Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 When I go, I take what I mentioned in my previous email, typed questions, symptoms..I try to maximize my time with him...We have stayed at the stons in Watchung, NJ one time, but I thought it was awful...normally, since we are coming from OH...we stay in town, PA at Red Roof Inn then drive on in the am....Takes a bit better than an hour or a half from there...He is well versed in the AP so no, you would not need to bring the FAQ...DR Whitman was present at many, if not all, of the Roadbacks AP convention type meetings on AP. Dr. Whitman sends me home with a script for his requested labs and tests, because of insurance reasons...and I get them done here in Cincinnati...I would not fast...he has never, to my knowledge insisted on any tests in his office...or running labs there...many of his patients come from out of town and ins issues play into that as you know...Dr Whitman has been very specific in his notes with me, what he wants done, giving me scripts for the labs and then noting on his notes that he gives me a copy of...what tests he wants me to have done...my Internist here in town thinks he is simply brilliant and does whatever he wishes... I wish I could help more with hotels...but I think since we go from opposite directions...he is in a lovely area...very nice and I would ck on hotels near him...we like to leave ,say on a Sunday, drive all day, stay in town, PA...then get up and drive on in to him...for my Mon am appt...we have a 12 hr drive each way... The first time I saw him I actually brought the bottles of meds, supplements I had been on...now, I just type them up on a list for him...and date everything...I also highlight the dates on my recent labs and tests...and make copies for his records of these as well...he can see at a glance, then what was the most recent, etc...he is very thorough! I adore him....truly, he has been a life saver! Let me know if you think of anything else, I would be happy to call or speak with you regarding Dr. Whitman....Many on this BB recommended him and did the same for me...we pay it forward here...when I was first dx, I was so ill and so scared and many on here reached out to help me...Now, I can pay it forward. Good Luck, Debbie in Cincinnati rheumatic Dr. Whitman in NJ - Anyone go to him? > > > I am considering switching AP doctors and wanted to get some opinions on Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing good but wondering if I could be doing better.. > > I have read that Dr. Whitman is one of the more experienced AP docs out there.. I am around 6 hours away from him so it wouldn't be an easy trip but if it was worthwhile I would definitely do it.. > > For those that go to him... > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far away? IE: Over the phone appts, tweak protocol w/out seeing you, order blood tests and review them via fax, etc? > > 3. I understand he is a rheumy as well? Does he try to push the standard meds? > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak the protocol)? > > Thanks for any info! > > Tom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Hi Rose, I read your post on the fourth of October. My wife has been diagnosed with polymyositis also. Have you always been on the antibiotic therapy or have you tried other things? It would be interesting to compare notes on what works. Phil rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out there.. I am around 6 hours away from him so it wouldn't be an easy trip but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far away? IE: Over the phone appts, tweak protocol w/out seeing you, order blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I really don't understand this, just one or two years ago Whitman wrote me a letter saying that abx don't work for rheumatic auto immune illnesses. He said I should first try Plaquenil and the possibly Minocycline if Plaquenil didn't help. But he was not at all interested in doing a combination of antibiotics like they do on some groups and even the Mino was a 2nd line of defense before an immuno suppressant. I dont understand why then he's offering a combined antibiotic approach to others. His letter couldn't have been more clear in regards to his feelings. And if he didn't want to put in writing that he was for the approach, he could have called me. In my letter to him I had pleaded for him to help me specifically with an antibiotic approach, one that he would tailor to me because what I was doing with abx wasn't working. So since then I stopped after 1 year on doxy and no improvement, I thought I needed tweaking and additional antibiotics but I wasn't going to get that, which is why I never flew to see him. From: phillipstradling <phillipstradling@...> Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? rheumatic Date: Wednesday, October 7, 2009, 8:57 PM Hi Rose, I read your post on the fourth of October. My wife has been diagnosed with polymyositis also. Have you always been on the antibiotic therapy or have you tried other things? It would be interesting to compare notes on what works. Phil rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out there.. I am around 6 hours away from him so it wouldn't be an easy trip but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far away? IE: Over the phone appts, tweak protocol w/out seeing you, order blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Re: Dr Whitman. He works out of two different offices in two different states. At his New Jersey site, he is free to treat the patients with A/P. He is not so free to do that at the N.Y. clinic at The Hospital for Special Surgery because that place is run by doctors who do not believe in A/P. The Rheumatology dept. is run by Dr. Medsger, his son and another Doc whose name escapes me at present. It is also the place where The Scleroderma Foundation holds it's meetings and its' support groups. They are inbedded with Big Pharm. Their sole purpose is to raise money for research and to support Big Pharm in their endeavor to manufacture more immune suppressant drugs. So, therein is the clash. If they acknowledge that A/P works, there would be no purpose for going on with the research. So, while he does occasionally treat a patient or two in NY with A/P, it is usually because they insisted on it and/or their particular Insurance does not work in New Jersey. Otherwise he uses the standard protocol of using the immune suppressants. Mostly, he steers his A/P patients to the New Jersey office. You may have reached him in N.Y. and he is not at liberty to acknowledge that A/P works while he is there. Try to reach him again In New Jersey. You may get a totally different response. Dolores & Mike. From: phillipstradling <phillipstradling@ cox.net> Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? rheumatic@grou ps.com Date: Wednesday, October 7, 2009, 8:57 PM Hi Rose, I read your post on the fourth of October. My wife has been diagnosed with polymyositis also. Have you always been on the antibiotic therapy or have you tried other things? It would be interesting to compare notes on what works. Phil rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out there.. I am around 6 hours away from him so it wouldn't be an easy trip but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far away? IE: Over the phone appts, tweak protocol w/out seeing you, order blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Vicki, I don't know anything about Dr. Whitman, but I'm wondering what you ended up doing when the antibiotics didn't work. I am in the same boat. I've been on mino for 10 months and I'm just as bad today as I was then. I don't know where to go from here. Beth From: phillipstradling <phillipstradling@...> Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? rheumatic Date: Wednesday, October 7, 2009, 8:57 PM Hi Rose, I read your post on the fourth of October. My wife has been diagnosed with polymyositis also. Have you always been on the antibiotic therapy or have you tried other things? It would be interesting to compare notes on what works. Phil rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out there.. I am around 6 hours away from him so it wouldn't be an easy trip but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far away? IE: Over the phone appts, tweak protocol w/out seeing you, order blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi All; Sorry not to have been around lately,been having terrible computer and server problems.Thought it was fixed last week but NO... it is so frustrating.We are in the country and therefore only have " dial-up " service and the lines are always busy. Beth; I was like you, took mino for years with very little benefit.Finally I found a good doctor who found out I had Celiac(no symptoms) and that was causing my SD.Once that was fixed the mino,clindamycin,zithromax combo put me into remission very fast but it took 18 months on a gluten free diet to fix the gut problems.Have you been reading the posts at www.rbfbb.org about the epedemic Lyme situation that also causes AP to stop in it's tracks?There are several posts on the first and second page and I strongly advise everyone to read them.One is 33 pages long so bring along a cup of coffee....and maybe lunch Lynne > > > Vicki, > > I don't know anything about Dr. Whitman, but I'm wondering what you > ended up doing when the antibiotics didn't work. I am in the same > boat. I've been on mino for 10 months and I'm just as bad today as I > was then. I don't know where to go from here. > > Beth > > > > From: phillipstradling <phillipstradling@... > <mailto:phillipstradling%40cox.net>> > Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > rheumatic <mailto:rheumatic%40> > Date: Wednesday, October 7, 2009, 8:57 PM > > > > > Hi Rose, I read your post on the fourth of > October. My wife has been diagnosed with polymyositis also. Have you > always been on the antibiotic therapy or have you tried other things? > It would be interesting to compare notes on what works. Phil > > rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > Sorry that I am replying to this post 4 days later, but I want to add > my comments as a patient of Dr. Whitman's. > > Debbie clued me into him a couple of years ago and was kicking myself > for a while for not realizing that he is a doctor in the medical group > I go to. He is a wonderful man. He spends time with you and listens to > what you have to say and doesn't dismiss you like other doctors. > > Just recently, I was advised by a volunteer from the Roadback > Foundation to get another opinion to see if my current condition, > polymyositis with Interstitial Lung Disease, is related to my previous > condition of Lyme Disease over 20 years ago. Meaning, that the Lyme > Disease is no longer in remission and has been the cause behind my > current condition. I let him know and he was very open minded about > it. I went, had various tests done, and it has been confirmed that the > lyme disease is back. So, I am currently on Zythromax 500mg 2x's > daily, Tetracycline 500mg 2x's daily and Plaquenil 200mg 2x's daily, > along with a whole list of supplements. Also, this doctor wants me on > IV Magnesium Chloride, which Dr. Whitman is more than willing to > assist me with so that I do not have to drive over an hour every 2 > weeks to get it. He is very pleased with the results so far and is > monitoring me closely.. > > I live in Plainfield. His office is only 15 to 20 minutes from my > home. If you need recommendations for good hotels in the area let me > know. There are some in , NJ which is only 30 minutes from his > office and Bridgewater, NJ, also 30 minutes from his office. Try also > Raritan, NJ and Edison, NJ. They are not that far. > > Send me an email direct if you need more information, or you have any > other questions, etc. > > > > Plainfield, NJ > > > > > > > > > > > When I go, I take what I mentioned in my previous email, typed > questions, symptoms..I try to maximize my time with him...We have > stayed at the stons in Watchung, NJ one time, but I thought > it was awful...normally, since we are coming from OH...we stay in > town, PA at Red Roof Inn then drive on in the am....Takes a bit > better than an hour or a half from there...He is well versed in the AP > so no, you would not need to bring the FAQ...DR Whitman was present at > many, if not all, of the Roadbacks AP convention type meetings on AP. > > > Dr. Whitman sends me home with a script for his requested labs and > tests, because of insurance reasons...and I get them done here in > Cincinnati... .I would not fast...he has never, to my knowledge > insisted on any tests in his office...or running labs there...many of > his patients come from out of town and ins issues play into that as > you know...Dr Whitman has been very specific in his notes with me, > what he wants done, giving me scripts for the labs and then noting on > his notes that he gives me a copy of...what tests he wants me to have > done...my Internist here in town thinks he is simply brilliant and > does whatever he wishes... > > > > > > I wish I could help more with hotels...but I think since we go > from opposite directions.. .he is in a lovely area...very nice and I > would ck on hotels near him...we like to leave ,say on a Sunday, drive > all day, stay in town, PA...then get up and drive on in to > him...for my Mon am appt....we have a 12 hr drive each way... > > > > > > The first time I saw him I actually brought the bottles of meds, > supplements I had been on...now, I just type them up on a list for > him...and date everything.. .I also highlight the dates on my recent > labs and tests...and make copies for his records of these as well...he > can see at a glance, then what was the most recent, etc...he is very > thorough! I adore him....truly, he has been a life saver! > > > Let me know if you think of anything else, I would be happy to > call or speak with you regarding Dr. Whitman....Many on this BB > recommended him and did the same for me...we pay it forward > here...when I was first dx, I was so ill and so scared and many on > here reached out to help me...Now, I can pay it forward. > > > Good Luck, > > > Debbie in Cincinnati > > > > > > > > > Recent Activity > > * > 1 > New Members > <rheumatic/members;_ylc=X3oDMTJkYnFwZmh1BF9TAzk3Mz\ U5NzE0BGdycElkAzkzNDI5BGdycHNwSWQDMTcwNTA2MTYxMARzZWMDdnRsBHNsawN2bWJycwRzdGltZQ\ MxMjU1MDEwMzQ4> > > Visit Your Group > <rheumatic;_ylc=X3oDMTJjcDBsdjM0BF9TAzk3MzU5NzE0BG\ dycElkAzkzNDI5BGdycHNwSWQDMTcwNTA2MTYxMARzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzEyNTUwMT\ AzNDg-> > > Give Back > > for Good > <http://us.lrd./_ylc=X3oDMTJrM2UzY2xjBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSWQDOT\ M0MjkEZ3Jwc3BJZAMxNzA1MDYxNjEwBHNlYwNuY21vZARzbGsDYnJhbmQEc3RpbWUDMTI1NTAxMDM0OA\ --;_ylg=1/SIG=11314uv3k/**http%3A//brand./forgood> > > Get inspired > > by a good cause. > > Y! Toolbar > > Get it Free! > <http://us.lrd./_ylc=X3oDMTJtZGgzOTdtBF9TAzk3MzU5NzE0BF9wAzIEZ3JwSWQDOT\ M0MjkEZ3Jwc3BJZAMxNzA1MDYxNjEwBHNlYwNuY21vZARzbGsDdG9vbGJhcgRzdGltZQMxMjU1MDEwMz\ Q4;_ylg=1/SIG=11c6dvmk9/**http%3A//toolbar./%3F.cpdl=ygrps> > > easy 1-click access > > to your groups. > > > > Start a group > <start;_ylc=X3oDMTJtMmxlNzdkBF9TAzk3MzU5NzE0BF9wAzMEZ3Jw\ SWQDOTM0MjkEZ3Jwc3BJZAMxNzA1MDYxNjEwBHNlYwNuY21vZARzbGsDZ3JvdXBzMgRzdGltZQMxMjU1\ MDEwMzQ4> > > in 3 easy steps. > > Connect with others. > > . > > -- I am using the free version of SPAMfighter. We are a community of 6 million users fighting spam. SPAMfighter has removed 574 of my spam emails to date. Get the free SPAMfighter here: http://www.spamfighter.com/len The Professional version does not have this message Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 This therapy is not a quick fix. When I started the treatment years ago, I was told it would take 3 to 5 years just to turn around - not reach remission. Thankfully, I reached remission in less than that time, but I've known many others that took even longer than 5 years. There may be other problems that need to be dealt with concurrently with taking the antibiotics. You may have reached a plateau where you possibly ran into another organism that required a different antibiotic to clear and then once again you could get back on the Minocin. Remember, when you end up with disease, your immune system is compromised so you need to work on enhancing that immune system in order to get well. Consider changing to a healthy diet and detoxing the body - parasite cleanses - bowel cleanses - liver/gallbladder cleanses - heavy metal cleanses - infra red saunas (easily made) and Epsom salts/hydrogen peroxide baths to draw out the toxins. Consider coffee enemas. I've done it all and still do cleanses periodically even though I've been in remission for years. Ethel rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on > > Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing > > good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out > > there.. I am around 6 hours away from him so it wouldn't be an easy trip > > but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far > > away? IE: Over the phone appts, tweak protocol w/out seeing you, order > > blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard > > meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak > > the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 What type of doctor did you find that was able to diagnois celiac? Thanks, Sue ---- Lynne and Santos <lynneandsantos@...> wrote: > Hi All; > Sorry not to have been around lately,been having terrible computer > and server problems.Thought it was fixed last week but NO... it is so > frustrating.We are in the country and therefore only have " dial-up " > service and the lines are always busy. > > Beth; > I was like you, took mino for years with very little benefit.Finally > I found a good doctor who found out I had Celiac(no symptoms) and that > was causing my SD.Once that was fixed the mino,clindamycin,zithromax > combo put me into remission very fast but it took 18 months on a gluten > free diet to fix the gut problems.Have you been reading the posts at > www.rbfbb.org about the epedemic Lyme situation that also causes AP to > stop in it's tracks?There are several posts on the first and second page > and I strongly advise everyone to read them.One is 33 pages long so > bring along a cup of coffee....and maybe lunch > Lynne > > > > > > > > > Vicki, > > > > I don't know anything about Dr. Whitman, but I'm wondering what you > > ended up doing when the antibiotics didn't work. I am in the same > > boat. I've been on mino for 10 months and I'm just as bad today as I > > was then. I don't know where to go from here. > > > > Beth > > > > > > > > From: phillipstradling <phillipstradling@... > > <mailto:phillipstradling%40cox.net>> > > Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > rheumatic <mailto:rheumatic%40> > > Date: Wednesday, October 7, 2009, 8:57 PM > > > > > > > > > > Hi Rose, I read your post on the fourth of > > October. My wife has been diagnosed with polymyositis also. Have you > > always been on the antibiotic therapy or have you tried other things? > > It would be interesting to compare notes on what works. Phil > > > > rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > > > Sorry that I am replying to this post 4 days later, but I want to add > > my comments as a patient of Dr. Whitman's. > > > > Debbie clued me into him a couple of years ago and was kicking myself > > for a while for not realizing that he is a doctor in the medical group > > I go to. He is a wonderful man. He spends time with you and listens to > > what you have to say and doesn't dismiss you like other doctors. > > > > Just recently, I was advised by a volunteer from the Roadback > > Foundation to get another opinion to see if my current condition, > > polymyositis with Interstitial Lung Disease, is related to my previous > > condition of Lyme Disease over 20 years ago. Meaning, that the Lyme > > Disease is no longer in remission and has been the cause behind my > > current condition. I let him know and he was very open minded about > > it. I went, had various tests done, and it has been confirmed that the > > lyme disease is back. So, I am currently on Zythromax 500mg 2x's > > daily, Tetracycline 500mg 2x's daily and Plaquenil 200mg 2x's daily, > > along with a whole list of supplements. Also, this doctor wants me on > > IV Magnesium Chloride, which Dr. Whitman is more than willing to > > assist me with so that I do not have to drive over an hour every 2 > > weeks to get it. He is very pleased with the results so far and is > > monitoring me closely.. > > > > I live in Plainfield. His office is only 15 to 20 minutes from my > > home. If you need recommendations for good hotels in the area let me > > know. There are some in , NJ which is only 30 minutes from his > > office and Bridgewater, NJ, also 30 minutes from his office. Try also > > Raritan, NJ and Edison, NJ. They are not that far. > > > > Send me an email direct if you need more information, or you have any > > other questions, etc. > > > > > > > > Plainfield, NJ > > > > > > > > > > > > > > > > > > > When I go, I take what I mentioned in my previous email, typed > > questions, symptoms..I try to maximize my time with him...We have > > stayed at the stons in Watchung, NJ one time, but I thought > > it was awful...normally, since we are coming from OH...we stay in > > town, PA at Red Roof Inn then drive on in the am....Takes a bit > > better than an hour or a half from there...He is well versed in the AP > > so no, you would not need to bring the FAQ...DR Whitman was present at > > many, if not all, of the Roadbacks AP convention type meetings on AP. > > > > > Dr. Whitman sends me home with a script for his requested labs and > > tests, because of insurance reasons...and I get them done here in > > Cincinnati... .I would not fast...he has never, to my knowledge > > insisted on any tests in his office...or running labs there...many of > > his patients come from out of town and ins issues play into that as > > you know...Dr Whitman has been very specific in his notes with me, > > what he wants done, giving me scripts for the labs and then noting on > > his notes that he gives me a copy of...what tests he wants me to have > > done...my Internist here in town thinks he is simply brilliant and > > does whatever he wishes... > > > > > > > > > > I wish I could help more with hotels...but I think since we go > > from opposite directions.. .he is in a lovely area...very nice and I > > would ck on hotels near him...we like to leave ,say on a Sunday, drive > > all day, stay in town, PA...then get up and drive on in to > > him...for my Mon am appt....we have a 12 hr drive each way... > > > > > > > > > > The first time I saw him I actually brought the bottles of meds, > > supplements I had been on...now, I just type them up on a list for > > him...and date everything.. .I also highlight the dates on my recent > > labs and tests...and make copies for his records of these as well...he > > can see at a glance, then what was the most recent, etc...he is very > > thorough! I adore him....truly, he has been a life saver! > > > > > Let me know if you think of anything else, I would be happy to > > call or speak with you regarding Dr. Whitman....Many on this BB > > recommended him and did the same for me...we pay it forward > > here...when I was first dx, I was so ill and so scared and many on > > here reached out to help me...Now, I can pay it forward. > > > > > Good Luck, > > > > > Debbie in Cincinnati > > > > > > > > > > > > > > > > > Recent Activity > > > > * > > 1 > > New Members > > <rheumatic/members;_ylc=X3oDMTJkYnFwZmh1BF9TAzk3Mz\ U5NzE0BGdycElkAzkzNDI5BGdycHNwSWQDMTcwNTA2MTYxMARzZWMDdnRsBHNsawN2bWJycwRzdGltZQ\ MxMjU1MDEwMzQ4> > > > > Visit Your Group > > <rheumatic;_ylc=X3oDMTJjcDBsdjM0BF9TAzk3MzU5NzE0BG\ dycElkAzkzNDI5BGdycHNwSWQDMTcwNTA2MTYxMARzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzEyNTUwMT\ AzNDg-> > > > > Give Back > > > > for Good > > <http://us.lrd./_ylc=X3oDMTJrM2UzY2xjBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSWQDOT\ M0MjkEZ3Jwc3BJZAMxNzA1MDYxNjEwBHNlYwNuY21vZARzbGsDYnJhbmQEc3RpbWUDMTI1NTAxMDM0OA\ --;_ylg=1/SIG=11314uv3k/**http%3A//brand./forgood> > > > > Get inspired > > > > by a good cause. > > > > Y! 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Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Hi Beth and Ethel, Beth, after the Doxy and during it I took tons of supplements of all sorts, cleanses, infrared. Nothing worked. Ethel, I wonder if what can help me is a combination of antibiotic protocol. I also wonder if there all the supplements and cleanses may not have worked at the right time, right combination etc...maybe I needed a more precise regime. I just wish I had a doctor to help me. To this day I never found one, but haven't been looking for a year, searched the first two years every single day though. Traveled all over in search of help, sent hundreds of letters, spent so much money or travel and supplements. I am worse than ever, i don't have the energy anymore nor the faith. From: phillipstradling <phillipstradling@ cox.net> Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? rheumatic@grou ps.com Date: Wednesday, October 7, 2009, 8:57 PM Hi Rose, I read your post on the fourth of October. My wife has been diagnosed with polymyositis also. Have you always been on the antibiotic therapy or have you tried other things? It would be interesting to compare notes on what works. Phil rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > I am considering switching AP doctors and wanted to get some opinions on > > Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing > > good but wondering if I could be doing better.. > > > > I have read that Dr. Whitman is one of the more experienced AP docs out > > there.. I am around 6 hours away from him so it wouldn't be an easy trip > > but if it was worthwhile I would definitely do it.. > > > > For those that go to him... > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far > > away? IE: Over the phone appts, tweak protocol w/out seeing you, order > > blood tests and review them via fax, etc? > > > > 3. I understand he is a rheumy as well? Does he try to push the standard > > meds? > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak > > the protocol)? > > > > Thanks for any info! > > > > Tom > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Vicki I understand, I did the same thing and just ran out of energy and drive. I did go on traditional meds and I am doing better. Since I feel better I find myself looking again to ap type solutions as I don't want to be on these med forever. Just wanted to say I know exactly how you feel, hang in there. Sue ---- Vicki <genuinelysweet2002@...> wrote: > Hi Beth and Ethel, > Beth, after the Doxy and during it I took tons of supplements of all sorts, cleanses, infrared. Nothing worked. > > Ethel, I wonder if what can help me is a combination of antibiotic protocol. I also wonder if there all the supplements and cleanses may not have worked at the right time, right combination etc...maybe I needed a more precise regime. I just wish I had a doctor to help me. To this day I never found one, but haven't been looking for a year, searched the first two years every single day though. Traveled all over in search of help, sent hundreds of letters, spent so much money or travel and supplements. I am worse than ever, i don't have the energy anymore nor the faith. > > > > > > From: phillipstradling <phillipstradling@ cox.net> > > Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > rheumatic@grou ps.com > > Date: Wednesday, October 7, 2009, 8:57 PM > > > > Hi Rose, I read your post on the fourth of October. My wife has been > > diagnosed with polymyositis also. Have you always been on the antibiotic > > therapy or have you tried other things? It would be interesting to compare > > notes on what works. Phil > > > > rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > > > > > > > > > > > > > I am considering switching AP doctors and wanted to get some opinions on > > > > Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing > > > > good but wondering if I could be doing better.. > > > > > > > > > > > > I have read that Dr. Whitman is one of the more experienced AP docs out > > > > there.. I am around 6 hours away from him so it wouldn't be an easy trip > > > > but if it was worthwhile I would definitely do it.. > > > > > > > > > > > > For those that go to him... > > > > > > > > > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > > > > > > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far > > > > away? IE: Over the phone appts, tweak protocol w/out seeing you, order > > > > blood tests and review them via fax, etc? > > > > > > > > > > > > 3. I understand he is a rheumy as well? Does he try to push the standard > > > > meds? > > > > > > > > > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak > > > > the protocol)? > > > > > > > > > > > > Thanks for any info! > > > > > > > > > > > > Tom > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Hi Sue, thank you. I wonder if i should try Plaquenil again I am just so worried about some of the side effects that can be long term but you dont know till its too late. i am glad something is helping you. > > > > From: phillipstradling <phillipstradling@ cox.net> > > Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > rheumatic@grou ps.com > > Date: Wednesday, October 7, 2009, 8:57 PM > > > > Hi Rose, I read your post on the fourth of October. My wife has been > > diagnosed with polymyositis also. Have you always been on the antibiotic > > therapy or have you tried other things? It would be interesting to compare > > notes on what works. Phil > > > > rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > > > > > > > > > > > > > I am considering switching AP doctors and wanted to get some opinions on > > > > Dr. Whitman.. I have been on AP for about 10 months for RA and I'm doing > > > > good but wondering if I could be doing better.. > > > > > > > > > > > > I have read that Dr. Whitman is one of the more experienced AP docs out > > > > there.. I am around 6 hours away from him so it wouldn't be an easy trip > > > > but if it was worthwhile I would definitely do it.. > > > > > > > > > > > > For those that go to him... > > > > > > > > > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > > > > > > > > > 2. Being I am over 6 hours away.. Does he work with you knowing it's far > > > > away? IE: Over the phone appts, tweak protocol w/out seeing you, order > > > > blood tests and review them via fax, etc? > > > > > > > > > > > > 3. I understand he is a rheumy as well? Does he try to push the standard > > > > meds? > > > > > > > > > > > > 4. Does he introduce other abx if Minocin isn't fully working (ie: tweak > > > > the protocol)? > > > > > > > > > > > > Thanks for any info! > > > > > > > > > > > > Tom > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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