Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 I've just started giving my son " Attention Focus. " It has EFA's and DHA in it. I found it at my local HFS. Good luck Rhonda in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Hi Kathy We use Eye Q it has high EPA, DHA & GLA and the new liquid doesn't taste of fish - its lemon! The web site is www.equazen.com Many studies are being done in UK using this product. There is lots of info at the site and I have passwords to get into 'Inner Sanctum' listed on home page - 'natural' and equilibrium' HTH Mandi in UK > Does anyone know any good essential fatty acids? I am looking for > omega 3 something besides flax oil and cod. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Omegabrite can be found at www.omegabrite.com. From: zachsmom64056 Sent: Wednesday, June 26, 2002 1:06 PM Subject: [ ] omega 3 Does anyone know any good essential fatty acids? I am looking for omega 3 something besides flax oil and cod. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 > Does anyone know any good essential fatty acids? I am looking for > omega 3 something besides flax oil and cod. We use Coromega. It is like orange yogurt. Doesn't taste fishy. You can take it straight, mix it in yogurt or blend it in orange juice. It took my son from single words to sentences in 1 1/2 weeks! Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Coromega. It's a single serving pudding like substance that tastes like Tang. It's about a half teaspoonful. www.iherb.com is by far the cheapest source for this. Absolutely NO FISH BURPS with this one. JJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 -I've been debating about trying an Omega 3 with my daughter...maybe this is the one to try! She LOVES all kinds of pudding! -- In @y..., " JJ Chopson " <JJ4HIM@i...> wrote: > Coromega. It's a single serving pudding like substance that tastes like > Tang. It's about a half teaspoonful. www.iherb.com is by far the cheapest > source for this. Absolutely NO FISH BURPS with this one. > JJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Good sources of omega-3: salmon, tuna, flaxseed and canola. Ground up flaxseeds are delicious in yogurt--give it a nutty flavor. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 > Good sources of omega-3: salmon, tuna, flaxseed and canola. Ground up > flaxseeds are delicious in yogurt--give it a nutty flavor. > For anyone on the spectrum I'd steer clear of tuna... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 I don't know of any tests. You can check with Body Bio because they have been working in this area for a long time. http://www.bodybio.com/Default.htm I like the omega-3 eggs if you have them in your area. They are in grocery stories and some natural food stores. There several brands of oil supplements. Udo's is one I hear good things about. Carlton might have more specific information on tests: Carltonl@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Mark, I am just trying to get a good handle on this as well and have been reading through the weekend. Can I recommend two good books for you to get and keep for reference? " Children with Starving Brains " by Jaquelyn McCandless, MD and " Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergices " by Brock, MD. You need to order them from Amazon for I could not find them in my local bookstore. I have also recently heard that " Families with Autism Journey Guide " by TACA is very good. Both the books I purchased outline supplements you need and how to begin dosing. I have been reading 'madly' all weekend and the one thing that I am learning is that you need to get good quality supplements and that they work synergisticly. I spent a small fortune at www.spectrumsupplements.com. You need to start off slowly and increase dosages. Probably the one thing that I am learning from both books is that it is important to keep a spreadsheet/record keeping of what you are supplementing and keep good records. Just to note, my son is 12 and I had never considered him autistic since he is dyspraxic. In all the years of therapy, no one has ever used this term with him or have even suggested any type of bio-medical treatment. I am soooo disappointed. 9 years of therapy plus 1 year of home therapy has resolved many issues but he still has poor hand writing, poor articulation and as the days pass, I fear that he will never speak normally. Too late, I discovered that he lacks the digestive enzymes to process milk and had years of interupted hearing. Too late I discovered that the chronic diarrhea/constipation he suffered was an indicator of something more problematic lurking in his intestinal tract. I always believed the doctors when they told me that kids with neuro-developmental issues had 'immature digestive systems' and that he would grow out of it. What a load of baloney! I am so angry with my lack of good medical care, I could scream. I should have been working on this issue when my child was your childs age instead of driving him around to various therapists, I should have been flying him to my nearest and best DAN! doctor. It is so disheartening. Okay, so what have I learned through study this weekend besides every child is different and yet all of these kids present similarly? Our children tend to have issues with yeast, parasites and malabsorbtion of nutrients which effectively starve their brains. We need to do whatever is necessary to restore the gut to normal. This is done through, oh gosh, good parental 'poop' evaluation and watching other developmental milestones such as language acquisition. Good poop is really essential! To start, you need a good digestive enzyme such as the one put out by Houston Nutra-ceuticals called Peptizyde , along with a top-notch probiotic. I just purchased one called VSL#3 that is supposed to be fabulous. You must ensure that this is kept refridgerated and I keep all supplements in the refridgerator. The enzymes and the probiotics work for intestinal health which is essential for our kids. Then you need a high potency Vitamin C, or some type of anti-oxident formula, cod liver oil is good for Vitamin A, vitamin E (Jaquelyn McCandless recommends 200 iu for children under 5, 400 iu for children who are older) and then your Essential Fatty Acids, Omega-3's. I will write her recommendations straight from the book here....750-1200 mg, essential for all - 750 mg EPA, 250-500 DHA/ and GLA 50-100 mg/day. Don't forget to get a good calcium/magnesium supplement (I have a good, tasty chewable) to be given at bedtime and Zinc (for it helps the child to detoxify and apparently most of our kids are have low copper/zinc ratios) Like I said, I just ordered my stuff from Spectrum Supplements where they have most of the 'high quality' supplements in the recommended dosages designed specifically for spectrum kids all in one place. I can see that I shall be a repeat customer. So... overwhelmed yet? I sure am! Be sure to get the books, NO CASIEN or you are just tossing your time out the window! Keep good records of what you do so that you can record your observations for any doctor you may see down the road. Look for food sensitivites, allergies, etc and keep those bowels moving! Janice [sPAM] [ ] Omega 3 I was just recently told of this group and the use of Omega 3 fish oil. I have an almost 4 year old son who was diagnosed with Apraxia when he was 2. At the present time he has maybe 3 words he can say consistantly. I am writing to ask if someone can explain to me what supplements to use and the dosage. My wife and I are deperately trying to help him. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Hi Mark: Most here use Nordics Naturals ProEFA and ProEPA. The ratio that most have found to work the best is 2 ProEFA to 1 ProEPA twice or three times a day. Below is some links with a lot of info on omegas. http://www.goestores.com/home.aspx?Merchant=shopinserviceinc2 The site above is cheaper than the Nordic Naturals site, but this site also has good information to learn more about omegas. http://www.nordicnaturals.com/professional/faqs.asp /message/42378 archived message: Good info to read. Hope this info helps, Tina archived message from Oct 2006: Kris (Haukoos) so kindly wrote this to help new members with Omegas and vitamin E. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 This is just my opinion but I recommend the book THE LATE TALKER by Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi Janet, Olive oil is great to add in your diet, but you would have to take very high amounts in order to get what the body really needs. It is best to take a supplement of a pharmaceutical grade. e Professional member of the New York Academy of Sciences rheumatic Omega 3 Hi Janet here: Is Olive oil just as good as taking Omega 3 pills? I was just wondering as we use only olive oil to cook with and I also take 2 Omega 3 caplets a day and thought I would check with the experts. Thanks, you folks are the best. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 e, high grade flax oil is very high in omega 3 and can be purchased in capsules at most reputable health food stores. --- e <flight1@...> wrote: > Hi Janet, > > Olive oil is great to add in your diet, but you > would have to take very high amounts in order to get > what the body really needs. It is best to take a > supplement of a pharmaceutical grade. > > e > Professional member of the New York Academy of > Sciences > > > rheumatic Omega 3 > > > Hi Janet here: > Is Olive oil just as good as taking Omega 3 pills? > I was just wondering as we use only olive oil to > cook with and I also take 2 Omega 3 caplets a day > and thought I would check with the experts. Thanks, > you folks are the best. > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > Robbin __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Hi Amelia and welcome! If your child is diagnosed as " CAS " then it probably wasn't from a neuroMD that belongs to this group and knows the problems with using that name. We have in this group parents of teens as well as adults who grew up with apraxia and just a few years ago that name did not thankfully exist. My son is not affected but I'm saying what I am for the benefit of you and others with young children. Your child is already school age and you don't want to use a name that implies your child will always talk like a child for a condition that one can learn to overcome -but will always have in some way. Apraxia is multifaceted and neurologically based and you probably are still learning all that it involves in your child as it's rarely just a speech issue. Calling a condition a childhood condition is only appropriate for those conditions that only affect a child. It auto implies it's a condition that the child will outgrow -like " childhood stuttering " is a normal developmental stage many children pass through. Just call it apraxia and speaking of that what type of apraxia? Verbal, oral- or are you noticing any motor planning issues in the body too? Well much more on that below. As far as the Omega 3s it's also apparent that your neuroMD knows bits of what we share here but not the whole story from those that " wrote the book " on fish oils for apraxia. Pure Omega 3 is very healthy -and coromega is a high quality pure Omega 3 -but you will not see the same dramatic surges on that formula unless your child is in the rare minority. Below is a new member archive which should have all the information you'll need to share with your child's neuro: Here's a very long archive both about apraxia as well as fish oils and vitamin E. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporarypediatrics.modernmedicine.com/radio_peds4 Actual article (where you can read it for free) http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 or http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 My parent guide still works (for free) http://www.contemporarypediatrics.com/contpeds/data/articlestandard/contpeds/492\ \ 004/136315/article.pdf I would also have at least one private " out of pocket " (if possible) exam with a knowledgeable speech pathologist as well. This SLP can coordinate with your child's MD, and school therapist and other professionals, and again be there to assist in a therapeutic plan, help set goals and oversee your child's development over the years if needed. Networking with parents of other speech-impaired children is also possibly one of the best moves you could make in your child's recovery. Others will steer you to the " right " professionals and programs in your area -and you won't feel so alone. I would HIGHLY recommend joining a whose goal is to unite parents and professionals. This group / is through CHERAB http://www.cherab.org The speechville website also has message boards so that you can talk to other parents on particular topics. http://www.speech-express.com/boards/ Check your state resources at Speechville to find local support groups and resources. http://www.speech-express.com/regional-resources.html http://www.speech-express.com/communication-station/regional-support-groups.html (BTW -for anyone who is either running or starting a support group - due to The Late Talker book and the many who will see your group, please make sure your info is up at this website and accurate) For all your other questions including what type of testing -just read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read It!') At Amazon.com you can even start today and read sample pages of the book online! " The first book to show parents how to tell whether a child has a speech delay -or a more serious speech disorder Every parent eagerly awaits the day his or her child will speak for the fist time. For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is " just a late talker, " but unfortunately, that is not always the case. Co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 I am new to the group. I am confused by the problems with " CAS " . I have read extensively from ASHA's position Statement and Technical Report on Childhood Apraxia of Speech. It seems that theses documents clarified so much for professionals and parents alike. This site does not agree? Ann Marie [ ] Re: Omega 3 Hi Amelia and welcome! If your child is diagnosed as " CAS " then it probably wasn't from a neuroMD that belongs to this group and knows the problems with using that name. We have in this group parents of teens as well as adults who grew up with apraxia and just a few years ago that name did not thankfully exist. My son is not affected but I'm saying what I am for the benefit of you and others with young children. Your child is already school age and you don't want to use a name that implies your child will always talk like a child for a condition that one can learn to overcome -but will always have in some way. Apraxia is multifaceted and neurologically based and you probably are still learning all that it involves in your child as it's rarely just a speech issue. Calling a condition a childhood condition is only appropriate for those conditions that only affect a child. It auto implies it's a condition that the child will outgrow -like " childhood stuttering " is a normal developmental stage many children pass through. Just call it apraxia and speaking of that what type of apraxia? Verbal, oral- or are you noticing any motor planning issues in the body too? Well much more on that below. As far as the Omega 3s it's also apparent that your neuroMD knows bits of what we share here but not the whole story from those that " wrote the book " on fish oils for apraxia. Pure Omega 3 is very healthy -and coromega is a high quality pure Omega 3 -but you will not see the same dramatic surges on that formula unless your child is in the rare minority. Below is a new member archive which should have all the information you'll need to share with your child's neuro: Here's a very long archive both about apraxia as well as fish oils and vitamin E. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporarypediatrics.modernmedicine.com/radio_peds4 Actual article (where you can read it for free) http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 or http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 My parent guide still works (for free) http://www.contemporarypediatrics.com/contpeds/data/articlestandard/contpeds/492\ \ 004/136315/article.pdf I would also have at least one private " out of pocket " (if possible) exam with a knowledgeable speech pathologist as well. This SLP can coordinate with your child's MD, and school therapist and other professionals, and again be there to assist in a therapeutic plan, help set goals and oversee your child's development over the years if needed. Networking with parents of other speech-impaired children is also possibly one of the best moves you could make in your child's recovery. Others will steer you to the " right " professionals and programs in your area -and you won't feel so alone. I would HIGHLY recommend joining a whose goal is to unite parents and professionals. This group / is through CHERAB http://www.cherab.org The speechville website also has message boards so that you can talk to other parents on particular topics. http://www.speech-express.com/boards/ Check your state resources at Speechville to find local support groups and resources. http://www.speech-express.com/regional-resources.html http://www.speech-express.com/communication-station/regional-support-groups.html (BTW -for anyone who is either running or starting a support group - due to The Late Talker book and the many who will see your group, please make sure your info is up at this website and accurate) For all your other questions including what type of testing -just read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read It!') At Amazon.com you can even start today and read sample pages of the book online! " The first book to show parents how to tell whether a child has a speech delay -or a more serious speech disorder Every parent eagerly awaits the day his or her child will speak for the fist time. For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is " just a late talker, " but unfortunately, that is not always the case. Co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 As a parent you can accept any diagnosis name you want but I say question anything that may not be accurate or anything that may create an issue down the road. The diagnosis name childhood apraxia of speech is not only a long complex diagnosis name for a condition that hinders the affected with ever letting anyone know what their diagnosis is -but it's not limited to childhood even if it begins there- and...it didn't exist just a few years ago. Someone made it up. ASHA did not even recognize apraxia in children when Tanner was first diagnosed. At one of our group meetings I had a bunch of NJ SLPs arguing about it -one saying it's just a diagnosis made up by some SLPs to rip parents off in therapy costs. The AAP due to my co author of The Late Talker probably just calls it apraxia- or developmental apraxia since that's the classic name but looks like they are trying to get a handle on the diagnosis name Definition and Classification of Negative Motor Signs in Childhood Terence D. Sanger, MD, PhDa, Daofen Chen, PhDb, Mauricio R. Delgado, MDc, Deborah Gaebler-Spira, MDd, Mark Hallett, MDb, W. Mink, MD, PhDe and the Taskforce on Childhood Motor Disorders a Division of Child Neurology and Movement Disorders, Stanford University Medical Center, Stanford, California b National Institute of Neurological Disorders and Stroke, Bethesda, land c Texas ish Rite Hospital for Children, Dallas, Texas d Rehabilitation Institute of Chicago, Chicago, Illinois e Department of Child Neurology, University of Rochester Medical Center, Rochester, New York In this report we describe the outcome of a consensus meeting that occurred at the National Institutes of Health in Bethesda, land, March 12 through 14, 2005. The meeting brought together 39 specialists from multiple clinical and research disciplines including developmental pediatrics, neurology, neurosurgery, orthopedic surgery, physical therapy, occupational therapy, physical medicine and rehabilitation, neurophysiology, muscle physiology, motor control, and biomechanics. The purpose of the meeting was to establish terminology and definitions for 4 aspects of motor disorders that occur in children: weakness, reduced selective motor control, ataxia, and deficits of praxis. The purpose of the definitions is to assist communication between clinicians, select homogeneous groups of children for clinical research trials, facilitate the development of rating scales to assess improvement or deterioration with time, and eventually to better match individual children with specific therapies. " Weakness " is defined as the inability to generate normal voluntary force in a muscle or normal voluntary torque about a joint. " Reduced selective motor control " is defined as the impaired ability to isolate the activation of muscles in a selected pattern in response to demands of a voluntary posture or movement. " Ataxia " is defined as an inability to generate a normal or expected voluntary movement trajectory that cannot be attributed to weakness or involuntary muscle activity about the affected joints. " Apraxia " is defined as an impairment in the ability to accomplish previously learned and performed complex motor actions that is not explained by ataxia, reduced selective motor control, weakness, or involuntary motor activity. " Developmental dyspraxia " is defined as a failure to have ever acquired the ability to perform age-appropriate complex motor actions that is not explained by the presence of inadequate demonstration or practice, ataxia, reduced selective motor control, weakness, or involuntary motor activity. Key Words: weakness • selective motor control • ataxia • apraxia • dyspraxia • developmental coordination disorder • cerebral palsy • movement disorders http://pediatrics.aappublications.org/cgi/content/abstract/118/5/2159 When it was called DAS or developmental apraxia of speech Tanner was little and due to the name there was a problem with securing therapy. We finally did a great job of getting rid of developmental because it prevented parents from securing therapy through insurance in that it implied apraxia was a condition that children outgrew- and for a few years all of us everywhere just called it apraxia. I honestly don't believe there was any or much thought put into calling apraxia " childhood apraxia of speech " but interestingly enough the name did not exist prior to CASANA was formed in 2000 as there was no such name prior to that nonprofit started. I put thought into it because I'm the parent of a child with apraxia and an inventor so I don't just look at the present but the future. The nonprofit Children's Apraxia Network was formed after Tanner was diagnosed with apraxia in 1999 and within one year I started a new nonprofit named CHERAB because I realized that apraxia is not just a childhood disorder even if it starts there -and I also realized that many children have communication impairments that may or may not be diagnosed as apraxic who still need the same support and help. Imagine if " Harry Potter " said instead of dyspraxia that he has " childhood dyspraxia of the body " that makes it hard for him to tie his shoes. Sometimes people can just see the problem -others need an example. But no matter what the name is just dumb. All of you can do as you want with the diagnosis name -but for me in honor of all the tweens, teens, and adults that are growing up or grew up with apraxia I'm just calling it apraxia and will continue to raise awareness how cruel it is to give a child a diagnosis name to a condition that has no cure and even though it can be overcome through therapy and strategies it will always be there. The condition will be there- but for me I'll make sure my son Tanner's diagnosis will just be apraxia. (or verbal apraxia or oral apraxia etc. if someone wants to know specifically what area is affected) Below is a recent archive with information about 2 adults from our group with apraxia that are still affected as adults. Hi Joy, As you know from the email I sent you in private it's never too late. The oldest that have contacted us were 2 adults who grew up with apraxia and in one case was still quite impaired in speech due to lack of therapy. I had to have him write things to me as it was that hard to understand him when he first called me (he was in his early 20s then) He also complained how being schooled as learning disabled kept him from learning basic skills as they didn't expect anything from him -how all gave up on him. I had work with some professionals through Dr. a Tallal and he later went on to write a book and was on the news out in Montana. His speech after appropriate therapies last I spoke to him was so much better it was incredible. He proved it's never too late! He's also a clear example to all why the name " childhood apraxia of speech " is cruel and adds insult to injury http://www.slpcommunity.com/blogs.asp?Blog=3 Worse than not getting appropriate therapy is inappropriate detrimental therapy such as 's story who mom Robin had one of the oldest children to join our group as was 17 when she found us http://www.cherab.org/news/.html We have quite a few new parents older children, tweens and teens with apraxia. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 , Thank you for clarifying and sharing! Your book was the catalyst for getting my son the help he needed. So many doctors told me he was " just a boy! " I know that the terminology can be confusing and worse yet it so impacts the delivery of therapy (at least when trying to deal with a school system). I have have had to advocate strongly for my son in our school district. I have had " professionals " there want to dismiss the diagnosis altogether, as if to say that my son would not be entitled to the 1:1, intensive, appropriate therapies. I have had local hospitals tell me that they would evaluate my son but not diagnose " apraxia " one way or the other (this was before they even met us). I have used the ASHA statements as a very strong advocacy tool. I do understand your points though. There is so much more research needed into this complicated disorder, we can not let the label catch us up when it comes to appropriate therapies and there is the need to look beyond the present. I will do a better job of introducing myself on a new thread. I kind of just hopped in here. Thank you! [ ] Re: Omega 3 As a parent you can accept any diagnosis name you want but I say question anything that may not be accurate or anything that may create an issue down the road. The diagnosis name childhood apraxia of speech is not only a long complex diagnosis name for a condition that hinders the affected with ever letting anyone know what their diagnosis is -but it's not limited to childhood even if it begins there- and...it didn't exist just a few years ago. Someone made it up. ASHA did not even recognize apraxia in children when Tanner was first diagnosed. At one of our group meetings I had a bunch of NJ SLPs arguing about it -one saying it's just a diagnosis made up by some SLPs to rip parents off in therapy costs. The AAP due to my co author of The Late Talker probably just calls it apraxia- or developmental apraxia since that's the classic name but looks like they are trying to get a handle on the diagnosis name Definition and Classification of Negative Motor Signs in Childhood Terence D. Sanger, MD, PhDa, Daofen Chen, PhDb, Mauricio R. Delgado, MDc, Deborah Gaebler-Spira, MDd, Mark Hallett, MDb, W. Mink, MD, PhDe and the Taskforce on Childhood Motor Disorders a Division of Child Neurology and Movement Disorders, Stanford University Medical Center, Stanford, California b National Institute of Neurological Disorders and Stroke, Bethesda, land c Texas ish Rite Hospital for Children, Dallas, Texas d Rehabilitation Institute of Chicago, Chicago, Illinois e Department of Child Neurology, University of Rochester Medical Center, Rochester, New York In this report we describe the outcome of a consensus meeting that occurred at the National Institutes of Health in Bethesda, land, March 12 through 14, 2005. The meeting brought together 39 specialists from multiple clinical and research disciplines including developmental pediatrics, neurology, neurosurgery, orthopedic surgery, physical therapy, occupational therapy, physical medicine and rehabilitation, neurophysiology, muscle physiology, motor control, and biomechanics. The purpose of the meeting was to establish terminology and definitions for 4 aspects of motor disorders that occur in children: weakness, reduced selective motor control, ataxia, and deficits of praxis. The purpose of the definitions is to assist communication between clinicians, select homogeneous groups of children for clinical research trials, facilitate the development of rating scales to assess improvement or deterioration with time, and eventually to better match individual children with specific therapies. " Weakness " is defined as the inability to generate normal voluntary force in a muscle or normal voluntary torque about a joint. " Reduced selective motor control " is defined as the impaired ability to isolate the activation of muscles in a selected pattern in response to demands of a voluntary posture or movement. " Ataxia " is defined as an inability to generate a normal or expected voluntary movement trajectory that cannot be attributed to weakness or involuntary muscle activity about the affected joints. " Apraxia " is defined as an impairment in the ability to accomplish previously learned and performed complex motor actions that is not explained by ataxia, reduced selective motor control, weakness, or involuntary motor activity. " Developmental dyspraxia " is defined as a failure to have ever acquired the ability to perform age-appropriate complex motor actions that is not explained by the presence of inadequate demonstration or practice, ataxia, reduced selective motor control, weakness, or involuntary motor activity. Key Words: weakness . selective motor control . ataxia . apraxia . dyspraxia . developmental coordination disorder . cerebral palsy . movement disorders http://pediatrics.aappublications.org/cgi/content/abstract/118/5/2159 When it was called DAS or developmental apraxia of speech Tanner was little and due to the name there was a problem with securing therapy. We finally did a great job of getting rid of developmental because it prevented parents from securing therapy through insurance in that it implied apraxia was a condition that children outgrew- and for a few years all of us everywhere just called it apraxia. I honestly don't believe there was any or much thought put into calling apraxia " childhood apraxia of speech " but interestingly enough the name did not exist prior to CASANA was formed in 2000 as there was no such name prior to that nonprofit started. I put thought into it because I'm the parent of a child with apraxia and an inventor so I don't just look at the present but the future. The nonprofit Children's Apraxia Network was formed after Tanner was diagnosed with apraxia in 1999 and within one year I started a new nonprofit named CHERAB because I realized that apraxia is not just a childhood disorder even if it starts there -and I also realized that many children have communication impairments that may or may not be diagnosed as apraxic who still need the same support and help. Imagine if " Harry Potter " said instead of dyspraxia that he has " childhood dyspraxia of the body " that makes it hard for him to tie his shoes. Sometimes people can just see the problem -others need an example. But no matter what the name is just dumb. All of you can do as you want with the diagnosis name -but for me in honor of all the tweens, teens, and adults that are growing up or grew up with apraxia I'm just calling it apraxia and will continue to raise awareness how cruel it is to give a child a diagnosis name to a condition that has no cure and even though it can be overcome through therapy and strategies it will always be there. The condition will be there- but for me I'll make sure my son Tanner's diagnosis will just be apraxia. (or verbal apraxia or oral apraxia etc. if someone wants to know specifically what area is affected) Below is a recent archive with information about 2 adults from our group with apraxia that are still affected as adults. Hi Joy, As you know from the email I sent you in private it's never too late. The oldest that have contacted us were 2 adults who grew up with apraxia and in one case was still quite impaired in speech due to lack of therapy. I had to have him write things to me as it was that hard to understand him when he first called me (he was in his early 20s then) He also complained how being schooled as learning disabled kept him from learning basic skills as they didn't expect anything from him -how all gave up on him. I had work with some professionals through Dr. a Tallal and he later went on to write a book and was on the news out in Montana. His speech after appropriate therapies last I spoke to him was so much better it was incredible. He proved it's never too late! He's also a clear example to all why the name " childhood apraxia of speech " is cruel and adds insult to injury http://www.slpcommunity.com/blogs.asp?Blog=3 Worse than not getting appropriate therapy is inappropriate detrimental therapy such as 's story who mom Robin had one of the oldest children to join our group as was 17 when she found us http://www.cherab.org/news/.html We have quite a few new parents older children, tweens and teens with apraxia. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi,  Has anyone here used fish oil capsules (omega 3) and found it helpful? Or flax oil?  I'm reading Scalla's " The New Arthritis Diet " and he recommends it to help reduce inflammation. My Dr. recommends it too, but for heart health.  Thank you,  Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi, Deb! I've been taking them for a few weeks. (A high-quality fish oil capsule) I started them because they are supposed to help with the withdrawal side effects of ditching an anti-depressant. I finally decided (against my family doc's advice) to ditch the anti-depressant which had been helping with my fibromyalgia but producing a plethora of side effects. The AP had me feeling so good, I hoped it meant it had squelched my fibro, too. Anyway, long story short, after a few rocky weeks, I'm feeling better than ever. I believe the fish oil helped with the withdrawal (I had severe neurological symptoms as I got off the med even after a month of weaning down). I noticed a difference within a few hours. Now, I have two bottles of the stuff left, and I'm still taking it because I figure it can't hurt. It's supposed to be so good for you! All I know, is my energy has been much improved, and I'm feeling great. I only take an anti-inflammatory (NSAID) a few times a week when I know I will exercise harder than usual. I guess, this is just a long email to say, " I don't know if it is helping, but I feel good, and it doesn't seem to be hurting anything! " I'm sorry I am not more helpful. I have heard it is best to use the higher quality stuff to avoid " fishy burps " . Blessings! Terri _____ From: rheumatic [mailto:rheumatic ] On Behalf Of deb gilford Sent: Wednesday, October 15, 2008 7:59 AM rheumatic Subject: rheumatic omega 3 Hi, Has anyone here used fish oil capsules (omega 3) and found it helpful? Or flax oil? I'm reading Scalla's " The New Arthritis Diet " and he recommends it to help reduce inflammation. My Dr. recommends it too, but for heart health. Thank you, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Harald, Â I have a problem: I have to take Vitamin D3, because I have a constant low level, and when I take alsom the Omega3, I start having problem with my gut. I am a Celiac, I do gluten-free and also I take a very good probiotic, So at this time I take three Vitamin D3 every day during the week and then on Sat + Sun I take the Omega3 twice a day. I used to take them the same day and had no problemuntil about 5 months ago. It's either or, but not both together on the same day. Â Regards, Eva >Hi, > >Has anyone here used fish oil capsules (omega 3) and found it >helpful? Or flax oil? > >I'm reading Scalla's " The New Arthritis Diet " and he >recommends it to help reduce inflammation. My Dr. recommends it >too, but for heart health. > >Thank you, > >Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi Terri,  Thanks for your response. It sounds like the direction you're taking is helping.  I have read it takes up to 3 months to get optimal resultsfrom the fish oil caps, so if you've noticed an improvement while weaning, you may have the best yet to come. Do you feel comfortable sharing which brand you take? I've got two I'm deciding between.  I hope you continue to feel better.  Thanks, Deb From: Brett & Terri <tdowney2@...> Subject: RE: rheumatic omega 3 rheumatic Date: Wednesday, October 15, 2008, 9:38 AM Hi, Deb! I've been taking them for a few weeks. (A high-quality fish oil capsule) I started them because they are supposed to help with the withdrawal side effects of ditching an anti-depressant. I finally decided (against my family doc's advice) to ditch the anti-depressant which had been helping with my fibromyalgia but producing a plethora of side effects. The AP had me feeling so good, I hoped it meant it had squelched my fibro, too. Anyway, long story short, after a few rocky weeks, I'm feeling better than ever. I believe the fish oil helped with the withdrawal (I had severe neurological symptoms as I got off the med even after a month of weaning down). I noticed a difference within a few hours. Now, I have two bottles of the stuff left, and I'm still taking it because I figure it can't hurt. It's supposed to be so good for you! All I know, is my energy has been much improved, and I'm feeling great. I only take an anti-inflammatory (NSAID) a few times a week when I know I will exercise harder than usual. I guess, this is just a long email to say, " I don't know if it is helping, but I feel good, and it doesn't seem to be hurting anything! " I'm sorry I am not more helpful. I have heard it is best to use the higher quality stuff to avoid " fishy burps " . Blessings! Terri _____ From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf Of deb gilford Sent: Wednesday, October 15, 2008 7:59 AM rheumatic Subject: rheumatic omega 3 Hi, Has anyone here used fish oil capsules (omega 3) and found it helpful? Or flax oil? I'm reading Scalla's " The New Arthritis Diet " and he recommends it to help reduce inflammation. My Dr. recommends it too, but for heart health. Thank you, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Harald,  Thank you for the valuable information. It appears that there are many brands to choose from: looking for the fish oil in the purest form coming from the fish with the highest omega 3. I'm looking forward to this helping me in my overall health, as well as my AS. Do you have one brand you prefer over others?  Thank you again, Deb >Hi, > >Has anyone here used fish oil capsules (omega 3) and found it >helpful? Or flax oil? > >I'm reading Scalla's " The New Arthritis Diet " and he >recommends it to help reduce inflammation. My Dr. recommends it >too, but for heart health. > >Thank you, > >Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi, Deb! Actually, I have two because I picked some up the same day my hubby did. He bought the GNC recommended brand (which I dumped into a child-safety cap medicine bottle so I don't have the details anymore), and I bought Carlson super omega-3 concentrated fish oil capsules from Norway. It was the brand recommended by the health food place nearby. They had some beautiful, informative brochures which were pretty convincing, but I suppose that is their function. LOL I take one or two a day. I'm not very consistent. I need to work out a schedule were my supplements don't interfere with my AP. HTH! Blessings! Terri _____ From: rheumatic [mailto:rheumatic ] On Behalf Of deb gilford Sent: Wednesday, October 15, 2008 8:05 PM rheumatic Subject: RE: rheumatic omega 3 Hi Terri, Thanks for your response. It sounds like the direction you're taking is helping. I have read it takes up to 3 months to get optimal resultsfrom the fish oil caps, so if you've noticed an improvement while weaning, you may have the best yet to come. Do you feel comfortable sharing which brand you take? I've got two I'm deciding between. I hope you continue to feel better. Thanks, Deb From: Brett & Terri <tdowney2woh (DOT) <mailto:tdowney2%40woh.rr.com> rr.com> Subject: RE: rheumatic omega 3 rheumatic@grou <mailto:rheumatic%40> ps.com Date: Wednesday, October 15, 2008, 9:38 AM Hi, Deb! I've been taking them for a few weeks. (A high-quality fish oil capsule) I started them because they are supposed to help with the withdrawal side effects of ditching an anti-depressant. I finally decided (against my family doc's advice) to ditch the anti-depressant which had been helping with my fibromyalgia but producing a plethora of side effects. The AP had me feeling so good, I hoped it meant it had squelched my fibro, too. Anyway, long story short, after a few rocky weeks, I'm feeling better than ever. I believe the fish oil helped with the withdrawal (I had severe neurological symptoms as I got off the med even after a month of weaning down). I noticed a difference within a few hours. Now, I have two bottles of the stuff left, and I'm still taking it because I figure it can't hurt. It's supposed to be so good for you! All I know, is my energy has been much improved, and I'm feeling great. I only take an anti-inflammatory (NSAID) a few times a week when I know I will exercise harder than usual. I guess, this is just a long email to say, " I don't know if it is helping, but I feel good, and it doesn't seem to be hurting anything! " I'm sorry I am not more helpful. I have heard it is best to use the higher quality stuff to avoid " fishy burps " . Blessings! Terri _____ From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf Of deb gilford Sent: Wednesday, October 15, 2008 7:59 AM rheumatic Subject: rheumatic omega 3 Hi, Has anyone here used fish oil capsules (omega 3) and found it helpful? Or flax oil? I'm reading Scalla's " The New Arthritis Diet " and he recommends it to help reduce inflammation. My Dr. recommends it too, but for heart health. Thank you, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 May want to consider Lovaza. It is manufactured by GlaxoKline. See http://www.lovaza.com/index.html?banner_s=208381923 & rotation_s=30492788# It is a pharmaceutical. So, while an OTC can potentially match the quality of the EPA/DHA, they cannot match the testing rigor of a pharmaceutical. An OTC can test using any lab they choose and tell you anything they want to about the results, all without challenge or fear of penalty. A pharmaceutical, at least in the U.S., is bound by FDA standards for testing (at specific labs that have been certified) and documentation (it must be made publically available), and they can be challenged and/or fined for lax standards. That's not to say that you can't get top quality OTC EPA/DHA, it's just that in some cases you may think your getting quality, when it's not really verifiable. However, this probably is not an option for all, as it is more expensive than most OTC sources (you pay for the certification). My plan covers most of it after meeting deductible, so for me it ends up being even cheaper than an OTC. Otherwise, it may not be the best, most cost effective option for some. Jeff rheumatic From: debbiejean6@... Date: Wed, 15 Oct 2008 04:59:23 -0700 Subject: rheumatic omega 3 Hi, Has anyone here used fish oil capsules (omega 3) and found it helpful? Or flax oil? I'm reading Scalla's " The New Arthritis Diet " and he recommends it to help reduce inflammation. My Dr. recommends it too, but for heart health. Thank you, Deb Quote Link to comment Share on other sites More sharing options...
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