RE: Re:meth

[Guest guest]

Hi Sue;

How are you doing now that you are on AP? I was in the same boat

as you 8 years ago when I discovered AP.Today you would never know that

I was ever sick .I do have the odd acke and pain and of course systemic

yeast and leaky gut from AP that is near impossible to control even

with tons of probiotics and Diflucan but at least I am alive and

kicking and living a normal hectic life

Lynne G. /SD

> I remember taking metho when I was in my 2nd year of scleroderma....of

> course, the rheumys didn't help me at all until I BEGGED to have

> something to help me. Metho was awful....I was becoming so deformed

> that I would stand in the mirror and cry and thought I was a host to

> an alien being. After 6 months I said " NO MORE " . I did my research and

> found AP treatment and my GP prescribed it (after I was looked at like

> a freak show). I mean....the nurses and the doc were crying because of

> my deformity and my skin. Anyhoo.....I have to have humor....I fired

> my rheumys and found my research doc who said " I'm so glad that you

> are on minocin...it helps 1 out of 3 sd patients.

>

>

>

>

[Guest guest]

, " my research doc who said " I'm so glad that you are on minocin...it helps

1 out of 3 sd patients. " Is that 1 out of 3 of his patients? Or would he be

relying on some other research/study that shows this? And, does " help " mean

from his perspective, significantly helped, slightly helped? Just trying to put

such rosy numbers into perspective, afterall that's a pretty good batting

average, but it don't mean much if your still losing.

Jeff

rheumatic

From: mitchell.ok@...

Date: Sat, 19 Apr 2008 05:27:50 -0700

Subject: rheumatic Re:meth

I remember taking metho when I was in my 2nd year of

scleroderma....of course, the rheumys didn't help me at all until I BEGGED to

have something to help me. Metho was awful....I was becoming so deformed that I

would stand in the mirror and cry and thought I was a host to an alien being.

After 6 months I said " NO MORE " . I did my research and found AP treatment and

my GP prescribed it (after I was looked at like a freak show). I mean....the

nurses and the doc were crying because of my deformity and my skin.

Anyhoo.....I have to have humor....I fired my rheumys and found my research doc

who said " I'm so glad that you are on minocin...it helps 1 out of 3 sd patients.