Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!

[Guest guest]

Hi

I am confused by your posts.

First you said you were given Aldosterone to take. Then Fluodrocortisone? Which

is it?

I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

Lethal Lee

[Guest guest]

Typing om ny iPhone from the er. Isnt fludro aldoSterone! My serum potassium was

at 3.8 about 3 hour after the irregular pulse. The range is 3.6 to 4.6 here.

Potassium was the one sample that didnt make the shipping to germany. just

talked to a heart doc herr and he said i should takk to hertoghe before taking

fludro again. according to my german fullblood sample my tissue potassium is too

high and sodum tissue too Low. I am clueless.

>Hi

>

>I am confused by your posts.

>

>First you said you were given Aldosterone to take. Then Fluodrocortisone? Which

is it?

>

>I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

>

>If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

>

>Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

>

>I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

>

>What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

>

>Lethal Lee

>

[Guest guest]

Lee,

I have a question for you,please.After you started the florinef did your

tolerance to T3 improved? By that I mean can you tolerate higher dose of T3 in a

result of taking florinef? I don't know if that should make a difference in this

matter but our bodies are not predictable in our sickness,so nothing is going to

surprise me anymore.

Thank you

Milena

>

> Hi

>

> I am confused by your posts.

>

> First you said you were given Aldosterone to take. Then Fluodrocortisone?

Which is it?

>

> I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

>

> If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

>

> Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

>

> I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

>

> What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

>

> Lethal Lee

>

[Guest guest]

Fludrocortisone is not the same thing as aldosterone. Fludro is a synthetic

corticosteroid (which is used primarily to replace the missing hormone

aldosterone). http://en.wikipedia.org/wiki/Fludrocortisone

>

> >Hi

> >

> >I am confused by your posts.

> >

> >First you said you were given Aldosterone to take. Then Fluodrocortisone?

Which is it?

> >

> >I have only taken brand name Florinef. I have seen folks say the generics

seem weaker. As to the compounded I have only heard of bioidentical Aldosterone

being done. never heard of compounded Fluodro before. It's not a slow release

formula at all? Do you know exactly what fillers are used in it?

> >

> >If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

> >

> >Just need to get hold of empty gelatin caps. Can order online or source from

a compounding pharmacy. Then gently prise the capsule apart & split powder into

3 or 4 caps.Then you can start at lower dose & have option to take more than

once a day if needed (I need to take twice a day). Using a folded sheet of paper

can help with pouring into caps (empty onto paper, divide up with knife or

razor, then using folded paper pour into cap.

> >

> >I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

> >

> >What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

> >

> >Lethal Lee

> >

>

[Guest guest]

Thom,

If your tissue potassium is high ,that is the RBC blood test,which measures the

tissue levels,which are the important ones.If your sodium is low and potassium

is high ,it's usually from from low aldosterone.My electrolytes are the same

like yours and to level them we need the aldosterone. The aldosterone is the one

the body makes and to replace it with bio identical has to be made from a

pharmacy and it is aldosterone,it's compounded.The chemical medicine,florinef is

not aldosterone is a medicine ,which does the same job like the aldosterone

produced from the body ,but is not aldosterone. Some people can't tolerate

florinef because it's stronger medicine and have to get compounded bio identical

aldosterone made in a compound form.That what is the difference between the

aldosterone prepared by the pharmacy for you and from the pharmaceutical

florinef.

I hope that helped.

Milena

>

> >Hi

> >

> >I am confused by your posts.

> >

> >First you said you were given Aldosterone to take. Then Fluodrocortisone?

Which is it?

> >

> >I have only taken brand name Florinef. I have seen folks say the generics

seem weaker. As to the compounded I have only heard of bioidentical Aldosterone

being done. never heard of compounded Fluodro before. It's not a slow release

formula at all? Do you know exactly what fillers are used in it?

> >

> >If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

> >

> >Just need to get hold of empty gelatin caps. Can order online or source from

a compounding pharmacy. Then gently prise the capsule apart & split powder into

3 or 4 caps.Then you can start at lower dose & have option to take more than

once a day if needed (I need to take twice a day). Using a folded sheet of paper

can help with pouring into caps (empty onto paper, divide up with knife or

razor, then using folded paper pour into cap.

> >

> >I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

> >

> >What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

> >

> >Lethal Lee

> >

>

[Guest guest]

Back from the ER.So what I was trying to ask about was this:My serum potassium has always been within the range. 2 days ago it was 3.8, and the range is 3.6 to 4.6. Now, if my tissue potassium is high, which I believe it is, can I get problems (arrhythmia) from the high tissue potassium EVEN if the serum potassium is normal?And how will drinking sea salt affect my potassium?And shouldn't me taking Fludrocortisone, 2 days ago, just once, IMPROVE my potassium and pull it down, instead of giving me problems?My average resting pulse has come down in the past days. Normally it's been like 80-85 in the past few months, then 1 week with 95 (probably due to infection), and now it's more like 60. I think a slower resting pulse CAN MEAN I have too much potassium in my

tissue.Thanks!Subject: Re: Back from the ER again/Details about Hertoghe/New FT3 labs from last night!To: RT3_T3 Date: Sunday, March 14, 2010, 1:34 AM

 

Thom,

If your tissue potassium is high ,that is the RBC blood test,which measures the tissue levels,which are the important ones.If your sodium is low and potassium is high ,it's usually from from low aldosterone. My electrolytes are the same like yours and to level them we need the aldosterone. The aldosterone is the one the body makes and to replace it with bio identical has to be made from a pharmacy and it is aldosterone, it's compounded.The chemical medicine,florinef is not aldosterone is a medicine ,which does the same job like the aldosterone produced from the body ,but is not aldosterone. Some people can't tolerate florinef because it's stronger medicine and have to get compounded bio identical aldosterone made in a compound form.That what is the difference between the aldosterone prepared by the pharmacy for you and from the pharmaceutical florinef.

I hope that helped.

Milena

>

> >Hi

> >

> >I am confused by your posts.

> >

> >First you said you were given Aldosterone to take. Then Fluodrocortisone? Which is it?

> >

> >I have only taken brand name Florinef. I have seen folks say the generics seem weaker. As to the compounded I have only heard of bioidentical Aldosterone being done. never heard of compounded Fluodro before. It's not a slow release formula at all? Do you know exactly what fillers are used in it?

> >

> >If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at once. You say the compounding capsules are 0.100mg each? You CAN split them up. I do it with the Melatonin caps I buy.

> >

> >Just need to get hold of empty gelatin caps. Can order online or source from a compounding pharmacy. Then gently prise the capsule apart & split powder into 3 or 4 caps.Then you can start at lower dose & have option to take more than once a day if needed (I need to take twice a day). Using a folded sheet of paper can help with pouring into caps (empty onto paper, divide up with knife or razor, then using folded paper pour into cap.

> >

> >I am confused too as to why you say Serum Potassium was high? You mention a result of 4.1 which I would consider far too low. Did you also get a RBC Potassium same time as the serum Potassium? Was that one high? With a Potassium of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is atarted.

> >

> >What did Dr Hertoghe say about your levels? Did he give you Lab request to retest after starting it?

> >

> >Lethal Lee

> >

>

[Guest guest]

>And how will drinking sea salt affect my potassium?And shouldn't me taking

Fludrocortisone, 2 days ago, just once, IMPROVE my potassium and pull it down,

instead of giving me problems?

I doubt that it's the Fludro that caused it.

You said it yourself your sodium was low because you were failing to

take salt

Nick

[Guest guest]

Hi Milena

I was only on 90mg NTH when I started Florinef. After Florinef & electrolytes

were sorted I increased (slowly) to 4 1/2 grains.

I " tolerated " the NTH fine meaning didnt have bad symptoms from it.

However never had resolution of Hypo either & was still gaining weight like

crazy.

Then discovered the lousy rt3 ratio had not improved at all.

So started T3 only ~6 months after Florinef. That stopped the weight gain &

cleared brain fog almost immediately

It took 4 months & dosed up to 150mcg Tertroxin to clear the Rt3 & go Hyper.

Dropped dose to 80-100mcg T3. Finally started losing weight (17 kilos in 15

months so far). However energy improvements were very gradual & now 14 months

later are MUCH better But not perfect.

Lethal Lee

>

> Lee,

> I have a question for you,please.After you started the florinef did your

tolerance to T3 improved? By that I mean can you tolerate higher dose of T3 in a

result of taking florinef? I don't know if that should make a difference in this

matter but our bodies are not predictable in our sickness,so nothing is going to

surprise me anymore. Thank you > Milena

[Guest guest]

I have also successfully divided up the contents of powder-filled capsules.

Takes a little precision work but is not difficult. I bought my empty capsules

at a health food store.

>

> Hi

>

> I am confused by your posts.

>

> First you said you were given Aldosterone to take. Then Fluodrocortisone?

Which is it?

>

> I have only taken brand name Florinef. I have seen folks say the generics seem

weaker. As to the compounded I have only heard of bioidentical Aldosterone being

done. never heard of compounded Fluodro before. It's not a slow release formula

at all? Do you know exactly what fillers are used in it?

>

> If it is Fluodrocortisone many cannot just jump into taking 0.100mg all at

once. You say the compounding capsules are 0.100mg each? You CAN split them up.

I do it with the Melatonin caps I buy.

>

> Just need to get hold of empty gelatin caps. Can order online or source from a

compounding pharmacy. Then gently prise the capsule apart & split powder into 3

or 4 caps.Then you can start at lower dose & have option to take more than once

a day if needed (I need to take twice a day). Using a folded sheet of paper can

help with pouring into caps (empty onto paper, divide up with knife or razor,

then using folded paper pour into cap.

>

> I am confused too as to why you say Serum Potassium was high? You mention a

result of 4.1 which I would consider far too low. Did you also get a RBC

Potassium same time as the serum Potassium? Was that one high? With a Potassium

of 4.1 you would definitely need rx Potassium to keep up levels after Fluodro is

atarted.

>

> What did Dr Hertoghe say about your levels? Did he give you Lab request to

retest after starting it?

>

> Lethal Lee

>

[Guest guest]

Lee,

Thank you for your respond.It's clear that all works together and when one part

is off that affects all.I don't know if fixing the electrolytes will make a big

difference for me tolerating higher dose of T3 but it will make some difference

in my energy.Being with a low sodium and dehydrated it's bad and makes me very

tired on it's own for sure.I will post here my experince after some time passes.

Thanks a lot Lee and I hope yuo get better and better with the time.

Milena

> >

> > Lee,

> > I have a question for you,please.After you started the florinef did your

tolerance to T3 improved? By that I mean can you tolerate higher dose of T3 in a

result of taking florinef? I don't know if that should make a difference in this

matter but our bodies are not predictable in our sickness,so nothing is going to

surprise me anymore. Thank you > Milena

>

[Guest guest]

Had a new conversation with Hertoghe on the phone, and he told me that I must take fludrocortisone, but maybe start with 1/2 a capsule which is 0.05 mg. I asked if I could just swallow the powder, cause that's what I get when I cut the capsule in two, and he said yes. I hope the connection was ok on the phone and that he got me - Is it really ok to just swallow the powder like that?I should also lower my sea salt intake. He told me I sound intoxicated by the sea salt. I drink maybe 5 mg daily of it, which is 1 tea spoon. He said no more than 1 mg daily.Cause, what I'm doing is I'm adding salt to my body to treat my symptom of low Aldosterone, when I really should be, and Will be, treating the low Aldosterone with Fludrocortisone medication.Now, I also need to sleep from 11 pm and get up at 8 am. And really get that

schedule fixed son.He also said that I should do maybe 40-45 mg HC daily, as a regular dose, cause of my size. I am not HUGE in any way, I'm just tall, at 6'3" and, well, I am maybe a bit overweight now due to this whole mess. But it's mostly my belly sticking out, and my face is swollen. SO.... Am I right when I say my puffiness will go away with Fludrocortisone, and it's not just HC adding to my weight?I have such a weird headache/feeling in my head today that I'm scared of doing anything - Maybe it's bad to drink less sea salt. Or maybe this headache is FROM salt intoxication. Who knows. It's the "who knows" part I don't like.So, guess I will start Fludrocortisone & DHEA tomorrow then....... And just hope I don't get the arrhythmia again. But dosing down on my sea salt intake today, well, that's also something that can change my body for either good or bad.