RE: Documenting AP

April 17, 2010

Hi Val,

Most docs that treat with antibiotics do not even want their fellow

allopaths to know they do it. It is not a practice that is common. It may be

a recognized treatment but those who use it are few .many have their arms

twisted to do it. Dr. Trenton (I think that's his name) in Mass. use it and

did a study but when talking to some who go to him they are usually put on

the meds that are " tailored " for Rheumatoid, fibro, etc. unless they ask for

AP. If a doc uses antibiotics in this way he can actually be ostracized by

his fellow allopaths.

I just saw my family doc.this is sooo funny. He asked what else can he do

for me concerning the pain I have been having (long story).and why I see my

alternative doc. I said you won't order Minocin. He said I can order it..for

acne? I don't see any right now? OMG is he dense. He then proceeded to tell

me to see a rheumy that will put me on one of the new and very " good " drugs

that will shut down my immune system(too funny).

cooky

Subject: rheumatic Documenting AP

Hi everyone!!!!

In my recent research I noticed that some papers published on AP seem

outdated. I believe the latest one was conducted in early 2000.

I have been wondering why all the AP doctors do not come together and

document all their great work and publish the results.

I might be stating this not knowing that maybe they are doing it!!!

What I am trying to say is that there needs to be more exposure to all this

work being done by these Doctors.

Does anyone have any information on any of them doing any documented

controlled studies?

All the best!!!!

Val

April 17, 2010

Cooky,

If it wasn't so frustrating it would be funnier :-)

Your doc is not keeping up with the literature. The Arthritis Foundation,

not know for thinking out of the box, lists Minocin as a DMARD

Here is another site (I just googled DMARD)

http://www.webmd.com/rheumatoid-arthritis/guide/dmard-rheumatoid-arthritis-treat\

ment

They are not saying that the antibiotic properties are responsible for the

improvement people see when using the drug, they guess it is anti

inflammatory. Who cares what they believe as long as they write the script.

Take care,

Ute

April 17, 2010

Ute, you and I know what it is and how it really works. Trying to tell a

doctor about AP is very frustrating, especially when he believes those " new

drugs " that kill the immune system to stop your pain are so wonderful. At my

age I am taking the easiest way out. I will keep going to my alternative doc

and pay out of pocket as long as he understands AP. He has gone to

conferences and understands but yet he is still not sold on taking

antibiotics the rest of my life! As long as he still writes the script I

will stay with him tho.

Oh and I think after all this time it is really quite funny.

Hugs,

cooky

Subject: RE: rheumatic Documenting AP

Cooky,

If it wasn't so frustrating it would be funnier :-)

Your doc is not keeping up with the literature. The Arthritis Foundation,

not know for thinking out of the box, lists Minocin as a DMARD

Here is another site (I just googled DMARD)

http://www.webmd.com/rheumatoid-arthritis/guide/dmard-rheumatoid-arthritis-t

reatment

They are not saying that the antibiotic properties are responsible for the

improvement people see when using the drug, they guess it is anti

inflammatory. Who cares what they believe as long as they write the script.

Take care,

Ute

April 17, 2010

My little boy was diagnosed with scleroderma and RA and he has been on AP

since last May. We are having a problem though because he just had a body

scan and MRI's and his bones are getting damaged. We know that the

conventional docs are going to hit us hard for putting him on methotrexate

or enbrel and we are very scared right now. He also tested positive for Lyme

so we have an LLMD that says enbrel is OK and Dr. S is Iowa that says no

way, yet are we doing permanent damage to his hands and feet? Any words of

wisdom would be greatly appreciated.

Sue - 's Mom

From: rheumatic [mailto:rheumatic ] On Behalf

Of Cooky Stonkey

Sent: Saturday, April 17, 2010 4:44 PM

rheumatic

Subject: RE: rheumatic Documenting AP

Ute, you and I know what it is and how it really works. Trying to tell a

doctor about AP is very frustrating, especially when he believes those " new

drugs " that kill the immune system to stop your pain are so wonderful. At my

age I am taking the easiest way out. I will keep going to my alternative doc

and pay out of pocket as long as he understands AP. He has gone to

conferences and understands but yet he is still not sold on taking

antibiotics the rest of my life! As long as he still writes the script I

will stay with him tho.

Oh and I think after all this time it is really quite funny.

Hugs,

cooky

Subject: RE: rheumatic Documenting AP

Cooky,

If it wasn't so frustrating it would be funnier :-)

Your doc is not keeping up with the literature. The Arthritis Foundation,

not know for thinking out of the box, lists Minocin as a DMARD

Here is another site (I just googled DMARD)

http://www.webmd.com/rheumatoid-arthritis/guide/dmard-rheumatoid-arthritis-t

reatment

They are not saying that the antibiotic properties are responsible for the

improvement people see when using the drug, they guess it is anti

inflammatory. Who cares what they believe as long as they write the script.

Take care,

Ute

April 17, 2010

Sue, If you mean Sennett for doc S then follow his instructions and you will

be OK. I had xrays and scans that showed bone damage and when my RF and sed

rate went to 0 the same xrays could not find a single bit of damage.

How does your son feel in the way of pain and energy?

cooky

Subject: RE: rheumatic Documenting AP

My little boy was diagnosed with scleroderma and RA and he has been on AP

since last May. We are having a problem though because he just had a body

scan and MRI's and his bones are getting damaged. We know that the

conventional docs are going to hit us hard for putting him on methotrexate

or enbrel and we are very scared right now. He also tested positive for Lyme

so we have an LLMD that says enbrel is OK and Dr. S is Iowa that says no

way, yet are we doing permanent damage to his hands and feet? Any words of

wisdom would be greatly appreciated.

Sue - 's Mom

April 17, 2010

Cooky,

Yes, it is Dr. Sinnott - he does not have any loss of energy and usually no

pain except for 1 day this week he could not walk. His hands are claw-like

and " swanning " . He has lots of trouble with his gut and has for many years -

he is 14 now

From: rheumatic [mailto:rheumatic ] On Behalf

Of Cooky Stonkey

Sent: Saturday, April 17, 2010 5:02 PM

rheumatic

Subject: RE: rheumatic Documenting AP

Sue, If you mean Sennett for doc S then follow his instructions and you will

be OK. I had xrays and scans that showed bone damage and when my RF and sed

rate went to 0 the same xrays could not find a single bit of damage.

How does your son feel in the way of pain and energy?

cooky

Subject: RE: rheumatic Documenting AP

My little boy was diagnosed with scleroderma and RA and he has been on AP

since last May. We are having a problem though because he just had a body

scan and MRI's and his bones are getting damaged. We know that the

conventional docs are going to hit us hard for putting him on methotrexate

or enbrel and we are very scared right now. He also tested positive for Lyme

so we have an LLMD that says enbrel is OK and Dr. S is Iowa that says no

way, yet are we doing permanent damage to his hands and feet? Any words of

wisdom would be greatly appreciated.

Sue - 's Mom

April 17, 2010

What do you for the gut? Does he have splints? After being on AP (what drugs

do you use?) for a year and no progress what does Sennett think?

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Mazik

Sent: Saturday, April 17, 2010 5:45 PM

rheumatic

Subject: RE: rheumatic Documenting AP

Cooky,

Yes, it is Dr. Sinnott - he does not have any loss of energy and usually no

pain except for 1 day this week he could not walk. His hands are claw-like

and " swanning " . He has lots of trouble with his gut and has for many years -

he is 14 now

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ] On

Behalf

Of Cooky Stonkey

Sent: Saturday, April 17, 2010 5:02 PM

rheumatic <mailto:rheumatic%40>

Subject: RE: rheumatic Documenting AP

Sue, If you mean Sennett for doc S then follow his instructions and you will

be OK. I had xrays and scans that showed bone damage and when my RF and sed

rate went to 0 the same xrays could not find a single bit of damage.

How does your son feel in the way of pain and energy?

cooky

Subject: RE: rheumatic Documenting AP

My little boy was diagnosed with scleroderma and RA and he has been on AP

since last May. We are having a problem though because he just had a body

scan and MRI's and his bones are getting damaged. We know that the

conventional docs are going to hit us hard for putting him on methotrexate

or enbrel and we are very scared right now. He also tested positive for Lyme

so we have an LLMD that says enbrel is OK and Dr. S is Iowa that says no

way, yet are we doing permanent damage to his hands and feet? Any words of

wisdom would be greatly appreciated.

Sue - 's Mom

April 17, 2010

He is on prilosec for the gut, no sugar and no milk. No, he does not have

splints - we are just not getting him back into OT as we have not been able

to get insurance to pay - they are only agreeing to 6 visits as his disease

is " chronic " - what a bunch of you know what. He has definitely made

progress with the scleroderma side of things, his patches are gone, his skin

is no longer tight and his hair has grown back, also, he had " sausage-like "

fingers in the beginning and they are not like that at all now, but he can

not straighten his hand or make a fist. He also can not bend his wrist

backward. His mycoplasma pneumonae was >5.00. His protocol currently is

100mg 2/day of minocycline and 250 mg 2/day azithromicin - the zith was

prescribed by his lyme Dr.

Sue

From: rheumatic [mailto:rheumatic ] On Behalf

Of Cooky Stonkey

Sent: Saturday, April 17, 2010 6:03 PM

rheumatic

Subject: RE: rheumatic Documenting AP

What do you for the gut? Does he have splints? After being on AP (what drugs

do you use?) for a year and no progress what does Sennett think?

cooky

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ] On

Behalf

Of Mazik

Sent: Saturday, April 17, 2010 5:45 PM

rheumatic <mailto:rheumatic%40>

Subject: RE: rheumatic Documenting AP

Cooky,

Yes, it is Dr. Sinnott - he does not have any loss of energy and usually no

pain except for 1 day this week he could not walk. His hands are claw-like

and " swanning " . He has lots of trouble with his gut and has for many years -

he is 14 now

From: rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40> ] On

Behalf

Of Cooky Stonkey

Sent: Saturday, April 17, 2010 5:02 PM

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

Subject: RE: rheumatic Documenting AP

Sue, If you mean Sennett for doc S then follow his instructions and you will

be OK. I had xrays and scans that showed bone damage and when my RF and sed

rate went to 0 the same xrays could not find a single bit of damage.

How does your son feel in the way of pain and energy?

cooky

Subject: RE: rheumatic Documenting AP

My little boy was diagnosed with scleroderma and RA and he has been on AP

since last May. We are having a problem though because he just had a body

scan and MRI's and his bones are getting damaged. We know that the

conventional docs are going to hit us hard for putting him on methotrexate

or enbrel and we are very scared right now. He also tested positive for Lyme

so we have an LLMD that says enbrel is OK and Dr. S is Iowa that says no

way, yet are we doing permanent damage to his hands and feet? Any words of

wisdom would be greatly appreciated.

Sue - 's Mom

April 18, 2010

To Sue,

He is on prilosec for the gut, no sugar and no milk. No, he does not have

splints - we are just not getting him back into OT as we have not been able

to get insurance to pay - they are only agreeing to 6 visits as his disease

is " chronic " - what a bunch of you know what.

FROM ME>>>>When you do go to OT or PT make the most of the visit. As for

splints he can sleep in and ones he can do his daily activities. Mine were

invaluable for pain help(did not tak care of it but she helped by not

letting my body move around in weird positions while I sleep and reminded me

ot to use certain joints too hard during the day and also for support when

necessary. ALSO get print outs of exercises and do them at home. Ask them

about gentle massage.you can even call now and just ask for suggestions.

Tell them your situation and that you really want to help your son. Get him

those warm gloves they use to give manicures and have him do tiny slow

stretches after warming the joints and then warm again after. I had this

done in my early time of rheumatoid. There are so many things you can do at

home. Don't worry about him not bending his wrist backwards.even some people

without rheumatic diseases can't.

FROM ME>>>>If it were me I would try glutamine OTC and aloe vera gel to

prevent the gut from getting holes from the antibiotics. PLEASE make sure he

take acidophilis at least 2 times a day to build back the good bacteria in

the stomach. Check with doc sennett.

He has definitely made

progress with the scleroderma side of things, his patches are gone, his skin

is no longer tight and his hair has grown back, also, he had " sausage-like "

fingers in the beginning and they are not like that at all now, but he can

not straighten his hand or make a fist. He also can not bend his wrist

backward. His mycoplasma pneumonae was >5.00. His protocol currently is

100mg 2/day of minocycline and 250 mg 2/day azithromicin - the zith was

prescribed by his lyme Dr.

FROM ME>>>OMGoodness sounds like he is definitely making progress. One of

these days he is going to surprise you and straighten that hand! Relax Sue

he is in good hands with Sennett. You need to help tho. Start with those

things for the gut. I will look up and find some things for yeast you can

get OTC..I'll get back to you.

cooky

Sue

April 18, 2010

sue you may want to look at this diet:

http://www.gaps.me/preview/?page_id=28

it heals the gut. prilosec just makes things worse in the long run.

monique

April 18, 2010

i believe you mean dr. david trentham in boston cooky.

monique

Hi Val,

Most docs that treat with antibiotics do not even want their fellow

allopaths to know they do it. It is not a practice that is common. It may be

a recognized treatment but those who use it are few .many have their arms

twisted to do it. Dr. Trenton (I think that's his name) in Mass. use it and

did a study but when talking to some who go to him they are usually put on

the meds that are " tailored " for Rheumatoid, fibro, etc. unless they ask for

AP. If a doc uses antibiotics in this way he can actually be ostracized by

his fellow allopaths.

April 18, 2010

Thanks Cooky!

From: rheumatic [mailto:rheumatic ] On Behalf

Of Cooky Stonkey

Sent: Sunday, April 18, 2010 2:51 PM