Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I didn't know reactive arthrits was incurable. I was always told it was one of the few auto-immune disease that do go away usually within 18 months. Glad you are better. Sue ---- Agentbleu <colourbleu@...> wrote: > I Had ReA (reactive arthritis). I cured this with Cipro @ 1.5g per > day for 6 weeks, this killed the main infection, then I used Biaxin > in lower doses (250mg) per day for 3 month cycles to get it out of > the back and had to reach places. I took ABX for a few years in all, > but mostly the work was done with these two agents. Be careful of > campylobactor and other opportunistic infections following ABX like > Cipro. Cipro gets a bad wrap as in some it can cause ligament damage, > however, they state not to work out while on it and IMO it's one of > the only abx which is effective against this (I must have tried 10+ > abx). Also you will need to follow up with anti fungals. I found > 'Oral' Amp. b. was very effective, Lamisil too, diflucan, nystatin > etc. can all be considered. Food allergies followed, strict > abstinence from gluten, dairy and corn along with adding vitamins and > minerals (b complex) etc. > > Reactive Arthritis is thought to be incurable, however, at least 5 > others I know have cured this with similar treatment. I no longer > have ReA. > > Good luck. > > Steve > > > > On 23 Jun 2010, at 04:48, Beth Fletcher wrote: > > > I believe what I have is Reactive Arthritis. Have you read much > > about that? My arthritis was sudden onset one week after being > > diagnosed with a bladder/kidney infection. I am to this day (5 > > years later) seronegative and I'm HLA-B27 positive. I was tested > > for Lyme and it came back negative. > > > > > > > > From: mprice0823 <mprice823@...> > > Subject: rheumatic ok, here goes... > > rheumatic > > Date: Tuesday, June 22, 2010, 7:02 PM > > > > > > > > Another newbie here. I've been reading for a little over a week and > > I guess I'm ready to start posting... > > > > I am a 34 year old mother of 3. I was diagnosed with RA about 8 > > months ago after about 6 months of being told that I had chronic > > EBV by my family Dr. > > > > I have completely normal blood work and no swelling. My diagnoses > > was based on morning stiffness and the fact that 1 erosion showed > > up on x-ray. I have, from the beginning questioned my diagnosis and > > the treatment plan (methotrexate) that my rheumatologist > > recommended. Here's how it started... > > > > I woke up one morning with a scratchy throat. The next day it was > > worse and looked red with white spots. I NEVER get sick and have > > never had strep. I assumed that I had a little virus. We were going > > out of town and I'm not one to let a little sore throat ruin a > > family trip. The next day it was even worse and I had a fever and > > chills and was just exhausted. I was out of town with no access to > > our local Dr. I decided to wait and see and make an appointment if > > I wasn't better the next day when we got home. The next day I WAS > > feeling better. I was on the mend! I had 2 good days, we worked in > > the yard, everything was great. I went to bed one night and woke up > > the next morning in agony. My entire body was on fire. I was so > > stiff that I literally could not get out of bed (I know that many > > of you have been there). > > > > I loaded the kids up in the car to go to the store for some > > ibuprofen and I couldn't even shift the gear shifter. I was in > > tears trying to hold onto the steering wheel! I decided that the > > yard work was just too much too soon after being sick, but I knew > > that this was different than just being sore. I finally went into > > the Dr. They did a strep and mono quick test and both were > > negative. I was told that it was mono, that the test was surely a > > false negative. Given a scrip for Celebrex and sent on my way. At > > the time, I was CONVINCED that I did NOT have mono. I've always > > believed that antibiotics are overprescribed by drs, but I was > > upset that they wouldn't give me an antibiotic. I was SURE that > > whatever I had would be helped by a simple antibiotic. > > > > The Celebrex did help, but I was still in lots of pain and very > > stiff in the mornings and after sitting for more than 30 minutes. I > > went back to the Dr two weeks later. They told me that it was still > > mono and at my urging, did further blood work. Everything looked > > normal and I showed EBV antibodies, the dr told me to just let it > > run it's course. To get lots of rest (haha! I have 3 small > > children!) and that I would feel better in a couple of weeks. > > > > Two months later, still in pain, I went back to the Dr again. This > > time I was told that it must be chronic EBV and that I would just > > have it for the rest of my life. At this point, I was calling BS. I > > KNEW that something else was wrong with me! I did research and my > > symptoms did seem to match, but in my gut, I felt that it was the > > wrong diagnosis. > > > > I decided to up the ante and a nurse friend recommended that I see > > a rheumatologist. She is fairly confident that it is RA, and it > > still might be, but I still feel like it is not an exact fit. > > > > Here are the arguments for and against... > > I have one wrist that showed erosions, but I have had an injury to > > that wrist and have had problems with it for 8 years, so the x-rays > > could be showing damage other than RA. > > > > The onset was sudden. Sudden onset does happen in RA, but it seems > > to be fairly rare. > > > > I am seronegative. Again, that does happen. > > > > I have NEVER had an elevated sed rate. I have had 8 set of > > bloodwork over the course of 15 months and even when I was at my > > worst, nothing in my bloodwork was out of the ordinary. > > > > My stiffness is worse in the morning and when I've been sitting > > (typical RA) > > > > After a shot of prednisone in the rear I was almost symptom free. > > The dr said it would last from 2-6 weeks, mine started tapering off > > after almost 3 months. Dr felt that the good reaction to prednisone > > pointed toward RA. > > > > Anyway, long story short. I am not a " do whatever the dr says " type > > of person. My rheumatologist has really been pushing me toward > > methotrexate. The thought of that stuff makes me want to run away > > screaming. I decided to try sulfasalazine a few months ago. It > > seemed to be the lesser of the two evils and I was feeling pretty > > hopeless at the time. > > > > When I found this group, it was like a lightbulb coming on. From > > the beginning, I felt like my problem was infectious and would be > > helped by antibiotics. The drs looked at me like I was crazy for > > suggesting it and for a while I thought they might be right. > > > > I would appreciate any feedback. I'm sorry for posting my whole > > long sob story, but I honestly feel like I need to treat the source > > of my problem and not the symptoms and I'm hoping that someone else > > on here can share their success and help to point me in the right > > direction. > > > > I live in the Dallas area. > > > > Thanks!!!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 The problem with ReA is that in some percentage of people it can " turn chronic. " That percentage of people is between 8 and 10--and most of these are HLA B27 positive. What has been called " Reiter's Syndrome " or otherwise persistent Reactive Arthritis is in fact ankylosing spondylitis (www.kickAS.org). After the reactive arthritides symptoms have resolved--within about 18 months--the newer symptoms related to AS will emerge. AS is a different reactive arthritis--the result of many episodes of KRA (Klebsiella Reactive Arthritis). Most of these infections create severe bowel lesions (LGS) that provide access by the opportunistic Klebsiella bacterium, which can cross-react with some human Osp (Outer surface protein) and cause arthritis due to an errant immunoglobulin (IgA-Kp). The best treatment for AS is total exclusion of dietary starch (substrate modulation) in addition with proper antibiotics (anti-Klebsiella peumoniae). AS is complicated often by candidiasis and especially EBV and often confused with fibromyalgia (especially in women). The B27 antigen test should be performed on anyone who has persistent " reactive arthritis, " and the nomenclature should be restricted: " Reiter's Syndrome " is strictly Chlamydia-Reactive Arthritis and there are other ReAs that require specific bacteria/protista agents--giardiasis is a primary example that closely mimics AS. HEALTH, > > > > From: mprice0823 <mprice823@...> > > Subject: rheumatic ok, here goes... > > rheumatic > > Date: Tuesday, June 22, 2010, 7:02 PM > > > > > > > > Another newbie here. I've been reading for a little over a week and > > I guess I'm ready to start posting... > > > > I am a 34 year old mother of 3. I was diagnosed with RA about 8 > > months ago after about 6 months of being told that I had chronic > > EBV by my family Dr. > > > > I have completely normal blood work and no swelling. My diagnoses > > was based on morning stiffness and the fact that 1 erosion showed > > up on x-ray. I have, from the beginning questioned my diagnosis and > > the treatment plan (methotrexate) that my rheumatologist > > recommended. Here's how it started... > > > > I woke up one morning with a scratchy throat. The next day it was > > worse and looked red with white spots. I NEVER get sick and have > > never had strep. I assumed that I had a little virus. We were going > > out of town and I'm not one to let a little sore throat ruin a > > family trip. The next day it was even worse and I had a fever and > > chills and was just exhausted. I was out of town with no access to > > our local Dr. I decided to wait and see and make an appointment if > > I wasn't better the next day when we got home. The next day I WAS > > feeling better. I was on the mend! I had 2 good days, we worked in > > the yard, everything was great. I went to bed one night and woke up > > the next morning in agony. My entire body was on fire. I was so > > stiff that I literally could not get out of bed (I know that many > > of you have been there). > > > > I loaded the kids up in the car to go to the store for some > > ibuprofen and I couldn't even shift the gear shifter. I was in > > tears trying to hold onto the steering wheel! I decided that the > > yard work was just too much too soon after being sick, but I knew > > that this was different than just being sore. I finally went into > > the Dr. They did a strep and mono quick test and both were > > negative. I was told that it was mono, that the test was surely a > > false negative. Given a scrip for Celebrex and sent on my way. At > > the time, I was CONVINCED that I did NOT have mono. I've always > > believed that antibiotics are overprescribed by drs, but I was > > upset that they wouldn't give me an antibiotic. I was SURE that > > whatever I had would be helped by a simple antibiotic. > > > > The Celebrex did help, but I was still in lots of pain and very > > stiff in the mornings and after sitting for more than 30 minutes. I > > went back to the Dr two weeks later. They told me that it was still > > mono and at my urging, did further blood work. Everything looked > > normal and I showed EBV antibodies, the dr told me to just let it > > run it's course. To get lots of rest (haha! I have 3 small > > children!) and that I would feel better in a couple of weeks. > > > > Two months later, still in pain, I went back to the Dr again. This > > time I was told that it must be chronic EBV and that I would just > > have it for the rest of my life. At this point, I was calling BS. I > > KNEW that something else was wrong with me! I did research and my > > symptoms did seem to match, but in my gut, I felt that it was the > > wrong diagnosis. > > > > I decided to up the ante and a nurse friend recommended that I see > > a rheumatologist. She is fairly confident that it is RA, and it > > still might be, but I still feel like it is not an exact fit. > > > > Here are the arguments for and against... > > I have one wrist that showed erosions, but I have had an injury to > > that wrist and have had problems with it for 8 years, so the x-rays > > could be showing damage other than RA. > > > > The onset was sudden. Sudden onset does happen in RA, but it seems > > to be fairly rare. > > > > I am seronegative. Again, that does happen. > > > > I have NEVER had an elevated sed rate. I have had 8 set of > > bloodwork over the course of 15 months and even when I was at my > > worst, nothing in my bloodwork was out of the ordinary. > > > > My stiffness is worse in the morning and when I've been sitting > > (typical RA) > > > > After a shot of prednisone in the rear I was almost symptom free. > > The dr said it would last from 2-6 weeks, mine started tapering off > > after almost 3 months. Dr felt that the good reaction to prednisone > > pointed toward RA. > > > > Anyway, long story short. I am not a " do whatever the dr says " type > > of person. My rheumatologist has really been pushing me toward > > methotrexate. The thought of that stuff makes me want to run away > > screaming. I decided to try sulfasalazine a few months ago. It > > seemed to be the lesser of the two evils and I was feeling pretty > > hopeless at the time. > > > > When I found this group, it was like a lightbulb coming on. From > > the beginning, I felt like my problem was infectious and would be > > helped by antibiotics. The drs looked at me like I was crazy for > > suggesting it and for a while I thought they might be right. > > > > I would appreciate any feedback. I'm sorry for posting my whole > > long sob story, but I honestly feel like I need to treat the source > > of my problem and not the symptoms and I'm hoping that someone else > > on here can share their success and help to point me in the right > > direction. > > > > I live in the Dallas area. > > > > Thanks!!!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 It's amazing how the medical community has changed outcome on ReA over the years, in 1998 when I contracted it, it was told to me it was incurable in a small percentage of people it would fizzle out. I was not one of them, within 6 months I had lost 4 stone in weight and had pain coming from so many places it was no longer clear where. Total overload. Ironically I have a subset I think is HLABDR4 which is another alternative marker, but the genetics help little with treatment. In all the early years all docs in medical books and texts were essentially carbon copies with the same incurable + autoimmune diagnoses. One of the only dedicated help groups stated it as such up until a few years ago. http://web.archive.org/web/20020607183214/www.risg.org/infosupp/ research/spo/index.htm The turn around started around 2005 were I first saw some medical papers suggesting it could be possible cured with ABX and now I find it is almost 'common knowledge'. Almost as if there was never a time when it was universally considered incurable and the recommend treatments back then were frankly 180% out of sync with the correct treatment (antibiotics). AI disease are commonly treated with NASIDs and immune blockers such as TNF blockers " Enbral " et al. but that approach clearly renders the immune system less functional rather than actually treating the actual infection with proper and approbate antibiotics. http://www.associatedcontent.com/article/133893/ arthritis_with_a_cure.html?cat=70 In all the people I have ever meet with ReA or spoken with, I have never yet come across even a single one who had the disease fizzle out 'naturally'. Steve PS Hope your doing well dragonslayer... On 25 Jun 2010, at 17:39, Merchant wrote: > The problem with ReA is that in some percentage of people it can > " turn chronic. " > > That percentage of people is between 8 and 10--and most of these > are HLA B27 positive. > > What has been called " Reiter's Syndrome " or otherwise persistent > Reactive Arthritis is in fact ankylosing spondylitis > (www.kickAS.org). After the reactive arthritides symptoms have > resolved--within about 18 months--the newer symptoms related to AS > will emerge. AS is a different reactive arthritis--the result of > many episodes of KRA (Klebsiella Reactive Arthritis). Most of > these infections create severe bowel lesions (LGS) that provide > access by the opportunistic Klebsiella bacterium, which can cross- > react with some human Osp (Outer surface protein) and cause > arthritis due to an errant immunoglobulin (IgA-Kp). > > The best treatment for AS is total exclusion of dietary starch > (substrate modulation) in addition with proper antibiotics (anti- > Klebsiella peumoniae). > > AS is complicated often by candidiasis and especially EBV and often > confused with fibromyalgia (especially in women). > > The B27 antigen test should be performed on anyone who has > persistent " reactive arthritis, " and the nomenclature should be > restricted: " Reiter's Syndrome " is strictly Chlamydia-Reactive > Arthritis and there are other ReAs that require specific bacteria/ > protista agents--giardiasis is a primary example that closely > mimics AS. > > > HEALTH, > > > > > > > > > > From: mprice0823 <mprice823@...> > > > Subject: rheumatic ok, here goes... > > > rheumatic > > > Date: Tuesday, June 22, 2010, 7:02 PM > > > > > > > > > > > > Another newbie here. I've been reading for a little over a week > and > > > I guess I'm ready to start posting... > > > > > > I am a 34 year old mother of 3. I was diagnosed with RA about 8 > > > months ago after about 6 months of being told that I had chronic > > > EBV by my family Dr. > > > > > > I have completely normal blood work and no swelling. My diagnoses > > > was based on morning stiffness and the fact that 1 erosion showed > > > up on x-ray. I have, from the beginning questioned my diagnosis > and > > > the treatment plan (methotrexate) that my rheumatologist > > > recommended. Here's how it started... > > > > > > I woke up one morning with a scratchy throat. The next day it was > > > worse and looked red with white spots. I NEVER get sick and have > > > never had strep. I assumed that I had a little virus. We were > going > > > out of town and I'm not one to let a little sore throat ruin a > > > family trip. The next day it was even worse and I had a fever and > > > chills and was just exhausted. I was out of town with no access to > > > our local Dr. I decided to wait and see and make an appointment if > > > I wasn't better the next day when we got home. The next day I WAS > > > feeling better. I was on the mend! I had 2 good days, we worked in > > > the yard, everything was great. I went to bed one night and > woke up > > > the next morning in agony. My entire body was on fire. I was so > > > stiff that I literally could not get out of bed (I know that many > > > of you have been there). > > > > > > I loaded the kids up in the car to go to the store for some > > > ibuprofen and I couldn't even shift the gear shifter. I was in > > > tears trying to hold onto the steering wheel! I decided that the > > > yard work was just too much too soon after being sick, but I knew > > > that this was different than just being sore. I finally went into > > > the Dr. They did a strep and mono quick test and both were > > > negative. I was told that it was mono, that the test was surely a > > > false negative. Given a scrip for Celebrex and sent on my way. At > > > the time, I was CONVINCED that I did NOT have mono. I've always > > > believed that antibiotics are overprescribed by drs, but I was > > > upset that they wouldn't give me an antibiotic. I was SURE that > > > whatever I had would be helped by a simple antibiotic. > > > > > > The Celebrex did help, but I was still in lots of pain and very > > > stiff in the mornings and after sitting for more than 30 > minutes. I > > > went back to the Dr two weeks later. They told me that it was > still > > > mono and at my urging, did further blood work. Everything looked > > > normal and I showed EBV antibodies, the dr told me to just let it > > > run it's course. To get lots of rest (haha! I have 3 small > > > children!) and that I would feel better in a couple of weeks. > > > > > > Two months later, still in pain, I went back to the Dr again. This > > > time I was told that it must be chronic EBV and that I would just > > > have it for the rest of my life. At this point, I was calling > BS. I > > > KNEW that something else was wrong with me! I did research and my > > > symptoms did seem to match, but in my gut, I felt that it was the > > > wrong diagnosis. > > > > > > I decided to up the ante and a nurse friend recommended that I see > > > a rheumatologist. She is fairly confident that it is RA, and it > > > still might be, but I still feel like it is not an exact fit. > > > > > > Here are the arguments for and against... > > > I have one wrist that showed erosions, but I have had an injury to > > > that wrist and have had problems with it for 8 years, so the x- > rays > > > could be showing damage other than RA. > > > > > > The onset was sudden. Sudden onset does happen in RA, but it seems > > > to be fairly rare. > > > > > > I am seronegative. Again, that does happen. > > > > > > I have NEVER had an elevated sed rate. I have had 8 set of > > > bloodwork over the course of 15 months and even when I was at my > > > worst, nothing in my bloodwork was out of the ordinary. > > > > > > My stiffness is worse in the morning and when I've been sitting > > > (typical RA) > > > > > > After a shot of prednisone in the rear I was almost symptom free. > > > The dr said it would last from 2-6 weeks, mine started tapering > off > > > after almost 3 months. Dr felt that the good reaction to > prednisone > > > pointed toward RA. > > > > > > Anyway, long story short. I am not a " do whatever the dr says " > type > > > of person. My rheumatologist has really been pushing me toward > > > methotrexate. The thought of that stuff makes me want to run away > > > screaming. I decided to try sulfasalazine a few months ago. It > > > seemed to be the lesser of the two evils and I was feeling pretty > > > hopeless at the time. > > > > > > When I found this group, it was like a lightbulb coming on. From > > > the beginning, I felt like my problem was infectious and would be > > > helped by antibiotics. The drs looked at me like I was crazy for > > > suggesting it and for a while I thought they might be right. > > > > > > I would appreciate any feedback. I'm sorry for posting my whole > > > long sob story, but I honestly feel like I need to treat the > source > > > of my problem and not the symptoms and I'm hoping that someone > else > > > on here can share their success and help to point me in the right > > > direction. > > > > > > I live in the Dallas area. > > > > > > Thanks!!!! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi. I have been " hiding " for awhile since my ReA has flared, together with my new illness-Fibromyalgia. I am one of those that has a negative HLA B27 positive, and yet have a chronic case. My story might be related to the chronic state-I had a laparoscopy, and developed an infection at the surgery sight.I suffered with the infection for two months, while the doctors messed around with me. Finally the infection got into my bloodstream, and I was put on IV antibiotics for a few weeks. Abt 1 month later, I started feeling pain first in my shoulder, and then progressively in different joints, one at a time. I left my internist and surgeon, finally as I kept on getting sicker and sicker. Abt a year later, I was diagnosed with ReA, and treated with all of the TNF blockers, etc. Only Doxy and Minocin seemed to successfully treat my ReA, so that I wasn't in constant pain. Lately, my dr. began cycling the Minocin with Tetracycline, to try to push the minocin to work better(Doxy doesn't work for me anymore). I'm also on 900 mg. of gabapentin (Neurontin) every day. I feel great on beautiful days and I walk 3-4 miles a day, but these days aren't often enough on Long Island, where I live. The day before rain, I am in a lot of pain and am so exhausted that I sleep a lot and waste the day away. Do you think it would work if I went on the Cipro, the way it was described here? Any ideas that could help me? Thanks, Mona rheumatic ok, here goes... >> > > rheumatic >> > > Date: Tuesday, June 22, 2010, 7:02 PM >> > > >> > > >> > > >> > > Another newbie here. I've been reading for a little over a week >> and >> > > I guess I'm ready to start posting... >> > > >> > > I am a 34 year old mother of 3. I was diagnosed with RA about 8 >> > > months ago after about 6 months of being told that I had chronic >> > > EBV by my family Dr. >> > > >> > > I have completely normal blood work and no swelling. My diagnoses >> > > was based on morning stiffness and the fact that 1 erosion showed >> > > up on x-ray. I have, from the beginning questioned my diagnosis >> and >> > > the treatment plan (methotrexate) that my rheumatologist >> > > recommended. Here's how it started... >> > > >> > > I woke up one morning with a scratchy throat. The next day it was >> > > worse and looked red with white spots. I NEVER get sick and have >> > > never had strep. I assumed that I had a little virus. We were >> going >> > > out of town and I'm not one to let a little sore throat ruin a >> > > family trip. The next day it was even worse and I had a fever and >> > > chills and was just exhausted. I was out of town with no access to >> > > our local Dr. I decided to wait and see and make an appointment if >> > > I wasn't better the next day when we got home. The next day I WAS >> > > feeling better. I was on the mend! I had 2 good days, we worked in >> > > the yard, everything was great. I went to bed one night and >> woke up >> > > the next morning in agony. My entire body was on fire. I was so >> > > stiff that I literally could not get out of bed (I know that many >> > > of you have been there). >> > > >> > > I loaded the kids up in the car to go to the store for some >> > > ibuprofen and I couldn't even shift the gear shifter. I was in >> > > tears trying to hold onto the steering wheel! I decided that the >> > > yard work was just too much too soon after being sick, but I knew >> > > that this was different than just being sore. I finally went into >> > > the Dr. They did a strep and mono quick test and both were >> > > negative. I was told that it was mono, that the test was surely a >> > > false negative. Given a scrip for Celebrex and sent on my way. At >> > > the time, I was CONVINCED that I did NOT have mono. I've always >> > > believed that antibiotics are overprescribed by drs, but I was >> > > upset that they wouldn't give me an antibiotic. I was SURE that >> > > whatever I had would be helped by a simple antibiotic. >> > > >> > > The Celebrex did help, but I was still in lots of pain and very >> > > stiff in the mornings and after sitting for more than 30 >> minutes. I >> > > went back to the Dr two weeks later. They told me that it was >> still >> > > mono and at my urging, did further blood work. Everything looked >> > > normal and I showed EBV antibodies, the dr told me to just let it >> > > run it's course. To get lots of rest (haha! I have 3 small >> > > children!) and that I would feel better in a couple of weeks. >> > > >> > > Two months later, still in pain, I went back to the Dr again. This >> > > time I was told that it must be chronic EBV and that I would just >> > > have it for the rest of my life. At this point, I was calling >> BS. I >> > > KNEW that something else was wrong with me! I did research and my >> > > symptoms did seem to match, but in my gut, I felt that it was the >> > > wrong diagnosis. >> > > >> > > I decided to up the ante and a nurse friend recommended that I see >> > > a rheumatologist. She is fairly confident that it is RA, and it >> > > still might be, but I still feel like it is not an exact fit. >> > > >> > > Here are the arguments for and against... >> > > I have one wrist that showed erosions, but I have had an injury to >> > > that wrist and have had problems with it for 8 years, so the x- >> rays >> > > could be showing damage other than RA. >> > > >> > > The onset was sudden. Sudden onset does happen in RA, but it seems >> > > to be fairly rare. >> > > >> > > I am seronegative. Again, that does happen. >> > > >> > > I have NEVER had an elevated sed rate. I have had 8 set of >> > > bloodwork over the course of 15 months and even when I was at my >> > > worst, nothing in my bloodwork was out of the ordinary. >> > > >> > > My stiffness is worse in the morning and when I've been sitting >> > > (typical RA) >> > > >> > > After a shot of prednisone in the rear I was almost symptom free. >> > > The dr said it would last from 2-6 weeks, mine started tapering >> off >> > > after almost 3 months. Dr felt that the good reaction to >> prednisone >> > > pointed toward RA. >> > > >> > > Anyway, long story short. I am not a " do whatever the dr says " >> type >> > > of person. My rheumatologist has really been pushing me toward >> > > methotrexate. The thought of that stuff makes me want to run away >> > > screaming. I decided to try sulfasalazine a few months ago. It >> > > seemed to be the lesser of the two evils and I was feeling pretty >> > > hopeless at the time. >> > > >> > > When I found this group, it was like a lightbulb coming on. From >> > > the beginning, I felt like my problem was infectious and would be >> > > helped by antibiotics. The drs looked at me like I was crazy for >> > > suggesting it and for a while I thought they might be right. >> > > >> > > I would appreciate any feedback. I'm sorry for posting my whole >> > > long sob story, but I honestly feel like I need to treat the >> source >> > > of my problem and not the symptoms and I'm hoping that someone >> else >> > > on here can share their success and help to point me in the right >> > > direction. >> > > >> > > I live in the Dallas area. >> > > >> > > Thanks!!!! >> > > >> > > >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi, Mona: There are many B27 negative cases of AS and it is the same mechanism involved. Although the most common hospital-acquired infection is due to Klebsiella, every gut also contains this germ, however, the location and exposure type may have sensitized You to the germ, as it has been shown that everyone with AS has an overreaction to Klebsiella--that is our immune systems produce immunoglobulin in much greater amounts than required to fend off the germ. The Cipro should help, but there are many cautions with this antibiotic, as already discussed. Flagyl is another agent that should be used in every case of ReA--in my own opinion; not only is there the potential for giardiasis-caused ReA, but also the Flagyl can help keep down Clostridium populations. When I used to flare with the AS, and before I knew about diet and antibiotics, I fasted--up to 20 days--to eliminate symptoms. This worked, perhaps by taking down my overall gut flora population, but the more days I fasted the better I felt. Spring cleaning. I believe it was the fasting that helped me avoid candidiasis, once I began taking antibiotics--but who really knows? Good Luck to You, >> > > >> > > From: mprice0823 <mprice823@...> >> > > Subject: rheumatic ok, here goes... >> > > rheumatic >> > > Date: Tuesday, June 22, 2010, 7:02 PM >> > > >> > > >> > > >> > > Another newbie here. I've been reading for a little over a week >> and >> > > I guess I'm ready to start posting... >> > > >> > > I am a 34 year old mother of 3. I was diagnosed with RA about 8 >> > > months ago after about 6 months of being told that I had chronic >> > > EBV by my family Dr. >> > > >> > > I have completely normal blood work and no swelling. My diagnoses >> > > was based on morning stiffness and the fact that 1 erosion showed >> > > up on x-ray. I have, from the beginning questioned my diagnosis >> and >> > > the treatment plan (methotrexate) that my rheumatologist >> > > recommended. Here's how it started... >> > > >> > > I woke up one morning with a scratchy throat. The next day it was >> > > worse and looked red with white spots. I NEVER get sick and have >> > > never had strep. I assumed that I had a little virus. We were >> going >> > > out of town and I'm not one to let a little sore throat ruin a >> > > family trip. The next day it was even worse and I had a fever and >> > > chills and was just exhausted. I was out of town with no access to >> > > our local Dr. I decided to wait and see and make an appointment if >> > > I wasn't better the next day when we got home. The next day I WAS >> > > feeling better. I was on the mend! I had 2 good days, we worked in >> > > the yard, everything was great. I went to bed one night and >> woke up >> > > the next morning in agony. My entire body was on fire. I was so >> > > stiff that I literally could not get out of bed (I know that many >> > > of you have been there). >> > > >> > > I loaded the kids up in the car to go to the store for some >> > > ibuprofen and I couldn't even shift the gear shifter. I was in >> > > tears trying to hold onto the steering wheel! I decided that the >> > > yard work was just too much too soon after being sick, but I knew >> > > that this was different than just being sore. I finally went into >> > > the Dr. They did a strep and mono quick test and both were >> > > negative. I was told that it was mono, that the test was surely a >> > > false negative. Given a scrip for Celebrex and sent on my way. At >> > > the time, I was CONVINCED that I did NOT have mono. I've always >> > > believed that antibiotics are overprescribed by drs, but I was >> > > upset that they wouldn't give me an antibiotic. I was SURE that >> > > whatever I had would be helped by a simple antibiotic. >> > > >> > > The Celebrex did help, but I was still in lots of pain and very >> > > stiff in the mornings and after sitting for more than 30 >> minutes. I >> > > went back to the Dr two weeks later. They told me that it was >> still >> > > mono and at my urging, did further blood work. Everything looked >> > > normal and I showed EBV antibodies, the dr told me to just let it >> > > run it's course. To get lots of rest (haha! I have 3 small >> > > children!) and that I would feel better in a couple of weeks. >> > > >> > > Two months later, still in pain, I went back to the Dr again. This >> > > time I was told that it must be chronic EBV and that I would just >> > > have it for the rest of my life. At this point, I was calling >> BS. I >> > > KNEW that something else was wrong with me! I did research and my >> > > symptoms did seem to match, but in my gut, I felt that it was the >> > > wrong diagnosis. >> > > >> > > I decided to up the ante and a nurse friend recommended that I see >> > > a rheumatologist. She is fairly confident that it is RA, and it >> > > still might be, but I still feel like it is not an exact fit. >> > > >> > > Here are the arguments for and against... >> > > I have one wrist that showed erosions, but I have had an injury to >> > > that wrist and have had problems with it for 8 years, so the x- >> rays >> > > could be showing damage other than RA. >> > > >> > > The onset was sudden. Sudden onset does happen in RA, but it seems >> > > to be fairly rare. >> > > >> > > I am seronegative. Again, that does happen. >> > > >> > > I have NEVER had an elevated sed rate. I have had 8 set of >> > > bloodwork over the course of 15 months and even when I was at my >> > > worst, nothing in my bloodwork was out of the ordinary. >> > > >> > > My stiffness is worse in the morning and when I've been sitting >> > > (typical RA) >> > > >> > > After a shot of prednisone in the rear I was almost symptom free. >> > > The dr said it would last from 2-6 weeks, mine started tapering >> off >> > > after almost 3 months. Dr felt that the good reaction to >> prednisone >> > > pointed toward RA. >> > > >> > > Anyway, long story short. I am not a " do whatever the dr says " >> type >> > > of person. My rheumatologist has really been pushing me toward >> > > methotrexate. The thought of that stuff makes me want to run away >> > > screaming. I decided to try sulfasalazine a few months ago. It >> > > seemed to be the lesser of the two evils and I was feeling pretty >> > > hopeless at the time. >> > > >> > > When I found this group, it was like a lightbulb coming on. From >> > > the beginning, I felt like my problem was infectious and would be >> > > helped by antibiotics. The drs looked at me like I was crazy for >> > > suggesting it and for a while I thought they might be right. >> > > >> > > I would appreciate any feedback. I'm sorry for posting my whole >> > > long sob story, but I honestly feel like I need to treat the >> source >> > > of my problem and not the symptoms and I'm hoping that someone >> else >> > > on here can share their success and help to point me in the right >> > > direction. >> > > >> > > I live in the Dallas area. >> > > >> > > Thanks!!!! >> > > >> > > >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Hi this is my first post... I too think I have reactive arthritis. I've read a lot about it but it is hard to know for sure. I am HLAB-27 positive too, but none of my x-rays show spinal fusion or anything close. I've had come & go bouts with this for the past 18 years and yes, one of them was directly after a bladder infection and another was after food poisioning. I have a lot of the typical symptoms, iritis, periodic bouts of chest pain, etc. I've also had some weird neuro type symptoms that come and go.. dizziness, some vertigo and twitching and odd sensations in my legs. No doctors have been able to find a neuro problem but I am convinced that it is related to the HLAB-27 stuff. Has anyone out there heard about neuro symptoms with this type problem? I also have been tested for lyme (negative) but underwent 6 mo of biaxin for it anyway 12 years ago (I did start to feel a bit better). For so long I resisted the Rheum treatments because they seem so scary and my symptoms resolved between bouts (methotrexate & prednizone--- aaag). But now the problems have been closer together and I've lost some quality of life (can't walk well right now with tendonitis in foot). I found this group after I met someone who had RA cured by AP. I have made an appoinment with a " progressive " doctor who will collaborate with me on my treatment and also I believe promotes AP. I'm really hopeful and thank you so much for this forum. BethJ. > >> > > >> > On 23 Jun 2010, at 04:48, Beth Fletcher wrote: > >> > > >> > > I believe what I have is Reactive Arthritis. Have you read much > >> > > about that? My arthritis was sudden onset one week after being > >> > > diagnosed with a bladder/kidney infection. I am to this day (5 > >> > > years later) seronegative and I'm HLA-B27 positive. I was tested > >> > > for Lyme and it came back negative. > >> > > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 In me and ReA there was no organ unaffected. The only abx that worked to kill it was Cipro, but I took biaxin for about 2 years on and off also. On 28 Jun 2010, at 02:05, beth.johnston95 wrote: > Hi this is my first post... I too think I have reactive arthritis. > I've read a lot about it but it is hard to know for sure. I am > HLAB-27 positive too, but none of my x-rays show spinal fusion or > anything close. > > I've had come & go bouts with this for the past 18 years and yes, > one of them was directly after a bladder infection and another was > after food poisioning. I have a lot of the typical symptoms, > iritis, periodic bouts of chest pain, etc. I've also had some weird > neuro type symptoms that come and go.. dizziness, some vertigo and > twitching and odd sensations in my legs. No doctors have been able > to find a neuro problem but I am convinced that it is related to > the HLAB-27 stuff. Has anyone out there heard about neuro symptoms > with this type problem? > > I also have been tested for lyme (negative) but underwent 6 mo of > biaxin for it anyway 12 years ago (I did start to feel a bit better). > > For so long I resisted the Rheum treatments because they seem so > scary and my symptoms resolved between bouts (methotrexate & > prednizone--- aaag). But now the problems have been closer together > and I've lost some quality of life (can't walk well right now with > tendonitis in foot). > > I found this group after I met someone who had RA cured by AP. I > have made an appoinment with a " progressive " doctor who will > collaborate with me on my treatment and also I believe promotes AP. > I'm really hopeful and thank you so much for this forum. > > BethJ. > > >> > > > >> > On 23 Jun 2010, at 04:48, Beth Fletcher wrote: > > >> > > > >> > > I believe what I have is Reactive Arthritis. Have you read > much > > >> > > about that? My arthritis was sudden onset one week after > being > > >> > > diagnosed with a bladder/kidney infection. I am to this > day (5 > > >> > > years later) seronegative and I'm HLA-B27 positive. I was > tested > > >> > > for Lyme and it came back negative. > > >> > > > > >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Hello, Beth: HLA B27 implies AS--which could certainly be the result of a different ReA, but if >18 months it has become AS. AS is also a ReA (KRA; see previous posts). Treatment is the same--antibiotics and Cipro is one of the best. Regards, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2010 Report Share Posted July 2, 2010 Hi Cooky The doctor is in VA. I have to drive 1 1/2 hours to get there because I live in a rural area but I am really hoping that this is the beginning of a steady recovery for me. I'm sorry to hear about your recent doctor experience. I will confess that I have gone without a rheum or medication for 6 years because I am " Dr. phobic " for the many of reasons you mentioned in your recent post (God complex, arrogance, lack of concern, etc...). I figured out that the only type of doctor that would work for me is an open minded, collaborative type. This one seems that way. Take care, Beth > > > > From: Agentbleu <colourbleu@> > > Subject: Re: rheumatic Re: Reactive Arthritis > > rheumatic <mailto:rheumatic%40> > > Date: Sunday, June 27, 2010, 8:45 PM > > > > In me and ReA there was no organ unaffected. The only abx that worked > > to kill it was Cipro, but I took biaxin for about 2 years on and off > > also. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 It's Leila Zachrison. She's a rheum who also does some alternative treatments. Right now I'm just detoxing and waiting for my lab work to come back. A little nervous about what will happen next but I know she practices AP, and that her specialty is rheumatic disease. On the first appointment you go through your history with one of the nurse practitioners or other doctors. Then they order tests looking for the triggers. My follow up is in less than 2 weeks and it can't get here soon enough as my tendonitis is keeping me down and tied to a chair. Are you near VA? Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 No Beth, I am in Pa but my son lives in Virginia. Could you give me the phone number and address? I am going to call and see if I can get an app while I am in Va to evaluate my latest problems. I love Dr. Goldstein but he doesn't see many people with RA to help me with this. Most f my problems when I had them before were due to tendonitis now they are definitely joint and swelling. I think I may have a different myco causing this. I started a detox program so I won't want to see her until after that is complete which may be quite a while. Thanks for the info and good luck. Cooky From: rheumatic [mailto:rheumatic ] On Behalf Of beth.johnston95 Sent: Monday, July 12, 2010 10:03 AM rheumatic Subject: rheumatic Re: Reactive Arthritis It's Leila Zachrison. She's a rheum who also does some alternative treatments. Right now I'm just detoxing and waiting for my lab work to come back. A little nervous about what will happen next but I know she practices AP, and that her specialty is rheumatic disease. On the first appointment you go through your history with one of the nurse practitioners or other doctors. Then they order tests looking for the triggers. My follow up is in less than 2 weeks and it can't get here soon enough as my tendonitis is keeping me down and tied to a chair. Are you near VA? Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 I have some experience with Leila Zackrison. If you want to know about her, please write me off list. ________________________________ From: Cooky Stonkey <cookee1@...> rheumatic Sent: Mon, July 12, 2010 4:00:41 PM Subject: RE: rheumatic Re: Reactive Arthritis No Beth, I am in Pa but my son lives in Virginia. Could you give me the phone number and address? I am going to call and see if I can get an app while I am in Va to evaluate my latest problems. I love Dr. Goldstein but he doesn't see many people with RA to help me with this. Most f my problems when I had them before were due to tendonitis now they are definitely joint and swelling. I think I may have a different myco causing this. I started a detox program so I won't want to see her until after that is complete which may be quite a while. Thanks for the info and good luck. Cooky From: rheumatic [mailto:rheumatic ] On Behalf Of beth.johnston95 Sent: Monday, July 12, 2010 10:03 AM rheumatic Subject: rheumatic Re: Reactive Arthritis It's Leila Zachrison. She's a rheum who also does some alternative treatments. Right now I'm just detoxing and waiting for my lab work to come back. A little nervous about what will happen next but I know she practices AP, and that her specialty is rheumatic disease. On the first appointment you go through your history with one of the nurse practitioners or other doctors. Then they order tests looking for the triggers. My follow up is in less than 2 weeks and it can't get here soon enough as my tendonitis is keeping me down and tied to a chair. Are you near VA? Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 > > > What is ReA? > > > > EL > > You don't stop laughing because you grow old, > > You grow old because you stop laughing. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Reactive arthritis usually occurs after an infection. It can be salmonella, an STD, or another bacterial agent. It is believed that bacterial particles remain in the joints and swell up. Some people have a bio marker for reactive arthritis and some don't. It can be a terrible, crippling condition. It is closely related to ankylosing spondylitis, and some doctors use biologics such as Enbrel in off label use to treat the pain and inflammation. However, they have to try other drugs first such as plaquenil. Antibiotics are sometimes effective in reducing the symptoms of ReA. ________________________________ From: EllenSangWildfeuer <LNWILD@...> rheumatic Sent: Sat, October 23, 2010 8:45:09 PM Subject: rheumatic Reactive Arthritis  > > > What is ReA? > > > > EL > > You don't stop laughing because you grow old, > > You grow old because you stop laughing. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 I cured it (ReA) with abx On 24 Oct 2010, at 15:12, Sasser wrote: > Reactive arthritis usually occurs after an infection. It can be > salmonella, an > STD, or another bacterial agent. It is believed that bacterial > particles remain > in the joints and swell up. Some people have a bio marker for > reactive arthritis > and some don't. It can be a terrible, crippling condition. It is > closely related > to ankylosing spondylitis, and some doctors use biologics such as > Enbrel in off > label use to treat the pain and inflammation. However, they have to > try other > drugs first such as plaquenil. Antibiotics are sometimes effective > in reducing > the symptoms of ReA. > > ________________________________ > From: EllenSangWildfeuer <LNWILD@...> > rheumatic > Sent: Sat, October 23, 2010 8:45:09 PM > Subject: rheumatic Reactive Arthritis > > > > > > > > > What is ReA? > > > > > > EL > > > You don't stop laughing because you grow old, > > > You grow old because you stop laughing. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Glad to hear that you cured it. I have been on biaxin, but don't see it being cured. I have either AS or ReA. It's hard to tell what I have, but biaxin helps. However, I have only had some remission, not a cure. ________________________________ From: Agentbleu <colourbleu@...> rheumatic Sent: Sun, October 24, 2010 8:24:28 AM Subject: Re: rheumatic Reactive Arthritis I cured it (ReA) with abx On 24 Oct 2010, at 15:12, Sasser wrote: > Reactive arthritis usually occurs after an infection. It can be > salmonella, an > STD, or another bacterial agent. It is believed that bacterial > particles remain > in the joints and swell up. Some people have a bio marker for > reactive arthritis > and some don't. It can be a terrible, crippling condition. It is > closely related > to ankylosing spondylitis, and some doctors use biologics such as > Enbrel in off > label use to treat the pain and inflammation. However, they have to > try other > drugs first such as plaquenil. Antibiotics are sometimes effective > in reducing > the symptoms of ReA. > > ________________________________ > From: EllenSangWildfeuer <LNWILD@...> > rheumatic > Sent: Sat, October 23, 2010 8:45:09 PM > Subject: rheumatic Reactive Arthritis > > > > > > > > > What is ReA? > > > > > > EL > > > You don't stop laughing because you grow old, > > > You grow old because you stop laughing. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Cipro at 1.5G per day for 6 weeks straight did it. 3-4 weeks didnt cut it. steve On 24 Oct 2010, at 18:11, Sasser wrote: > Glad to hear that you cured it. I have been on biaxin, but don't > see it being > cured. I have either AS or ReA. It's hard to tell what I have, but > biaxin helps. > However, I have only had some remission, not a cure. > > ________________________________ > From: Agentbleu <colourbleu@...> > rheumatic > Sent: Sun, October 24, 2010 8:24:28 AM > Subject: Re: rheumatic Reactive Arthritis > > I cured it (ReA) with abx > > On 24 Oct 2010, at 15:12, Sasser wrote: > > > Reactive arthritis usually occurs after an infection. It can be > > salmonella, an > > STD, or another bacterial agent. It is believed that bacterial > > particles remain > > in the joints and swell up. Some people have a bio marker for > > reactive arthritis > > and some don't. It can be a terrible, crippling condition. It is > > closely related > > to ankylosing spondylitis, and some doctors use biologics such as > > Enbrel in off > > label use to treat the pain and inflammation. However, they have to > > try other > > drugs first such as plaquenil. Antibiotics are sometimes effective > > in reducing > > the symptoms of ReA. > > > > ________________________________ > > From: EllenSangWildfeuer <LNWILD@...> > > rheumatic > > Sent: Sat, October 23, 2010 8:45:09 PM > > Subject: rheumatic Reactive Arthritis > > > > > > > > > > > > > > > What is ReA? > > > > > > > > EL > > > > You don't stop laughing because you grow old, > > > > You grow old because you stop laughing. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 I'm learning about AP from reading this group. Interesting how various antibiotics are used. I believe you are the first to mention Cipro. I quilt and have plenty of material witnesses. ************************** Don't Needle the Quilter ************************** Flinchbaugh saflinch@... DNTQUILTER@... www.bassy.smugmug.com Re: rheumatic Reactive Arthritis > Cipro at 1.5G per day for 6 weeks straight did it. > 3-4 weeks didnt cut it. > > steve >4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hello, : It would be a very rare thing to have an ReA for more than 18 months; if it is a chronic condition, it could have been CAUSED by an ReA but progressed into AS, which is not considered an ReA, but it is, technically, the result of KRA (Klebsiella Reactive Arthritis). Certainly, if You are HLA B27 positive the condition is AS (but even B27 negatives can get AS; there are several Osps -surface proteins- that make one susceptible to AS). I have been in remission for over 11 years thanks to the combination of very strict diet (www.kickas.org/Carol Sinclair book) and antibiotics against Klebsiella pneumoniae and by now my diet is no longer nearly so restrictive, but I still require the occasional tetracycline when I get too sloppy with diet. Cipro was a primary agent and I did at least 8 11-day cycles at 1g daily, but everyone with AS and everyone on these powerful antibiotics also, should do cycles of Flagyl, too. So my colony-killer was Cipro family drugs and maintenance tetracycline/doxycycline. I tried minocycline and it did not have much of an effect. Regards, > Reactive arthritis usually occurs after an infection. It can be > salmonella, an > STD, or another bacterial agent. It is believed that bacterial > particles remain > in the joints and swell up. Some people have a bio marker for > reactive arthritis > and some don't. It can be a terrible, crippling condition. It is > closely related > to ankylosing spondylitis, and some doctors use biologics such as > Enbrel in off > label use to treat the pain and inflammation. However, they have to > try other > drugs first such as plaquenil. Antibiotics are sometimes effective > in reducing > the symptoms of ReA. > > ________________________________ > From: EllenSangWildfeuer <LNWILD@...> > rheumatic > Sent: Sat, October 23, 2010 8:45:09 PM > Subject: rheumatic Reactive Arthritis > > > > > > > > > What is ReA? > > > > > > EL > > > You don't stop laughing because you grow old, > > > You grow old because you stop laughing. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hello Ellen, Welcome to the group. I'm so sorry you found us (meaning you are suffering from an autoimmune disease) but so happy you found us! Stay with us, let us know how we can help. Sally rheumatic Reactive Arthritis > > > What is ReA? > > > > EL > > You don't stop laughing because you grow old, > > You grow old because you stop laughing. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Ellen, I also have RA and didn't know what Rearthritis was. Go google it...it gave me good information. Sally rheumatic Reactive Arthritis > > > What is ReA? > > > > EL > > You don't stop laughing because you grow old, > > You grow old because you stop laughing. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2010 Report Share Posted November 5, 2010 Very interesting, one day this will be common knowledge, btw there is another gene to check for HLABDR4 which is also like HLAB27. I am b27 neg. as are a few other sufferers that I have come across. The key is not the genes, but the treatment. On 5 Nov 2010, at 01:19, Bob & Carol Zarn wrote: > Marge from rheucaticsupport.net, one of the moderators, posted the > following. > I thought some of you might find this interesting. > Carol_DM > > MYCOPLASMA AND CHLAMYDIA CAUSE ARTHRITIS > > Gabe Mirkin, M.D. > > Reactive arthritis means that a person has an infection that is > followed by multiple joint pains.I have said repeatedly that > reactive arthritis can be cured with long-term antibiotics, and in > spite of the overwhelming evidence that reactive arthritis can be > cured with antibiotics, many physicians today do not prescribe > antibiotics. This allows the disease to destroy the joints of their > patients permanently and once cartilage is destroyed, it cannot be > repaired. > > Clinical And Experimental Rheumatology had an excellent article > from Germany showing that mycoplasma and chlamydia are common > causes of arthritis. People who get arthritis after they pick up a > venereal disease with burning on urination usually are infected > with chlamydia and usually have a specific factor in their > bloodstreams called HLA-B27, which is part of the body's immune > response to try to kill chlamydia. This study shows that HLA-B27, > which is easily detected by a blood test, somehow tries to kill > chlamydia, and that the people who get arthritis from chlamydia > have this protein in their cells (1). Most people who do not get > arthritis with their chlamydia infection do not have this protein > in their bloodstreams. > > A second study in Clinical Infectious Diseases shows that a person > developed severe rheumatoid arthritis after an acute sudden > mycoplasma infection (2). So, if you suffer from arthritis, ask > your doctor to order blood tests for arthritis. If arthritis blood > tests are positive, you have swelling in the middle of your fingers > or knuckles, you have burning on urination, diarrhea, a chronic > cough, a chronic burning in your stomach, or you are under 50 years > of age, you probably have a reactive arthritis and can be cured > with antibiotics. If you are not treated correctly, expect > permanent joint damage. See reports #J106 and #J159. > > 1) The modulation of chlamydial replication by HLA-B27 depends on > the cytoplasmic domain of HLA-B27. JG Kuipers, A Bialowons, P > Dollmann, MC Jendro, L Koehler, M Ikeda, DTY Yu, H Zeidler. > Clinical and Experimental Rheumatology, 2001, Vol 19, Iss 1, pp > 47-52Address Kuipers JG, Hannover Med Sch, Div Rheumatol, Dept > Internal Med, D-30623 Hannover, GERMANY. > > 2) Adult Still's disease associated with Mycoplasma pneumoniae > infection. C , V Artola. Clinical Infectious Diseases, 2001, > Vol 32, Iss 6, pp E105-E106.Address C, Hosp Virgen del > Camino, Dept Internal Med, Irunlarrea 4, Pamplona 31008, SPAIN > > Quote Link to comment Share on other sites More sharing options...
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