Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 this is one of the sites that speaks of their danger http://www.ericdavisdental.com/root_canals.htm there are more Re: rheumatic Yucky Plaquenil RX'd by Antibiotic Doc - Sorry kinda long All the traditional doctors RX this for Sjogrens or else say it only helps for joint pain and offer nothing for the rest of the worse symptoms. I also have peripheral neuropathy and unexplained constant dizziness which is the worst. One ear doc said it was permanent inner ear damage caused by a virsus (wish he had said bacteria at least so I feel like I stand a shot) but this wasnt confirmed by others so I kept hoping antibiotics could help me. So when I went to see yet another antibiotic doctor, I was so disappointed that he would RX me this drug. He claimed it killed so many viruses and was better than taking Valtrex becasue it was more of a general drug and could kill more things, which he said was necessary since we can't pinpoint what virus(es) was causing me this horrible situation for so long. So I asked if the patients who it had helped could get off it, he said no. So I dont get how then it could get rid of viruses if you have to stay on it for life. I told him I went to see him because he had offered a cure. The way antibiotics are suppose to be as close to a cure as possible. He said I could continue on Doxy but for some reason he didnt really push it. I asked if I should take it twice a day as now I only take once at 100mg and he said no need. I asked if I should add other antibiotcs into the mix and he said no, yet others have with success. Not SS patients but others with diseases in the same family. He seemed to think my problem was both viral and bacterial yet seemed to think the viral was worse. I have been taking Doxy since last summer and I recall one SS patient saying that she lost a lot of time taking Mino only when she should have been doing a combined antibiotic protocol. She had improved, but was nowhere near normal. She was hoping she would get closer to normal someday. So far I dont think she has but I havent talked to her. But she was one of several who told me our problems are bacterial not viral. Yet this is not what even this alternative doc is telling me, a doc that prescribes antibiotics for rheumatic diseases all the time. Anyway, for a *cure* he said I had to do something called " methylation " had me buy 3 supplements and I got an RX for some cream I have to get at a compounding pharmacy. But the supplements were somewhat common. They were just slightly different forms of the common supplement. He also said I can stay on some of the supplements I was currently taking but thye havent helped me yet and I am not so anxious to keep taking more and more. Already my liver enzymes have increased. I am too scared to get them checked again since the last time becasue too much increase and I have to get off everything before I got any relief. So adding more supplements as well as the Plaq with all its side effects including nausea and hair loss among many, I cant help but worry about my liver and just feelign worse. I did begin the Plaq and my exisiting nausea (not related to the Sjogrens, 2 different set of problems) is worse despite taking half a pill,. but the whole point was to do something that can cure not do what the local rheumatologist down the street can offer. That is why I flew to another state to see him. I also have been doing the infrared sauna he recommended (he had said 2 Lupus patients recovered completely from infrared alone) over the phone months ago, I did it daily for 2 months for 1-3 hours. That is how desperate I am. So far it hasn't helped me. I doubt the Plaq will work even for temp relief but I am hesitantly trying it, I worry though, that if anything works even a little it will be the Plaq and yet I will be giving credit to the supplements because I want it to be them as they are less likely to cause problems and I certainly dont need to go to the eye doctor regularly to make sure the Plaq didnt cause problems in my eyes if I was only on supplements and antibiotics. I've done tons of cleanses, stayed off wheat, ate fresh foods and vegetables, stayed away from sweets, taken many supplements and antibitics, and no improvment at all. All I have managed to do is give myself a toxic liver and not one doc will address that. I feel like I have less hope than before. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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