Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 PLEASE how do I get the cream i read daily--all the comments BUT have had this for almost 4 years NON STOP so never add much-who wants to listen to another never ending story BUT am very interested in the gastrocm cream--how do i get it thanks brenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 OK thanks does the gastrocrom itself help with the hives brenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 jackie, That has always been my problem...I would find something that would maybe sooth the pain and do a little good...But I needed something that would heal...I want this crap gone..I have had it long enough...LOL... By the way, I wanted to ask if you remember as a child if you were allergic to tylenol or aspirin...Ty could never take tylenol by mouth...I had to always keep TYLENOL sypositories in case he had fever or pain...If I gave it to him by mouth, he would throw it up...Did not break him out because he never kept it long enough...I think now he takes it alright...He has never mentioned it...Just wondering... I do however think he is right about having this for years...and it has laid dormant until he got into something at Basic Training that set it off...Those pesticides that he got into at 2 years old and caused the little red spots at the beginning and later that night turned into what looked just like his whealts do now...Except they were not whealts...just looked like when we used to study how two cells would merge together...the little spots grew just like those cells...two would grow into one big one...they had a red ring around them and a tiny dot in the middle...and all his joints were swollen...This still baffles me and I still keep coming back to that episode...What do you think... Rita > That is GREAT, Rita! I am so glad it's helping. I've also noticed that the > gastrocream helps with healing. I am normally a ssslllooowww healer - I've > had simple little cuts take months to heal completely, and as a result I > always scar bad. I had a scratch on my hip, hives were coming up around the > scratch, so smeared the cream all over that hip, and not only did the hives > go away, but the scratch healed up in a few days! Truly amazing stuff.... > > Air hugs, > Jackie > > Life is tough, but I'm tougher. > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Nope, never had problems with aspirin or Tylenol. Can't take Ibuprofen, too hard on my stomach. The merging spots sound like typical hives, other than the middle dot... Air hugs, Jackie Life is tough, but I'm tougher. ----Original Message Follows---- From: rita_holi@... Reply-To: urticaria To: urticaria Subject: Re: Gastrocrom Cream Date: Sat, 17 Nov 2001 22:48:20 -0000 jackie, That has always been my problem...I would find something that would maybe sooth the pain and do a little good...But I needed something that would heal...I want this crap gone..I have had it long enough...LOL... By the way, I wanted to ask if you remember as a child if you were allergic to tylenol or aspirin...Ty could never take tylenol by mouth...I had to always keep TYLENOL sypositories in case he had fever or pain...If I gave it to him by mouth, he would throw it up...Did not break him out because he never kept it long enough...I think now he takes it alright...He has never mentioned it...Just wondering... I do however think he is right about having this for years...and it has laid dormant until he got into something at Basic Training that set it off...Those pesticides that he got into at 2 years old and caused the little red spots at the beginning and later that night turned into what looked just like his whealts do now...Except they were not whealts...just looked like when we used to study how two cells would merge together...the little spots grew just like those cells...two would grow into one big one...they had a red ring around them and a tiny dot in the middle...and all his joints were swollen...This still baffles me and I still keep coming back to that episode...What do you think... Rita > That is GREAT, Rita! I am so glad it's helping. I've also noticed that the > gastrocream helps with healing. I am normally a ssslllooowww healer - I've > had simple little cuts take months to heal completely, and as a result I > always scar bad. I had a scratch on my hip, hives were coming up around the > scratch, so smeared the cream all over that hip, and not only did the hives > go away, but the scratch healed up in a few days! Truly amazing stuff.... > > Air hugs, > Jackie > > Life is tough, but I'm tougher. > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ If you do wish to unsubscribe then you can click on the following link: urticaria-unsubscribeegroups ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 I am not too sure about that middle dot...thats been 19 years ago...whew...how time flies...i have a picture of him but it was a poloroid and not too clear...it was the strangest thing i had ever seen...started at his feet (like they came in at the bottom of his feet) and spread up his body and left his feet...like they just went off the top of his head...I told you this child was weird...LOL..He's gonna love this...But it was sort of alien looking...lol....have a good weekend... Rita > > That is GREAT, Rita! I am so glad it's helping. I've also noticed > that the > > gastrocream helps with healing. I am normally a ssslllooowww healer > - I've > > had simple little cuts take months to heal completely, and as a > result I > > always scar bad. I had a scratch on my hip, hives were coming up > around the > > scratch, so smeared the cream all over that hip, and not only did > the hives > > go away, but the scratch healed up in a few days! Truly amazing > stuff.... > > > > Air hugs, > > Jackie > > > > Life is tough, but I'm tougher. > > > > > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria > (hives). We strive to support and lift each other as a worldwide > cyber-family. > > We share whatever needs to be shared to help one another in our struggle > with Chronic Urticria. Information provided in this forum is not to be taken > as medical advice. Always consult your health professional before trying > anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a > prefix of NCU -. This is done out of respect for those who do not wish to > read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 awwwww Rita, we love you too!!! Oh, by the way, that thing you sent me was something else!!! thanks for sharing it with me, I wish the terrorits would have heard it too!! talk soon, Ann >From: rita_holi@... >Reply-To: urticaria >To: urticaria >Subject: Gastrocrom Cream >Date: Sat, 17 Nov 2001 22:25:55 -0000 > >I wanted to again praise this cream...I have used it for five days now >and after over 30 years of scratching and itching and the pain from >the cracked hands...My thumbs are smooth and my wrists are on their >way...Jackie, thank you so much for ever mentioning it and >thank you for the samples of Gastrocrom... >I mixed up some yesterday and mailed it off to Ty...I sure hope he >gets some relief from his URT..This stuff is amazing...I have used >everything over the years..Spent a small fortune and just really gave >up on the dermatologists... >I thank God everyday for finding this site...You all have helped so >much with advice and support... > >Love, >Rita > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Hi . You will need to get a prescription from your doctor for the Gastrocrom, which is an oral med (cromolyn sodium suspension) designed specifically for mastocytosis. It is a mast cell stabilizer, which prevents mast cells from degranulating. The cream is a homemade recipe developed by a nurse and a pharmacist who both have masto. You mix gastrocrom with glycerin and body lotion or cream. If you can get your hands on the gastrocrom, I'll be happy to send you the recipe. Air hugs, Jackie Life is tough, but I'm tougher. ----Original Message Follows---- From: we4nnm@... Reply-To: urticaria To: urticaria Subject: Re: Gastrocrom Cream Date: Sat, 17 Nov 2001 20:07:37 EST PLEASE how do I get the cream i read daily--all the comments BUT have had this for almost 4 years NON STOP so never add much-who wants to listen to another never ending story BUT am very interested in the gastrocm cream--how do i get it thanks brenda ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ If you do wish to unsubscribe then you can click on the following link: urticaria-unsubscribeegroups ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 , According to people who know more about it than I do, taking oral gastrocrom is most likely to help someone if they have gastro-intestinal involvement (because they are more likely to have mastocytosis to begin with). The cream should help anyone with hives. By preventing the mast cells from degranulating, you prevent the histamine which causes the hives from being released, not to mention all the other chemicals that come from mast cells, like PGD2, leukotreines and heparin. In my case, the oral gastrocrom has made a huge difference in my hives and most of my other symptoms. I still have to watch out for my known triggers, and if I miss a dose or don't take my other meds on time, I still break out. In those cases, the cream takes the hives down in minutes for me. Air hugs, Jackie Life is tough, but I'm tougher. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 I still am amazed about how this stuff works...We really do not know what sets it off or what keeps it at bay...is it meds, diet, stress, so many different combos...I am still not so sure that I do not have somewhat of URT with my skin...I don't believe I do, but then again, sometimes someone says something that rings a bell...I guess we all have that tendency..and I am learning of a couple of more in my family that have somewhat of the same stuff but just periodically...Hopefully if we keep putring 3 and 2 together we will come up with the answer...it may not be for us or our children, but maybe our grandchildren..Thanks Sandy...I don't think so much that I dreamed the foot to head thing now...Hope you find some relief.. Rita > Rita, > Thought I would throw my 2cents in here. I was exposed to pesticides 8 years > ago and my reaction was just the opposite of Ty's. My hives started on my > scalp and from there went completely down my entire body to the bottoms of my > feet. I just wish that it would of kept right on going but it didn't. And I > will be the first to admit I really did look like an ALIEN, the whole right > side of my face was swollen. My right eye was swollen shut, my right ear > I thought was just going to pop off even the right side of my forehead was > protruding out, just all to wierd and of course nobody could explain any of > it. Thanks for listening and glad to hear Ty is getting the help he needs. > p.s. Ty hang in there with the teeth thing it will get better. > Sandy B. in IN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Hi Rita, I am so glad it is helping. Over the summer we went camping and I had bug bites on my legs and I put some gastrocream on and it was like heaven. I use it a lot on Livi as she is always itching and it works so well. I really hope it helps Ty too. I think it will. Love, ~Alena's Mom Gastrocrom Cream > I wanted to again praise this cream...I have used it for five days now > and after over 30 years of scratching and itching and the pain from > the cracked hands...My thumbs are smooth and my wrists are on their > way...Jackie, thank you so much for ever mentioning it and > thank you for the samples of Gastrocrom... > I mixed up some yesterday and mailed it off to Ty...I sure hope he > gets some relief from his URT..This stuff is amazing...I have used > everything over the years..Spent a small fortune and just really gave > up on the dermatologists... > I thank God everyday for finding this site...You all have helped so > much with advice and support... > > Love, > Rita > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
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