read on DMG at www.kirkmanlabs.com recommended children starting at 125mg 2 times a day. This was the info I showed to the neuro and he reccomended following those directions, he wasn't real hot on the idea that DMG would do any good, but he agreed it could do no harm to try. Other sources I have found also recomended using 125mg doses. I found a sublingual form that comes in 125mg, and dissolves instantly in liquid. I give Chelsea 2 tabs a day(am/pm), I have given her 3 a day on occassion when sick. DMG is considered a food product and occurs naturally in cells, ther are no symptoms of deficiency or overdose. I have taken one myself on occassion when I felt sluggish and did notice a sort of 'pick me up'. It has really seemed to help Chelsea's endurance and alertness. Hope this has been of some help. Take care! e, Chelsea's mom(non-specific mito) Quote Link to comment Share on other sites More sharing options...
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