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That's great Al, I seem to remember you from when I first was diagnosed

also. I am exactly like you describe except I am only 62 yrs old and do not

work. I did forget my Minocin before the holidays for a while and paid for

it but now I am good to go. Thanks for posting.

Cooky

AP 12 yrs

From: rheumatic [mailto:rheumatic ] On Behalf

Of stkwinguy@...

Sent: Saturday, January 24, 2009 12:48 PM

rheumatic

Subject: rheumatic Hello to the long timers

I have not posted in probably eight years but was quite active ten and

eleven years ago when I first contracted RA. GOD bless for

continuing to maintain this website, and Ethel too for her

participation. This website was a Godsend in helping me to find the Dr

Brown books and the antibiotic protocol. I am a firm believer in and

advocate of the AP.

I'm doing just fine, never cured but mostly in remission until I

forget to take my antibiotics for months at a time. Then the pain and

stiffness return and my wife asks, " How long since you last took the

antibiotics? "

My personal experience is I'm never 100% the way I was health and

painwise before getting RA. You have to adjust your activities

permanently to avoid too much activity that stresses the joints. With

moderate activity I live a normal life for someone seventy years old.

I work a two days a week and walk in the mall three times a week for

30 to 45 minutes and the only negative is foot stiffness and slight

pain immediately afterward. The all night panging arm, shoulder, or

leg pains that kept you awake have been gone for years. Also gone are

the two to four days when an arm or leg pained too badly to move or

just did not want to move. Life is good.

I'll gladly answer any questions from anyone.

Better health, Al

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Hi Al,  Thank you for the testimonial.  It is very encouraging to hear that you

are doing so well.  You say you go for months w/o antibiotics and then some pain

and stiffness begin to appear.  You say you stay in remission for long periods

of time.  That is my goal also.  I went into remission after 18 months of

minocin.  I continued taking the Minocin, Then at 23 months, I went on the

Marshall  Protocol.  The first phase was rather mild.  When I entered the second

phase, most of my prior symptoms returned.  I was told to take the Benicar in

large doses as these setbacks were herxes. But my symptoms kept getting worse. 

This brought on diarrhea. never connected the onset of diarrhea with Benicar

until two weeks ago.  I started seeing an Infectious disease doc who told me to

cut back on Benicar.  Well, I did and what a difference.  It has only been two

weeks, but my energy is coming back. The diarrhea has stopped and my joints

don't hurt

as much. I still take the antibiotics, but the Benicar is a thing of the past. 

Now I have a choice.  In phase 3, I am suppose to start my third antibiotic.  I

can choose, Mino + Bactrim + Azithromycin or Mino+ Clindamycin + Azithromycin or

substitue one of those for Doxycycline.  MP also recommends Demeclocycline.  I

don't know what that is.  I would like to know which antibiotic or groups of

antibiotics you take to remain in remission.  I am ready to go the next step, so

any info from you would be most welcome.  I also plan to discuss this with the

Infectious Disease doc who is testing me for any other bacteria/viruses and

fungi, I may still harbor..  Previously, I tested positive for Micoplasma

Pneumonae.  I like hearing results from old timers on this.  I started on A/P

Minocin only in January 2006.  I thought I was an old timer.  Pleased to meet

you.  I, too am in my early 70's--My diagnosis is scleroderma.  Dolores &   

husband,

Mike

From: stkwinguy@... <stkwinguy@...>

Subject: rheumatic Hello to the long timers

rheumatic

Date: Saturday, January 24, 2009, 12:47 PM

I have not posted in probably eight years but was quite active ten and

eleven years ago when I first contracted RA. GOD bless for

continuing to maintain this website, and Ethel too for her

participation. This website was a Godsend in helping me to find the Dr

Brown books and the antibiotic protocol. I am a firm believer in and

advocate of the AP.

I'm doing just fine, never cured but mostly in remission until I

forget to take my antibiotics for months at a time. Then the pain and

stiffness return and my wife asks, " How long since you last took the

antibiotics? "

My personal experience is I'm never 100% the way I was health and

painwise before getting RA. You have to adjust your activities

permanently to avoid too much activity that stresses the joints. With

moderate activity I live a normal life for someone seventy years old.

I work a two days a week and walk in the mall three times a week for

30 to 45 minutes and the only negative is foot stiffness and slight

pain immediately afterward. The all night panging arm, shoulder, or

leg pains that kept you awake have been gone for years. Also gone are

the two to four days when an arm or leg pained too badly to move or

just did not want to move. Life is good.

I'll gladly answer any questions from anyone.

Better health, Al

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My story is similar to yours Al. I was diagnosed in 98 and was put on MTX,

then just by accident I discovered Dr Brown's book, changed doctors and went

on minocin. I spend my first fall and winter practically living my my

recliner, rereading the book and reading the success stories of others, I

never doubted that I would beat it and I did. By spring I was feeling

better. I bought several of Dr Brown's book and loaned them to anyone I

heard of with RA, I tried to give copies to the library, but they just sold

them at the used book sale. I had read everything in the local library

about RA and this treatment was never mentioned and yet the library would

not carry this book. It was only by accident that I discovered this

treatment and I will be forever grateful for that accident.

On Sat, Jan 24, 2009 at 9:47 AM, stkwinguy@... <

stkwinguy@...> wrote:

> I have not posted in probably eight years but was quite active ten and

> eleven years ago when I first contracted RA. GOD bless for

> continuing to maintain this website, and Ethel too for her

> participation. This website was a Godsend in helping me to find the Dr

> Brown books and the antibiotic protocol. I am a firm believer in and

> advocate of the AP.

> I'm doing just fine, never cured but mostly in remission until I

> forget to take my antibiotics for months at a time. Then the pain and

> stiffness return and my wife asks, " How long since you last took the

> antibiotics? "

> My personal experience is I'm never 100% the way I was health and

> painwise before getting RA. You have to adjust your activities

> permanently to avoid too much activity that stresses the joints. With

> moderate activity I live a normal life for someone seventy years old.

> I work a two days a week and walk in the mall three times a week for

> 30 to 45 minutes and the only negative is foot stiffness and slight

> pain immediately afterward. The all night panging arm, shoulder, or

> leg pains that kept you awake have been gone for years. Also gone are

> the two to four days when an arm or leg pained too badly to move or

> just did not want to move. Life is good.

> I'll gladly answer any questions from anyone.

> Better health, Al

>

>

>

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For me Clindamycin is what put me into remission and I take that whenever I

go out of remission. I take 1200mg Tuesday and Thursday along with minocin

MWF whenever my RA factor comes back.

On Sat, Jan 24, 2009 at 12:04 PM, mike rosner <martysfolks2004@...>wrote:

> Hi Al, Thank you for the testimonial. It is very encouraging to hear

> that you are doing so well. You say you go for months w/o antibiotics and

> then some pain and stiffness begin to appear. You say you stay in remission

> for long periods of time. That is my goal also. I went into remission

> after 18 months of minocin. I continued taking the Minocin, Then at 23

> months, I went on the Marshall Protocol. The first phase was rather mild.

> When I entered the second phase, most of my prior symptoms returned. I was

> told to take the Benicar in large doses as these setbacks were herxes. But

> my symptoms kept getting worse. This brought on diarrhea. never connected

> the onset of diarrhea with Benicar until two weeks ago. I started seeing an

> Infectious disease doc who told me to cut back on Benicar. Well, I did and

> what a difference. It has only been two weeks, but my energy is coming

> back. The diarrhea has stopped and my joints don't hurt

> as much. I still take the antibiotics, but the Benicar is a thing of the

> past. Now I have a choice. In phase 3, I am suppose to start my third

> antibiotic. I can choose, Mino + Bactrim + Azithromycin or Mino+

> Clindamycin + Azithromycin or substitue one of those for Doxycycline. MP

> also recommends Demeclocycline. I don't know what that is. I would like to

> know which antibiotic or groups of antibiotics you take to remain in

> remission. I am ready to go the next step, so any info from you would be

> most welcome. I also plan to discuss this with the Infectious Disease doc

> who is testing me for any other bacteria/viruses and fungi, I may still

> harbor.. Previously, I tested positive for Micoplasma Pneumonae. I like

> hearing results from old timers on this. I started on A/P Minocin only in

> January 2006. I thought I was an old timer. Pleased to meet you. I, too

> am in my early 70's--My diagnosis is scleroderma. Dolores & husband,

> Mike

>

>

>

> From: stkwinguy@... <stkwinguy%40sbcglobal.net> <

> stkwinguy@... <stkwinguy%40sbcglobal.net>>

> Subject: rheumatic Hello to the long timers

> rheumatic <rheumatic%40>

> Date: Saturday, January 24, 2009, 12:47 PM

>

> I have not posted in probably eight years but was quite active ten and

> eleven years ago when I first contracted RA. GOD bless for

> continuing to maintain this website, and Ethel too for her

> participation. This website was a Godsend in helping me to find the Dr

> Brown books and the antibiotic protocol. I am a firm believer in and

> advocate of the AP.

> I'm doing just fine, never cured but mostly in remission until I

> forget to take my antibiotics for months at a time. Then the pain and

> stiffness return and my wife asks, " How long since you last took the

> antibiotics? "

> My personal experience is I'm never 100% the way I was health and

> painwise before getting RA. You have to adjust your activities

> permanently to avoid too much activity that stresses the joints. With

> moderate activity I live a normal life for someone seventy years old.

> I work a two days a week and walk in the mall three times a week for

> 30 to 45 minutes and the only negative is foot stiffness and slight

> pain immediately afterward. The all night panging arm, shoulder, or

> leg pains that kept you awake have been gone for years. Also gone are

> the two to four days when an arm or leg pained too badly to move or

> just did not want to move. Life is good.

> I'll gladly answer any questions from anyone.

> Better health, Al

>

>

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, do you take 1200 mg clindaycine ORAL or by IV??? sandra

rheumatic Hello to the long timers

> rheumatic <rheumatic%40>

> Date: Saturday, January 24, 2009, 12:47 PM

>

> I have not posted in probably eight years but was quite active ten and

> eleven years ago when I first contracted RA. GOD bless for

> continuing to maintain this website, and Ethel too for her

> participation. This website was a Godsend in helping me to find the Dr

> Brown books and the antibiotic protocol. I am a firm believer in and

> advocate of the AP.

> I'm doing just fine, never cured but mostly in remission until I

> forget to take my antibiotics for months at a time. Then the pain and

> stiffness return and my wife asks, " How long since you last took the

> antibiotics? "

> My personal experience is I'm never 100% the way I was health and

> painwise before getting RA. You have to adjust your activities

> permanently to avoid too much activity that stresses the joints. With

> moderate activity I live a normal life for someone seventy years old.

> I work a two days a week and walk in the mall three times a week for

> 30 to 45 minutes and the only negative is foot stiffness and slight

> pain immediately afterward. The all night panging arm, shoulder, or

> leg pains that kept you awake have been gone for years. Also gone are

> the two to four days when an arm or leg pained too badly to move or

> just did not want to move. Life is good.

> I'll gladly answer any questions from anyone.

> Better health, Al

>

>

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orally, it makes your mouth taste awful, but I think it helps

On Sun, Jan 25, 2009 at 10:32 AM, <Sltfain@...> wrote:

> , do you take 1200 mg clindaycine ORAL or by IV??? sandra

>

>

> rheumatic Hello to the long timers

> > rheumatic <rheumatic%40> <rheumatic%

> 40>

>

> > Date: Saturday, January 24, 2009, 12:47 PM

> >

> > I have not posted in probably eight years but was quite active ten and

> > eleven years ago when I first contracted RA. GOD bless for

> > continuing to maintain this website, and Ethel too for her

> > participation. This website was a Godsend in helping me to find the Dr

> > Brown books and the antibiotic protocol. I am a firm believer in and

> > advocate of the AP.

> > I'm doing just fine, never cured but mostly in remission until I

> > forget to take my antibiotics for months at a time. Then the pain and

> > stiffness return and my wife asks, " How long since you last took the

> > antibiotics? "

> > My personal experience is I'm never 100% the way I was health and

> > painwise before getting RA. You have to adjust your activities

> > permanently to avoid too much activity that stresses the joints. With

> > moderate activity I live a normal life for someone seventy years old.

> > I work a two days a week and walk in the mall three times a week for

> > 30 to 45 minutes and the only negative is foot stiffness and slight

> > pain immediately afterward. The all night panging arm, shoulder, or

> > leg pains that kept you awake have been gone for years. Also gone are

> > the two to four days when an arm or leg pained too badly to move or

> > just did not want to move. Life is good.

> > I'll gladly answer any questions from anyone.

> > Better health, Al

> >

> >

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This is in response to Delores and Mike's question <<I would like to

know which antibiotic or groups of antibiotics you take to remain in

remission.>>

First, ten years ago there was no Marshall Protocol or Benicar,

micoplasma testing was in its infancy, D Metabolites and TH1 testing

were unknown. I started with 100 mg Minocin MWF and started seeing

some very good results within eight weeks. It took well over a year of

asking to convince my doctor to approve Zithromax, 250mg Tues and

Thurs. It took three years after starting Minocin until I had over 90%

reduction in pains.

I am still on minocyclene and zithromax. I probably average taking a

mino or zithro pill 2 or 3 days a week AFTER THE PAINS RETURN. I would

prefer to take them 5 times a week, but do not need them that often.

My problem is I take so many heart and blood pressure pills plus I

also like to take supplements. I insist on taking rx pills two hours

apart to avoid interactions. Combine this with my poor memory and I

generally run out of time slots in the day for taking pills. When that

happens, which is virtually daily, I usually skip the antibiotics in

favor of the supplements until the pains force me back on the antibiotics.

>

>

> From: stkwinguy@... <stkwinguy@...>

> Subject: rheumatic Hello to the long timers

> rheumatic

> Date: Saturday, January 24, 2009, 12:47 PM

>

>

>

>

>

>

> I have not posted in probably eight years but was quite active ten and

> eleven years ago when I first contracted RA. GOD bless for

> continuing to maintain this website, and Ethel too for her

> participation. This website was a Godsend in helping me to find the Dr

> Brown books and the antibiotic protocol. I am a firm believer in and

> advocate of the AP.

> I'm doing just fine, never cured but mostly in remission until I

> forget to take my antibiotics for months at a time. Then the pain and

> stiffness return and my wife asks, " How long since you last took the

> antibiotics? "

> My personal experience is I'm never 100% the way I was health and

> painwise before getting RA. You have to adjust your activities

> permanently to avoid too much activity that stresses the joints. With

> moderate activity I live a normal life for someone seventy years old.

> I work a two days a week and walk in the mall three times a week for

> 30 to 45 minutes and the only negative is foot stiffness and slight

> pain immediately afterward. The all night panging arm, shoulder, or

> leg pains that kept you awake have been gone for years. Also gone are

> the two to four days when an arm or leg pained too badly to move or

> just did not want to move. Life is good.

> I'll gladly answer any questions from anyone.

> Better health, Al

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Hi to the long timers.  My Clindamycin during the phase 2 of M/P came in a Gel

cap. I didn't detect any awful taste!  But then, I was only on 125mg --- half a

capsule. That was a whole lot of fun.  Had to buy gel caps to cut the powdered

dose in half. Glad that is done.  MP says I can take Bactrim instead of Clindy. 

I might do that.  Has anyone substituted Bactrim for another antibiotic?  If so,

what results did you get?  Also, my doc suggested I switch to Doxy.  What is the

word out there.  I have choices and want to take the best combo. Also, still

waiting on results of bacterial load testing.  We shall see which guns to pull

out!------Appreciate all suggestions.  Thank you, Dolores &   Mike

> >

> > From: stkwinguy@sbcglobal .net <stkwinguy%40sbcglo bal.net> <stkwinguy%

> 40sbcglobal. net> <

> > stkwinguy@sbcglobal .net <stkwinguy%40sbcglo bal.net> <stkwinguy%

> 40sbcglobal. net>>

> > Subject: rheumatic Hello to the long timers

> > rheumatic@grou ps.com <rheumatic%40g roups.com> <rheumatic%

> 40groups. com>

>

> > Date: Saturday, January 24, 2009, 12:47 PM

> >

> > I have not posted in probably eight years but was quite active ten and

> > eleven years ago when I first contracted RA. GOD bless for

> > continuing to maintain this website, and Ethel too for her

> > participation. This website was a Godsend in helping me to find the Dr

> > Brown books and the antibiotic protocol. I am a firm believer in and

> > advocate of the AP.

> > I'm doing just fine, never cured but mostly in remission until I

> > forget to take my antibiotics for months at a time. Then the pain and

> > stiffness return and my wife asks, " How long since you last took the

> > antibiotics? "

> > My personal experience is I'm never 100% the way I was health and

> > painwise before getting RA. You have to adjust your activities

> > permanently to avoid too much activity that stresses the joints. With

> > moderate activity I live a normal life for someone seventy years old.

> > I work a two days a week and walk in the mall three times a week for

> > 30 to 45 minutes and the only negative is foot stiffness and slight

> > pain immediately afterward. The all night panging arm, shoulder, or

> > leg pains that kept you awake have been gone for years. Also gone are

> > the two to four days when an arm or leg pained too badly to move or

> > just did not want to move. Life is good.

> > I'll gladly answer any questions from anyone.

> > Better health, Al

> >

> >

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