RE: To DoloresRe: SD/Digestion Question

[Guest guest]

Hi Dolores

 

It is not lynne with stomach problem. it is Gail. How is everything with you.

you are uncharactriscally quiet these days. what's up?

please pass my regards to Mike.

soheila

From: mike rosner <martysfolks2004@...>

Subject: RE: rheumatic Re: SD/Digestion Question

rheumatic

Date: Saturday, October 11, 2008, 11:05 AM

hi Lynne,  this is Dolores.  Need to get that large stomach checked pronto. 

Glad the pain subsided, but the sudden weight gain on you is not normal.  I know

you are a bitty little thing barely making 100 lbs, soaking wet.  Get back to me

on our personal site.  I want to know what is going on.  Love ya kid.  Dodo

From: Jeffery <jefferysahotmail (DOT) com>

Subject: RE: rheumatic Re: SD/Digestion Question

rheumatic@grou ps.com

Date: Saturday, October 11, 2008, 11:20 AM

I think you need to see a gastroenterologist for a diagnosis. This is the means

by which " watermelon stomach " is diagnosed, not purely by symptoms or guesswork.

Why rely on imperfect diagnoses by other that a specifically trained

diagnostician? An ER doc is not trained in this area. Get scoped. Especially

because the treatment is specific to condition. And if it is something else,

there is a good chance he'll see what it is. Why play guessing games with

something like this?

Jeff

rheumatic@grou ps.com

From: lynneandsantos@ citenet.net

Date: Fri, 10 Oct 2008 21:19:07 -0400

Subject: Re: rheumatic Re: SD/Digestion Question

Hi Onyx;

This is probably " watermelon stomack " I never had it but if you go

to the Scleroderma Foundation site I know there is info there.Have you

tested for Celiac or Celiac syndrome as well as food

sensitivities, yeast,mal- absorbtion, heavy metals etc.Over 70% of us have

celiac syndrome that will go away on remission ,or full blown Celiac

disease.The only fix for that is total avoidance of gluten so check out

www.celiac.com for help and recepies. Lynne

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> ************ **New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

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> <http://local. mapquest. com/?ncid= emlcntnew0000000 2>)

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>

[Guest guest]

Hi Sohelia, Lynne, everybody etc.  Thanks for asking re: my being quiet. 

Unusual for me!  Hehe!  I have been so busy with my Mom and her Alzheimers that

I haven't had time to think of myself.  So, I'm beyond feelings at this point. 

Mom had two meltdowns yesterday.  Refused to leave the motel, so they called the

police who came to diffuse the problem.  They said if she didn't leave, they

would take her to the hospital for an evalutation.  She turned back into the

sweet old lady mode in two seconds and dismissed the police.  We all laughed and

then I was able to give her a shower, dress her and continue on our trip. 

Arrived in Pensacola finally and found a nice temporary place to stay while we

search for the house with a real estate agent.  So far, so good. Today, I will

be busy with the lots to do including finding a family doc. Staying busy has

it's advantages.  I don't have to to think of myself. Can't complain.  Guess

I've learned to

just skate along from day to day.  Can't complain.  Take care everyone and hope

you get that stomach problem under control Gail.  Listen to these gals with

Celiac.  They know what they are talking about.  Take care, Love to all Dolores 

From: Jeffery <jefferysahotmail (DOT) com>

Subject: RE: rheumatic Re: SD/Digestion Question

rheumatic@grou ps.com

Date: Saturday, October 11, 2008, 11:20 AM

I think you need to see a gastroenterologist for a diagnosis. This is the means

by which " watermelon stomach " is diagnosed, not purely by symptoms or guesswork.

Why rely on imperfect diagnoses by other that a specifically trained

diagnostician? An ER doc is not trained in this area. Get scoped. Especially

because the treatment is specific to condition. And if it is something else,

there is a good chance he'll see what it is. Why play guessing games with

something like this?

Jeff

rheumatic@grou ps.com

From: lynneandsantos@ citenet.net

Date: Fri, 10 Oct 2008 21:19:07 -0400

Subject: Re: rheumatic Re: SD/Digestion Question

Hi Onyx;

This is probably " watermelon stomack " I never had it but if you go

to the Scleroderma Foundation site I know there is info there.Have you

tested for Celiac or Celiac syndrome as well as food

sensitivities, yeast,mal- absorbtion, heavy metals etc.Over 70% of us have

celiac syndrome that will go away on remission ,or full blown Celiac

disease.The only fix for that is total avoidance of gluten so check out

www.celiac.com for help and recepies. Lynne

> As those that have seen me post before already know, I have diffuse

> scleroderma, and recently, I've put on quite a bit of weight. I don't

> know exactly,

> but my guess is that it is around 25 pounds in a matter of about4

> months maybe.

> My abdomen is huge, and seems to get distended after eating something

> like

> two slices of pizza.

>

> I made a trip to the ER on Friday for severe pain on my left side,

> very low,

> where I would expect the ovaries to be located. The diagnosis at that

> time

> was diverticulitis, and that I possibly had an infection, and/or

> blockage in the

> large intestine. I was told to just drink clear liquids for a few days

> and

> give a broad spectrum antibiotic in addition to the minocycline, and

> something

> for pain. After the third day, the pain was greatly diminished, and

> now it is

> barely painful at all, but the large stomach remains.

>

> Obviously, I will continue with Drs., to see what the cause is, but I was

> wondering if anyone has experienced something similar to this, to try

> to figure

> out if this is SD related, or of some other cause.

>

> I'm paranoid to eat a full meal now for fear the pain will return.

>

> Thanks ,

>

> Gail

> ************ **New MapQuest Local shows what's happening at your

> destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local. mapquest. com/?ncid= emlcntnew0000000 2

> <http://local. mapquest. com/?ncid= emlcntnew0000000 2>)

>

>