Re: Yucky Plaquenil RX'd by Antibiotic Doc - Sorry kinda long

[Guest guest]

All the traditional doctors RX this for Sjogrens or else say it only helps for

joint pain and offer nothing for the rest of the worse symptoms. I also have

peripheral neuropathy and unexplained constant dizziness which is the worst. One

ear doc said it was permanent inner ear damage caused by a virsus (wish he had

said bacteria at least so I feel like I stand a shot) but this wasnt confirmed

by others so I kept hoping antibiotics could help me.

So when I went to see yet another antibiotic doctor, I was so disappointed

that he would RX me this drug. He claimed it killed so many viruses and was

better than taking Valtrex becasue it was more of a general drug and could kill

more things, which he said was necessary since we can't pinpoint what virus(es)

was causing me this horrible situation for so long.

So I asked if the patients who it had helped could get off it, he said no. So

I dont get how then it could get rid of viruses if you have to stay on it for

life. I told him I went to see him because he had offered a cure. The way

antibiotics are suppose to be as close to a cure as possible. He said I could

continue on Doxy but for some reason he didnt really push it. I asked if I

should take it twice a day as now I only take once at 100mg and he said no need.

I asked if I should add other antibiotcs into the mix and he said no, yet others

have with success. Not SS patients but others with diseases in the same family.

He seemed to think my problem was both viral and bacterial yet seemed to think

the viral was worse. I have been taking Doxy since last summer and I recall one

SS patient saying that she lost a lot of time taking Mino only when she should

have been doing a combined antibiotic protocol. She had improved, but was

nowhere near normal. She was hoping she would get closer to normal someday. So

far I dont think she has but I havent talked to her. But she was one of several

who told me our problems are bacterial not viral. Yet this is not what even this

alternative doc is telling me, a doc that prescribes antibiotics for rheumatic

diseases all the time.

Anyway, for a *cure* he said I had to do something called " methylation " had me

buy 3 supplements and I got an RX for some cream I have to get at a compounding

pharmacy. But the supplements were somewhat common. They were just slightly

different forms of the common supplement. He also said I can stay on some of the

supplements I was currently taking but thye havent helped me yet and I am not so

anxious to keep taking more and more. Already my liver enzymes have increased. I

am too scared to get them checked again since the last time becasue too much

increase and I have to get off everything before I got any relief.

So adding more supplements as well as the Plaq with all its side effects

including nausea and hair loss among many, I cant help but worry about my liver

and just feelign worse. I did begin the Plaq and my exisiting nausea (not

related to the Sjogrens, 2 different set of problems) is worse despite taking

half a pill,. but the whole point was to do something that can cure not do what

the local rheumatologist down the street can offer. That is why I flew to

another state to see him. I also have been doing the infrared sauna he

recommended (he had said 2 Lupus patients recovered completely from infrared

alone) over the phone months ago, I did it daily for 2 months for 1-3 hours.

That is how desperate I am. So far it hasn't helped me. I doubt the Plaq will

work even for temp relief but I am hesitantly trying it, I worry though, that if

anything works even a little it will be the Plaq and yet I will be giving credit

to the supplements because I want it to be them as they are

less likely to cause problems and I certainly dont need to go to the eye doctor

regularly to make sure the Plaq didnt cause problems in my eyes if I was only on

supplements and antibiotics.

I've done tons of cleanses, stayed off wheat, ate fresh foods and vegetables,

stayed away from sweets, taken many supplements and antibitics, and no

improvment at all. All I have managed to do is give myself a toxic liver and not

one doc will address that.

I feel like I have less hope than before.

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Do you have any root canals?

When mine were pulled all of my symptoms have ended and they were severe

the antiobiotics saved my life.

The doctors make lots of money off you if you take all their drugs.

Take your health into your own hands check out on the net what it says about

other reasons for your whole body to be out of order.

Re: rheumatic Yucky Plaquenil RX'd by Antibiotic Doc - Sorry kinda

long

All the traditional doctors RX this for Sjogrens or else say it only helps for

joint pain and offer nothing for the rest of the worse symptoms. I also have

peripheral neuropathy and unexplained constant dizziness which is the worst. One

ear doc said it was permanent inner ear damage caused by a virsus (wish he had

said bacteria at least so I feel like I stand a shot) but this wasnt confirmed

by others so I kept hoping antibiotics could help me.

So when I went to see yet another antibiotic doctor, I was so disappointed

that he would RX me this drug. He claimed it killed so many viruses and was

better than taking Valtrex becasue it was more of a general drug and could kill

more things, which he said was necessary since we can't pinpoint what virus(es)

was causing me this horrible situation for so long.

So I asked if the patients who it had helped could get off it, he said no. So

I dont get how then it could get rid of viruses if you have to stay on it for

life. I told him I went to see him because he had offered a cure. The way

antibiotics are suppose to be as close to a cure as possible. He said I could

continue on Doxy but for some reason he didnt really push it. I asked if I

should take it twice a day as now I only take once at 100mg and he said no need.

I asked if I should add other antibiotcs into the mix and he said no, yet others

have with success. Not SS patients but others with diseases in the same family.

He seemed to think my problem was both viral and bacterial yet seemed to think

the viral was worse. I have been taking Doxy since last summer and I recall one

SS patient saying that she lost a lot of time taking Mino only when she should

have been doing a combined antibiotic protocol. She had improved, but was

nowhere near normal. She was hoping she would get closer to normal someday. So

far I dont think she has but I havent talked to her. But she was one of several

who told me our problems are bacterial not viral. Yet this is not what even this

alternative doc is telling me, a doc that prescribes antibiotics for rheumatic

diseases all the time.

Anyway, for a *cure* he said I had to do something called " methylation " had me

buy 3 supplements and I got an RX for some cream I have to get at a compounding

pharmacy. But the supplements were somewhat common. They were just slightly

different forms of the common supplement. He also said I can stay on some of the

supplements I was currently taking but thye havent helped me yet and I am not so

anxious to keep taking more and more. Already my liver enzymes have increased. I

am too scared to get them checked again since the last time becasue too much

increase and I have to get off everything before I got any relief.

So adding more supplements as well as the Plaq with all its side effects

including nausea and hair loss among many, I cant help but worry about my liver

and just feelign worse. I did begin the Plaq and my exisiting nausea (not

related to the Sjogrens, 2 different set of problems) is worse despite taking

half a pill,. but the whole point was to do something that can cure not do what

the local rheumatologist down the street can offer. That is why I flew to

another state to see him. I also have been doing the infrared sauna he

recommended (he had said 2 Lupus patients recovered completely from infrared

alone) over the phone months ago, I did it daily for 2 months for 1-3 hours.

That is how desperate I am. So far it hasn't helped me. I doubt the Plaq will

work even for temp relief but I am hesitantly trying it, I worry though, that if

anything works even a little it will be the Plaq and yet I will be giving credit

to the supplements because I want it to be them as they are

less likely to cause problems and I certainly dont need to go to the eye

doctor regularly to make sure the Plaq didnt cause problems in my eyes if I was

only on supplements and antibiotics.

I've done tons of cleanses, stayed off wheat, ate fresh foods and vegetables,

stayed away from sweets, taken many supplements and antibitics, and no

improvment at all. All I have managed to do is give myself a toxic liver and not

one doc will address that.

I feel like I have less hope than before.

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Vicki;

If I was in your situation I would take a serious look at the

Marshall Protocol.You might see peoplew on that site who have SS and see

how they are doing.You can also ask some of the nurses and moderators

there if they think it would help.They use several antibiotics together

in the second and third phases.Only minocycline in phase one that lasts

a couple of months.To me,MP would be the the best option when nothing

else works. Lynne G./SD

> All the traditional doctors RX this for Sjogrens or else say it only

> helps for joint pain and offer nothing for the rest of the worse

> symptoms. I also have peripheral neuropathy and unexplained constant

> dizziness which is the worst. One ear doc said it was permanent inner

> ear damage caused by a virsus (wish he had said bacteria at least so I

> feel like I stand a shot) but this wasnt confirmed by others so I kept

> hoping antibiotics could help me.

>

> So when I went to see yet another antibiotic doctor, I was so

> disappointed that he would RX me this drug. He claimed it killed so

> many viruses and was better than taking Valtrex becasue it was more of

> a general drug and could kill more things, which he said was necessary

> since we can't pinpoint what virus(es) was causing me this horrible

> situation for so long.

>

> So I asked if the patients who it had helped could get off it, he said

> no. So I dont get how then it could get rid of viruses if you have to

> stay on it for life. I told him I went to see him because he had

> offered a cure. The way antibiotics are suppose to be as close to a

> cure as possible. He said I could continue on Doxy but for some reason

> he didnt really push it. I asked if I should take it twice a day as

> now I only take once at 100mg and he said no need. I asked if I should

> add other antibiotcs into the mix and he said no, yet others have with

> success. Not SS patients but others with diseases in the same family.

>

> He seemed to think my problem was both viral and bacterial yet seemed

> to think the viral was worse. I have been taking Doxy since last

> summer and I recall one SS patient saying that she lost a lot of time

> taking Mino only when she should have been doing a combined antibiotic

> protocol. She had improved, but was nowhere near normal. She was

> hoping she would get closer to normal someday. So far I dont think she

> has but I havent talked to her. But she was one of several who told me

> our problems are bacterial not viral. Yet this is not what even this

> alternative doc is telling me, a doc that prescribes antibiotics for

> rheumatic diseases all the time.

>

> Anyway, for a *cure* he said I had to do something called

> " methylation " had me buy 3 supplements and I got an RX for some cream

> I have to get at a compounding pharmacy. But the supplements were

> somewhat common. They were just slightly different forms of the common

> supplement. He also said I can stay on some of the supplements I was

> currently taking but thye havent helped me yet and I am not so anxious

> to keep taking more and more. Already my liver enzymes have increased.

> I am too scared to get them checked again since the last time becasue

> too much increase and I have to get off everything before I got any

> relief.

>

> So adding more supplements as well as the Plaq with all its side

> effects including nausea and hair loss among many, I cant help but

> worry about my liver and just feelign worse. I did begin the Plaq and

> my exisiting nausea (not related to the Sjogrens, 2 different set of

> problems) is worse despite taking half a pill,. but the whole point

> was to do something that can cure not do what the local rheumatologist

> down the street can offer. That is why I flew to another state to see

> him. I also have been doing the infrared sauna he recommended (he had

> said 2 Lupus patients recovered completely from infrared alone) over

> the phone months ago, I did it daily for 2 months for 1-3 hours. That

> is how desperate I am. So far it hasn't helped me. I doubt the Plaq

> will work even for temp relief but I am hesitantly trying it, I worry

> though, that if anything works even a little it will be the Plaq and

> yet I will be giving credit to the supplements because I want it to be

> them as they are

> less likely to cause problems and I certainly dont need to go to the

> eye doctor regularly to make sure the Plaq didnt cause problems in my

> eyes if I was only on supplements and antibiotics.

>

> I've done tons of cleanses, stayed off wheat, ate fresh foods and

> vegetables, stayed away from sweets, taken many supplements and

> antibitics, and no improvment at all. All I have managed to do is give

> myself a toxic liver and not one doc will address that.

>

> I feel like I have less hope than before.

>

>

> ------------ --------- --------- --

>

[Guest guest]

hi-I use Liveraid/Liverite it counteracts side effects when i was on

methotrexate.........can be purchased at walmart.........

Deb

>

> All the traditional doctors RX this for Sjogrens or else say it

only helps for joint pain and offer nothing for the rest of the worse

symptoms. I also have peripheral neuropathy and unexplained constant

dizziness which is the worst. One ear doc said it was permanent inner

ear damage caused by a virsus (wish he had said bacteria at least so

I feel like I stand a shot) but this wasnt confirmed by others so I

kept hoping antibiotics could help me.

>

> So when I went to see yet another antibiotic doctor, I was so

disappointed that he would RX me this drug. He claimed it killed so

many viruses and was better than taking Valtrex becasue it was more

of a general drug and could kill more things, which he said was

necessary since we can't pinpoint what virus(es) was causing me this

horrible situation for so long.

>

> So I asked if the patients who it had helped could get off it, he

said no. So I dont get how then it could get rid of viruses if you

have to stay on it for life. I told him I went to see him because he

had offered a cure. The way antibiotics are suppose to be as close to

a cure as possible. He said I could continue on Doxy but for some

reason he didnt really push it. I asked if I should take it twice a

day as now I only take once at 100mg and he said no need. I asked if

I should add other antibiotcs into the mix and he said no, yet others

have with success. Not SS patients but others with diseases in the

same family.

>

> He seemed to think my problem was both viral and bacterial yet

seemed to think the viral was worse. I have been taking Doxy since

last summer and I recall one SS patient saying that she lost a lot of

time taking Mino only when she should have been doing a combined

antibiotic protocol. She had improved, but was nowhere near normal.

She was hoping she would get closer to normal someday. So far I dont

think she has but I havent talked to her. But she was one of several

who told me our problems are bacterial not viral. Yet this is not

what even this alternative doc is telling me, a doc that prescribes

antibiotics for rheumatic diseases all the time.

>

> Anyway, for a *cure* he said I had to do something

called " methylation " had me buy 3 supplements and I got an RX for

some cream I have to get at a compounding pharmacy. But the

supplements were somewhat common. They were just slightly different

forms of the common supplement. He also said I can stay on some of

the supplements I was currently taking but thye havent helped me yet

and I am not so anxious to keep taking more and more. Already my

liver enzymes have increased. I am too scared to get them checked

again since the last time becasue too much increase and I have to get

off everything before I got any relief.

>

> So adding more supplements as well as the Plaq with all its side

effects including nausea and hair loss among many, I cant help but

worry about my liver and just feelign worse. I did begin the Plaq and

my exisiting nausea (not related to the Sjogrens, 2 different set of

problems) is worse despite taking half a pill,. but the whole point

was to do something that can cure not do what the local

rheumatologist down the street can offer. That is why I flew to

another state to see him. I also have been doing the infrared sauna

he recommended (he had said 2 Lupus patients recovered completely

from infrared alone) over the phone months ago, I did it daily for 2

months for 1-3 hours. That is how desperate I am. So far it hasn't

helped me. I doubt the Plaq will work even for temp relief but I am

hesitantly trying it, I worry though, that if anything works even a

little it will be the Plaq and yet I will be giving credit to the

supplements because I want it to be them as they are

> less likely to cause problems and I certainly dont need to go to

the eye doctor regularly to make sure the Plaq didnt cause problems

in my eyes if I was only on supplements and antibiotics.

>

> I've done tons of cleanses, stayed off wheat, ate fresh foods and

vegetables, stayed away from sweets, taken many supplements and

antibitics, and no improvment at all. All I have managed to do is

give myself a toxic liver and not one doc will address that.

>

> I feel like I have less hope than before.

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

>

[Guest guest]

Thanks Deb. Did it reduce your liver enzymes?

lynnejanea <lynnejanea@...> wrote: hi-I use Liveraid/Liverite it

counteracts side effects when i was on

methotrexate.........can be purchased at walmart.........

Deb

>

> All the traditional doctors RX this for Sjogrens or else say it

only helps for joint pain and offer nothing for the rest of the worse

symptoms. I also have peripheral neuropathy and unexplained constant

dizziness which is the worst. One ear doc said it was permanent inner

ear damage caused by a virsus (wish he had said bacteria at least so

I feel like I stand a shot) but this wasnt confirmed by others so I

kept hoping antibiotics could help me.

>

> So when I went to see yet another antibiotic doctor, I was so

disappointed that he would RX me this drug. He claimed it killed so

many viruses and was better than taking Valtrex becasue it was more

of a general drug and could kill more things, which he said was

necessary since we can't pinpoint what virus(es) was causing me this

horrible situation for so long.

>

> So I asked if the patients who it had helped could get off it, he

said no. So I dont get how then it could get rid of viruses if you

have to stay on it for life. I told him I went to see him because he

had offered a cure. The way antibiotics are suppose to be as close to

a cure as possible. He said I could continue on Doxy but for some

reason he didnt really push it. I asked if I should take it twice a

day as now I only take once at 100mg and he said no need. I asked if

I should add other antibiotcs into the mix and he said no, yet others

have with success. Not SS patients but others with diseases in the

same family.

>

> He seemed to think my problem was both viral and bacterial yet

seemed to think the viral was worse. I have been taking Doxy since

last summer and I recall one SS patient saying that she lost a lot of

time taking Mino only when she should have been doing a combined

antibiotic protocol. She had improved, but was nowhere near normal.

She was hoping she would get closer to normal someday. So far I dont

think she has but I havent talked to her. But she was one of several

who told me our problems are bacterial not viral. Yet this is not

what even this alternative doc is telling me, a doc that prescribes

antibiotics for rheumatic diseases all the time.

>

> Anyway, for a *cure* he said I had to do something

called " methylation " had me buy 3 supplements and I got an RX for

some cream I have to get at a compounding pharmacy. But the

supplements were somewhat common. They were just slightly different

forms of the common supplement. He also said I can stay on some of

the supplements I was currently taking but thye havent helped me yet

and I am not so anxious to keep taking more and more. Already my

liver enzymes have increased. I am too scared to get them checked

again since the last time becasue too much increase and I have to get

off everything before I got any relief.

>

> So adding more supplements as well as the Plaq with all its side

effects including nausea and hair loss among many, I cant help but

worry about my liver and just feelign worse. I did begin the Plaq and

my exisiting nausea (not related to the Sjogrens, 2 different set of

problems) is worse despite taking half a pill,. but the whole point

was to do something that can cure not do what the local

rheumatologist down the street can offer. That is why I flew to

another state to see him. I also have been doing the infrared sauna

he recommended (he had said 2 Lupus patients recovered completely

from infrared alone) over the phone months ago, I did it daily for 2

months for 1-3 hours. That is how desperate I am. So far it hasn't

helped me. I doubt the Plaq will work even for temp relief but I am

hesitantly trying it, I worry though, that if anything works even a

little it will be the Plaq and yet I will be giving credit to the

supplements because I want it to be them as they are

> less likely to cause problems and I certainly dont need to go to

the eye doctor regularly to make sure the Plaq didnt cause problems

in my eyes if I was only on supplements and antibiotics.

>

> I've done tons of cleanses, stayed off wheat, ate fresh foods and

vegetables, stayed away from sweets, taken many supplements and

antibitics, and no improvment at all. All I have managed to do is

give myself a toxic liver and not one doc will address that.

>

> I feel like I have less hope than before.

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

>

[Guest guest]

I had 2 root canals when I was a kid. Had no problems with them. No new root

canals, just constant cavities from dry mouth. I dont know if I should take the

plaq along with the antibioitcs or just take the antibiotics and hope to god

that there is no viral component because then the antibiotics wont do squat.

Glenda <gfmack@...> wrote: Do you have any root canals?

When mine were pulled all of my symptoms have ended and they were severe

the antiobiotics saved my life.

The doctors make lots of money off you if you take all their drugs.

Take your health into your own hands check out on the net what it says about

other reasons for your whole body to be out of order.

Re: rheumatic Yucky Plaquenil RX'd by Antibiotic Doc - Sorry kinda

long

All the traditional doctors RX this for Sjogrens or else say it only helps for

joint pain and offer nothing for the rest of the worse symptoms. I also have

peripheral neuropathy and unexplained constant dizziness which is the worst. One

ear doc said it was permanent inner ear damage caused by a virsus (wish he had

said bacteria at least so I feel like I stand a shot) but this wasnt confirmed

by others so I kept hoping antibiotics could help me.

So when I went to see yet another antibiotic doctor, I was so disappointed that

he would RX me this drug. He claimed it killed so many viruses and was better

than taking Valtrex becasue it was more of a general drug and could kill more

things, which he said was necessary since we can't pinpoint what virus(es) was

causing me this horrible situation for so long.

So I asked if the patients who it had helped could get off it, he said no. So I

dont get how then it could get rid of viruses if you have to stay on it for

life. I told him I went to see him because he had offered a cure. The way

antibiotics are suppose to be as close to a cure as possible. He said I could

continue on Doxy but for some reason he didnt really push it. I asked if I

should take it twice a day as now I only take once at 100mg and he said no need.

I asked if I should add other antibiotcs into the mix and he said no, yet others

have with success. Not SS patients but others with diseases in the same family.

He seemed to think my problem was both viral and bacterial yet seemed to think

the viral was worse. I have been taking Doxy since last summer and I recall one

SS patient saying that she lost a lot of time taking Mino only when she should

have been doing a combined antibiotic protocol. She had improved, but was

nowhere near normal. She was hoping she would get closer to normal someday. So

far I dont think she has but I havent talked to her. But she was one of several

who told me our problems are bacterial not viral. Yet this is not what even this

alternative doc is telling me, a doc that prescribes antibiotics for rheumatic

diseases all the time.

Anyway, for a *cure* he said I had to do something called " methylation " had me

buy 3 supplements and I got an RX for some cream I have to get at a compounding

pharmacy. But the supplements were somewhat common. They were just slightly

different forms of the common supplement. He also said I can stay on some of the

supplements I was currently taking but thye havent helped me yet and I am not so

anxious to keep taking more and more. Already my liver enzymes have increased. I

am too scared to get them checked again since the last time becasue too much

increase and I have to get off everything before I got any relief.

So adding more supplements as well as the Plaq with all its side effects

including nausea and hair loss among many, I cant help but worry about my liver

and just feelign worse. I did begin the Plaq and my exisiting nausea (not

related to the Sjogrens, 2 different set of problems) is worse despite taking

half a pill,. but the whole point was to do something that can cure not do what

the local rheumatologist down the street can offer. That is why I flew to

another state to see him. I also have been doing the infrared sauna he

recommended (he had said 2 Lupus patients recovered completely from infrared

alone) over the phone months ago, I did it daily for 2 months for 1-3 hours.

That is how desperate I am. So far it hasn't helped me. I doubt the Plaq will

work even for temp relief but I am hesitantly trying it, I worry though, that if

anything works even a little it will be the Plaq and yet I will be giving credit

to the supplements because I want it to be them as they are

less likely to cause problems and I certainly dont need to go to the eye doctor

regularly to make sure the Plaq didnt cause problems in my eyes if I was only on

supplements and antibiotics.

I've done tons of cleanses, stayed off wheat, ate fresh foods and vegetables,

stayed away from sweets, taken many supplements and antibitics, and no

improvment at all. All I have managed to do is give myself a toxic liver and not

one doc will address that.

I feel like I have less hope than before.

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.