Re: Re: SD - For Gail, for Debbie

[Guest guest]

I think Gail is confused. What happened was I and

Dolores responded to somebody's email regarding our

experience with Dr. T in boston. Dr. T rx minocin at

first visit and at the second visit he only spends few

min to see the patient. Then I found Dr. whitman and

am happy with him. In live in NY city , so I don't

have to travel to boston to see Dr. T. I emailed to

give the name and address of Dr whitman to the other

member. I guess Gail thought Dr whitman is the dr we

were taking about.

Actually Dr. whitman give me prescription for

clindomycin and two other antibiotics.

soheila

<Debbullwinkle@...> wrote:

> Hum, perhaps I am confused. I, too, see Dr. Whitman

> and he has rx'd many antibiotics, besides minocin.

> Doxy, Clindy, Zithro, etc...as well as other Dmards.

> Dr. Whitman also gives me a detailed list of tests,

> labs he wants done in my home town, so my insurance

> covers the testing. DR. Whitman is also very good

> about emailing and responding to questions and

> concerns...and Dr. Whitman was instrumental in my

> receiving photopheresis for my SD lung

> condition...when NONE of my local physicians had a

> clue..(other than long, massive doses of pred) Dr.

> Whitman prescribed this treatment, photopheresis

> and then proceeded to go to bat for me with my

> insurance company so I could receive a trial of

> photopheresis...The rest, as they say, is history. I

> have now been receiving photopheresis for the past 3

> years, my lungs are stable and I am not on pred! I

> am now slowly weaning between treatments. Without

> DR. Whitman, I don't know where I would be today,

> many if not all of my local physicians shrugged and

> one suggested, " Why are you fighting so hard, this

> disease is terminal " ....Just a few of my thoughts.

> Debbie

> Re: rheumatic Re: SD - For Gail

>

>

> I dont mean to offend anyone, but why go to Dr

> Whitman when all he seems to rx is mino. One can get

> that locally. And why cant he tell your local doctor

> what tests he may recommend?

>

> I wrote him and he kindly wrote back saying there

> is no cure and he cant help. It sucked, but it would

> have been even worse to travel to get that info.

>

> That is my personal experience, i know its not

> everyones and I havent seen him i admit. But if its

> true all he rx's is Mino and thats what i learned,

> then it seems like a lot of trouble. I myself for 2

> years have been looking for AP Specialist who knows

> what combo of antivbiotics to rx and how and when to

> take along with any supps they recommend. Mino is

> pretty cut and dry it seems.

>

>

>

> > Can you please e-mail me the name and location

> of

> > your doctor as well.

> > Thanks Gail

> >

> >

> >

> > ************ **Get trade secrets for amazing

> burgers.

> > Watch " Cooking with

> > Tyler Florence " on AOL Food.

> >

> (http://food. aol.com/tyler- florence? video=4 & ?

> NCID=aolfod00030 000000002)

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

Sohelia,

Oh good, I have also seen DR. T. He did order mino for me...but my experience

was much the same as written on here. I have found DR W to be a better, long

term physician..covering all my issues with SD and RA...and extraordinarily

caring and supportive. I adore that man! I firmly believe I would not be alive

with his attention to detail and his knowledge of these diseases.

Thanks for clarifying that issue. Thanks, Debbie

Re: rheumatic Re: SD - For Gail

>

>

> I dont mean to offend anyone, but why go to Dr

> Whitman when all he seems to rx is mino. One can get

> that locally. And why cant he tell your local doctor

> what tests he may recommend?

>

> I wrote him and he kindly wrote back saying there

> is no cure and he cant help. It sucked, but it would

> have been even worse to travel to get that info.

>

> That is my personal experience, i know its not

> everyones and I havent seen him i admit. But if its

> true all he rx's is Mino and thats what i learned,

> then it seems like a lot of trouble. I myself for 2

> years have been looking for AP Specialist who knows

> what combo of antivbiotics to rx and how and when to

> take along with any supps they recommend. Mino is

> pretty cut and dry it seems.

>

>

>

> > Can you please e-mail me the name and location

> of

> > your doctor as well.

> > Thanks Gail

> >

> >

> >

> > ************ **Get trade secrets for amazing

> burgers.

> > Watch " Cooking with

> > Tyler Florence " on AOL Food.

> >

> (http://food. aol.com/tyler- florence? video=4 & ?

> NCID=aolfod00030 000000002)

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

Wow! You all got so confused with Dr.'s names and who said what. Dr T. is in

Boston. He is the one who prescribes Minocin only. Dr W. is in NY and he

prescribes lots of other antibiotics as well as Minocin and he is the one that

ordered the photophoresis. I, Dolores did not continue with them because I

wanted an MP doc who was strictly an MP doc. and Dr. W. did not want to follow

MP. Neither does Dr T. I have nothing against either of them. They just doesn't

follow MP. I am on MP now and doing well. Have recently relocated from NY to

Corpus Christi, Texas and am again looking for a doc who follows MP. I taught

one, I guess I'll have to teach another. Such is life. Read carefully what is

being said before going off. I know all about brain fog and that mix up was a

classic example of it. Take care everyone and good luck with your journeys.

Dolores

DEBBIE GIBSON <Debbullwinkle@...> wrote: Sohelia,

Oh good, I have also seen DR. T. He did order mino for me...but my experience

was much the same as written on here. I have found DR W to be a better, long

term physician..covering all my issues with SD and RA...and extraordinarily

caring and supportive. I adore that man! I firmly believe I would not be alive

with his attention to detail and his knowledge of these diseases.

Thanks for clarifying that issue. Thanks, Debbie

Re: rheumatic Re: SD - For Gail

>

>

> I dont mean to offend anyone, but why go to Dr

> Whitman when all he seems to rx is mino. One can get

> that locally. And why cant he tell your local doctor

> what tests he may recommend?

>

> I wrote him and he kindly wrote back saying there

> is no cure and he cant help. It sucked, but it would

> have been even worse to travel to get that info.

>

> That is my personal experience, i know its not

> everyones and I havent seen him i admit. But if its

> true all he rx's is Mino and thats what i learned,

> then it seems like a lot of trouble. I myself for 2

> years have been looking for AP Specialist who knows

> what combo of antivbiotics to rx and how and when to

> take along with any supps they recommend. Mino is

> pretty cut and dry it seems.

>

>

>

> > Can you please e-mail me the name and location

> of

> > your doctor as well.

> > Thanks Gail

> >

> >

> >

> > ************ **Get trade secrets for amazing

> burgers.

> > Watch " Cooking with

> > Tyler Florence " on AOL Food.

> >

> (http://food. aol.com/tyler- florence? video=4 & ?

> NCID=aolfod00030 000000002)

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>