Re: Re: SD/Digestion Question

[Guest guest]

Hi Onyx;

This is probably " watermelon stomack " I never had it but if you go

to the Scleroderma Foundation site I know there is info there.Have you

tested for Celiac or Celiac syndrome as well as food

sensitivities,yeast,mal-absorbtion,heavy metals etc.Over 70% of us have

celiac syndrome that will go away on remission ,or full blown Celiac

disease.The only fix for that is total avoidance of gluten so check out

www.celiac.com for help and recepies. Lynne

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> **************New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local.mapquest.com/?ncid=emlcntnew00000002

> <http://local.mapquest.com/?ncid=emlcntnew00000002>)

>

>

[Guest guest]

I think you need to see a gastroenterologist for a diagnosis. This is the means

by which " watermelon stomach " is diagnosed, not purely by symptoms or guesswork.

Why rely on imperfect diagnoses by other that a specifically trained

diagnostician? An ER doc is not trained in this area. Get scoped. Especially

because the treatment is specific to condition. And if it is something else,

there is a good chance he'll see what it is. Why play guessing games with

something like this?

Jeff

rheumatic

From: lynneandsantos@...

Date: Fri, 10 Oct 2008 21:19:07 -0400

Subject: Re: rheumatic Re: SD/Digestion Question

Hi Onyx;

This is probably " watermelon stomack " I never had it but if you go

to the Scleroderma Foundation site I know there is info there.Have you

tested for Celiac or Celiac syndrome as well as food

sensitivities,yeast,mal-absorbtion,heavy metals etc.Over 70% of us have

celiac syndrome that will go away on remission ,or full blown Celiac

disease.The only fix for that is total avoidance of gluten so check out

www.celiac.com for help and recepies. Lynne

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> **************New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local.mapquest.com/?ncid=emlcntnew00000002

> <http://local.mapquest.com/?ncid=emlcntnew00000002>)

>

>

[Guest guest]

hi Lynne,  this is Dolores.  Need to get that large stomach checked pronto. 

Glad the pain subsided, but the sudden weight gain on you is not normal.  I know

you are a bitty little thing barely making 100 lbs, soaking wet.  Get back to me

on our personal site.  I want to know what is going on.  Love ya kid.  Dodo

From: Jeffery <jefferysa@...>

Subject: RE: rheumatic Re: SD/Digestion Question

rheumatic

Date: Saturday, October 11, 2008, 11:20 AM

I think you need to see a gastroenterologist for a diagnosis. This is the means

by which " watermelon stomach " is diagnosed, not purely by symptoms or guesswork.

Why rely on imperfect diagnoses by other that a specifically trained

diagnostician? An ER doc is not trained in this area. Get scoped. Especially

because the treatment is specific to condition. And if it is something else,

there is a good chance he'll see what it is. Why play guessing games with

something like this?

Jeff

rheumatic@grou ps.com

From: lynneandsantos@ citenet.net

Date: Fri, 10 Oct 2008 21:19:07 -0400

Subject: Re: rheumatic Re: SD/Digestion Question

Hi Onyx;

This is probably " watermelon stomack " I never had it but if you go

to the Scleroderma Foundation site I know there is info there.Have you

tested for Celiac or Celiac syndrome as well as food

sensitivities, yeast,mal- absorbtion, heavy metals etc.Over 70% of us have

celiac syndrome that will go away on remission ,or full blown Celiac

disease.The only fix for that is total avoidance of gluten so check out

www.celiac.com for help and recepies. Lynne

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> ************ **New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local. mapquest. com/?ncid= emlcntnew0000000 2

> <http://local. mapquest. com/?ncid= emlcntnew0000000 2>)

>

>

[Guest guest]

Thanks to all that responded, and yes, I do intend to get tested further. So

glad for now that the stomach has gone down slightly, and most of all, the

pain has subsided. I will make an appt. to see a gastro Dr. for sure.

Gail

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

(http://local.mapquest.com/?ncid=emlcntnew00000002)

[Guest guest]

Hey Dodo,I am not the one with the problem.Sending you a mail as soon as

I finish up some yard work. XXX

> hi Lynne, this is Dolores. Need to get that large stomach checked

> pronto. Glad the pain subsided, but the sudden weight gain on you is

> not normal. I know you are a bitty little thing barely making 100

> lbs, soaking wet. Get back to me on our personal site. I want to

> know what is going on. Love ya kid. Dodo

>

>

>

> From: Jeffery <jefferysa@...

> <mailto:jefferysa%40hotmail.com>>

> Subject: RE: rheumatic Re: SD/Digestion Question

> rheumatic <mailto:rheumatic%40>

> Date: Saturday, October 11, 2008, 11:20 AM

>

> I think you need to see a gastroenterologist for a diagnosis. This is

> the means by which " watermelon stomach " is diagnosed, not purely by

> symptoms or guesswork. Why rely on imperfect diagnoses by other that a

> specifically trained diagnostician? An ER doc is not trained in this

> area. Get scoped. Especially because the treatment is specific to

> condition. And if it is something else, there is a good chance he'll

> see what it is. Why play guessing games with something like this?

>

> Jeff

> rheumatic@grou ps.com

> From: lynneandsantos@ citenet.net

> Date: Fri, 10 Oct 2008 21:19:07 -0400

> Subject: Re: rheumatic Re: SD/Digestion Question

>

> Hi Onyx;

>

> This is probably " watermelon stomack " I never had it but if you go

>

> to the Scleroderma Foundation site I know there is info there.Have you

>

> tested for Celiac or Celiac syndrome as well as food

>

> sensitivities, yeast,mal- absorbtion, heavy metals etc.Over 70% of us

> have

>

> celiac syndrome that will go away on remission ,or full blown Celiac

>

> disease.The only fix for that is total avoidance of gluten so check out

>

> www.celiac.com for help and recepies. Lynne

>

> > As those that have seen me post before already know, I have diffuse

>

> > scleroderma, and recently, I've put on quite a bit of weight. I don't

>

> > know exactly,

>

> > but my guess is that it is around 25 pounds in a matter of about4

>

> > months maybe.

>

> > My abdomen is huge, and seems to get distended after eating something

>

> > like

>

> > two slices of pizza.

>

> >

>

> > I made a trip to the ER on Friday for severe pain on my left side,

>

> > very low,

>

> > where I would expect the ovaries to be located. The diagnosis at that

>

> > time

>

> > was diverticulitis, and that I possibly had an infection, and/or

>

> > blockage in the

>

> > large intestine. I was told to just drink clear liquids for a few days

>

> > and

>

> > give a broad spectrum antibiotic in addition to the minocycline, and

>

> > something

>

> > for pain. After the third day, the pain was greatly diminished, and

>

> > now it is

>

> > barely painful at all, but the large stomach remains.

>

> >

>

> > Obviously, I will continue with Drs., to see what the cause is, but

> I was

>

> > wondering if anyone has experienced something similar to this, to try

>

> > to figure

>

> > out if this is SD related, or of some other cause.

>

> >

>

> > I'm paranoid to eat a full meal now for fear the pain will return.

>

> >

>

> > Thanks ,

>

> >

>

> > Gail

>

> > ************ **New MapQuest Local shows what's happening at your

>

> > destination.

>

> > Dining, Movies, Events, News & more. Try it out

>

> > (http://local. mapquest. com/?ncid= emlcntnew0000000 2

>

> > <http://local. mapquest. com/?ncid= emlcntnew0000000 2>)

>

> >

>

> >

[Guest guest]

I don't know about the pain, but sudden weight gain is often attributed

to an endocrine disorder. Usually, people start with testing the

thyroid. Eventually, you might decide to try digestive enzymes, but if

it is your thyroid, then the enzymes will only carry you so far.

Amy

ONYX8257@... wrote:

>

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> **************New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local.mapquest.com/?ncid=emlcntnew00000002

> <http://local.mapquest.com/?ncid=emlcntnew00000002>)

>

>