Re: Re: I AM IN REMISSION journey!

[Guest guest]

Dear Sally,

You are so sweet to email me tonight. I am not ever giving up!!! Yes, I

will be in remission.............we all will together! Thank you for your

kind thoughts and genuine care. We are all in this together. Some with more

experience than others and that is the beautiful thing. We can all share

our experience and help one another day by day. I learn so much from

everyone.

Doesn't it seem to you like every day you are experiencing something new

within your body? I sure am. Some good some scary but definitely

important.

I met with my Neurologist today for the last leg of my testing for

neuropathy. I have been experiencing a stabbing pain in my feet and

numbness for some time. I lost a toe to a blood clot. Vascular... plaque

build up. My body seems to build it. A blood clot formed in my toe and it

went gangrene in 2004. I worry about loosing anything else.

I did a drug interaction search on Enbrel and Placquenil. I kept reading

how in some rare situations it can cause irreversible nerve damage and

permanent neruopathy. Has anyone else taking placqenil and heard of this

irreversible damage?

I decided to stop taking the placquenil today. I am sure my Rhumy will not

be happy when I see her in a few weeks. She said she wants me on an adjunct

to the Enbrel. I will chance the pain that I know could come with my RA and

the wrath from her....lol. I feel like I'm on a tight rope.These

" bandaids " have given me the ability to function again at work and live

without feeling like I wanted to die daily. I am a little frightened to let

them go, but I need my immune system back.

Ive been on LND for over a month and Minocin for 3 weeks. I had a short

break on the minocin due to some necessary dental work. I had to have teeth

pulled and was on Amoxicillin for a week to clear a serious infection. My

dentist said that I should not worry about cavitations... thank God. They

were just rotten from all the illness over the years and needed to come

out.

Sorry for getting so long. Good news! I was chosen for a position with a

new company today. I am thrilled for the opportunity to get into a new

industry and start anew. Today is a good day!

Lindsey

On Fri, Oct 22, 2010 at 5:09 PM, <mannasal@...> wrote:

>

>

>

> Lindsey,

> I keep reading your email and how fortunate to have all of you in this

> group. I feel your caring, and your struggling, and hold us all in my heart.

> Now you are starting this " I AM IN REMISSION " journey! Keep us all posted

> and any concerns, and WINS! I feel like the miners in the cave (now thank

> God out) in Chilie: It is only a WIN when we all get out!

> Blessings, Sally

>

> rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Lindsey,

I am so glad you changed to the antibiotic protocol. I did too several years ago

and I am doing well, not in a total remission yet, but working toward it. Keep

it up.

Eva

> >

> > From: Sauve <moniquesauve@...

<moniquesauve%40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca>>

>

> > Subject: rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Thank you Eva. We WILL get there!!

Lindsey

On Fri, Oct 22, 2010 at 9:34 PM, Eva Holloway <holloway-eva@...>wrote:

>

>

> Lindsey,

> I am so glad you changed to the antibiotic protocol. I did too several

> years ago and I am doing well, not in a total remission yet, but working

> toward it. Keep it up.

> Eva

>

>

>

> > >

> > > From: Sauve <moniquesauve@...

<moniquesauve%40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> > 40shaw.ca><moniquesauve%

> > 40shaw.ca><moniquesauve%

> > 40shaw.ca><moniquesauve%

> > 40shaw.ca>>

> >

> > > Subject: rheumatic Re: Vitamin D Deficiency

> > > rheumatic <rheumatic%40><rheumatic%

> 40> <rheumatic%

> > 40> <rheumatic%

> > 40> <rheumatic%

> > 40> <rheumatic%

> > 40>

> >

> > > Date: Friday, October 1, 2010, 3:40 PM

> > >

> > >

> > >

> > > there are many people with RA on the MP protocol. some with RA have

> > > done very well on it - better than they did on ap and the nice thing

> > > about is far lower doses of abx are used on MP. it works for some with

> > > RA and not for others. we have to find what works for us but it is an

> > > option for some to consider.

> > >

> > > monique

> > >

> > >

[Guest guest]

Congratulations Lindsey! On your new job, starting AP and turning a corner!

I'm always amazed when someone mentions " going to work " You can really do

that?? I rarely keep Dr. apts because of difficulity getting out. I stopped

mextrate over 2 years ago, therefor have not gone back to rhumy....not wanting

to take the drugs. Was that a mistake? Perhaps. 4 years later and my hips are

gone and I feel like my knees and shoulders are going. Yet, I'm doing things

hoping to help. It's tough, and somewhat harmful, to look back and wonder if I

should have done this or that...........Seems like for no reason I have a good

day, and for no reason, I have a bad day. Just now starting my day....so wish

to make it a good one! And a good one to you all, Sally

rheumatic Re: Vitamin D Deficiency

> rheumatic <rheumatic%40> <rheumatic%

40> <rheumatic%

40> <rheumatic%

40> <rheumatic%

40>

> Date: Friday, October 1, 2010, 3:40 PM

>

>

>

> there are many people with RA on the MP protocol. some with RA have

> done very well on it - better than they did on ap and the nice thing

> about is far lower doses of abx are used on MP. it works for some with

> RA and not for others. we have to find what works for us but it is an

> option for some to consider.

>

> monique

>

>

[Guest guest]

Hello Eva,

what is " several years ago " and how are you feeling. Thank yo, Sally

rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Thank you Sally! I am so ready for a change. I have to work for my

insurance and of course to pay my way. I wonder too what is the right thing

to do... all the time. It is good to be associated with these groups to see

how others are dealing with the same things we are daily. I hope you have a

fantastic day today Sally. You and everyone!!

Lindsey

On Sat, Oct 23, 2010 at 1:03 PM, <mannasal@...> wrote:

>

>

> Congratulations Lindsey! On your new job, starting AP and turning a corner!

> I'm always amazed when someone mentions " going to work " You can really do

> that?? I rarely keep Dr. apts because of difficulity getting out. I stopped

> mextrate over 2 years ago, therefor have not gone back to rhumy....not

> wanting to take the drugs. Was that a mistake? Perhaps. 4 years later and my

> hips are gone and I feel like my knees and shoulders are going. Yet, I'm

> doing things hoping to help. It's tough, and somewhat harmful, to look back

> and wonder if I should have done this or that...........Seems like for no

> reason I have a good day, and for no reason, I have a bad day. Just now

> starting my day....so wish to make it a good one! And a good one to you all,

> Sally

>

>

> rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

When I went for disability (after 3 years of being denied) they did it by close

circuit here in Fairfield, because I could not travel. My attorney did not

think I would get approved because I was doing alternative and not drugs. At

one point, the Judge said: Ms. Moburg, I see that you are in a wheelchair, do

you think you are doing the right thing about not taking the drugs? " Well, I

burst out crying and said " you know Your Honor, I think and pray about that ever

day if I am doing the right thing " I was awarded early SS, and Medicare. And

you know what, honestly, I still wonder if I'm on the right path. It was quite

" Divine " on how AP came to me, and then to have Dr. Sinnott 4 hours from me

(although haven't been able to make the trip....yet) and all the true Divine

beings in this group.....that I'm staying with the AP and I'm on my way to

wellness. I'm am somewhat impatient. I'm 60 and have LOTS OF LIVING TO DO!

Sally

rheumatic Re: Vitamin D Deficiency

> rheumatic <rheumatic%40> <rheumatic%

40> <rheumatic%

40> <rheumatic%

40> <rheumatic%

40> <rheumatic%

40>

> Date: Friday, October 1, 2010, 3:40 PM

>

>

>

> there are many people with RA on the MP protocol. some with RA have

> done very well on it - better than they did on ap and the nice thing

> about is far lower doses of abx are used on MP. it works for some with

> RA and not for others. we have to find what works for us but it is an

> option for some to consider.

>

> monique

>

>

[Guest guest]

Sally,

I was on a high dose of Prednison for two years (between 60 mg - 40mg)

sometimes a shot of steroids as high as 1000 mg because of lung issues, then I

was able to go down and I weaned myself off it after 3 1/2 years. I also took

cytoxen (chemo) for a year which didn't help at all. Then I had to take Cellcept

because I had pulmonary fibrosis, part of RA, The rheumy put me on Enbrel and I

was all that time still on Prednison. I started having problems with sinus

infections, hemorraghes in the eyes, double vision. I wrote to Roche` who makes

Cellcept and they told me the interaction of Cellcept, Prednison and Enbrel can

cause about 8 different eye problems. I could hardly walk. I had sores on my

feet and also on my hands from the medication. I started AP and it took 2 1/2

years to stop all that. I have been almost three years on Biaxin and Minoxin.

Right now I take Minoxin and Cipro and will go back to Biaxin after I have my

dental work done. Next week I

will be taking clindamycin for dental issues. I was in a wheelchair three years

ago. Now I can walk even so I had a fall in July and had to have my hip

replaced. I am walking about two miles a day with a rollator or a cane. So you

can see it been " some time ago " for me, but the antibiotic protocol works even

if it is slow.

Take care,

Eva

..

> >

> > From: Sauve <moniquesauve@...

<moniquesauve%40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca><moniquesauve%

> 40shaw.ca>>

>

> > Subject: rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

OMG Eva! This almost makes me angry....NO ONE should go through any of this! I

wonder if I had gone the drug route, if I would be on all those drugs, and nasty

side effects....or is it/was it better just to stay home these last 4 years.

Your posting this without a doubt gives me (and everyone reading this), not

hope, but KNOW that AP is the answer and our life is coming back. 2 and 1/2

years to get off all those drugs and out of wheelchair at first seemed like a

long time....but gads, what you've been through, 2 and 1/2 years is so short

compared to a lifetime of degenerating. How long have you had RA? Are you

using a cane because of hip replacement? Do you have problems with your other

joints? Thank you for answering all these questions. I must say, since being

with the group for 2 months, I'm learning more and more about RA and how truly

horrible it is.....didn't learn much from rhumy except to take the drugs. With

all the pain I was in, and mostly in bed, I still didn't want the drugs. It was

tough living alone, and still is.

Reading these posts, I feel like I got off easy........and I want my life back

to the fullest! Thank you Eva! Sally

rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Great deal Sally!!

On Sun, Oct 24, 2010 at 2:46 PM, <mannasal@...> wrote:

>

>

> The in fared mat is $1,700.00, I'm hoping to get it for $1,000.00. sally

>

>

> rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >