Taking daughter to Philly...

[Guest guest]

Hi,

My wife and I are taking our daughter to Philly for her first visit to the

pediatric

rheumatologist at St. 's. She's been seen twice by a rheumatologist

up here --

once for her initial diagnosis, and one follow-up.

I wrote a couple weeks back that she has exhibited incredibly weak

abdominal/trunk

muscles and her hands have been going starkly white during the cold...which I

have

learned is possibly Raynaud's Phenomenon, something we'll tell the rheumie

tomorrow.

Since then, her foot has bruised somewhat mysteriously. I say somewhat because

although she plays soccer and uses her foot for obvious reasons, she doesn't

remember

banging it that hard. The bruising looked kind of patchy and spread out,

too...not like she

was whacked in one spot.

Lastly, she passed out when her blood was taken on Saturday -- five vials. She

never has

passed out before, so today we got the results and it shows her red blood cell,

hemaglobin, and HCT levels are all below the low-end of the range.

I still have concern over the diagnosis and am just reaching out to see if

there anyone

might suggest some questions that would be good to ask that we may not be

thinking of.

Thanks and God bless you all.

Lee